cholestyromine and other treatments that have worked for us

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Tammy,

Obviously you have been through hell. I know, I recognize hell when I see it. 2.5 months ago, my son was beating me up and choking me and not sleeping at all and it great pain. Sorry if these are stupid questions but I cant' tell if you did these things. Did you run bloodwork to look at the toxic load issue? I'm reading the test and it's from labcorp, DRB1, DQB1, DRB3, DRB4, DRB5, and many variations...anyway the results showed matthew's extreme sensitivities to mold and toxins and of course this causes horrible herxing from the enviornment as well as abs, even herbal treatments so we had to clean all that up.

Did you start the chol VERY slowly? At first it herxed matthew (fever, anger, etc...), constipated and also made him vomit. All bad. But we went to 1/4 of a dose, only once, every other day. Then slowly got to full dosage and it works MIRACLES.

Also the PEMF device helped him sleep the very first day and over time helped tremendously with the pain. No pain meds anymore. He was on 5 -6 vicodin a day that did not work before and even ketamine.

Also Limu is helping matthew and my husband who is only doing the PEMF device and limu.

Also low amylose helped and low oxylate (testing from great plains)

ASEA may be helping which I started later but it certainly isn't hurting.

I spoke with 's former LLMD yesterday that could not help him and he is excited to find out more about the PEMF device and he says that they probably gave up way too soon on the cholestyromine and he will start it again slowly and give the oxypowder to stop the constipation...a problem with chol, but not after giving the oxy I promise you.

Just wanted to offer some help. E mail me if you want more info, Deb

Saw psychiatrist/> > > > Can someone> > > > > give me advice?> > > > >> > > > >> > > > > my 13 yo is being treated for lie/bartonella. no matter what we> > > > try, we can> > > > > t bring her out of her "stuck" little world. she is on...> > > > >> > > > > minocycline> > > > > bactrim> > > > > lamictal> > > > > prozac> > > > > melatonin> > > > >> > > > > we have culturelle on board for yeast, but it makes her mean and> > > > she never> > > > > stops bouncing of wall.> > > > > we are going to add vancomycin in for clostridia, but last time we> > > > tried> > > > > this stuff...the doctor took her off cause she was bouncing so> > > > much and had> > > > > a hard time breathing. there's a chance that the clostridia is> > > > making her> > > > > look autistic, but not sure how we treat it, if she can't handle> > > > vancomycin> > > > > and probiotics. she can not shower, or brush her teeth or do any> > > > school work> > > > > every time she gets close to doing anyone of these chores, she> > > > said her> > > > > brain just goes bland and it turns off. this kid tries so hard.> > > > any advice> > > > > is soooooo welcome.> > > > >> > > >> > > >> > >> >> >>