Guest guest Posted May 17, 2012 Report Share Posted May 17, 2012 My son start getting negatives from any meds.It seems that his detox system doesn't work .So I can't get him treatment yet until thats figurred out.But if I where you I would try some coffee enemas ,skin brushing,castor oil packs for stomach,and plain water enemas.Maybe thats all it will take.Be sure to use just water enemas first,until all backed up stool is out,before starting on the rest of these ideas. Tammy F. hi everyone, my 3.5 year old son has been on mepron and zithromax for about 3 weeks. the first few days we saw an immediate improvement in his behavior, then after the first week we've been seeing totally irrational and very severe OCD behaviors that he usually does not exhibit. so we stopped the mepron and zithromax for a couple of days and saw the behaviors at a less severe level. then a few hours after we restarted the mepron and zithromax, we saw the irrational behaviors return. i'm confused as to why there was very good improvement the very first time he took mepron and zithromax, and that we never saw the improvements again, even after stopping and restarting the 2 meds. does this mean we have to add another med, or raise the dose, or lower the dose, or just wait it out? and has anyone had this relapse in behaviors and for how long? thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2012 Report Share Posted May 17, 2012 Which infections are you dealing with, exactly? Also, have you checked immune function?Sent from my iPhone hi everyone, my 3.5 year old son has been on mepron and zithromax for about 3 weeks. the first few days we saw an immediate improvement in his behavior, then after the first week we've been seeing totally irrational and very severe OCD behaviors that he usually does not exhibit. so we stopped the mepron and zithromax for a couple of days and saw the behaviors at a less severe level. then a few hours after we restarted the mepron and zithromax, we saw the irrational behaviors return. i'm confused as to why there was very good improvement the very first time he took mepron and zithromax, and that we never saw the improvements again, even after stopping and restarting the 2 meds. does this mean we have to add another med, or raise the dose, or lower the dose, or just wait it out? and has anyone had this relapse in behaviors and for how long? thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2012 Report Share Posted May 17, 2012 This has happened to my son with EVERYTHING we've ever done. He'd improve, and then 2 weeks later, he'd keep some of the gains, and regession happened (more stimming, less language, not sleeping, etc...). In fact, we are only 1 week into the Mepron and this started again last night.How do you support a kid who is HYPER immune? He has normal IgG's. IgE's are high. Immune modulators? We are scared to make it worse......but their has to be a reason why this happens every time.ChrisSent from my Verizon Wireless BlackBerrySender: BorreliaMultipleInfectionsAndAutism Date: Thu, 17 May 2012 13:26:33 -0400To: BorreliaMultipleInfectionsAndAutism <BorreliaMultipleInfectionsAndAutism >ReplyTo: BorreliaMultipleInfectionsAndAutism Subject: Re: irrational behaviors with mepron---is this ok? Which infections are you dealing with, exactly? Also, have you checked immune function?Sent from my iPhone hi everyone,my 3.5 year old son has been on mepron and zithromax for about 3 weeks. the first few days we saw an immediate improvement in his behavior, then after the first week we've been seeing totally irrational and very severe OCD behaviors that he usually does not exhibit. so we stopped the mepron and zithromax for a couple of days and saw the behaviors at a less severe level. then a few hours after we restarted the mepron and zithromax, we saw the irrational behaviors return. i'm confused as to why there was very good improvement the very first time he took mepron and zithromax, and that we never saw the improvements again, even after stopping and restarting the 2 meds. does this mean we have to add another med, or raise the dose, or lower the dose, or just wait it out? and has anyone had this relapse in behaviors and for how long?thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2012 Report Share Posted May 17, 2012 I just stopped giving my son Zithromax today. At first he did great a few weeks ago, and then has gotten worse; OCD, and other behaviors. Also I heard in the news today, that Zithromax is linked to Cardio heart pts, death. Its so frustrating as to, what to do, and so many of our kiddo's sound like they are having the same issues! Wonder if they need to do this like pluse IV antibx's are used? Anyone have ideas? Plus my son does not sleep while on Zithromax, so its so miserable. Allie > > > hi everyone, > > my 3.5 year old son has been on mepron and zithromax for about 3 weeks. the first few days we saw an immediate improvement in his behavior, then after the first week we've been seeing totally irrational and very severe OCD behaviors that he usually does not exhibit. so we stopped the mepron and zithromax for a couple of days and saw the behaviors at a less severe level. then a few hours after we restarted the mepron and zithromax, we saw the irrational behaviors return. i'm confused as to why there was very good improvement the very first time he took mepron and zithromax, and that we never saw the improvements again, even after stopping and restarting the 2 meds. does this mean we have to add another med, or raise the dose, or lower the dose, or just wait it out? and has anyone had this relapse in behaviors and for how long? > > thanks > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2012 Report Share Posted May 18, 2012 My son first developed his PaNDAS OCD symptoms while on Zithromax. Come to think of it, he had been great on omnicef and Mepron and then we switched the omnicef for Zithromax he developed PANDAS. He was on Mepron too. I believe it was an auto immunity causing inflammation of the basal ganglia. We have since been able to resolve the PANDAS 80% but not fully, using Augmentin. I avoid Zithromax. He did well on Mepron. > > hi everyone, > my 3.5 year old son has been on mepron and zithromax for about 3 weeks. the first few days we saw an immediate improvement in his behavior, then after the first week we've been seeing totally irrational and very severe OCD behaviors that he usually does not exhibit. so we stopped the mepron and zithromax for a couple of days and saw the behaviors at a less severe level. then a few hours after we restarted the mepron and zithromax, we saw the irrational behaviors return. i'm confused as to why there was very good improvement the very first time he took mepron and zithromax, and that we never saw the improvements again, even after stopping and restarting the 2 meds. does this mean we have to add another med, or raise the dose, or lower the dose, or just wait it out? and has anyone had this relapse in behaviors and for how long? > thanks > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2012 Report Share Posted May 18, 2012 Actually, this appears to be the typical response to antibiotics amongst those with pleomorphic bacteria such as Lyme. The theory is that it hibernates upon antibiotics, but then stops hibernating. The theory is also that pathogens such as Lyme release neurotoxins when killed, and it's the neurotoxins that cause the symptoms; thus, one gets an increase in symptoms. This is why there is high focus on liver and digestion aides, as well as binders and neuroprotectors to help with this. Also, many will halt or decrease treatments to lessen the impact. At my house, we avoid die-off by doing all of the above because I believe die-off is extremely awful and am concerned about lasting effects from it. To add to all this, antibiotics reduce the necessary good bacteria as well as the bad bacteria. The necessary good bacteria is needed for detoxing and digestion and absorbing nutrients. It is well known that those with autism are low in health bacteria already. So, antibiotics can be troubling to use. This is why many docs use small amounts of antibiotics over a long period with those with autism, or they have other ways of lessening the side effects from the antibiotics, such as cod liver oil and probiotics and yeast-fighters. Love and prayers, Heidi N hi everyone, my 3.5 year old son has been on mepron and zithromax for about 3 weeks. the first few days we saw an immediate improvement in his behavior, then after the first week we've been seeing totally irrational and very severe OCD behaviors that he usually does not exhibit. so we stopped the mepron and zithromax for a couple of days and saw the behaviors at a less severe level. then a few hours after we restarted the mepron and zithromax, we saw the irrational behaviors return. i'm confused as to why there was very good improvement the very first time he took mepron and zithromax, and that we never saw the improvements again, even after stopping and restarting the 2 meds. does this mean we have to add another med, or raise the dose, or lower the dose, or just wait it out? and has anyone had this relapse in behaviors and for how long? thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2012 Report Share Posted May 18, 2012 Every herbal immune booster I have used has given me great results. You don't really have total high immunity; you only have parts of the immune system high. So, whenever you have some parts of the immune system high, you will have some parts low. The Th1/Th2 balance is a good explanation as to this. My immune system over-reacts to chemicals and under-reacts to intracellular pathogens, which is actually what is typically reported amongst the autism community. This is why people display food allergies, but not enough to kill pathogens. Some people say to be worried about immune boosters and only take immune modulators, but they both make me feel better. My current favorites for the immune system are bee products (pollen, propolis), African Mango, and my new favorite is Nigella Sativa, often referred to as Black Seed. (Note: other herbs may also be called Black Seed, but are a different herb.) Taking African Mango and Nigella Sativa together is much more effective for me than taking them separate. See what you health care practitioner says about immune system options. Love and prayers, Heidi N How do you support a kid who is HYPER immune? He has normal IgG's. IgE's are high. Immune modulators? We are scared to make it worse......but their has to be a reason why this happens every time. Chris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2012 Report Share Posted May 18, 2012 my son has babesia (and has the strain that's hard to treat) and erlichosis. but the lyme tests have all been negative. his Labcore cd57 test is low at 1.6 (the range is 2-17). he is on mepron and z-max right now. his OCDs are almost intolerable. we are going to add homeopathy to the mix to help his detox. he is nonverbal so he can't tell me if something is hurting or helping him---so how the heck will i know if any of these meds are actually doing anything? > > > hi everyone, > > my 3.5 year old son has been on mepron and zithromax for about 3 weeks. the first few days we saw an immediate improvement in his behavior, then after the first week we've been seeing totally irrational and very severe OCD behaviors that he usually does not exhibit. so we stopped the mepron and zithromax for a couple of days and saw the behaviors at a less severe level. then a few hours after we restarted the mepron and zithromax, we saw the irrational behaviors return. i'm confused as to why there was very good improvement the very first time he took mepron and zithromax, and that we never saw the improvements again, even after stopping and restarting the 2 meds. does this mean we have to add another med, or raise the dose, or lower the dose, or just wait it out? and has anyone had this relapse in behaviors and for how long? > > thanks > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2012 Report Share Posted May 18, 2012 Die-off of microbes causes toxins to be released, are you chelating too? You also have to be giving him a good probiotic. S. irrational behaviors with mepron---is this ok? hi everyone,my 3.5 year old son has been on mepron and zithromax for about 3 weeks. the first few days we saw an immediate improvement in his behavior, then after the first week we've been seeing totally irrational and very severe OCD behaviors that he usually does not exhibit. so we stopped the mepron and zithromax for a couple of days and saw the behaviors at a less severe level. then a few hours after we restarted the mepron and zithromax, we saw the irrational behaviors return. i'm confused as to why there was very good improvement the very first time he took mepron and zithromax, and that we never saw the improvements again, even after stopping and restarting the 2 meds. does this mean we have to add another med, or raise the dose, or lower the dose, or just wait it out? and has anyone had this relapse in behaviors and for how long?thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2012 Report Share Posted May 18, 2012 When you do antibiotics you have to give probiotics because you kill the good bacteria which figh the bad on antibiotics. Also when bad gut bugs die-off they release toxins into the body, you also have to chelate, there are many forms of chelators, natural and or dmps/dmsa, calcium edta. Bacteria, toxins and yeast can't servive whithout each other, if you do not chelate then it will be a never-ending marry-go-round for your child. S. Re: irrational behaviors with mepron---is this ok? I just stopped giving my son Zithromax today. At first he did great a few weeks ago, and then has gotten worse; OCD, and other behaviors. Also I heard in the news today, that Zithromax is linked to Cardio heart pts, death. Its so frustrating as to, what to do, and so many of our kiddo's sound like they are having the same issues! Wonder if they need to do this like pluse IV antibx's are used? Anyone have ideas? Plus my son does not sleep while on Zithromax, so its so miserable.Allie> > > hi everyone,> > my 3.5 year old son has been on mepron and zithromax for about 3 weeks. the first few days we saw an immediate improvement in his behavior, then after the first week we've been seeing totally irrational and very severe OCD behaviors that he usually does not exhibit. so we stopped the mepron and zithromax for a couple of days and saw the behaviors at a less severe level. then a few hours after we restarted the mepron and zithromax, we saw the irrational behaviors return. i'm confused as to why there was very good improvement the very first time he took mepron and zithromax, and that we never saw the improvements again, even after stopping and restarting the 2 meds. does this mean we have to add another med, or raise the dose, or lower the dose, or just wait it out? and has anyone had this relapse in behaviors and for how long?> > thanks > > > >> Quote Link to comment Share on other sites More sharing options...
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