Re: cholestyromine and other treatments that have worked for us

[Guest guest]

Thanks for your thoughtfulness Deb. Yes ,he has lived a

wholesome non toxin,all organic life.I have always been a fanatic

(as family would say) about a clean life,even before he was

conceived.I am curious what you mean by "cleaned up". He has not

done well with any of the treatments that your has.Even

starting with specs of these things.The "die off" never goes away

Glad to hear your positives.

Tammy F.

Tammy,

Obviously you have been

through hell. I know, I recognize hell when I see it.

2.5 months ago, my son was beating me up and choking me

and not sleeping at all and it great pain. Sorry if

these are stupid questions but I cant' tell if you did

these things. Did you run bloodwork to look at the

toxic load issue? I'm reading the test and it's from

labcorp, DRB1, DQB1, DRB3, DRB4, DRB5, and many

variations...anyway the results showed matthew's extreme

sensitivities to mold and toxins and of course this

causes horrible herxing from the enviornment as well as

abs, even herbal treatments so we had to clean all that

up.

Did you start the chol VERY

slowly? At first it herxed matthew (fever, anger,

etc...), constipated and also made him vomit. All bad.

But we went to 1/4 of a dose, only once, every other

day. Then slowly got to full dosage and it works

MIRACLES.

Also the PEMF device helped

him sleep the very first day and over time helped

tremendously with the pain. No pain meds anymore. He

was on 5 -6 vicodin a day that did not work before and

even ketamine.

Also Limu is helping

matthew and my husband who is only doing the PEMF device

and limu.

Also low amylose helped and

low oxylate (testing from great plains)

ASEA may be helping which I

started later but it certainly isn't hurting.

I spoke with 's

former LLMD yesterday that could not help him and he is

excited to find out more about the PEMF device and he

says that they probably gave up way too soon on the

cholestyromine and he will start it again slowly and

give the oxypowder to stop the constipation...a problem

with chol, but not after giving the oxy I promise you.

Just wanted to offer some

help. E mail me if you want more info, Deb

Saw

psychiatrist/

> > > > Can someone

> > > > > give me advice?

> > > > >

> > > > >

> > > > > my 13 yo is being treated for

lie/bartonella. no matter what we

> > > > try, we can

> > > > > t bring her out of her

"stuck" little world. she is on...

> > > > >

> > > > > minocycline

> > > > > bactrim

> > > > > lamictal

> > > > > prozac

> > > > > melatonin

> > > > >

> > > > > we have culturelle on board

for yeast, but it makes her mean and

> > > > she never

> > > > > stops bouncing of wall.

> > > > > we are going to add

vancomycin in for clostridia, but last time we

> > > > tried

> > > > > this stuff...the doctor took

her off cause she was bouncing so

> > > > much and had

> > > > > a hard time breathing.

there's a chance that the clostridia is

> > > > making her

> > > > > look autistic, but not sure

how we treat it, if she can't handle

> > > > vancomycin

> > > > > and probiotics. she can not

shower, or brush her teeth or do any

> > > > school work

> > > > > every time she gets close to

doing anyone of these chores, she

> > > > said her

> > > > > brain just goes bland and it

turns off. this kid tries so hard.

> > > > any advice

> > > > > is soooooo welcome.

> > > > >

> > > >

> > > >

> > >

> >

> >

>

[Guest guest]

Saw psychiatrist/> > > > Can someone> > > > > give me advice?> > > > >> > > > >> > > > > my 13 yo is being treated for lie/bartonella. no matter what we> > > > try, we can> > > > > t bring her out of her "stuck" little world. she is on...> > > > >> > > > > minocycline> > > > > bactrim> > > > > lamictal> > > > > prozac> > > > > melatonin> > > > >> > > > > we have culturelle on board for yeast, but it makes her mean and> > > > she never> > > > > stops bouncing of wall.> > > > > we are going to add vancomycin in for clostridia, but last time we> > > > tried> > > > > this stuff...the doctor took her off cause she was bouncing so> > > > much and had> > > > > a hard time breathing. there's a chance that the clostridia is> > > > making her> > > > > look autistic, but not sure how we treat it, if she can't handle> > > > vancomycin> > > > > and probiotics. she can not shower, or brush her teeth or do any> > > > school work> > > > > every time she gets close to doing anyone of these chores, she> > > > said her> > > > > brain just goes bland and it turns off. this kid tries so hard.> > > > any advice> > > > > is soooooo welcome.> > > > >> > > >> > > >> > >> >> >>