Guest guest Posted September 30, 2011 Report Share Posted September 30, 2011 I have had 2 de-tetherings in 2 years and I believe I need another one. Does anyone know how many times a person can do this? I do know if you are having symtoms then the surgery should not be put off due to complications that cannot be reversed. I would like to know how many surgeries one can handle? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2011 Report Share Posted October 1, 2011 Agree with Jan. I was born with Spina Bifida and began having TC symptoms at age 25. One surgeon wanted to do surgery RIGHT now. I went to another surgeon and he said, " You tell me when the pain is too much and we'll do surgery. " I had it 4 years later, just shy of my 30th birthday, after my left leg started getting weaker. I ended up in a wheelchair due to complications of recovery but the pain was gone. I was never told TC could come back but I knew what it was when I woke up one morning with pain. Had an MRI but the doctor was reluctant to do surgery since my only symptom was pain. He said I could end up worse that (already) being in a wheelchair. I'm still trying to find a pain med that works (without side effects) but it's better than going through the surgery. I cried the morning the pain started because I remember how horrible the surgery was (for me) the 1st time and I didn't want to go through THAT again. Jodi >Hello Jen, I realy like to respond on this, First of all you're right. But wath option did you have if you wait longer. On the end you need it anyway. But i agree Do not have a surgery to fast . Maby they should first look to new options like corection surgery. But only do the TC if no other option is avaible. It is just to worse for words that they not try other options first. A orthopedic surgian must have a much bigger place it a SB-team. No Doubt about this. They do not know enough about this now. Just my opinion. Jan Willem Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2011 Report Share Posted October 3, 2011 Hi Michele, I appreciate all the info you are posting. Do you go to Dr. Oro in Colorado? Did you have full open laminectomies or was your surgery done by scope? > > > Thank you for responding to me, I have spina bifida occulta and I know without the surgery there is a chance of irreversible damage. I don't want to take the chance of dealing with those. Thank you once again, and I hope the best for yourr daughter she is very brave. > > > > ________________________________ > > > > To: tetheredspinalcord > > Sent: Friday, September 30, 2011 7:47 AM > > Subject: Re: Re: how many times > > > > > > My daughter has had four. I don't think she would try again but I was > > surprised she wanted the fourth. > > > > In a message dated 9/30/2011 2:15:06 A.M. Central Daylight Time, > > micheled723@... writes: > > > > I have had 2 de-tetherings in 2 years and I believe I need another one. > > Does anyone know how many times a person can do this? I do know if you are > > having symtoms then the surgery should not be put off due to complications > > that cannot be reversed. I would like to know how many surgeries one can > > handle? > > > > Quote Link to comment Share on other sites More sharing options...
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