TSC & Bedwetting?

[Guest guest]

My 17-year old daughter and I are headed to the doctor this afternoon to discuss

the bedwetting that she has had her whole life and still has occasionally. She

won't bedwet for many months and then suddenly it happens twice in a week.

I can't believe I've never stumbled across info on TSC before now and made any

possible connection. When she was born, the doctor noticed the dimple at the

base of her spine and they did a test (MRI? CT Scan?) and determined that it was

not tethered. But as I read the info on it, I'm wondering if this might have

something to do with her bedwetting? '

Would it make sense that she would have zero issues w/being wet during the day

and then wet the bed at night if TSC is the culprit? And why would it come and

go so much? Is it possible that, despite the test that showed the spinal cord

was not tethered, maybe it really is and this is what's causing her bedwetting?

She has no other neurological issues. I understand that this can be a severely

debilitating problem, and I do realize that if she does have a TSC and

bedwetting is her only issue, we are incredibly fortunate.

My doctor is very willing to hear ideas, but she's never mentioned this to me

before (but I don't know that this doctor knows my daughter has adimple either,

so we'll definitely bring it up today). I'm looking through past posts but

don't see any very recent ones on the topic. Any info that anyone can share

with me would be so appreciated.

Thanks,