Guest guest Posted June 20, 2011 Report Share Posted June 20, 2011 Much good luck to you and your boy, . His age will work in his favor and I am hoping you are as surprised as I was when my daughter was that age and begging to go to the mall 2 weeks later! Hugs, Randee In a message dated 6/20/2011 7:47:58 A.M. Central Daylight Time, skookie@... writes: Hi all, I joined the group a couple months ago looking for info re tethered cord for my 15 year old son. We have gotten a first and a second opinion, and he will be having TC release surgery next Monday, June 27th. He is having a routine CT scan today to rule out any brain stuff. I guess that is typical? Do any of you have advice for us or for him as we go thruogh this experience? I have read up and have a basic plan for how to keep him occupied during his recovery, but would welcome encouragement or advice. Thank you, -- Jamison Griebenow, _skookie@..._ (mailto:skookie@...) Blessed with husband Greg, Zachary c/s 8/95, Helena Joy HBAC 8/00, and Beren Gustav HB 4/04 ~~~~~~~ Learn more about recovery from a difficult birth here: _http://www.midwiferytoday.com/articles/healing_trauma.asp_ (http://www.midwiferytoday.com/articles/healing_trauma.asp) Our Lord refreshes us on the journey with some pleasant inns, but does not encourage us to mistake them for home. ~~C.S. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2011 Report Share Posted June 20, 2011 HI , Best of luck to him!Just basic advice, like get your own room if you can so you can be with him when you want to. The nurses will not be by his side all the time, and he will need help with everything. Get him some things to do, he may be up for some games, or you reading to him. I don't remember ANYTHING about my stay. Apparently I craved red velvet cupcakes and played checkers!Discuss pain management BEFORE he has surgery, have a good plan in place. Oh and take it easy, just have him stay relaxed and calm. The time flies and he will be home in no time. Lastly you may ask what to do AFTER the surgery.Some people have suggested those grabber things and crutches. There will be no lifting, no bending, no activity. So you may want to get some things for your son to do.My mom and husband had to do everything for me, I was pretty limited, although things do progress and I was able to take my own shower a few days after getting home.Once again- discuss pain management. I had terrible muscle spasms and nerve issues because things were disrupted- ask what to do if other things come up and you need a script/talk to your physician during the weekend etc. Take care! Subject: surgery plans To: tetheredspinalcord Date: Monday, June 20, 2011, 7:44 AM  Hi all, I joined the group a couple months ago looking for info re tethered cord for my 15 year old son. We have gotten a first and a second opinion, and he will be having TC release surgery next Monday, June 27th. He is having a routine CT scan today to rule out any brain stuff. I guess that is typical? Do any of you have advice for us or for him as we go thruogh this experience? I have read up and have a basic plan for how to keep him occupied during his recovery, but would welcome encouragement or advice. Thank you, -- Jamison Griebenow, skookie@... Blessed with husband Greg, Zachary c/s 8/95, Helena Joy HBAC 8/00, and Beren Gustav HB 4/04 ~~~~~~~ Learn more about recovery from a difficult birth here: http://www.midwiferytoday.com/articles/healing_trauma.asp Our Lord refreshes us on the journey with some pleasant inns, but does not encourage us to mistake them for home. ~~C.S. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2011 Report Share Posted June 20, 2011 I would also like to add a few things to 's advice. The advice about having someone there all the time is great -- I too found the nurses did not have much time to help with anything -- I don't know what I would have done without my husband by my side everyday. For the ride home I would recommend having some pillows in the car. Also make sure your son has loose fitting shorts or sweats as he will not want anything tight next to the incision. If you have a laptop some movies would be a great idea once he is feeling well enough to watch them. At home, as mentioned, a grabber is great -- you don't realize how often you drop things til you can't bend! He will also most likely need a raised toilet seat, and possibly a shower seat (I found it easier to stand than sit in the shower but others have found this invaluable). A long handled scrubber would help too, as would a bath mat if your bathtub is at all slippery. After about a week at home I could manage on my own during the day, as long as I had help with showering in the morning and meal items up high where I could reach them. As for walking aids that is very individual, hopefully he won't need anything. I came home without anything after my detethering, but after my spinal fusion I was given a cane. In hindsight I wish I'd had a cane for going for walks after my detethering -- that would have made me feel more sure on my feet. Follow post op instructions carefully -- he will most likely be told to start walking but don't let him overdue it -- there is a risk of a spinal leak early on. Youth is on his side -- he will heal quicker than us older adults!!! You will feel so much better when it's all over -- waiting for the surgery can be more difficult than going through the recovery process. Dee To: tetheredspinalcord From: lilacs007@... Date: Mon, 20 Jun 2011 07:33:53 -0700 Subject: Re: surgery plans HI , Best of luck to him!Just basic advice, like get your own room if you can so you can be with him when you want to. The nurses will not be by his side all the time, and he will need help with everything. Get him some things to do, he may be up for some games, or you reading to him. I don't remember ANYTHING about my stay. Apparently I craved red velvet cupcakes and played checkers!Discuss pain management BEFORE he has surgery, have a good plan in place. Oh and take it easy, just have him stay relaxed and calm. The time flies and he will be home in no time. Lastly you may ask what to do AFTER the surgery.Some people have suggested those grabber things and crutches. There will be no lifting, no bending, no activity. So you may want to get some things for your son to do.My mom and husband had to do everything for me, I was pretty limited, although things do progress and I was able to take my own shower a few days after getting home.Once again- discuss pain management. I had terrible muscle spasms and nerve issues because things were disrupted- ask what to do if other things come up and you need a script/talk to your physician during the weekend etc. Take care! Subject: surgery plans To: tetheredspinalcord Date: Monday, June 20, 2011, 7:44 AM Hi all, I joined the group a couple months ago looking for info re tethered cord for my 15 year old son. We have gotten a first and a second opinion, and he will be having TC release surgery next Monday, June 27th. He is having a routine CT scan today to rule out any brain stuff. I guess that is typical? Do any of you have advice for us or for him as we go thruogh this experience? I have read up and have a basic plan for how to keep him occupied during his recovery, but would welcome encouragement or advice. Thank you, -- Jamison Griebenow, skookie@... Blessed with husband Greg, Zachary c/s 8/95, Helena Joy HBAC 8/00, and Beren Gustav HB 4/04 ~~~~~~~ Learn more about recovery from a difficult birth here: http://www.midwiferytoday.com/articles/healing_trauma.asp Our Lord refreshes us on the journey with some pleasant inns, but does not encourage us to mistake them for home. ~~C.S. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2011 Report Share Posted June 20, 2011 Thank you Dee! I knew I was missing things Subject: surgery plans To: tetheredspinalcord Date: Monday, June 20, 2011, 7:44 AM Hi all, I joined the group a couple months ago looking for info re tethered cord for my 15 year old son. We have gotten a first and a second opinion, and he will be having TC release surgery next Monday, June 27th. He is having a routine CT scan today to rule out any brain stuff. I guess that is typical? Do any of you have advice for us or for him as we go thruogh this experience? I have read up and have a basic plan for how to keep him occupied during his recovery, but would welcome encouragement or advice. Thank you, -- Jamison Griebenow, skookie@... Blessed with husband Greg, Zachary c/s 8/95, Helena Joy HBAC 8/00, and Beren Gustav HB 4/04 ~~~~~~~ Learn more about recovery from a difficult birth here: http://www.midwiferytoday.com/articles/healing_trauma.asp Our Lord refreshes us on the journey with some pleasant inns, but does not encourage us to mistake them for home. ~~C.S. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2011 Report Share Posted June 22, 2011 , thank you so much, everyone's been so warm and helpful on here. I really appreciate it. Dybowski wrote: > HI , > Best of luck to him!Just basic advice, like get your own room if you can so you can be with him when you want to. The nurses will not be by his side all the time, and he will need help with everything. Get him some things to do, he may be up for some games, or you reading to him. I don't remember ANYTHING about my stay. Apparently I craved red velvet cupcakes and played checkers!Discuss pain management BEFORE he has surgery, have a good plan in place. > Oh and take it easy, just have him stay relaxed and calm. The time flies and he will be home in no time. Lastly you may ask what to do AFTER the surgery.Some people have suggested those grabber things and crutches. There will be no lifting, no bending, no activity. So you may want to get some things for your son to do.My mom and husband had to do everything for me, I was pretty limited, although things do progress and I was able to take my own shower a few days after getting home.Once again- discuss pain management. I had terrible muscle spasms and nerve issues because things were disrupted- ask what to do if other things come up and you need a script/talk to your physician during the weekend etc. > Take care! -- Jamison Griebenow, skookie@... Blessed with husband Greg, Zachary c/s 8/95, Helena Joy HBAC 8/00, and Beren Gustav HB 4/04 ~~~~~~~ Learn more about recovery from a difficult birth here: http://www.midwiferytoday.com/articles/healing_trauma.asp Our Lord refreshes us on the journey with some pleasant inns, but does not encourage us to mistake them for home. ~~C.S. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2011 Report Share Posted June 22, 2011 Dee Allaert wrote: > He will also most likely need a raised toilet seat, please explain why? so it's not as far down to go basically? > Youth is on his side -- he will heal quicker than us older adults!!! You will feel so much better when it's all over -- waiting for the surgery can be more difficult than going through the recovery process. Yes, the waiting has become difficult as of today, for me anyway. I am feeling nauseous. It doens't usually hit me that way, but there isn't any other explanation. Thank you all! -- Jamison Griebenow, skookie@... Blessed with husband Greg, Zachary c/s 8/95, Helena Joy HBAC 8/00, and Beren Gustav HB 4/04 ~~~~~~~ Learn more about recovery from a difficult birth here: http://www.midwiferytoday.com/articles/healing_trauma.asp Our Lord refreshes us on the journey with some pleasant inns, but does not encourage us to mistake them for home. ~~C.S. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2011 Report Share Posted June 23, 2011 Yup, that's the reason! You can check with your NS about this, but I was prescribed one for my detether surgery and couldn't have managed without -- the ones with the built in grab bars are the best. Dee To: tetheredspinalcord From: skookie@... Date: Wed, 22 Jun 2011 14:15:41 -0400 Subject: Re: surgery plans Dee Allaert wrote: > He will also most likely need a raised toilet seat, please explain why? so it's not as far down to go basically? > Youth is on his side -- he will heal quicker than us older adults!!! You will feel so much better when it's all over -- waiting for the surgery can be more difficult than going through the recovery process. Yes, the waiting has become difficult as of today, for me anyway. I am feeling nauseous. It doens't usually hit me that way, but there isn't any other explanation. Thank you all! -- Jamison Griebenow, skookie@... Blessed with husband Greg, Zachary c/s 8/95, Helena Joy HBAC 8/00, and Beren Gustav HB 4/04 ~~~~~~~ Learn more about recovery from a difficult birth here: http://www.midwiferytoday.com/articles/healing_trauma.asp Our Lord refreshes us on the journey with some pleasant inns, but does not encourage us to mistake them for home. ~~C.S. Quote Link to comment Share on other sites More sharing options...
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