Re: abx and resistance

[Guest guest]

Yes, they are fed anti's here in U.S. Wrote about this last week, hope it posted OK. Was married to professor in the dairy industry for 30 yrs, so familiar with many ag issues.

Kay abx and resistance

hi all,just a comment on livestock being fed abx - they are in Australia - are you sure they're not in US, Europe, where-ever your meat is imported from? I rang my local supermarket some time back, he told me quite openly that all livestock were, to prevent mass outbreaks of infection because herded, milked etc etc togetherJust think about it, the best way to build abx resistance is under- dose, break off the course, stop-start etc - leaving some bacteria behind, which can and do develop resistance.A 2nd factor is that is that because lungs don't have lots blood supply (by which means abx is carried) generally a little pocket of bacteria is left. The longer the stage of bronch, the more likely this happens,... it's just the way it goes, same with diabetes, many diseases develop and change and have their particular characteristics.Suzanne, if you have the kind of internet capacity, I really do recommend having a look at the program - not all TV is sensational (in fact - rather dull if not to your interest).cheers,joy

[Guest guest]

Hey there!Yes the antibiotic issues in our food scare the H''' out of me! I buy onlyorganic milk, eggs, chicken and pork. We do not eat beef. I realizeI am probably quite naive about this issue, but when Sammy was 3(6 years ago) and 3 years before his bronchiectasis diagnosis, he had Clostridium Difficile. Often, this is a disease that takeslives in a miserable way. It's brought on by wide-spectrumantibiotics, such as cephalasporins(sp?) such as Omicefand Rocefin.I cannot begin to imagine what the farmers are feedingtheir cows, etc. I was married to a farmer many yearsago, and we raised some livestock. We gave themantibiotics, only when they got a kind of 'kennel cough'.Now I would not feed my own Sammy any of the meatthat I helped my former husband raise! How

timesand perspectives change. So I hope all daysare easier for you, Joy. You are more thananyone I know, SO deserving of comfort and peace. KrisSubject: Re: abx and resistanceTo: bronchiectasis Date: Tuesday, May 17, 2011, 5:30 PM

Yes, they are fed anti's here in U.S. Wrote about this last week, hope it posted OK. Was married to professor in the dairy industry for 30 yrs, so familiar with many ag issues.

Kay abx and resistance

hi all,just a comment on livestock being fed abx - they are in Australia - are you sure they're not in US, Europe, where-ever your meat is imported from? I rang my local supermarket some time back, he told me quite openly that all livestock were, to prevent mass outbreaks of infection because herded, milked etc etc togetherJust think about it, the best way to build abx resistance is under- dose, break off the course, stop-start etc - leaving some bacteria behind, which can and do develop resistance.A 2nd factor is that is that because lungs don't have lots blood supply (by which means abx is carried) generally a little pocket of bacteria is left. The longer the stage of bronch, the more likely this happens,... it's just the way it goes, same with diabetes, many diseases develop and change and have their particular characteristics.Suzanne, if you have the kind of internet capacity, I

really do recommend having a look at the program - not all TV is sensational (in fact - rather dull if not to your interest).cheers,joy

[Guest guest]

I had Clostridium Difficile (C Diff) about 15 years ago from an antibiotic that I had taken many times previously. I was taking the antibiotic for a sinus infection. I was hospitalized since I had fluid deficit hypotension from the severe diarrhea. My blood pressure was 70/30 when I arrived at my doctor's office after having driven about 15 miles. Then shortly before I was discharged from the hospital, they gave me Cipro, and that is when I had the reaction to Cipro. Now when I am hospitalized from pseudomonas pneumonia and am given an iv antibiotic that causes diarrhea, they check for the C Diff toxin.

Norma

To: bronchiectasis Sent: Tue, May 17, 2011 9:04:08 PMSubject: Re: abx and resistance

Hey there!Yes the antibiotic issues in our food scare the H''' out of me! I buy onlyorganic milk, eggs, chicken and pork. We do not eat beef. I realizeI am probably quite naive about this issue, but when Sammy was 3(6 years ago) and 3 years before his bronchiectasis diagnosis, he had Clostridium Difficile. Often, this is a disease that takeslives in a miserable way. It's brought on by wide-spectrumantibiotics, such as cephalasporins(sp?) such as Omicefand Rocefin.I cannot begin to imagine what the farmers are feedingtheir cows, etc. I was married to a farmer many yearsago, and we raised some livestock. We gave themantibiotics, only when they got a kind of 'kennel cough'.Now I would not feed my own Sammy any of the meatthat I helped my former husband raise! How timesand perspectives change. So I hope all daysare easier for you,

Joy. You are more thananyone I know, SO deserving of comfort and peace. Kris

Subject: Re: abx and resistanceTo: bronchiectasis Date: Tuesday, May 17, 2011, 5:30 PM

Yes, they are fed anti's here in U.S. Wrote about this last week, hope it posted OK. Was married to professor in the dairy industry for 30 yrs, so familiar with many ag issues.

Kay abx and resistance

hi all,just a comment on livestock being fed abx - they are in Australia - are you sure they're not in US, Europe, where-ever your meat is imported from? I rang my local supermarket some time back, he told me quite openly that all livestock were, to prevent mass outbreaks of infection because herded, milked etc etc togetherJust think about it, the best way to build abx resistance is under- dose, break off the course, stop-start etc - leaving some bacteria behind, which can and do develop resistance.A 2nd factor is that is that because lungs don't have lots blood supply (by which means abx is carried) generally a little pocket of bacteria is left. The longer the stage of bronch, the more likely this happens,... it's just the way it goes, same with diabetes, many diseases develop and change and have their particular characteristics.Suzanne, if you have the kind of internet capacity, I

really do recommend having a look at the program - not all TV is sensational (in fact - rather dull if not to your interest).cheers,joy

[Guest guest]

what was it you posted Kay? Maybe I missed it in all our mayhem...

joy

[Guest guest]

hi Norma,

gee it gets complicated doesn't it? So hard. Am sure most of us can

relate to what that kind of experience means, tedious hours in ED, or

tests etc before getting things right ... and then some more...

Something I'm noting with more and more consistency - just how many

of us have Psa (Pseudomonas) although not CF. It seems largely

considered by medical fraternity to be a CF infx mostly. I know here

there are small steps toward overlapping bronch and non-CF bronch in

terms of management. About time ... ? I have 3 forms of it, and

told by Dr that CF pts can have as many as 6 variations of Psa.

How many of us are there with Psa?

Joy h

[Guest guest]

I've been told by 3 different pulmonologist that by the time bronchiectasis is

severe enough to be diagnosed (typically by a CT scan), the patient already has

pseudomonas. Before that, it's usually thought of as asthma or asthmatic

bronchitis etc.

It's the pseudomonas that causes us the most trouble and makes us sick. And

it's an infection that is virtually impossible to be rid of, even with long-term

antibiotics. I was told that this is why pulmonologists now treat

bronchiectasis the way they treat CF - much more in common with CF than other

obstructive respiratory diseases.

Suzanne

[Guest guest]

Hi Suzanne,

I've often wondered.... hmm, I was dx with bronch at 18 years

old, & hadroughly same number of ops plus hospitalisation no surgery.

So by the time Psa was picked up age circa 50 how long had it been

there? I had a long break away from hospitals except for a pneumonia

circa age 30, a bad exacerbation circa 40 yrs old and went to

outpatients for physio for quite a few months.

Purely rhetorical question, along the lines of how long before things dx

joy

[Guest guest]

No problem. Can't remember exactly which one it was anyway...

Kay Re: abx and resistance

what was it you posted Kay? Maybe I missed it in all our mayhem...joy

[Guest guest]

Suzanne, interesting I was reminded of this by the Doctor I have at Mayo Clinic. He has a CF Doctor working on my case with him.

Subject: Re: abx and resistanceTo: bronchiectasis Date: Friday, May 20, 2011, 8:57 AM

I've been told by 3 different pulmonologist that by the time bronchiectasis is severe enough to be diagnosed (typically by a CT scan), the patient already has pseudomonas. Before that, it's usually thought of as asthma or asthmatic bronchitis etc. It's the pseudomonas that causes us the most trouble and makes us sick. And it's an infection that is virtually impossible to be rid of, even with long-term antibiotics. I was told that this is why pulmonologists now treat bronchiectasis the way they treat CF - much more in common with CF than other obstructive respiratory diseases. Suzanne

[Guest guest]



Joan in Florida has psa

Re: abx and resistanceTo: bronchiectasis Date: Friday, May 20, 2011, 8:57 AM

I've been told by 3 different pulmonologist that by the time bronchiectasis is severe enough to be diagnosed (typically by a CT scan), the patient already has pseudomonas. Before that, it's usually thought of as asthma or asthmatic bronchitis etc. It's the pseudomonas that causes us the most trouble and makes us sick. And it's an infection that is virtually impossible to be rid of, even with long-term antibiotics. I was told that this is why pulmonologists now treat bronchiectasis the way they treat CF - much more in common with CF than other obstructive respiratory diseases. Suzanne

No virus found in this message.Checked by AVG - www.avg.comVersion: 10.0.1375 / Virus Database: 1509/3649 - Release Date: 05/20/11

[Guest guest]

hi Norma,

gee it gets complicated doesn't it? So hard. Am sure most of us

can

relate to what that kind of experience means, tedious hours in ED,

or

tests etc before getting things right ... and then some more...

Something I'm noting with more and more consistency - just how

many

of us have Psa (Pseudomonas) although not CF. It seems largely

considered by medical fraternity to be a CF infx mostly. I know

here

there are small steps toward overlapping bronch and non-CF bronch

in

terms of management. About time ... ? I have 3 forms of it, and

told by Dr that CF pts can have as many as 6 variations of Psa.

How many of us are there with Psa?

My mother has Psa.

Joy h

--

Herb Schilling

[Guest guest]

Hi Herb,

COUNT ME IN!

EILEEN

Subject: Re: abx and resistanceTo: bronchiectasis Date: Friday, May 20, 2011, 8:55 PM

hi Norma,gee it gets complicated doesn't it? So hard. Am sure most of us canrelate to what that kind of experience means, tedious hours in ED, ortests etc before getting things right ... and then some more...Something I'm noting with more and more consistency - just how manyof us have Psa (Pseudomonas) although not CF. It seems largelyconsidered by medical fraternity to be a CF infx mostly. I know herethere are small steps toward overlapping bronch and non-CF bronch interms of management. About time ... ? I have 3 forms of it, andtold by Dr that CF pts can have as many as 6 variations of Psa.How many of us are there with Psa?

My mother has Psa.

Joy h

--

Herb Schilling

[Guest guest]

who discussed a med newly released by FDA for non infectious TB? it started with a Z. thanks, Joan

Re: abx and resistance

hi Norma,gee it gets complicated doesn't it? So hard. Am sure most of us canrelate to what that kind of experience means, tedious hours in ED, ortests etc before getting things right ... and then some more...Something I'm noting with more and more consistency - just how manyof us have Psa (Pseudomonas) although not CF. It seems largelyconsidered by medical fraternity to be a CF infx mostly. I know herethere are small steps toward overlapping bronch and non-CF bronch interms of management. About time ... ? I have 3 forms of it, andtold by Dr that CF pts can have as many as 6 variations of Psa.How many of us are there with Psa?

My mother has Psa.

Joy h

--

Herb Schilling

No virus found in this message.Checked by AVG - www.avg.comVersion: 10.0.1375 / Virus Database: 1509/3649 - Release Date: 05/20/11

[Guest guest]

Hi Herb you can also count me in Joy L

Subject: Re: abx and resistanceTo: bronchiectasis Date: Friday, May 20, 2011, 8:55 PM

hi Norma,gee it gets complicated doesn't it? So hard. Am sure most of us canrelate to what that kind of experience means, tedious hours in ED, ortests etc before getting things right ... and then some more...Something I'm noting with more and more consistency - just how manyof us have Psa (Pseudomonas) although not CF. It seems largelyconsidered by medical fraternity to be a CF infx mostly. I know herethere are small steps toward overlapping bronch and non-CF bronch interms of management. About time ... ? I have 3 forms of it, andtold by Dr that CF pts can have as many as 6 variations of Psa.How many of us are there with Psa?

My mother has Psa.

Joy h

--

Herb Schilling

[Guest guest]

Hi Herb & all - My last sputum culture showed Psa and the Dr. said levaquin still works on it.........so put me on your list. However, even though I have Psa I am not on levaquin yet. Am holding my own, which is a lot of work. I keep checking for a fever.

Joy - so happy for you and your new house.........it sounds very nice.

Kris - how was Sammy's report from Mayo? Sure hope he got a good report and he can play baseball this summer.

Sharyn

To: bronchiectasis Sent: Fri, May 20, 2011 7:55:00 PMSubject: Re: abx and resistance

hi Norma,gee it gets complicated doesn't it? So hard. Am sure most of us canrelate to what that kind of experience means, tedious hours in ED, ortests etc before getting things right ... and then some more...Something I'm noting with more and more consistency - just how manyof us have Psa (Pseudomonas) although not CF. It seems largelyconsidered by medical fraternity to be a CF infx mostly. I know herethere are small steps toward overlapping bronch and non-CF bronch interms of management. About time ... ? I have 3 forms of it, andtold by Dr that CF pts can have as many as 6 variations of Psa.How many of us are there with Psa?

My mother has Psa.

Joy h

--

Herb Schilling

[Guest guest]

Another Psa victim counting in - Barry (bronch. patient) -  just spent 2 weeks in the hospital getting 12 hrs. of Doripenem infusions per day, for a total of 2 weeks.  When a culture was done prior to the infusions it was found that Doripenem was the ONLY drug that would KILL Psa.  We'll discover this week if it did.

Jackie

 

 

Hi Herb & all - My last sputum culture showed Psa and the Dr. said levaquin still works on it.........so put me on your list.  However, even though I have Psa I am not on levaquin yet.  Am holding my own, which is a lot of work.  I keep checking for a fever.

 

Joy - so happy for you and your new house.........it sounds very nice. 

Kris - how was Sammy's report from Mayo?  Sure hope he got a good report and he can play baseball this summer.

Sharyn

To: bronchiectasis

Sent: Fri, May 20, 2011 7:55:00 PM Subject: Re: abx and resistance 

 

hi Norma, gee it gets complicated doesn't it? So hard. Am sure most of us canrelate to what that kind of experience means, tedious hours in ED, ortests etc before getting things right ... and then some more...

Something I'm noting with more and more consistency - just how manyof us have Psa (Pseudomonas) although not CF. It seems largelyconsidered by medical fraternity to be a CF infx mostly. I know herethere are small steps toward overlapping bronch and non-CF bronch in

terms of management. About time ... ? I have 3 forms of it, andtold by Dr that CF pts can have as many as 6 variations of Psa.How many of us are there with Psa?

My mother has Psa.

Joy h

--

Herb Schilling

[Guest guest]

Hello Sharyn, I sure hope that this finds you doing well, sweetie.Yes Sam and I just returned back to Orlando from Rochester,Mn last week.I am so relieved to report that he got amazing news from his pulm dr.I was not aware of the fact that his rib cage was actually beginning to'bow' outward, a few years ago. The xray done on May 10th shows that his rib cage has actually nearly completely corrected itself.The primary reason we took Sam to Mayo two years ago was that hewas absolutely unable to keep up with his peers, on any level. Hewas taking 2 naps a day and sleeping 11-13 hours each night. He wasstill ALWAYS exhausted. Turns out that his lungs, VERY likely as manyof you may have had, his lungs were SO swollen with infection that theywere pushing his rib cage outward and pushing up

against his heartmuscle wall, thus exhausting him! Not one of the 'specialists' we sawhere in Orlando for 4 years, had any idea why Sam was SO tired.He was a 7yr old boy sleeping like a new born baby- ALL THE TIME!Then Mayo took all that and studied Sam inside & out & spentdays looking him over and doing more and more tests on him.All the cardiac tests showed stress in his heart muscle, but notinternal stress. That told the drs to look at what could betaxing his little body from the inside! Thank God they didn'tjust pass us off like a couple of overly protective parents!His heart is functioning normally again and he's no longertaking naps at all! We waited too long to go to Mayo,thinking that since we were seeing 7-8 sub specialists inOrlando so many of them each month, we were doing the right thing. Well, boy were we wrong!He's nearly cured, I

say hesitantly... He has been toldto reduce his vest and neb treatments to only 1 timeper day. The Mayo pulm dr also said that if he getsand inf try to keep the treatments down to once a dayunless he's having a tough time, then increase it back up to double that or more...He is not sked to return to Mayo until next May, then hesaid that if Sam has done well, then we will STOP allvest and meds and see how Sam does for the next year.Then in May 2013, if Sam has shown he doesn't needall the meds, Sam will be considered cured.... SOIt's all abit premature, but I am quite hopeful.Do any of you have any idea of what your rib cageslook like? How about the pressure againstyour heart muscle wall? Who ever would havethought that, by the age of 6, your heart andrib cage could be affected by chronic lung inf.??And affected so greatly! I am nothing short ofamazed

at how much so many of you deal witheach time you take a breath. I now have hope because of Mayo Clinic, that Sam can lead anormal life!I will continue to read and add remarks here.I am ever so grateful to all of you & for all the help we all offer to complete strangers. Kindred spirits, aren't we? Breathe easy and Best wishes! -eAnd Thank You so much for all the concernfor my

little man, just turned 9yrs old!Subject: Re: abx and resistanceTo: bronchiectasis Date: Sunday, May 22, 2011, 12:04 PM

Hi Herb & all - My last sputum culture showed Psa and the Dr. said levaquin still works on it.........so put me on your list. However, even though I have Psa I am not on levaquin yet. Am holding my own, which is a lot of work. I keep checking for a fever.

Joy - so happy for you and your new house.........it sounds very nice.

Kris - how was Sammy's report from Mayo? Sure hope he got a good report and he can play baseball this summer.

Sharyn

To: bronchiectasis Sent: Fri, May 20, 2011 7:55:00 PMSubject: Re: abx and resistance

hi Norma,gee it gets complicated doesn't it? So hard. Am sure most of us canrelate to what that kind of experience means, tedious hours in ED, ortests etc before getting things right ... and then some more...Something I'm noting with more and more consistency - just how manyof us have Psa (Pseudomonas) although not CF. It seems largelyconsidered by medical fraternity to be a CF infx mostly. I know herethere are small steps toward overlapping bronch and non-CF bronch interms of management. About time ... ? I have 3 forms of it, andtold by Dr that CF pts can have as many as 6 variations of Psa.How many of us are there with Psa?

My mother has Psa.

Joy h

--

Herb Schilling

[Guest guest]

What stupendous news... I am so very happy for Sam and for you!

Kay Re: abx and resistance

hi Norma,gee it gets complicated doesn't it? So hard. Am sure most of us canrelate to what that kind of experience means, tedious hours in ED, ortests etc before getting things right ... and then some more...Something I'm noting with more and more consistency - just how manyof us have Psa (Pseudomonas) although not CF. It seems largelyconsidered by medical fraternity to be a CF infx mostly. I know herethere are small steps toward overlapping bronch and non-CF bronch interms of management. About time ... ? I have 3 forms of it, andtold by Dr that CF pts can have as many as 6 variations of Psa.How many of us are there with Psa?

My mother has Psa.

Joy h

--

Herb Schilling

[Guest guest]

e - WOW! I just read your email about Sammy and that is such fabulous news. I am so happy for Sammy and for the parents. That is great news. Had never thought about the rib cage or the stress on the heart muscle. Be sure to keep in touch with us all...... giving us updates. So happy for Sammy.

Sharyn

To: bronchiectasis Sent: Sun, May 22, 2011 10:35:02 PMSubject: Re: abx and resistance

Hello Sharyn, I sure hope that this finds you doing well, sweetie.Yes Sam and I just returned back to Orlando from Rochester,Mn last week.I am so relieved to report that he got amazing news from his pulm dr.I was not aware of the fact that his rib cage was actually beginning to'bow' outward, a few years ago. The xray done on May 10th shows that his rib cage has actually nearly completely corrected itself.The primary reason we took Sam to Mayo two years ago was that hewas absolutely unable to keep up with his peers, on any level. Hewas taking 2 naps a day and sleeping 11-13 hours each night. He wasstill ALWAYS exhausted. Turns out that his lungs, VERY likely as manyof you may have had, his lungs were SO swollen with infection that theywere pushing his rib cage outward and pushing up against his heartmuscle wall, thus exhausting him! Not one of the

'specialists' we sawhere in Orlando for 4 years, had any idea why Sam was SO tired.He was a 7yr old boy sleeping like a new born baby- ALL THE TIME!Then Mayo took all that and studied Sam inside & out & spentdays looking him over and doing more and more tests on him.All the cardiac tests showed stress in his heart muscle, but notinternal stress. That told the drs to look at what could betaxing his little body from the inside! Thank God they didn'tjust pass us off like a couple of overly protective parents!His heart is functioning normally again and he's no longertaking naps at all! We waited too long to go to Mayo,thinking that since we were seeing 7-8 sub specialists inOrlando so many of them each month, we were doing the right thing. Well, boy were we wrong!He's nearly cured, I say hesitantly... He has been toldto reduce his vest and neb

treatments to only 1 timeper day. The Mayo pulm dr also said that if he getsand inf try to keep the treatments down to once a dayunless he's having a tough time, then increase it back up to double that or more...He is not sked to return to Mayo until next May, then hesaid that if Sam has done well, then we will STOP allvest and meds and see how Sam does for the next year.Then in May 2013, if Sam has shown he doesn't needall the meds, Sam will be considered cured.... SOIt's all abit premature, but I am quite hopeful.Do any of you have any idea of what your rib cageslook like? How about the pressure againstyour heart muscle wall? Who ever would havethought that, by the age of 6, your heart andrib cage could be affected by chronic lung inf.??And affected so greatly! I am nothing short ofamazed at how much so many of you deal witheach time you take a

breath. I now have hope because of Mayo Clinic, that Sam can lead anormal life!I will continue to read and add remarks here.I am ever so grateful to all of you & for all the help we all offer to complete strangers. Kindred spirits, aren't we? Breathe easy and Best wishes! -eAnd Thank You so much for all the concernfor my little man, just turned 9yrs old!

Subject: Re: abx and resistanceTo: bronchiectasis Date: Sunday, May 22, 2011, 12:04 PM

Hi Herb & all - My last sputum culture showed Psa and the Dr. said levaquin still works on it.........so put me on your list. However, even though I have Psa I am not on levaquin yet. Am holding my own, which is a lot of work. I keep checking for a fever.

Joy - so happy for you and your new house.........it sounds very nice.

Kris - how was Sammy's report from Mayo? Sure hope he got a good report and he can play baseball this summer.

Sharyn

To: bronchiectasis Sent: Fri, May 20, 2011 7:55:00 PMSubject: Re: abx and resistance

hi Norma,gee it gets complicated doesn't it? So hard. Am sure most of us canrelate to what that kind of experience means, tedious hours in ED, ortests etc before getting things right ... and then some more...Something I'm noting with more and more consistency - just how manyof us have Psa (Pseudomonas) although not CF. It seems largelyconsidered by medical fraternity to be a CF infx mostly. I know herethere are small steps toward overlapping bronch and non-CF bronch interms of management. About time ... ? I have 3 forms of it, andtold by Dr that CF pts can have as many as 6 variations of Psa.How many of us are there with Psa?

My mother has Psa.

Joy h

--

Herb Schilling

[Guest guest]

e, what absolutely fabulous news for Sam and for you!!!

I think many of us regret that we didn't go to a major medical teaching hospital

a lot sooner than we did. I know I do. But at least it was not too late to be

able to help Sam.

Did you insurance pay for the time at Mayo's? The bill must have been

enormous!!!

Suzanne

[Guest guest]

hi e,

my ribcage is kind of flat, narrow - doesn't curve outwards like a

normal rib cage. My heart is slightly enlarged but apparently it is

surprising it isn't greatly so given the duration & condition of

lungs. Maybe cos I really did try best I could to keep weight down

and be active...

I feel so for your little Sammy, but glad he's getting the support

from you & we live in a time where we know nothing is 'cured' by abx,

hugs for Sammy,

joy h