Guest guest Posted January 29, 2000 Report Share Posted January 29, 2000 In a message dated 01/29/2000 5:48:34 PM Eastern Standard Time, teammerlo@... writes: << I am the mother of a severely disabled child who is unable to communicate. I am wondering if anyone would care to take the time to help me out.>> If you'd like to write me, I'd be glad to help in any way I can. My daugther is severly disabled also with lots of problems on top of the Chairi Malformation. TCouch5061@... Tory ('s mom) 17ys. old, craniofacial abnormalities, midline facial cleft, hydrocephalus, growth hormone (weighs 56lbs.) and thyroid defecient, blind, severly delayed, choanial atresia, optic nerve hypoplasia, artificial tear duct, 12-P deletion, sensory intergration disorder, latex allergy, ACM I, I I/2 or II?? w/30mm herniation, basilar impression. June10, 98' suboccipital craniectomy and lamenectomy of C1 & C2. Aug. 10, 98' dura graft. History of 36 surgeries. (and musically talented) SUCH A SPECIAL LITTLE GIRL! Quote Link to comment Share on other sites More sharing options...
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