Guest guest Posted August 9, 2012 Report Share Posted August 9, 2012 Hello Im new to the group............ and just feel I need to try to understand a bit more about my grandaughters condition - she was born with Spinal Dysraphism I think I spelt it right... ! Abigail is 5 yrs old in October , she had major surgery when she was nearly four at Great Ormond Street in London - to untether the spinal cord.... she has no feeling in her feet but still manages to walk although she does have a gait ! ie walks a bit side to side ! she is just starting to feel different from the other children now and its heartbreaking - she had her school sports day and went in the running race .. me and her Dad had tears in our eyes as she battled on and finished the race ! what a Proud Grandma I was . Anyway... thanks for listening to me and I wish you all the best in the world. Jane Quote Link to comment Share on other sites More sharing options...
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