Guest guest Posted April 2, 2012 Report Share Posted April 2, 2012 Are there members with same difficulties like i discovered by myself. I try to explain: When i have have realy hurting right leg, and haven’t clean my bowel yet it seems the pain is les after it. I discover this a few weeks ago. I am not sure if my headaces go away also because mostly i take a asprine ore some stronger one. Are they people have simulair like this discoveren ore just empty bowel ore bladder and feel pain diffirennce ? Personaly i thing it has to do with pressure. Jan Willem Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2012 Report Share Posted April 2, 2012 HI Jan, I have a lot of bowel problems from not being able to go or going too often. At night I wake up with right leg sharp pain but when I touch the leg it feels dead. My DRs are planning to put me into hospital to run tests. When I was having a shower the other week, a large mass of congealed blood came out of the bowel. They are also thinking I may need a stoma bag in placed. Cherie DeVries > re there members with same difficulties like i discovered by myself. > > I try to explain: > When i have have realy hurting right leg, and haven’t clean my bowel > yet it seems the pain is les after it. > I discover this a few weeks ago. I am not sure if my headaces go away > also because mostly i take a asprine ore some stronger one. > Are they people have simulair like this discoveren ore just empty > bowel ore bladder and feel pain diffirennce ? > Personaly i thing it has to do with pressure. > Jan Willem > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2012 Report Share Posted April 2, 2012 Cherie and Jan, Please keep us posted on what you learn about this. Cherie, my daughter has had blood coming on the paper after bowel movements episodically. She has had all kinds of tests and nothing appears. Her constipation seems under control with meds and activia so it is difficult to figure out. Good luck with the tests and hope your Docs can figure out what is going on. Randee Re: Pain legs (bladder/bowel) HI Jan, I have a lot of bowel problems from not being able to go or going too often. At night I wake up with right leg sharp pain but when I touch the leg it feels dead. My DRs are planning to put me into hospital to run tests. When I was having a shower the other week, a large mass of congealed blood came out of the bowel. They are also thinking I may need a stoma bag in placed. Cherie DeVries > re there members with same difficulties like i discovered by myself. > > I try to explain: > When i have have realy hurting right leg, and haven’t clean my bowel > yet it seems the pain is les after it. > I discover this a few weeks ago. I am not sure if my headaces go away > also because mostly i take a asprine ore some stronger one. > Are they people have simulair like this discoveren ore just empty > bowel ore bladder and feel pain diffirennce ? > Personaly i thing it has to do with pressure. > Jan Willem > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2012 Report Share Posted April 2, 2012 Hi all, I have a major problem with constipation these days. I haven't noticed that my pain gets any better after I finally go. I keep thinking it's the hydrocodone making me constipated, but I've been taking it for quite a long time. The bowel issues have just recently gotten worse. My neuropathy is through the roof unbearable at times and almost nonexistent at other times. I'm having another nerve test on my lower right leg this Wednesday due to pain and weakness. Any thoughs? Sent from my LG phone " randeejae@... " wrote: >Cherie and Jan, >Please keep us posted on what you learn about this. Cherie, my daughter has had blood coming on the paper after bowel movements episodically. She has had all kinds of tests and nothing appears. Her constipation seems under control with meds and activia so it is difficult to figure out. Good luck with the tests and hope your Docs can figure out what is going on. > > Randee > > > > > Re: Pain legs (bladder/bowel) > > > > > >HI Jan, > I have a lot of bowel problems from not being able to go or going too >often. At night I wake up with right leg sharp pain but when I touch the >leg it feels dead. My DRs are planning to put me into hospital to run >tests. When I was having a shower the other week, a large mass of >congealed blood came out of the bowel. They are also thinking I may need >a stoma bag in placed. >Cherie DeVries > > > >> re there members with same difficulties like i discovered by myself. >> > >> I try to explain: >> When i have have realy hurting right leg, and haven’t clean my bowel >> yet it seems the pain is les after it. >> I discover this a few weeks ago. I am not sure if my headaces go away >> also because mostly i take a asprine ore some stronger one. >> Are they people have simulair like this discoveren ore just empty >> bowel ore bladder and feel pain diffirennce ? >> Personaly i thing it has to do with pressure. >> Jan Willem >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2012 Report Share Posted April 2, 2012 What sort of nerve test are you having? My daughter takes some sort of fiber pill, activia yogurt and a stool softener. There is a place in Cincinatti I think it is that has a true bowel program and will distinguish constipation, slowness, and all the various issues. That seems to be so hard to find. Our local GI told us my daughter has Irritable Bowel Syndrome. I wanted to slap him. Sigh Randee Re: Pain legs (bladder/bowel) > > > > > >HI Jan, > I have a lot of bowel problems from not being able to go or going too >often. At night I wake up with right leg sharp pain but when I touch the >leg it feels dead. My DRs are planning to put me into hospital to run >tests. When I was having a shower the other week, a large mass of >congealed blood came out of the bowel. They are also thinking I may need >a stoma bag in placed. >Cherie DeVries > > > >> re there members with same difficulties like i discovered by myself. >> > >> I try to explain: >> When i have have realy hurting right leg, and haven’t clean my bowel >> yet it seems the pain is les after it. >> I discover this a few weeks ago. I am not sure if my headaces go away >> also because mostly i take a asprine ore some stronger one. >> Are they people have simulair like this discoveren ore just empty >> bowel ore bladder and feel pain diffirennce ? >> Personaly i thing it has to do with pressure. >> Jan Willem >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2012 Report Share Posted April 2, 2012 Hi Randee, They are doing the needle test and I believe the shock test. This will be the 3rd I've had in 18 months. None of the doctor here in Tallahasee have dealt with TSC. A radiologist happen to see my tether in 2009. Had to go to Shands in Gainesville, FL to have my surgery. Sent from my LG phone " randeejae@... " wrote: >What sort of nerve test are you having? My daughter takes some sort of fiber pill, activia yogurt and a stool softener. There is a place in Cincinatti I think it is that has a true bowel program and will distinguish constipation, slowness, and all the various issues. That seems to be so hard to find. Our local GI told us my daughter has Irritable Bowel Syndrome. I wanted to slap him. Sigh > > > Randee > > > > > Re: Pain legs (bladder/bowel) >> >> >> >> >> >>HI Jan, >> I have a lot of bowel problems from not being able to go or going too >>often. At night I wake up with right leg sharp pain but when I touch the >>leg it feels dead. My DRs are planning to put me into hospital to run >>tests. When I was having a shower the other week, a large mass of >>congealed blood came out of the bowel. They are also thinking I may need >>a stoma bag in placed. >>Cherie DeVries >> >> >> >>> re there members with same difficulties like i discovered by myself. >>> >> >>> I try to explain: >>> When i have have realy hurting right leg, and haven’t clean my bowel >>> yet it seems the pain is les after it. >>> I discover this a few weeks ago. I am not sure if my headaces go away >>> also because mostly i take a asprine ore some stronger one. >>> Are they people have simulair like this discoveren ore just empty >>> bowel ore bladder and feel pain diffirennce ? >>> Personaly i thing it has to do with pressure. >>> Jan Willem >>> >>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2012 Report Share Posted April 2, 2012 I am not familiar these tests. Interesting how different all the " treatments " and tests are..guess cause so darn little is known. Sigh Randee Re: Pain legs (bladder/bowel) >> >> >> >> >> >>HI Jan, >> I have a lot of bowel problems from not being able to go or going too >>often. At night I wake up with right leg sharp pain but when I touch the >>leg it feels dead. My DRs are planning to put me into hospital to run >>tests. When I was having a shower the other week, a large mass of >>congealed blood came out of the bowel. They are also thinking I may need >>a stoma bag in placed. >>Cherie DeVries >> >> >> >>> re there members with same difficulties like i discovered by myself. >>> >> >>> I try to explain: >>> When i have have realy hurting right leg, and haven’t clean my bowel >>> yet it seems the pain is les after it. >>> I discover this a few weeks ago. I am not sure if my headaces go away >>> also because mostly i take a asprine ore some stronger one. >>> Are they people have simulair like this discoveren ore just empty >>> bowel ore bladder and feel pain diffirennce ? >>> Personaly i thing it has to do with pressure. >>> Jan Willem >>> >>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2012 Report Share Posted April 2, 2012 Randee, That the point They did test everything almost. But i never got a answer on this question. At the the time the tests where done i was able to have a better stool normaly. Mostly with a lot of pressure. With water is gave me no bleeding troubles again. No idea for how long it helps. And yes the program is unique in Cincinatti you saw the program http://livestre.am/1iFp5 alraedy. It explaines a lot. But sadly enough there is nothing big as dose in Europe. Only germany has something look i like. As you remember the big point good be te stool softner I just clean my bowel with water but i am not able to hold it in there for i little while. So i need to clean two times a day mostly. What was i big issue because they do not realy know by now anymore if cleaning with water is a real solution. Jan Willem -----Oorspronkelijk bericht----- From: randeejae@... Sent: Monday, April 02, 2012 3:03 PM To: tetheredspinalcord Subject: Re: Pain legs (bladder/bowel) What sort of nerve test are you having? My daughter takes some sort of fiber pill, activia yogurt and a stool softener. There is a place in Cincinatti I think it is that has a true bowel program and will distinguish constipation, slowness, and all the various issues. That seems to be so hard to find. Our local GI told us my daughter has Irritable Bowel Syndrome. I wanted to slap him. Sigh Randee Re: Pain legs (bladder/bowel) > > > > > >HI Jan, > I have a lot of bowel problems from not being able to go or going too >often. At night I wake up with right leg sharp pain but when I touch the >leg it feels dead. My DRs are planning to put me into hospital to run >tests. When I was having a shower the other week, a large mass of >congealed blood came out of the bowel. They are also thinking I may need >a stoma bag in placed. >Cherie DeVries > > > >> re there members with same difficulties like i discovered by myself. >> > >> I try to explain: >> When i have have realy hurting right leg, and haven’t clean my bowel >> yet it seems the pain is les after it. >> I discover this a few weeks ago. I am not sure if my headaces go away >> also because mostly i take a asprine ore some stronger one. >> Are they people have simulair like this discoveren ore just empty >> bowel ore bladder and feel pain diffirennce ? >> Personaly i thing it has to do with pressure. >> Jan Willem >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2012 Report Share Posted April 2, 2012 I had the same as you . And docters where happy i had to clean once in two day's And ther comes the problem When i am not doing this once (ore twice) a day . My leg start to burn and even they get spastic when i lay down. I can't lay down on my back. If i clean it, the pain is deffently NOT GONE , but it is more acceptable Neuropatie is realy an issue and i follow this out of interest to make a artikel about difference between Neurophathy and Poli Neuropathy. Mostly Diabethic people have real heave burning feelings and it good be anywhere on the body. Mostly feets and legs like we have. Both seems to have bladder problems as a start to reconice the desease. So my question on the research team wil be like: Do diabethic got this problem cause nerve damage in the under back (Lumbal/sacral) ? I like to know this to understand better why i get pain. Neurologists never had a answer on this. So i bin writing al over the world right now to get an answer ore a hospital theat whil do research. It is known already that when male and female get a child the change is little bigger to have a child with SB. Knowing this i start to think. As we al know jet Spine shortening is the only new sort of operation for some of us. But when the nerve dammage is already there. There is no sololution for it. I got also sometimes bleedings but after they move polyps it was gone. You need to do research Cherie , There good be a change on that ore a cyst. This can give bad bleedings too Ask you docter for this. Cyst can grow fast. Be sure they check this first I think a stoma is the last thing to do after that there is no way back. Have you seen this program too ? http://livestre.am/1iFp5 It give a lot explaination ablout bowel issues Long story , but i hope i explain something. I wrote this on high dosis medication. So it will difficult to read, Sorry for that. Just ask me Jan Willem -----Oorspronkelijk bericht----- From: Cherie Sent: Monday, April 02, 2012 7:54 AM To: tetheredspinalcord Subject: Re: Pain legs (bladder/bowel) HI Jan, I have a lot of bowel problems from not being able to go or going too often. At night I wake up with right leg sharp pain but when I touch the leg it feels dead. My DRs are planning to put me into hospital to run tests. When I was having a shower the other week, a large mass of congealed blood came out of the bowel. They are also thinking I may need a stoma bag in placed. Cherie DeVries > re there members with same difficulties like i discovered by myself. > > I try to explain: > When i have have realy hurting right leg, and haven’t clean my bowel > yet it seems the pain is les after it. > I discover this a few weeks ago. I am not sure if my headaces go away > also because mostly i take a asprine ore some stronger one. > Are they people have simulair like this discoveren ore just empty > bowel ore bladder and feel pain diffirennce ? > Personaly i thing it has to do with pressure. > Jan Willem > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2012 Report Share Posted April 2, 2012 My docter considder this but i wil be the first tested on complete spine collom in the netherlands. So it wil completed with also rootnerves. You completely wrote what i try to explain . Same problem for me. About hydrocodone , it has a lot side effects But as i know from few it can be working great. Cherie: do you take sort of this medication ? Jan Willem -----Oorspronkelijk bericht----- From: Kell Sent: Monday, April 02, 2012 2:23 PM To: tetheredspinalcord Subject: Re: Pain legs (bladder/bowel) Hi all, I have a major problem with constipation these days. I haven't noticed that my pain gets any better after I finally go. I keep thinking it's the hydrocodone making me constipated, but I've been taking it for quite a long time. The bowel issues have just recently gotten worse. My neuropathy is through the roof unbearable at times and almost nonexistent at other times. I'm having another nerve test on my lower right leg this Wednesday due to pain and weakness. Any thoughs? Sent from my LG phone " randeejae@... " wrote: >Cherie and Jan, >Please keep us posted on what you learn about this. Cherie, my daughter >has had blood coming on the paper after bowel movements episodically. She >has had all kinds of tests and nothing appears. Her constipation seems >under control with meds and activia so it is difficult to figure out. >Good luck with the tests and hope your Docs can figure out what is going >on. > > Randee > > > > > Re: Pain legs (bladder/bowel) > > > > > >HI Jan, > I have a lot of bowel problems from not being able to go or going too >often. At night I wake up with right leg sharp pain but when I touch the >leg it feels dead. My DRs are planning to put me into hospital to run >tests. When I was having a shower the other week, a large mass of >congealed blood came out of the bowel. They are also thinking I may need >a stoma bag in placed. >Cherie DeVries > > > >> re there members with same difficulties like i discovered by myself. >> > >> I try to explain: >> When i have have realy hurting right leg, and haven’t clean my bowel >> yet it seems the pain is les after it. >> I discover this a few weeks ago. I am not sure if my headaces go away >> also because mostly i take a asprine ore some stronger one. >> Are they people have simulair like this discoveren ore just empty >> bowel ore bladder and feel pain diffirennce ? >> Personaly i thing it has to do with pressure. >> Jan Willem >> >> Quote Link to comment Share on other sites More sharing options...
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