Guest guest Posted August 11, 2012 Report Share Posted August 11, 2012 Thanks for all the feedback and advice. I am hoping to hear from the neurosurgeon who is reviewing my MRI either Monday or Tuesday so that I can set up a consult. Jenn, I never had a detethering surgery so I am definitely tethered. I had surgery at the age of 5 but they thought it was just a lipoma and when they found the spina bifida, the just pretty much took out what they could and closed me up. Didn't know what tethered cord was in 1968. The new hip pain and increasing numbness and lack of sensation in my foot is what has me worried. I will be ready with lots of questions for this doctor-#1 being " how many tethered cord surgeries have you done? " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2012 Report Share Posted August 12, 2012 I updated the spreadsheet with all the suggestions an attached a copy for easy download. Will keep it updated every few months and distribute. Subject: Doctor List To: tetheredspinalcord Date: Saturday, August 11, 2012, 5:24 PM Â Thanks for all the feedback and advice. I am hoping to hear from the neurosurgeon who is reviewing my MRI either Monday or Tuesday so that I can set up a consult. Jenn, I never had a detethering surgery so I am definitely tethered. I had surgery at the age of 5 but they thought it was just a lipoma and when they found the spina bifida, the just pretty much took out what they could and closed me up. Didn't know what tethered cord was in 1968. The new hip pain and increasing numbness and lack of sensation in my foot is what has me worried. I will be ready with lots of questions for this doctor-#1 being " how many tethered cord surgeries have you done? " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2012 Report Share Posted August 12, 2012 ..thanks so very much! Randee Doctor List To: tetheredspinalcord Date: Saturday, August 11, 2012, 5:24 PM Thanks for all the feedback and advice. I am hoping to hear from the neurosurgeon who is reviewing my MRI either Monday or Tuesday so that I can set up a consult. Jenn, I never had a detethering surgery so I am definitely tethered. I had surgery at the age of 5 but they thought it was just a lipoma and when they found the spina bifida, the just pretty much took out what they could and closed me up. Didn't know what tethered cord was in 1968. The new hip pain and increasing numbness and lack of sensation in my foot is what has me worried. I will be ready with lots of questions for this doctor-#1 being " how many tethered cord surgeries have you done? " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2012 Report Share Posted August 12, 2012 Can anyone provide info about Dr. in land or any Drs. in NYC? Thanks > > > > > > Subject: Doctor List > > To: tetheredspinalcord > > Date: Saturday, August 11, 2012, 5:24 PM > > > > Â > > > > Thanks for all the feedback and advice. I am hoping to hear from the neurosurgeon who is reviewing my MRI either Monday or Tuesday so that I can set up a consult. Jenn, I never had a detethering surgery so I am definitely tethered. I had surgery at the age of 5 but they thought it was just a lipoma and when they found the spina bifida, the just pretty much took out what they could and closed me up. Didn't know what tethered cord was in 1968. The new hip pain and increasing numbness and lack of sensation in my foot is what has me worried. I will be ready with lots of questions for this doctor-#1 being " how many tethered cord surgeries have you done? " > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2012 Report Share Posted August 13, 2012 That's who I was going to see Dr .. was referred to me by a patient I met. What were you looking for? Address etc? ------------------------------ >Can anyone provide info about Dr. in land or any Drs. in NYC? Thanks > > > >> >> >> >> >> >> Subject: Doctor List >> >> To: tetheredspinalcord >> >> Date: Saturday, August 11, 2012, 5:24 PM >> >> >> >> Â >> >> >> >> Thanks for all the feedback and advice. I am hoping to hear from the neurosurgeon who is reviewing my MRI either Monday or Tuesday so that I can set up a consult. Jenn, I never had a detethering surgery so I am definitely tethered. I had surgery at the age of 5 but they thought it was just a lipoma and when they found the spina bifida, the just pretty much took out what they could and closed me up. Didn't know what tethered cord was in 1968. The new hip pain and increasing numbness and lack of sensation in my foot is what has me worried. I will be ready with lots of questions for this doctor-#1 being " how many tethered cord surgeries have you done? " >> >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2012 Report Share Posted August 14, 2012 I am looking to hear surgery outcomes. Thanks > >> > >> > >> > >> From: lresz4 <lresz4@> > >> > >> Subject: Doctor List > >> > >> To: tetheredspinalcord > >> > >> Date: Saturday, August 11, 2012, 5:24 PM > >> > >> > >> > >> Â > >> > >> > >> > >> Thanks for all the feedback and advice. I am hoping to hear from the neurosurgeon who is reviewing my MRI either Monday or Tuesday so that I can set up a consult. Jenn, I never had a detethering surgery so I am definitely tethered. I had surgery at the age of 5 but they thought it was just a lipoma and when they found the spina bifida, the just pretty much took out what they could and closed me up. Didn't know what tethered cord was in 1968. The new hip pain and increasing numbness and lack of sensation in my foot is what has me worried. I will be ready with lots of questions for this doctor-#1 being " how many tethered cord surgeries have you done? " > >> > >> > >> > >> Quote Link to comment Share on other sites More sharing options...
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