Guest guest Posted November 16, 2011 Report Share Posted November 16, 2011 My first MRI clearly shows my TC as my cord is low lying -- it is pretty obvious -- BUT, it was NOT picked up by the radiologist and I went years not knowing I had TC till I had another MRI done years later. There was nothing wrong with the first MRI, just how it was interpreted. Dee To: tetheredspinalcord From: wriedenn@... Date: Wed, 16 Nov 2011 15:27:39 -0500 Subject: Re: TSC & Bedwetting? Thanks for your input, Jenn. That's very interesting as the doctor actually said " that's radiology 101 " and told me that even though the MRI was not done to check for TSC, it still covered my daughter's lumbar area and the radiologist would most definitely have seen if it was tethered. In addition, she said that there is no thickening of the bladder wall or any other symptom to indicate TSC. Now you've got me wondering if I should have someone else look at the scan though. I'm curious what you mean when you say it won't cost me anything to have someone else read the scan. Surely they'd require some sort of " appointment " (whether we're physically there or not) and charge? TSC & Bedwetting? > > > > > > > > > > My 17-year old daughter and I are headed to the doctor this afternoon to discuss the bedwetting that she has had her whole life and still has occasionally. She won't bedwet for many months and then suddenly it happens twice in a week. > > > > I can't believe I've never stumbled across info on TSC before now and made any possible connection. When she was born, the doctor noticed the dimple at the base of her spine and they did a test (MRI? CT Scan?) and determined that it was not tethered. But as I read the info on it, I'm wondering if this might have something to do with her bedwetting? ' > > > > Would it make sense that she would have zero issues w/being wet during the day and then wet the bed at night if TSC is the culprit? And why would it come and go so much? Is it possible that, despite the test that showed the spinal cord was not tethered, maybe it really is and this is what's causing her bedwetting? She has no other neurological issues. I understand that this can be a severely debilitating problem, and I do realize that if she does have a TSC and bedwetting is her only issue, we are incredibly fortunate. > > > > My doctor is very willing to hear ideas, but she's never mentioned this to me before (but I don't know that this doctor knows my daughter has adimple either, so we'll definitely bring it up today). I'm looking through past posts but don't see any very recent ones on the topic. Any info that anyone can share with me would be so appreciated. > > > > Thanks, > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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