Guest guest Posted April 8, 2000 Report Share Posted April 8, 2000 Amy Congratulations on your unborn baby boy!!! I'm happy to hear the ultrasound didn't show anything. Keep your faith. Amy update > Hello all, > > I don't post much, but enjoy reading all the post. Just thought i would > update a little about our situation. Lorna doesn't have a diognosis, but > CHARGE has been suspected by past geneticist, as well as some features of > VCFS. She doesn't have the 22q11 deletion, so geneticist don't think she has > VCFS. We recently went to the university of chicago to see a > nuerolgist/geneticist. He had said that he ears definately look like CHARGE > ears but she doesn't have any of the major charectoristics, he said if there > was a test he would test her in a heart beat. She has and ASD, growth and > developnetal delayed and ears. She also has severe microcephaly, which she > also had at birth. Her severe micro has the doc suspecting a rare > microcephaly syndrome, but he doesn't have one in mind so he will be > checking in his data base. When we were at U of Chicago we entered Lorna > into a study that will be checking each end of each chromosome, this will > take several weeks. They also took pictures of her ears to show to coleage. > They metioned that she is a pretty complexed case, thats my Girl. She is > doing pretty well in preschool, just loves it and wants to stay all day. Her > speech is our most concern, we just don't know what is going on with it. She > trys so hard to talk but her words are very hard to understand. > > Lorna was my first child, now i'm 19 weeks pregnant and a bit scared. I had > an ultra sound yesterday and everything looked good, but I don't trust that > a 100% but a do feel a bit better. It's a BOY!!!! Lorna will be a great big > sister. > > Thanks for letting me ramble on. > > Amy mom to Lorna 3 1/2 and baby boy due 9-2-00 > > > ------------------------------------------------------------------------ > DON'T HATE YOUR RATE! > Get a NextCard Visa, in 30 seconds! Get rates as low as > 0.0% Intro or 9.9% Fixed APR and no hidden fees. > Apply NOW! > http://click./1/2120/1/_/22564/_/955204460/ > ------------------------------------------------------------------------ > > For information about the CHARGE Syndrome > Foundation or to become a member please > contact marion@... or visit > the CHARGE Syndrome Foundation web page > at http://www.chargesyndrome.org > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2000 Report Share Posted April 9, 2000 Amy, Congratulations on the new baby to be!! I hope you find the answers you are looking for with regards to Lorna's diagnosis. Mom to Kennedy 2yr old CHARGEr, 10, 8, and wife to GraemeNew Brunswick, CanadaVisit the "Weir homepage" at: http://www.geocities.com/SunsetStrip/Palms/5716ICQ #1426476 update Hello all,I don't post much, but enjoy reading all the post. Just thought i wouldupdate a little about our situation. Lorna doesn't have a diognosis, butCHARGE has been suspected by past geneticist, as well as some features ofVCFS. She doesn't have the 22q11 deletion, so geneticist don't think she hasVCFS. We recently went to the university of chicago to see anuerolgist/geneticist. He had said that he ears definately look like CHARGEears but she doesn't have any of the major charectoristics, he said if therewas a test he would test her in a heart beat. She has and ASD, growth anddevelopnetal delayed and ears. She also has severe microcephaly, which shealso had at birth. Her severe micro has the doc suspecting a raremicrocephaly syndrome, but he doesn't have one in mind so he will bechecking in his data base. When we were at U of Chicago we entered Lornainto a study that will be checking each end of each chromosome, this willtake several weeks. They also took pictures of her ears to show to coleage.They metioned that she is a pretty complexed case, thats my Girl. She isdoing pretty well in preschool, just loves it and wants to stay all day. Herspeech is our most concern, we just don't know what is going on with it. Shetrys so hard to talk but her words are very hard to understand.Lorna was my first child, now i'm 19 weeks pregnant and a bit scared. I hadan ultra sound yesterday and everything looked good, but I don't trust thata 100% but a do feel a bit better. It's a BOY!!!! Lorna will be a great bigsister.Thanks for letting me ramble on.Amy mom to Lorna 3 1/2 and baby boy due 9-2-00 For information about the CHARGE Syndrome Foundation or to become a member please contact marion@... or visit the CHARGE Syndrome Foundation web page at http://www.chargesyndrome.org Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2002 Report Share Posted February 6, 2002 was taken to ICU after surgery ended at 12:30 a.m. All went well. Ruth has not spoken to yet - as he was still sleeping. Grandpa said: “Ruth was able to get some sleep last night,” and “they are holding up in a great way.” He “thanks everyone for your prayers and loving concern”. Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2002 Report Share Posted February 6, 2002 Barb, Thanks for passing on the information about to us. You are one of our gems. Peg __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2002 Report Share Posted February 6, 2002 Barb, Thanks for passing on the information about to us. You are one of our gems. Peg __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2002 Report Share Posted February 11, 2002 more info from Patti > >Reply-To: consumerlab-feedback-23@... >To: List Member >Subject: Update >Date: 11 Feb 2002 15:54:21 -0000 > >Dear ConsumerLab.com Mail List Member: > >Please be aware of the following new information available at >www.consumerlab.com: > >Additional Recalls and Warnings: >Seven supplement recalls or warnings have been posted since our last e-mail >update, including certain products containing ephedra, pepsin (for >digestion), and iron, as well as nutrition bars. Most recently, a recall >of PC-SPES and SPES supplements (used for prostate conditions) was posted. > The current posting is available to all, while archived postings are >available to subscribers only. Go to >http://www.consumerlab.com/recalls.asp for more information. > >New Products Added to CL Approved Lists: >We are pleased to announce that 16 products have been added to our Approved >Quality Products lists. These products were tested through >ConsumerLab.com's Ad Hoc Testing Program. With this program, additional >products are continually tested at the request of their >manufacturers/distributors and are added to Approved Lists if they pass our >tests. >The products are as follows (listed by the Product Review in which they >appear): > >CoQ10 -- Nature Made CoQ10 100 mg >Glucosamine/Chondroitin -- Nature Made Joint Action; Nature Made Triple >Flex >MSM -- Nature Made Triple Flex >Multivitamin -- Nature Made Essential Balance; Nature's Bounty Multi-Day >Multivitamin; Nature's Bounty Nutritional Support for Your Skin, Hair & >Nails; Nature's Bounty Vitamin ABC Plus; Puritan's Pride One; Vitamin World >High Potency Time Release Ultra Vita Man >Omega-3 -- Dale Omega-3 Fish Oil >SAMe -- Nature Made Joint Action >Iron -- Nature Made Iron >St. 's Wort -- Nature Made Herbs St. 's Wort 300 mg; Nature's >Resource St. 's Wort 300 mg >Valerian -- Nature's Resource Valerian 100 mg > >New Testing Program: >ConsumerLab.com has launched an Athletic Banned Substances Screening >Program. This optional adjunct to our existing programs evaluates >supplements and nutritional products for substances that could cause >disqualification of athletes in Olympic and other sporting events. A press >release about this program is available at >http://www.consumerlab.com/news/news_020802.asp . > >Upcoming Reviews: >Next Up -- Nutrition beverages and powders and supplements for weight loss >and trimming (CLA, chromium, pyruvate and DHAP). Reviews of many other >products are scheduled, including magnesium, potassium, garlic, melatonin, >probiotics, and GLA & ALA (from flaxseed, evening primrose and other oils). > >Sincerely, > >The Staff of ConsumerLab.com > >Browser note: If a link shown on this page does not work, try clicking the >Refresh button on your browser. If that does not work, copy the name of >the link into the Address box on your browser or search for the topic at >www.consumerlab.com . > > >_______________________________________________________________________ >Powered by List Builder >To unsubscribe follow the link: >http://lb.bcentral.com/ex/manage/subscriberprefs?customerid=7793 & subid=BB0490C4\ 857F17A6 & msgnum=23 _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2011 Report Share Posted July 19, 2011 Hi everyonejust popped in to let you know of (past member) is now in palliative carenot because of the bronch or the stroke she has had lately but nasty cancer rapidly going through her body which they didnt know was there.Wont go into detail of the past 4 months I am too upset to think someone could go so fastI am deeply saddened as she is my dearest friend and I know some of you would want to knowhugs Lee Quote Link to comment Share on other sites More sharing options...
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