Guest guest Posted October 15, 2011 Report Share Posted October 15, 2011 So very very sorry to hear how things have been for you, Michele. I had no idea. Did you see your NSG last week? What was the conclusion? I haven't read posts for a while so I may have missed this. Randee In a message dated 10/15/2011 1:10:26 P.M. Central Daylight Time, micheled723@... writes: Hi Rick After I read your first e-mail on SSDI, I got on the phone with my attorney. I broke down and explained my situation to them, I am about to lose everything and I have been waiting so long for an answer. I did get somewhere like I said when SSA denied me in May due to their mistake, my chart should have been tagged instead it has been approached as if I just applied in May. So my attorney has made it known to SSA how long I have been waiting so from what he told me they should only have my chart for 6 months, and they have had it for 51/2 months so I should be receiving an answer soon. My attorney has wrote me a letter to give to my morgage company to get them off my back. I hope that helps. I am going to go to social services on Monday and apply for some help, I was afraid to do that because I was told I would have to pay that all back. I do have insurance the doctor I work for still pays that for me and he has for the last year that I have not worked. So he will continue to do that until I have an answer. Also SSI will pay me the first 5 months that I do not get any pay for since I have no income, than I will have to pay my attorney 25% of what I am awarded. I hope this happens sooner than later cause I am at the end of my rope.......... I have been living from the help of friends for the past year I do not have any family so I am blessed to have them. I would rather be working then living like this, but I am sure there is light at the end of the tunnel or shall I say cave cause thats what it feels like I am in. Thank you so much for responding, when I read your e-mail the other day I was given hope. And I thank you Michele ________________________________ From: Rick <_rick_lists@..._ (mailto:rick_lists@...) > To: _tetheredspinalcord _ (mailto:tetheredspinalcord ) Sent: Friday, October 14, 2011 9:57 PM Subject: Re: SSDI Hi Michele, I guess I lucked out in finding the right people at the right time. I was checking out at my NSG office in after reviewing my MRI with the NSG. I was talking finances for future followup visits with the receptionist. At this point I had quit my job of 20 years and had no income or health insurance. She suggested Colo Medicaid, SSDI, Medicare, etc. I said I have no clue about that stuff where do I start? There was a nurse or other office person present, she said come with me so we went to her desk. She basically explained the system to me and got me an appointment with a county human services supervisor. So the next day I met with county Human Services. She took a personal interest in my case, got me the SSDI forms, and enrolled in Colo Medicaid. My NSG said there was no surgeon in Colo that would touch my spine and that he would refer me to Dr Spetzler at Barrow Neuro Institute in Phoenix. So I call BNI and they said bring $80K with me for 10% down payment! I told my new case worker that and she said she would get it fast-tracked approved for out of state surgery. I do not what she did or how she did it but this all started in Sept of 97 and I had surgery on Dec 6-97. Colo Medicaid does NOT take any of your SSDI, in fact quite the opposite. As I recall, After a year of SSDI you qualify for Medicare Part A, B & now D. A year later I got a Medicare card in the mail that is dated Sept 1998. Colo Medicaid pays all my Medicare premiums and co-pays. I have not paid a dime for any of my 'traditional' health care since Sept 1997 and I remember a partial refund from Medicaid for that $3,000 MRI I had back before Medicaid. Remember, back in 1997 Medicaid and Medicare, SSDI, etc all had money, now they pretty much do not, or at least it is harder to get. I think you should call up your county Human Services agency and make an appointment with an adult care case worker. Also a face-to-face appointment with Social Security Admin would not hurt. It seems to help when those with approval authority actually see what you are dealing with. I would guess that when they talk to you on the phone they automatically think you are trying to defraud the system. Good luck, let us know how it turns out. Michele Casey said the following on 10/14/2011 10:39 AM: > Hello Rick > > I have applied for ssdi in Feb I was denied in May SSA got the info wrong and thought I was working fulltime, I have had 2 detetherings and I have not been to work since my last one 1 year ago. My surgeries were only 1 year apart, I also was dgn with RA 4 wks after my last surgery, I am still waiting on a decision, and I have an attorney. I am about to lose everything I own. I live in Colorado how did you get on medicaid and did it take anything away from the pay you get from SSDI? I understand that if the government helps you in any way then they deduct it from your payment, or your settlement,. Please help me understand this better. > > Thank you > Michele > > > ________________________________ > From: Rick <_rick_lists@..._ (mailto:rick_lists@...) > > To: _tetheredspinalcord _ (mailto:tetheredspinalcord ) > Sent: Thursday, October 13, 2011 9:54 PM > Subject: Re: SSDI > > > > sweettrillium said the following on 10/11/2011 6:09 AM: > >> I have read a few posts about going on disability. Has anyone with TCS here ever been accepted for assistance? >> >> > > I applied for SSDI and Colo Medicaid in October of 1997 right after I > got my MRI back showing TSC. I filled out the paper work myself except > for the doctors statement. I was approved on December 2-97 and had > surgery Dec 6-97. The 'secret' is having your doctor put on the > application he/she fills out that you can no longer perform the > work/duties that you have been doing in the past and you have no > training or ability to perform other meaningful work. " Meaningful work " > is important especially if you previously held a career type position > where you can no longer perform those duties. > > Rick > > > > > [Non-text portions of this message have been removed] > > > > ------------------------------------ > > NOT MEDICAL ADVICE. We Are Not Doctors. > Need help with list?Email Darlene: _darlene_self@..._ (mailto:darlene_self@...) or > : _hollygolightly1916@..._ (mailto:hollygolightly1916@...) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2011 Report Share Posted October 16, 2011 Hello Randee I am glad to hear from you, no my MRI was rescheduled for this Wed. Then I will see my NS. I have not left the house due to waiting by the phone for disabilitly to call. I am the only person left in the states without a cell phone. lol.... Anyway as you read I hope things will get better soon. I hope to get an answer for disability soon. I have waited too long. And reading some posts that people are awarded, gives me hope. I do have one under age child I am supporting. I will keep you posted this wk what the MRI shows. I am afraid I am tethered so low that even the MRI will not show. The last surgery I was tethered to the sacrum the lowest point, and from what my NS said that cannot be seen on the MRI. Although my NS does not just go by what that shows he also listens to how I feel. And going through this 2 times I can tell the way my body feels. So my best to you and yours and I hope all is well with your daughter.  Love Michele ________________________________ To: tetheredspinalcord Sent: Saturday, October 15, 2011 3:06 PM Subject: Re: SSDI..Michele  So very very sorry to hear how things have been for you, Michele. I had no idea. Did you see your NSG last week? What was the conclusion? I haven't read posts for a while so I may have missed this. Randee In a message dated 10/15/2011 1:10:26 P.M. Central Daylight Time, micheled723@... writes: Hi Rick After I read your first e-mail on SSDI, I got on the phone with my attorney. I broke down and explained my situation to them, I am about to lose everything and I have been waiting so long for an answer. I did get somewhere like I said when SSA denied me in May due to their mistake, my chart should have been tagged instead it has been approached as if I just applied in May. So my attorney has made it known to SSA how long I have been waiting so from what he told me they should only have my chart for 6 months, and they have had it for 51/2 months so I should be receiving an answer soon. My attorney has wrote me a letter to give to my morgage company to get them off my back. I hope that helps. I am going to go to social services on Monday and apply for some help, I was afraid to do that because I was told I would have to pay that all back. I do have insurance the doctor I work for still pays that for me and he has for the last year that I have not worked. So he will continue to do that until I have an answer. Also SSI will pay me the first 5 months that I do not get any pay for since I have no income, than I will have to pay my attorney 25% of what I am awarded. I hope this happens sooner than later cause I am at the end of my rope.......... I have been living from the help of friends for the past year I do not have any family so I am blessed to have them. I would rather be working then living like this, but I am sure there is light at the end of the tunnel or shall I say cave cause thats what it feels like I am in. Thank you so much for responding, when I read your e-mail the other day I was given hope. And I thank you Michele ________________________________ From: Rick <_rick_lists@..._ (mailto:rick_lists@...) > To: _tetheredspinalcord _ (mailto:tetheredspinalcord ) Sent: Friday, October 14, 2011 9:57 PM Subject: Re: SSDI Hi Michele, I guess I lucked out in finding the right people at the right time. I was checking out at my NSG office in after reviewing my MRI with the NSG. I was talking finances for future followup visits with the receptionist. At this point I had quit my job of 20 years and had no income or health insurance. She suggested Colo Medicaid, SSDI, Medicare, etc. I said I have no clue about that stuff where do I start? There was a nurse or other office person present, she said come with me so we went to her desk. She basically explained the system to me and got me an appointment with a county human services supervisor. So the next day I met with county Human Services. She took a personal interest in my case, got me the SSDI forms, and enrolled in Colo Medicaid. My NSG said there was no surgeon in Colo that would touch my spine and that he would refer me to Dr Spetzler at Barrow Neuro Institute in Phoenix. So I call BNI and they said bring $80K with me for 10% down payment! I told my new case worker that and she said she would get it fast-tracked approved for out of state surgery. I do not what she did or how she did it but this all started in Sept of 97 and I had surgery on Dec 6-97. Colo Medicaid does NOT take any of your SSDI, in fact quite the opposite. As I recall, After a year of SSDI you qualify for Medicare Part A, B & now D. A year later I got a Medicare card in the mail that is dated Sept 1998. Colo Medicaid pays all my Medicare premiums and co-pays. I have not paid a dime for any of my 'traditional' health care since Sept 1997 and I remember a partial refund from Medicaid for that $3,000 MRI I had back before Medicaid. Remember, back in 1997 Medicaid and Medicare, SSDI, etc all had money, now they pretty much do not, or at least it is harder to get. I think you should call up your county Human Services agency and make an appointment with an adult care case worker. Also a face-to-face appointment with Social Security Admin would not hurt. It seems to help when those with approval authority actually see what you are dealing with. I would guess that when they talk to you on the phone they automatically think you are trying to defraud the system. Good luck, let us know how it turns out. Michele Casey said the following on 10/14/2011 10:39 AM: > Hello Rick > > I have applied for ssdi in Feb I was denied in May SSA got the info wrong and thought I was working fulltime, I have had 2 detetherings and I have not been to work since my last one 1 year ago. My surgeries were only 1 year apart, I also was dgn with RA 4 wks after my last surgery, I am still waiting on a decision, and I have an attorney. I am about to lose everything I own. I live in Colorado how did you get on medicaid and did it take anything away from the pay you get from SSDI? I understand that if the government helps you in any way then they deduct it from your payment, or your settlement,. Please help me understand this better. > > Thank you > Michele > > > ________________________________ > From: Rick <_rick_lists@..._ (mailto:rick_lists@...) > > To: _tetheredspinalcord _ (mailto:tetheredspinalcord ) > Sent: Thursday, October 13, 2011 9:54 PM > Subject: Re: SSDI > > > > sweettrillium said the following on 10/11/2011 6:09 AM: > >> I have read a few posts about going on disability. Has anyone with TCS here ever been accepted for assistance? >> >> > > I applied for SSDI and Colo Medicaid in October of 1997 right after I > got my MRI back showing TSC. I filled out the paper work myself except > for the doctors statement. I was approved on December 2-97 and had > surgery Dec 6-97. The 'secret' is having your doctor put on the > application he/she fills out that you can no longer perform the > work/duties that you have been doing in the past and you have no > training or ability to perform other meaningful work. " Meaningful work " > is important especially if you previously held a career type position > where you can no longer perform those duties. > > Rick > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2011 Report Share Posted October 17, 2011 K..eager to hear what he says about another surgery. I know disability can be a pain in the butt to get, but hang in with it! It can make your life easier. I know you would love to go back to work but put that away for a time if you can and just get what you need. The MRI will likely look the same (is my understanding) but I think you had a flip flop and/or a CINE and I know that made us feel a bit more secure that our daughter was tightly retethered. Will be waiting to hear the results of your visit on Wednesday. Big Hugs, Randee In a message dated 10/16/2011 3:48:21 P.M. Central Daylight Time, micheled723@... writes: Hello Randee I am glad to hear from you, no my MRI was rescheduled for this Wed. Then I will see my NS. I have not left the house due to waiting by the phone for disabilitly to call. I am the only person left in the states without a cell phone. lol.... Anyway as you read I hope things will get better soon. I hope to get an answer for disability soon. I have waited too long. And reading some posts that people are awarded, gives me hope. I do have one under age child I am supporting. I will keep you posted this wk what the MRI shows. I am afraid I am tethered so low that even the MRI will not show. The last surgery I was tethered to the sacrum the lowest point, and from what my NS said that cannot be seen on the MRI. Although my NS does not just go by what that shows he also listens to how I feel. And going through this 2 times I can tell the way my body feels. So my best to you and yours and I hope all is well with your daughter. Love Michele ________________________________ From: " _Randeejae@..._ (mailto:Randeejae@...) " <_Randeejae@..._ (mailto:Randeejae@...) > To: _tetheredspinalcord _ (mailto:tetheredspinalcord ) Sent: Saturday, October 15, 2011 3:06 PM Subject: Re: SSDI..Michele So very very sorry to hear how things have been for you, Michele. I had no idea. Did you see your NSG last week? What was the conclusion? I haven't read posts for a while so I may have missed this. Randee In a message dated 10/15/2011 1:10:26 P.M. Central Daylight Time, _micheled723@..._ (mailto:micheled723@...) writes: Hi Rick After I read your first e-mail on SSDI, I got on the phone with my attorney. I broke down and explained my situation to them, I am about to lose everything and I have been waiting so long for an answer. I did get somewhere like I said when SSA denied me in May due to their mistake, my chart should have been tagged instead it has been approached as if I just applied in May. So my attorney has made it known to SSA how long I have been waiting so from what he told me they should only have my chart for 6 months, and they have had it for 51/2 months so I should be receiving an answer soon. My attorney has wrote me a letter to give to my morgage company to get them off my back. I hope that helps. I am going to go to social services on Monday and apply for some help, I was afraid to do that because I was told I would have to pay that all back. I do have insurance the doctor I work for still pays that for me and he has for the last year that I have not worked. So he will continue to do that until I have an answer. Also SSI will pay me the first 5 months that I do not get any pay for since I have no income, than I will have to pay my attorney 25% of what I am awarded. I hope this happens sooner than later cause I am at the end of my rope.......... I have been living from the help of friends for the past year I do not have any family so I am blessed to have them. I would rather be working then living like this, but I am sure there is light at the end of the tunnel or shall I say cave cause thats what it feels like I am in. Thank you so much for responding, when I read your e-mail the other day I was given hope. And I thank you Michele ________________________________ From: Rick <__rick_lists@..._ (mailto:_rick_lists@...) _ (mailto:_rick_lists@..._ (mailto:rick_lists@...) ) > To: __tetheredspinalcord _ (mailto:_tetheredspinalcord ) _ (mailto:_tetheredspinalcord _ (mailto:tetheredspinalcord ) ) Sent: Friday, October 14, 2011 9:57 PM Subject: Re: SSDI Hi Michele, I guess I lucked out in finding the right people at the right time. I was checking out at my NSG office in after reviewing my MRI with the NSG. I was talking finances for future followup visits with the receptionist. At this point I had quit my job of 20 years and had no income or health insurance. She suggested Colo Medicaid, SSDI, Medicare, etc. I said I have no clue about that stuff where do I start? There was a nurse or other office person present, she said come with me so we went to her desk. She basically explained the system to me and got me an appointment with a county human services supervisor. So the next day I met with county Human Services. She took a personal interest in my case, got me the SSDI forms, and enrolled in Colo Medicaid. My NSG said there was no surgeon in Colo that would touch my spine and that he would refer me to Dr Spetzler at Barrow Neuro Institute in Phoenix. So I call BNI and they said bring $80K with me for 10% down payment! I told my new case worker that and she said she would get it fast-tracked approved for out of state surgery. I do not what she did or how she did it but this all started in Sept of 97 and I had surgery on Dec 6-97. Colo Medicaid does NOT take any of your SSDI, in fact quite the opposite. As I recall, After a year of SSDI you qualify for Medicare Part A, B & now D. A year later I got a Medicare card in the mail that is dated Sept 1998. Colo Medicaid pays all my Medicare premiums and co-pays. I have not paid a dime for any of my 'traditional' health care since Sept 1997 and I remember a partial refund from Medicaid for that $3,000 MRI I had back before Medicaid. Remember, back in 1997 Medicaid and Medicare, SSDI, etc all had money, now they pretty much do not, or at least it is harder to get. I think you should call up your county Human Services agency and make an appointment with an adult care case worker. Also a face-to-face appointment with Social Security Admin would not hurt. It seems to help when those with approval authority actually see what you are dealing with. I would guess that when they talk to you on the phone they automatically think you are trying to defraud the system. Good luck, let us know how it turns out. Michele Casey said the following on 10/14/2011 10:39 AM: > Hello Rick > > I have applied for ssdi in Feb I was denied in May SSA got the info wrong and thought I was working fulltime, I have had 2 detetherings and I have not been to work since my last one 1 year ago. My surgeries were only 1 year apart, I also was dgn with RA 4 wks after my last surgery, I am still waiting on a decision, and I have an attorney. I am about to lose everything I own. I live in Colorado how did you get on medicaid and did it take anything away from the pay you get from SSDI? I understand that if the government helps you in any way then they deduct it from your payment, or your settlement,. Please help me understand this better. > > Thank you > Michele > > > ________________________________ > From: Rick <__rick_lists@..._ (mailto:_rick_lists@...) _ (mailto:_rick_lists@..._ (mailto:rick_lists@...) ) > > To: __tetheredspinalcord _ (mailto:_tetheredspinalcord ) _ (mailto:_tetheredspinalcord _ (mailto:tetheredspinalcord ) ) > Sent: Thursday, October 13, 2011 9:54 PM > Subject: Re: SSDI > > > > sweettrillium said the following on 10/11/2011 6:09 AM: > >> I have read a few posts about going on disability. Has anyone with TCS here ever been accepted for assistance? >> >> > > I applied for SSDI and Colo Medicaid in October of 1997 right after I > got my MRI back showing TSC. I filled out the paper work myself except > for the doctors statement. I was approved on December 2-97 and had > surgery Dec 6-97. The 'secret' is having your doctor put on the > application he/she fills out that you can no longer perform the > work/duties that you have been doing in the past and you have no > training or ability to perform other meaningful work. " Meaningful work " > is important especially if you previously held a career type position > where you can no longer perform those duties. > > Rick > > > > > [Non-text portions of this message have been removed] > > > > ------------------------------------ > > NOT MEDICAL ADVICE. We Are Not Doctors. > Need help with list?Email Darlene: __darlene_self@..._ (mailto:_darlene_self@...) _ (mailto:_darlene_self@..._ (mailto:darlene_self@...) ) or > : __hollygolightly1916@..._ (mailto:_hollygolightly1916@...) _ (mailto:_hollygolightly1916@..._ (mailto:hollygolightly1916@...) ) > Quote Link to comment Share on other sites More sharing options...
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