RE: Re: son bitten by tick in NC - LLMD in NC?

[Guest guest]

Thanks for all the input. I just called Advanced Lab and asked if it made sense to order a test in the absence of symptoms (which they described as flu-like symptoms, the bullseye rash, fatigue, etc.) They said to consult with our doctor, but we don't yet have a LLMD and so far my efforts to find one in NC have not yielded anything.Any thoughts on what I should do next? Subject: RE: Re: son bitten by tick in NCTo: BorreliaMultipleInfectionsAndAutism Date: Friday, March 30, 2012, 3:19 PM

If your son is not taking any prescription or herbal anti-infectives (antibiotics or antivirals), you might want to talk to your doc about getting tested through this lab. http://www.advanced-lab.com/spirochete.php . This will determine if there is a spirochete infection directly instead of waiting for the body to respond to the infection. I have questions regarding the accuracy of the Central Florida Research lab, as I have never heard of a negative result. I have not followed this lab recently, so something may have developed that I am not aware of. Advanced Laboratory Services does have some negative results; and they determine the strain of spirochete they culture, with many different

strains being identified. This diversity in spirochete strain rules out lab contamination. A positive culture is very difficult to ignore or deny. Anne Mears, RN, MSN/IHmcfighter@... From: BorreliaMultipleInfectionsAndAutism [mailto:BorreliaMultipleInfectionsAndAutism ] On Behalf Of

ConstantikesSent: Friday, March 30, 2012 10:37 AMTo: BorreliaMultipleInfectionsAndAutism Subject: Re: Re: son bitten by tick in NC Heidi, thanks so much for all the info. I am not sure if my son has had Lyme before. If you were to ask the chiro who does Applied Kinesiology, he would say yes, for sure. However, we have never done a blood test. If we were to do a test, what kind would you recommend? I understand what you're saying about the antibodies needing time to build. Would

the Lyme test also look for co-infections? Have you heard of this person/website? Dean Martens? He recommends that one test through Central Florida Research. http://www.herbsoflight.com/downloads/LYME_DISEASE_DEANS_STORY.pdfWhere should I go to get my son tested?Thanks, I do not know about eosinophilic disease or how it pertains to Lyme treatments. What I do know is that it is generally agreed that most who do not have Lyme already, and then get bit by a Lyme-infected tick, will not show a positive for a couple of weeks or more due to the time it takes to build up antibodies to show up in the testing. By the time symptoms show,

many that treat chronic Lyme will say that you waited way too long. The respected Lyme docs will say to get treatment with antibiotics immediately. Chronic Lyme and acute Lyme are very different. Acute Lyme is only in the blood and often can be successfully treated if given antibiotics right away. Chronic Lyme is considered to be a very ill person, with Lyme embedded throughout the body, immune system damage, and multi-organ damage. Some may have Lyme with little to no symptoms and then develop symptoms at some point in the future when a stressor comes along. Generally speaking, if a person gets bit by a tick that is suspected of having the Lyme germ, antibiotics are given right away to kill the Lyme before it takes hold of the body, embedding throughout the tissues. Samento and Cat's Claw are highly popular alternative treatments to antibiotics, but they, too, are not highly successful. I see people report on the forums that they know someone

who got treated for a few weeks who just got bit and were fine; reports that some got well but then weeks or months or years later, got severe Lyme symptoms; and then there are reports of many with chronic Lyme who may or may not know how they got it. There are reports that most report never having a rash, and no memory of a tick bite. Actually, some antibiotics kill parasites and bacteria, such as Flagyl. So, maybe your doc can combine treatments to kill both parasites and Lyme. It is generally recommended to treat right away by Lyme docs, but other docs seem to want to wait till symptoms appear or a test is positive, which is quite risky. Keep in mind that ticks also carry other bacteria, viruses and protozoa parasites. Generally speaking, most with chronic Lyme report also having coinfections of Bartonella, Babesia, Erhlichia, or another one of about a dozen pathogens found in deer ticks. Love and prayers,Heidi N >> My son was bitten by a tick on Tuesday. What do you think I should do? He has tons of food allergies, plus eosinophilic esophagitis, and eosinophilic gastritis, and a very high blood eos level that could by parasites or maybe his eosinophilic disease. > > I am afraid to start antibiotics, but also afraid not to. His doctor wants to put him on an antiparasitic antibiotic if the stool culture comes back positive for parasites. I am not supposed to even give him probiotics or supplements because of his eosinophilic disease. > > How would I test for Lyme? I have heard so many different things about where to get the most accurate test. Also, has

anyone tried Applied Kinesiology for Lyme testing and treatment? > > Thanks,> >

[Guest guest]

NC is hostile to LLMDs, so it might be difficult to find one in that state.  Any doctor can order the test, it does not have to be a LLMD, so maybe an open-minded doc will be willing to order the test. Anne Mears, RN, MSN/IHmcfighter@... From: BorreliaMultipleInfectionsAndAutism [mailto:BorreliaMultipleInfectionsAndAutism ] On Behalf Of ConstantikesSent: Friday, March 30, 2012 1:32 PMTo: BorreliaMultipleInfectionsAndAutism Subject: RE: Re: son bitten by tick in NC - LLMD in NC? Thanks for all the input. I just called Advanced Lab and asked if it made sense to order a test in the absence of symptoms (which they described as flu-like symptoms, the bullseye rash, fatigue, etc.) They said to consult with our doctor, but we don't yet have a LLMD and so far my efforts to find one in NC have not yielded anything.Any thoughts on what I should do next? Subject: RE: Re: son bitten by tick in NCTo: BorreliaMultipleInfectionsAndAutism Date: Friday, March 30, 2012, 3:19 PM If your son is not taking any prescription or herbal anti-infectives (antibiotics or antivirals), you might want to talk to your doc about getting tested through this lab. http://www.advanced-lab.com/spirochete.php . This will determine if there is a spirochete infection directly instead of waiting for the body to respond to the infection. I have questions regarding the accuracy of the Central Florida Research lab, as I have never heard of a negative result. I have not followed this lab recently, so something may have developed that I am not aware of. Advanced Laboratory Services does have some negative results; and they determine the strain of spirochete they culture, with many different strains being identified. This diversity in spirochete strain rules out lab contamination. A positive culture is very difficult to ignore or deny. Anne Mears, RN, MSN/IHmcfighter@... From: BorreliaMultipleInfectionsAndAutism [mailto:BorreliaMultipleInfectionsAndAutism ] On Behalf Of ConstantikesSent: Friday, March 30, 2012 10:37 AMTo: BorreliaMultipleInfectionsAndAutism Subject: Re: Re: son bitten by tick in NC Heidi, thanks so much for all the info. I am not sure if my son has had Lyme before. If you were to ask the chiro who does Applied Kinesiology, he would say yes, for sure. However, we have never done a blood test. If we were to do a test, what kind would you recommend? I understand what you're saying about the antibodies needing time to build. Would the Lyme test also look for co-infections? Have you heard of this person/website? Dean Martens? He recommends that one test through Central Florida Research. http://www.herbsoflight.com/downloads/LYME_DISEASE_DEANS_STORY.pdfWhere should I go to get my son tested?Thanks, I do not know about eosinophilic disease or how it pertains to Lyme treatments. What I do know is that it is generally agreed that most who do not have Lyme already, and then get bit by a Lyme-infected tick, will not show a positive for a couple of weeks or more due to the time it takes to build up antibodies to show up in the testing. By the time symptoms show, many that treat chronic Lyme will say that you waited way too long. The respected Lyme docs will say to get treatment with antibiotics immediately. Chronic Lyme and acute Lyme are very different. Acute Lyme is only in the blood and often can be successfully treated if given antibiotics right away. Chronic Lyme is considered to be a very ill person, with Lyme embedded throughout the body, immune system damage, and multi-organ damage. Some may have Lyme with little to no symptoms and then develop symptoms at some point in the future when a stressor comes along. Generally speaking, if a person gets bit by a tick that is suspected of having the Lyme germ, antibiotics are given right away to kill the Lyme before it takes hold of the body, embedding throughout the tissues. Samento and Cat's Claw are highly popular alternative treatments to antibiotics, but they, too, are not highly successful. I see people report on the forums that they know someone who got treated for a few weeks who just got bit and were fine; reports that some got well but then weeks or months or years later, got severe Lyme symptoms; and then there are reports of many with chronic Lyme who may or may not know how they got it. There are reports that most report never having a rash, and no memory of a tick bite. Actually, some antibiotics kill parasites and bacteria, such as Flagyl. So, maybe your doc can combine treatments to kill both parasites and Lyme. It is generally recommended to treat right away by Lyme docs, but other docs seem to want to wait till symptoms appear or a test is positive, which is quite risky. Keep in mind that ticks also carry other bacteria, viruses and protozoa parasites. Generally speaking, most with chronic Lyme report also having coinfections of Bartonella, Babesia, Erhlichia, or another one of about a dozen pathogens found in deer ticks. Love and prayers,Heidi N >> My son was bitten by a tick on Tuesday. What do you think I should do? He has tons of food allergies, plus eosinophilic esophagitis, and eosinophilic gastritis, and a very high blood eos level that could by parasites or maybe his eosinophilic disease. > > I am afraid to start antibiotics, but also afraid not to. His doctor wants to put him on an antiparasitic antibiotic if the stool culture comes back positive for parasites. I am not supposed to even give him probiotics or supplements because of his eosinophilic disease. > > How would I test for Lyme? I have heard so many different things about where to get the most accurate test. Also, has anyone tried Applied Kinesiology for Lyme testing and treatment? > > Thanks,> >

[Guest guest]

Does anyone else think should ask for a profrolactic (sp?) dose of abx for the weekend and then try to find an llmd on Monday ? that would be my recommendation.

From: ConstantikesSent: Friday, March 30, 2012 1:32 PMTo: BorreliaMultipleInfectionsAndAutism Subject: RE: Re: son bitten by tick in NC - LLMD in NC?

Thanks for all the input. I just called Advanced Lab and asked if it made sense to order a test in the absence of symptoms (which they described as flu-like symptoms, the bullseye rash, fatigue, etc.) They said to consult with our doctor, but we don't yet have a LLMD and so far my efforts to find one in NC have not yielded anything.Any thoughts on what I should do next?

Subject: RE: Re: son bitten by tick in NCTo: BorreliaMultipleInfectionsAndAutism Date: Friday, March 30, 2012, 3:19 PM

If your son is not taking any prescription or herbal anti-infectives (antibiotics or antivirals), you might want to talk to your doc about getting tested through this lab. http://www.advanced-lab.com/spirochete.php . This will determine if there is a spirochete infection directly instead of waiting for the body to respond to the infection. I have questions regarding the accuracy of the Central Florida Research lab, as I have never heard of a negative result. I have not followed this lab recently, so something may have developed that I am not aware of. Advanced Laboratory Services does have some negative results; and they determine the strain of spirochete they culture, with many different strains being identified. This diversity in spirochete strain rules out lab contamination. A positive culture is very difficult to ignore or deny.

Anne Mears, RN, MSN/IH

mcfighter@...

From: BorreliaMultipleInfectionsAndAutism [mailto:BorreliaMultipleInfectionsAndAutism ] On Behalf Of ConstantikesSent: Friday, March 30, 2012 10:37 AMTo: BorreliaMultipleInfectionsAndAutism Subject: Re: Re: son bitten by tick in NC

Heidi, thanks so much for all the info. I am not sure if my son has had Lyme before. If you were to ask the chiro who does Applied Kinesiology, he would say yes, for sure. However, we have never done a blood test. If we were to do a test, what kind would you recommend? I understand what you're saying about the antibodies needing time to build. Would the Lyme test also look for co-infections? Have you heard of this person/website? Dean Martens? He recommends that one test through Central Florida Research. http://www.herbsoflight.com/downloads/LYME_DISEASE_DEANS_STORY.pdfWhere should I go to get my son tested?Thanks,

I do not know about eosinophilic disease or how it pertains to Lyme treatments. What I do know is that it is generally agreed that most who do not have Lyme already, and then get bit by a Lyme-infected tick, will not show a positive for a couple of weeks or more due to the time it takes to build up antibodies to show up in the testing. By the time symptoms show, many that treat chronic Lyme will say that you waited way too long. The respected Lyme docs will say to get treatment with antibiotics immediately. Chronic Lyme and acute Lyme are very different. Acute Lyme is only in the blood and often can be successfully treated if given antibiotics right away. Chronic Lyme is considered to be a very ill person, with Lyme embedded throughout the body, immune system damage, and multi-organ damage. Some may have Lyme with little to no symptoms and then develop symptoms at some point in the future when a stressor comes along. Generally speaking, if a person gets bit by a tick that is suspected of having the Lyme germ, antibiotics are given right away to kill the Lyme before it takes hold of the body, embedding throughout the tissues. Samento and Cat's Claw are highly popular alternative treatments to antibiotics, but they, too, are not highly successful. I see people report on the forums that they know someone who got treated for a few weeks who just got bit and were fine; reports that some got well but then weeks or months or years later, got severe Lyme symptoms; and then there are reports of many with chronic Lyme who may or may not know how they got it. There are reports that most report never having a rash, and no memory of a tick bite. Actually, some antibiotics kill parasites and bacteria, such as Flagyl. So, maybe your doc can combine treatments to kill both parasites and Lyme. It is generally recommended to treat right away by Lyme docs, but other docs seem to want to wait till symptoms appear or a test is positive, which is quite risky. Keep in mind that ticks also carry other bacteria, viruses and protozoa parasites. Generally speaking, most with chronic Lyme report also having coinfections of Bartonella, Babesia, Erhlichia, or another one of about a dozen pathogens found in deer ticks. Love and prayers,Heidi N >> My son was bitten by a tick on Tuesday. What do you think I should do? He has tons of food allergies, plus eosinophilic esophagitis, and eosinophilic gastritis, and a very high blood eos level that could by parasites or maybe his eosinophilic disease. > > I am afraid to start antibiotics, but also afraid not to. His doctor wants to put him on an antiparasitic antibiotic if the stool culture comes back positive for parasites. I am not supposed to even give him probiotics or supplements because of his eosinophilic disease. > > How would I test for Lyme? I have heard so many different things about where to get the most accurate test. Also, has anyone tried Applied Kinesiology for Lyme testing and treatment? > > Thanks,> >

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