RE: Worried- MRI retether-

November 23, 2011

So mostly leg issues? It's driving me crazy! My calf is constantly having some

weird spasm and the stairs are impossible now!

Good luck

Subject: RE: Worried- MRI retether

To: tetheredspinalcord

Date: Wednesday, November 23, 2011, 5:15 AM

Hi ,

I have retethered and am going in for another MRI on Monday for symptoms

similiar to yours. They were the same with my retether so I bit the bullet and

made the appointment. It is scary but what is worse is putting it off. The

longer you put it off the more damage is done if you retether. I will say for me

the second surgery wasn't as bad as the first.

To: tetheredspinalcord

From: lilacs007@...

Date: Wed, 23 Nov 2011 00:57:03 -0800

Subject: Worried- MRI retether

Dr. Frim wants me to come in for an MRI to make sure I have not

retethered, I know he told me before it would be a less than 10% chance.My legs

have been acting super weird lately, I can't walk down the stairs, esp. on my

right leg, it just shakes, and I am getting cramps daily now.The other thing is

EXTREME burning on occasion. I get it where I cannot stand, period. It's that

bad.

I do have, and have had some leg issues since last year prior to surgery,

electric pain, burning, weird cramping/feeling like I have been hit, weakness

etc.. but this is all NEW.

Has anyone retethered and what were your symptoms? I'm scared of even making

that appointment

November 27, 2011

Hi ,

I am having a lot of pain and numbness in my foot and leg and it has now

progressed into my knee. I have alot of pain in my back also. I will know more

when I go into the neuro after my MRI tomorrow. It has gotten much worse over

the past month and my leg has become extremely weak.

To: tetheredspinalcord

From: lilacs007@...

Date: Wed, 23 Nov 2011 11:13:17 -0800

Subject: RE: Worried- MRI retether-

So mostly leg issues? It's driving me crazy! My calf is constantly having some

weird spasm and the stairs are impossible now!

Good luck

Subject: RE: Worried- MRI retether

To: tetheredspinalcord

Date: Wednesday, November 23, 2011, 5:15 AM

Hi ,

I have retethered and am going in for another MRI on Monday for symptoms

similiar to yours. They were the same with my retether so I bit the bullet and

made the appointment. It is scary but what is worse is putting it off. The

longer you put it off the more damage is done if you retether. I will say for me

the second surgery wasn't as bad as the first.

To: tetheredspinalcord

From: lilacs007@...

Date: Wed, 23 Nov 2011 00:57:03 -0800

Subject: Worried- MRI retether

Dr. Frim wants me to come in for an MRI to make sure I have not

retethered, I know he told me before it would be a less than 10% chance.My legs

have been acting super weird lately, I can't walk down the stairs, esp. on my

right leg, it just shakes, and I am getting cramps daily now.The other thing is

EXTREME burning on occasion. I get it where I cannot stand, period. It's that

bad.

I do have, and have had some leg issues since last year prior to surgery,

electric pain, burning, weird cramping/feeling like I have been hit, weakness

etc.. but this is all NEW.

Has anyone retethered and what were your symptoms? I'm scared of even making

that appointment

November 28, 2011

Hi ,

I have had 5 detetherings and my last call from Dr. Frim's office (he

was in emergency surgery during my appointment so I just had an MRI)

the assistant told me I was not only retethered again but also

tethered in a new place. So, he's pulling your leg (hahaha). You can

retether. Some people do and some people always do.

M.

> So mostly leg issues? It's driving me crazy! My calf is constantly having some

weird spasm and the stairs are impossible now!

> Good luck

>

> Subject: RE: Worried- MRI retether

> To: tetheredspinalcord

> Date: Wednesday, November 23, 2011, 5:15 AM

>

> Hi ,

>

> I have retethered and am going in for another MRI on Monday for symptoms

similiar to yours. They were the same with my retether so I bit the bullet and

made the appointment. It is scary but what is worse is putting it off. The

longer you put it off the more damage is done if you retether. I will say for me

the second surgery wasn't as bad as the first.

>

> To: tetheredspinalcord

> From: lilacs007@...

> Date: Wed, 23 Nov 2011 00:57:03 -0800

> Subject: Worried- MRI retether

>

> Dr. Frim wants me to come in for an MRI to make sure I have not

retethered, I know he told me before it would be a less than 10% chance.My legs

have been acting super weird lately, I can't walk down the stairs, esp. on my

right leg, it just shakes, and I am getting cramps daily now.The other thing is

EXTREME burning on occasion. I get it where I cannot stand, period. It's that

bad.

>

> I do have, and have had some leg issues since last year prior to surgery,

electric pain, burning, weird cramping/feeling like I have been hit, weakness

etc.. but this is all NEW.

>

> Has anyone retethered and what were your symptoms? I'm scared of even making

that appointment

>

November 29, 2011

,

Did Dr. Frim do all five of your surgeries and what type of tether did you first

start with? Was it just a filum cut or something more?

I hope you are not very symptomatic now. Is Frim advising more surgery? Take

care.

> >

> > Subject: RE: Worried- MRI retether

> > To: tetheredspinalcord

> > Date: Wednesday, November 23, 2011, 5:15 AM

> >

> > Hi ,

> >

> > I have retethered and am going in for another MRI on Monday for symptoms

similiar to yours. They were the same with my retether so I bit the bullet and

made the appointment. It is scary but what is worse is putting it off. The

longer you put it off the more damage is done if you retether. I will say for me

the second surgery wasn't as bad as the first.

> >

> > To: tetheredspinalcord

> > From: lilacs007@...

> > Date: Wed, 23 Nov 2011 00:57:03 -0800

> > Subject: Worried- MRI retether

> >

> > Dr. Frim wants me to come in for an MRI to make sure I have not

retethered, I know he told me before it would be a less than 10% chance.My legs

have been acting super weird lately, I can't walk down the stairs, esp. on my

right leg, it just shakes, and I am getting cramps daily now.The other thing is

EXTREME burning on occasion. I get it where I cannot stand, period. It's that

bad.

> >

> > I do have, and have had some leg issues since last year prior to surgery,

electric pain, burning, weird cramping/feeling like I have been hit, weakness

etc.. but this is all NEW.

> >

> > Has anyone retethered and what were your symptoms? I'm scared of even making

that appointment

> >

November 29, 2011

Oh great.. NoÂ bow tieÂ X-Mas gift for him then!

I turned my phone off today.. I know I should make the appointment, but my brain

keeps avoiding it.

5 retethers? I'm sorry.. I wish I knew what else to say. But he is good.. and I

trust him with my life.

Subject: Re: Worried- MRI retether-

To: tetheredspinalcord

Date: Monday, November 28, 2011, 9:45 PM

Â

,

Did Dr. Frim do all five of your surgeries and what type of tether did you first

start with? Was it just a filum cut or something more?

I hope you are not very symptomatic now. Is Frim advising more surgery? Take

care.

> >

> > Subject: RE: Worried- MRI retether

> > To: tetheredspinalcord

> > Date: Wednesday, November 23, 2011, 5:15 AM

> >

> > Hi ,

> >

> > I have retethered and am going in for another MRI on Monday for symptoms

similiar to yours. They were the same with my retether so I bit the bullet and

made the appointment. It is scary but what is worse is putting it off. The

longer you put it off the more damage is done if you retether. I will say for me

the second surgery wasn't as bad as the first.

> >

> > To: tetheredspinalcord

> > From: lilacs007@...

> > Date: Wed, 23 Nov 2011 00:57:03 -0800

> > Subject: Worried- MRI retether

> >

> > Â Â Â Dr. Frim wants me to come in for an MRI to make sure I have not

retethered, I know he told me before it would be a less than 10% chance.My legs

have been acting super weird lately, I can't walk down the stairs, esp. on my

right leg, it just shakes, and I am getting cramps daily now.The other thing is

EXTREME burning on occasion. I get it where I cannot stand, period. It's that

bad.

> >

> > I do have, and have had some leg issues since last year prior to surgery,

electric pain, burning, weird cramping/feeling like I have been hit, weakness

etc.. but this is all NEW.

> >

> > Has anyone retethered and what were your symptoms? I'm scared of even making

that appointment

> >

February 29, 2012

> >

> > Subject: RE: Worried- MRI retether

> > To: tetheredspinalcord

> > Date: Wednesday, November 23, 2011, 5:15 AM

> >

> > Hi ,

> >

> > I have retethered and am going in for another MRI on Monday for symptoms

similiar to yours. They were the same with my retether so I bit the bullet and

made the appointment. It is scary but what is worse is putting it off. The

longer you put it off the more damage is done if you retether. I will say for me

the second surgery wasn't as bad as the first.

> >

> > To: tetheredspinalcord

> > From: lilacs007@...

> > Date: Wed, 23 Nov 2011 00:57:03 -0800

> > Subject: Worried- MRI retether

> >

> > Dr. Frim wants me to come in for an MRI to make sure I have not

retethered, I know he told me before it would be a less than 10% chance.My legs

have been acting super weird lately, I can't walk down the stairs, esp. on my

right leg, it just shakes, and I am getting cramps daily now.The other thing is

EXTREME burning on occasion. I get it where I cannot stand, period. It's that

bad.

> >

> > I do have, and have had some leg issues since last year prior to surgery,

electric pain, burning, weird cramping/feeling like I have been hit, weakness

etc.. but this is all NEW.

> >

> > Has anyone retethered and what were your symptoms? I'm scared of even making

that appointment

> >

March 1, 2012

I have had two detetherings and one surgery for a spinal fluid leak so yes it

can happen.

To: tetheredspinalcord

From: rebelcountrylady@...

Date: Wed, 29 Feb 2012 05:05:12 +0000

Subject: Re: Worried- MRI retether-

> >

> > Subject: RE: Worried- MRI retether

> > To: tetheredspinalcord

> > Date: Wednesday, November 23, 2011, 5:15 AM

> >

> > Hi ,

> >

> > I have retethered and am going in for another MRI on Monday for symptoms

similiar to yours. They were the same with my retether so I bit the bullet and

made the appointment. It is scary but what is worse is putting it off. The

longer you put it off the more damage is done if you retether. I will say for me

the second surgery wasn't as bad as the first.

> >

> > To: tetheredspinalcord

> > From: lilacs007@...

> > Date: Wed, 23 Nov 2011 00:57:03 -0800

> > Subject: Worried- MRI retether

> >

> > Dr. Frim wants me to come in for an MRI to make sure I have not

retethered, I know he told me before it would be a less than 10% chance.My legs

have been acting super weird lately, I can't walk down the stairs, esp. on my

right leg, it just shakes, and I am getting cramps daily now.The other thing is

EXTREME burning on occasion. I get it where I cannot stand, period. It's that

bad.

> >

> > I do have, and have had some leg issues since last year prior to surgery,

electric pain, burning, weird cramping/feeling like I have been hit, weakness

etc.. but this is all NEW.

> >

> > Has anyone retethered and what were your symptoms? I'm scared of even making

that appointment

> >

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RE: Worried- MRI retether-

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