Intro

[Guest guest]

Hi Queana...

Welcome to the group. You've definitely found the right place.

There are many folks here who've been down a similar path.

(group moderator) will help you along your way. I'm sure she or Kim

will be posting a response soon.

Hang in there!

Cheryl

Once again, welcome, welcome...we're glad you found us

> Hi everyone!

> I'm 29 and have been on Zoloft, Paxil, Prozac and then back to

> Zoloft for about 12 years, starting when I was 16 or 17. My mom

had started

> on Prozac and since it was " working so well " it was recommended

that I try

> it as well. Shortly thereafter, my mom started doing drugs and

left the

> family, going into a complete life tailspin and having two more

kids, one of

> whom was taken by CPS and adopted my an aunt. Shortly after I

began taking

> them I attempted suicide; the doc upped the dose. I began self-

mutilating

> (cutting). I began doing drugs. I eventually got pregant at 18

and stopped

> all the craziness and have been pretty darn sane ever since.

> At several different points I have gone off the meds; once

for a

> pregancy - this was the longest time, about 5 or 6 months. I

decided I

> needed it again, as I was very weepy, trying to finish my student

teaching

> for my teaching credential and hated it, didn't want to be a teacher

> anymore, etc. etc. So I went back on. I tried again a couple

years ago,

> and tried St. s Wort. I didn't really give it much of a

chance, and

> used some cheapy brand. Then I tried just Wellbutrin, but that

didn't work

> for me either. So I went back on Zoloft. Every time I would go a

few days

> or a couple weeks without, I would feel terrible. I thought it was

the

> depression returning, not that it was actually withdrawal symptoms.

> I just recently realized that the medication may not be the

answer.

> I have recently (in the last year) started exercising and am trying

to eat

> better. I have been reducing my Zoloft for about a month now.

First I was

> taking half a pill (each pill is 100g) every day. This was fine.

Then I

> started going to every other day. A couple smallish incidents have

me

> worried.

> First let me say that all growing up my mom was a raging

lunatic.

> She was mad and yelling all the time. I never ever want to be like

that! I

> never want to call my kids names and treat them badly (I have 3

kids).

> Last week a psycho guy cut me off on a freeway onramp, and

then

> flipped me off. I, stupidly, flipped him off back, something I had

sworn

> off back when I was 17ish and someone tried to run me off the road

after I

> flipped them off. I had never ever done it again until last week.

Well, he

> slammed on his brakes and I hit him, and of course it looks like my

fault.

> Last night my husband, being annoying as he often is, was

standing

> intentionally blocking my view of the tv while he took my son's

sandals off.

> I asked him to move several times and he just kept looking at me

while he

> stayed in my way, being passive aggressive. I pushed him out of

the way

> with my foot and he had this big cow about how I have " anger

issues " and I

> better take some pills. He is not a moron; he has told me for

years that

> antidepressants are not necessary, but I always firmly believed

that they

> were. I told him a couple weeks ago that I was tapering off,

knowing that

> he would throw that in my face at some point since he throws

anything I

> confide in him back in my face within a week or two.

> My worry is - am I rager like my mom? If so, I would much

rather be

> back on Zoloft. Is this the " depression " or could it still be

withdrawal?

> Some good things that have come about so far - things that I

didn't

> like, but just put up with are no longer ok. For example, I have

wanted

> braces since I was 13 - my teeth are very crowded. I went and got

them put

> on finally. I signed up for tae kwon do so that I can work out

with my kids

> and defend myself. I plan to get into therapy for myself and

hopefully my

> marriage. We finally started at a new church which seems

promising. I have

> quit coffee and switched to green tea and herbal tea (eventually

just

> herbal, no caffeine but a step at a time). I have significantly

reduced my

> sugar intake as well (a lot by quitting coffee - no more sugary

flavored

> creamers).

> Sorry, that was a verrrry long intro! Hope to get some good

ideas

> and support here.

>

> ~Q~

>

> --

> No virus found in this outgoing message.

> Checked by AVG Anti-Virus.

> Version: 7.0.338 / Virus Database: 267.10.2/65 - Release Date:

8/7/2005

[Guest guest]

Sent from my HTC Statusâ„¢ on AT & T

----- Forwarded message -----

To: <LMC-TCS >

Subject: [LMC-TCS] Intro

Date: Mon, Oct 24, 2011 10:28 pm

This intro has seemed daunting to write. I don't know where to being, and I

feel like I never have enough time to just, write.

Peyton will be two on November 7th. I had a partial placental abruption at

about 22 weeks, and she had a stroke in utero. She was conceived with fertility

drugs and from the beginning I had bleeding, late implantation, her heart rate

was in the 80's multiple doctor's told me I would probably miscarry. I ended up

making it to 39 weeks 5 days and went into labor on my own, where I had a

natural delivery with no medication, they said I didn't have enough time for an

epidural, and I had 40 stitches.

Before she was 2 months we noticed she had some horrid head tilt, so we were

sent to PT and her dx was torticollis. She was also not using the entire right

side of her body or tracking to the right. Her right foot looked like a club

foot but wasn't locked into place, just inverted.

We eventually went to ortho for her foot (around 4 months) and scoliosis, he

didnt want to do anything about either but sent us to neuro to rule out CP.

CP wasn't ruled out, but rather diagnosed around 6 months and then again later

on by a different doctor. It's mild, and she can walk. She always was pretty

bad in the carseat and never slept well (she's still not a great sleeper).

We moved to VA from WV and saw our new neuro just before her 1st birthday. She

ordered an MRI to rule out tethered cord, we finally got it in January and she

had a fibrolipoma, so they sent us to a neurosurgeon in N.VA. He was horrible.

She had 4/5 symptoms straight up, of tethered cord. But he sent us on our way.

I scheduled a 2nd opinion but ended up cancelling it because everyone kept

saying she was OK.

Finally, when her bladder problems (multipe UTI's) seemed to be getting worse,

but her urinalysis were clear her urologist said to get a 2nd opinion on her

lipoma. Insurance wouldn't cover another MRI, luckily she has SSI because of

her CP so her medicaid picked it up. They did a prone/supine MRI and her cord

didn't move.

She had her surgery July 20th. She was given a 20% chance of retether, and

everytime she tells me her legs hurt or I notice her falling (more than her

normal) my brain runs 100 miles a second.

It's. Scary.

She had a uro-dynamic study late September and results were not great, they were

pretty awful.

I'm hoping to find some support on the bladder/bowel portion of what we are

going to be going through.

Our 2nd opinion dr. was wonderful and i'm so grateful for him, every.single.day.

I do notice a big difference in her sleeping pattern before and after surgery,

she doesn't kick her feet hardly at all, or complain too much about the car

seat. Also pre-op she would be tired within 30 minutes to an hour upon waking,

just dragging, now she seems to have more energy. She was delayed in speech and

just now able to tell us when something hurts, etc.

Here is a list of her dx, until I can figure out how to put them in my siggy.

Thanks for letting me join you guys, I won't be going anywhere!

DX from uro-dynamic study: Partial Neurogenic Bladder. (he said partial because

we are repeating it from 6 months of the first to be sure of the dx before he

calls it complete, she didnt' cooperate during the study). Early

Bladder/Sphincter Discoordination & Incomplete Voiding/Poor Sphincter

Relaxation.

Other DX: Torticollis. VSD. Delayed Pyloric Opening. Reflux. Brachycephaly.

Plagiocephaly.

Prenatal Stroke. Mild Cerebral Palsy. Speech Delay. Urinary Retention. Sacral

Lipoma. Scoliosis. PFO. Seizures. Rocking SMO's. Compound Hetereozygous MTHFR.

Tethered Cord Release Surgery 7/20/11.

By the way, My name is Krystle!

Also, here is my blog (is that allowed?) http://justthetipblogg.blogspot.com/

[Guest guest]

God Bless your family! I wish I could give info or help but I'm 26 and. My stuff

just won't be the same info but keep checking in there's lots of moms on her

with kids that will help you. And just so you know I did have a lot of the same

problems just no cp. I'm 26 happily married and now a stay at home mommy to my

own two year lil girl. Even though I barely have bladder function or bowel and

my rt leg is a useless joke in my family, just know she can grow up to have a

long happy meaningful life. (Ps my bestfriend who's way worse then me who did

have cp and completely confined to a wheelchair she's a elementary school

teacher now and way smarter then I ever was!) breath for now trust your gut not

the doctors. Keep a diary of her complaints and dates and times and try to get

her tell you does it feel hard does it feel like mommy pushing on your arm does

it feel like a pinch (pinch her) trust me youll want to know these later on if

your debating surgery or other options!

This message was sent from s' iPhone. Apologies if it does not format

corectly.

On Oct 25, 2011, at 2:31 PM,

realisticdreams424@... wrote:

>

>

> Sent from my HTC Statusâ„¢ on AT & T

>

> ----- Forwarded message -----

>

> To: <LMC-TCS >

> Subject: [LMC-TCS] Intro

> Date: Mon, Oct 24, 2011 10:28 pm

> This intro has seemed daunting to write. I don't know where to being, and I

feel like I never have enough time to just, write.

>

> Peyton will be two on November 7th. I had a partial placental abruption at

about 22 weeks, and she had a stroke in utero. She was conceived with fertility

drugs and from the beginning I had bleeding, late implantation, her heart rate

was in the 80's multiple doctor's told me I would probably miscarry. I ended up

making it to 39 weeks 5 days and went into labor on my own, where I had a

natural delivery with no medication, they said I didn't have enough time for an

epidural, and I had 40 stitches.

>

> Before she was 2 months we noticed she had some horrid head tilt, so we were

sent to PT and her dx was torticollis. She was also not using the entire right

side of her body or tracking to the right. Her right foot looked like a club

foot but wasn't locked into place, just inverted.

>

> We eventually went to ortho for her foot (around 4 months) and scoliosis, he

didnt want to do anything about either but sent us to neuro to rule out CP.

>

> CP wasn't ruled out, but rather diagnosed around 6 months and then again later

on by a different doctor. It's mild, and she can walk. She always was pretty bad

in the carseat and never slept well (she's still not a great sleeper).

>

> We moved to VA from WV and saw our new neuro just before her 1st birthday. She

ordered an MRI to rule out tethered cord, we finally got it in January and she

had a fibrolipoma, so they sent us to a neurosurgeon in N.VA. He was horrible.

She had 4/5 symptoms straight up, of tethered cord. But he sent us on our way.

>

> I scheduled a 2nd opinion but ended up cancelling it because everyone kept

saying she was OK.

>

> Finally, when her bladder problems (multipe UTI's) seemed to be getting worse,

but her urinalysis were clear her urologist said to get a 2nd opinion on her

lipoma. Insurance wouldn't cover another MRI, luckily she has SSI because of her

CP so her medicaid picked it up. They did a prone/supine MRI and her cord didn't

move.

>

> She had her surgery July 20th. She was given a 20% chance of retether, and

everytime she tells me her legs hurt or I notice her falling (more than her

normal) my brain runs 100 miles a second.

>

> It's. Scary.

>

> She had a uro-dynamic study late September and results were not great, they

were pretty awful.

>

> I'm hoping to find some support on the bladder/bowel portion of what we are

going to be going through.

>

> Our 2nd opinion dr. was wonderful and i'm so grateful for him,

every.single.day. I do notice a big difference in her sleeping pattern before

and after surgery, she doesn't kick her feet hardly at all, or complain too much

about the car seat. Also pre-op she would be tired within 30 minutes to an hour

upon waking, just dragging, now she seems to have more energy. She was delayed

in speech and just now able to tell us when something hurts, etc.

>

> Here is a list of her dx, until I can figure out how to put them in my siggy.

>

> Thanks for letting me join you guys, I won't be going anywhere!

>

> DX from uro-dynamic study: Partial Neurogenic Bladder. (he said partial

because we are repeating it from 6 months of the first to be sure of the dx

before he calls it complete, she didnt' cooperate during the study). Early

Bladder/Sphincter Discoordination & Incomplete Voiding/Poor Sphincter

Relaxation.

>

> Other DX: Torticollis. VSD. Delayed Pyloric Opening. Reflux. Brachycephaly.

Plagiocephaly.

>

> Prenatal Stroke. Mild Cerebral Palsy. Speech Delay. Urinary Retention. Sacral

Lipoma. Scoliosis. PFO. Seizures. Rocking SMO's. Compound Hetereozygous MTHFR.

Tethered Cord Release Surgery 7/20/11.

>

> By the way, My name is Krystle!

>

> Also, here is my blog (is that allowed?) http://justthetipblogg.blogspot.com/

>

>