Re: Re: inhaled antibiotic, Colistin--Norma

[Guest guest]



I did alternate this with TOBI for several years and it really helped. Not what we want to do but if it keeps us going, you know. I tried ot read while I vest and inhale.

Judy (Minnesota, 61)

Re: inhaled antibiotic, Colistin

Hi Normasorry to hear of all your health troubles. I hope you are on the mend. Unless they are still subscribing to messages from this old group site not many people will have seen your post. We are all at the new group site bronchiectasis1. I have checked and you are a member.It's easy to get confused with all the different groups and I see from your post in another group you came home to hundreds of e-mails!Try posting in the bronchiectasis1 group and I'm sure you will get more replies.BWLiz:)>> Hi All,> > Has anyone in this group used the inhaled antibiotic, Colistin? My infectious > disease doctor prescribed this inhaled antibiotic for me to use 15 days each > month after my most recent hospitalization for pseudomonas pneumonia; however I > will not be able to use it as a 15-day supply costs $2,000. > > > I was admitted to the hospital August 5 for 14 days with another pseudomonas > pneumonia.. I was treated with iv Azactam and inhaled Colistin. I was admitted > again on August 27 for 6 days. Since my fever was quite high, they did a blood > culture, and the infectious disease doctor was called in. He increased the > strength of the Azactam. I was there for six days and then sent to a nursing > home for two weeks of iv and inhaled antibiotic. The last admission to the > hospital for pseudomonas pneumonia was the 8th one since my first one in 2008. I > wonder what I am not doing correctly to have had so many infections in this time > period. > > > Norma>

[Guest guest]



I did alternate this with TOBI for several years and it really helped. Not what we want to do but if it keeps us going, you know. I tried ot read while I vest and inhale.

Judy (Minnesota, 61)

Re: inhaled antibiotic, Colistin

Hi Normasorry to hear of all your health troubles. I hope you are on the mend. Unless they are still subscribing to messages from this old group site not many people will have seen your post. We are all at the new group site bronchiectasis1. I have checked and you are a member.It's easy to get confused with all the different groups and I see from your post in another group you came home to hundreds of e-mails!Try posting in the bronchiectasis1 group and I'm sure you will get more replies.BWLiz:)>> Hi All,> > Has anyone in this group used the inhaled antibiotic, Colistin? My infectious > disease doctor prescribed this inhaled antibiotic for me to use 15 days each > month after my most recent hospitalization for pseudomonas pneumonia; however I > will not be able to use it as a 15-day supply costs $2,000. > > > I was admitted to the hospital August 5 for 14 days with another pseudomonas > pneumonia.. I was treated with iv Azactam and inhaled Colistin. I was admitted > again on August 27 for 6 days. Since my fever was quite high, they did a blood > culture, and the infectious disease doctor was called in. He increased the > strength of the Azactam. I was there for six days and then sent to a nursing > home for two weeks of iv and inhaled antibiotic. The last admission to the > hospital for pseudomonas pneumonia was the 8th one since my first one in 2008. I > wonder what I am not doing correctly to have had so many infections in this time > period. > > > Norma>

[Guest guest]

do you get splashed by your neb when you 'vest' at same time. As I wear glasses

I gave up doing that, was too annoying!

wearing glasses and doing 'vest' seems to accentuate the vibration so is

difficult & hard on eyes to read etc...

I have a jacket vest - viz SmartVest

cheers

joy H

[Guest guest]

I can't imagine how one could be splashed, but I do wear a mask instead of using

hand-held so perhaps that is why I have no trouble. In humid weather with no

ac, my glasses do sometimes fog. I always do Vest and negs at same time and am

always on the computer at the same time as well. It makes the time go so much

faster!

Sent from my iPad

Suzanne R Brown

[Guest guest]

Typing without my glasses! Meant to say I always do NEBS at the same time as

Vest and computer!!!

Suzanne

[Guest guest]

hi Suzanne,

i use Pari hand-held mouthpiece neb, which does tend to splash a little, it

isn't much but tiny bits on glasses are annoying or affect vision...

so doing same time as vest makes the splash factor even more so! oh well,

there's always another way around things...

joy

[Guest guest]

need glasses for computer - practically everything except sleeping !

joy

[Guest guest]

I sometimes get a drop or two onto my glasses.

EILEEN

Subject: Re: Re: inhaled antibiotic, Colistin--NormaTo: bronchiectasis Date: Thursday, September 29, 2011, 6:40 PM

I can't imagine how one could be splashed, but I do wear a mask instead of using hand-held so perhaps that is why I have no trouble. In humid weather with no ac, my glasses do sometimes fog. I always do Vest and negs at same time and am always on the computer at the same time as well. It makes the time go so much faster!Sent from my iPadSuzanne R Brown