Re: Leg issues/handicapped parking- Rick

[Guest guest]

Hey Rick,I am actually picking the inserts up this Tuesday. Good to hear that

they have helped you so much, I hope they help me too. DR. Firm wants me back

for another MRI, but I don't know if I need one.

Thanks for sharing, that gives me a bit of hope

Subject: Re: Leg issues/handicapped parking

To: tetheredspinalcord

Date: Sunday, November 6, 2011, 1:11 AM

 

Dybowski said the following on 11/4/2011 3:07 PM:

> Well I have been on Neurontin and that has been working for the last 2 years

almost, plus of course the narcotics BUT I just had a mold done of my feet and

it's pretty bad. I am literally crushing the middle of my foot when I walk, I

suspect due to nerve damage, alignment etc..The legs make my pelvis hurt etc..I

am so over it!!!

>

Great! Having a mold done of your feet is the first thing a orthotist

will do. Then he/she will have you stand on a special (machine for lack

of word) that will tell where the pressure points are compared to where

they are supposed to be. Then he/she will mold you a custom orthotic

that will, over time, attempt to correct your foot pressure. Mine also

have wedges so I dont stand on the sides of my feet. That is the most

common problem. It is amazing how much stress you put on your knees and

hips when you can not stand correctly.

Rick

[Guest guest]

Hi ,

 

I was told that the burning sensation is from nerves. Might want to have that

MRI just to be certain that there's nothing else going on.

 

Kellie

 

..

[Guest guest]

I've been told the same thing...that burning pain is a sign that it's coming

from nerves. I don't have TSC, but my podiatrist recently told me this when I

went to her bc of a severe, burning pain just below the joint of my little toe.

She told me it was most likely from a nerve problem. I have a bulging disc

between L3 and L4, and when I googled an image of " nerve map " , sure enough, this

region of my back is the region that correlates to the area of my body where I

have the pain.

The region you're referring to is also connected to the lumbar section of your

back, so maybe it would be a good idea to have an MRI. Good luck. I hope you

figure it out soon and it can be corrected.

> Hi ,

>

> I was told that the burning sensation is from nerves. Might want to have that

MRI just to be certain that there's nothing else going on.

>

> Kellie

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>

[Guest guest]

You're welcome, hope all works out for the best.

Rick

Dybowski said the following on 11/7/2011 1:22 AM:

> Hey Rick,I am actually picking the inserts up this Tuesday. Good to hear that

they have helped you so much, I hope they help me too. DR. Firm wants me back

for another MRI, but I don't know if I need one.

>

> Thanks for sharing, that gives me a bit of hope

>

>

>

>

>

>

> Subject: Re: Leg issues/handicapped parking

> To: tetheredspinalcord

> Date: Sunday, November 6, 2011, 1:11 AM

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> Dybowski said the following on 11/4/2011 3:07 PM:

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>> Well I have been on Neurontin and that has been working for the last 2 years

almost, plus of course the narcotics BUT I just had a mold done of my feet and

it's pretty bad. I am literally crushing the middle of my foot when I walk, I

suspect due to nerve damage, alignment etc..The legs make my pelvis hurt etc..I

am so over it!!!

>>

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> Great! Having a mold done of your feet is the first thing a orthotist

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> will do. Then he/she will have you stand on a special (machine for lack

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> of word) that will tell where the pressure points are compared to where

>

> they are supposed to be. Then he/she will mold you a custom orthotic

>

> that will, over time, attempt to correct your foot pressure. Mine also

>

> have wedges so I dont stand on the sides of my feet. That is the most

>

> common problem. It is amazing how much stress you put on your knees and

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> hips when you can not stand correctly.

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> Rick

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