Re: help-worse on antibiotics

[Guest guest]

Yes, this is very commonly reported. Each doc will have their own

way of handling this. I never could do the antibiotics more than a

few weeks due to fears of the effect on their microflora, and they

did get effects. So, see what the LLMD says. Due to the

differences in each doc's protocol, they may have specific ways of

handling it that fits with their experience and protocol. With

antibiotics, you have at least two important effects. One is the

die-off, the body handling all the extra dead pathogens; and the

other is the lower microflora. Microflora helps the body detox and

break down toxins, and is the basis of all the body functions. We

can't live without it. So, a lessening in the healthy bacteria by

the antibiotics will seemingly lead to problems. There all all

kinds of different ways to handle this. I am not experienced in

antibiotics much, but I have heard that some docs give cod liver

oil, anti-inflammatories, and probiotics to help. I always like to

ask the docs about their experience with patients' die-off and what

they do to treat such. It's important to pre-plan when going on

antibiotics long-term.

Love and prayers,

Heidi N

Has anyone had a worsening of symptoms a few weeks into antibiotic

treatment for lyme/babesia/

bartonella?

My son and I are being treated by LLMD with many antibiotics/antiparasitics

and our symptoms are so much worse, we are both awake half the

night, mostly waking at 2-5 am and not able to fall back asleep,

like our nervous systems are on overdrive. My sons sensory issues

are off the charts now too, he screams bloody murder to the

slightest pain, like if he just gets a scrap it is like he is

dying, I cant even get near him with scissors to cut his hair,

finger nails and even transdermals on his skin he screams in pain

like it is burning him. His need for routine/rituals is way worse

as is his anxiety and fears. sound sensativity is unbearable.

thinking it is major increase in inflammation and autoimmune but

wondering if anyone else has experienced this....

also could anyone direct me to more info on the P450 enzyme issue,

does antibiotics make it worse... I think my son and I are having

major sulfation pathway issues too, The smallest bit of sulfur

like in taurine/epson salt baths sends us both into

adrenaline/panic attack/rage....

thank you all for any advice you can share, this is truly

misserable.

deborah

[Guest guest]

My LLMD always suggest using benedril continuously until die off

stops. Also she says to keep blood flowing properly with Boluki and

heperen.(heperen is a prescription though). Tammy F.

Yes, this is very commonly reported. Each doc will have

their own way of handling this. I never could do the

antibiotics more than a few weeks due to fears of the

effect on their microflora, and they did get effects. So,

see what the LLMD says. Due to the differences in each

doc's protocol, they may have specific ways of handling it

that fits with their experience and protocol. With

antibiotics, you have at least two important effects. One

is the die-off, the body handling all the extra dead

pathogens; and the other is the lower microflora.

Microflora helps the body detox and break down toxins, and

is the basis of all the body functions. We can't live

without it. So, a lessening in the healthy bacteria by

the antibiotics will seemingly lead to problems. There

all all kinds of different ways to handle this. I am not

experienced in antibiotics much, but I have heard that

some docs give cod liver oil, anti-inflammatories, and

probiotics to help. I always like to ask the docs about

their experience with patients' die-off and what they do

to treat such. It's important to pre-plan when going on

antibiotics long-term.

Love and prayers,

Heidi N

Has anyone had a worsening of symptoms a few weeks into

antibiotic treatment for lyme/babesia/

bartonella?

My son and I are being treated by LLMD with many

antibiotics/antiparasitics and our symptoms are so

much worse, we are both awake half the night, mostly

waking at 2-5 am and not able to fall back asleep, like

our nervous systems are on overdrive. My sons sensory

issues are off the charts now too, he screams bloody

murder to the slightest pain, like if he just gets a scrap

it is like he is dying, I cant even get near him with

scissors to cut his hair, finger nails and even

transdermals on his skin he screams in pain like it is

burning him. His need for routine/rituals is way worse as

is his anxiety and fears. sound sensativity is unbearable.

thinking it is major increase in inflammation and

autoimmune but wondering if anyone else has experienced

this....

also could anyone direct me to more info on the P450

enzyme issue, does antibiotics make it worse... I think my

son and I are having major sulfation pathway issues too,

The smallest bit of sulfur like in taurine/epson salt

baths sends us both into adrenaline/panic attack/rage....

thank you all for any advice you can share, this is truly

misserable.

deborah

[Guest guest]

My LLMD always suggest using benedril continuously until die off

stops. Also she says to keep blood flowing properly with Boluki and

heperen.(heperen is a prescription though). Tammy F.

Yes, this is very commonly reported. Each doc will have

their own way of handling this. I never could do the

antibiotics more than a few weeks due to fears of the

effect on their microflora, and they did get effects. So,

see what the LLMD says. Due to the differences in each

doc's protocol, they may have specific ways of handling it

that fits with their experience and protocol. With

antibiotics, you have at least two important effects. One

is the die-off, the body handling all the extra dead

pathogens; and the other is the lower microflora.

Microflora helps the body detox and break down toxins, and

is the basis of all the body functions. We can't live

without it. So, a lessening in the healthy bacteria by

the antibiotics will seemingly lead to problems. There

all all kinds of different ways to handle this. I am not

experienced in antibiotics much, but I have heard that

some docs give cod liver oil, anti-inflammatories, and

probiotics to help. I always like to ask the docs about

their experience with patients' die-off and what they do

to treat such. It's important to pre-plan when going on

antibiotics long-term.

Love and prayers,

Heidi N

Has anyone had a worsening of symptoms a few weeks into

antibiotic treatment for lyme/babesia/

bartonella?

My son and I are being treated by LLMD with many

antibiotics/antiparasitics and our symptoms are so

much worse, we are both awake half the night, mostly

waking at 2-5 am and not able to fall back asleep, like

our nervous systems are on overdrive. My sons sensory

issues are off the charts now too, he screams bloody

murder to the slightest pain, like if he just gets a scrap

it is like he is dying, I cant even get near him with

scissors to cut his hair, finger nails and even

transdermals on his skin he screams in pain like it is

burning him. His need for routine/rituals is way worse as

is his anxiety and fears. sound sensativity is unbearable.

thinking it is major increase in inflammation and

autoimmune but wondering if anyone else has experienced

this....

also could anyone direct me to more info on the P450

enzyme issue, does antibiotics make it worse... I think my

son and I are having major sulfation pathway issues too,

The smallest bit of sulfur like in taurine/epson salt

baths sends us both into adrenaline/panic attack/rage....

thank you all for any advice you can share, this is truly

misserable.

deborah

[Guest guest]

Just wondering if one of the antibiotics is zithromax?

My son did not sleep on that one.

If its a once a day. Zithromax, give it first thing in the morning! This will

help.

Also are you doing any antioxiants, oils, what specifically?

Magnesium - even Epson salt baths, Magnesium at bedtime given orally.

When you wake up at 2 am , can you both take some Melatonin then? It may take

30 minutes to get back to sleep, you can also go up in the dose as well.

>

> My LLMD always suggest using benedril continuously until die off

> stops. Also she says to keep blood flowing properly with Boluki and

> heperen.(heperen is a prescription though). Tammy F.

> >

> > Yes, this is very commonly reported. Each doc will have their own way

> > of handling this. I never could do the antibiotics more than a few

> > weeks due to fears of the effect on their microflora, and they did get

> > effects. So, see what the LLMD says. Due to the differences in each

> > doc's protocol, they may have specific ways of handling it that fits

> > with their experience and protocol. With antibiotics, you have at

> > least two important effects. One is the die-off, the body handling

> > all the extra dead pathogens; and the other is the lower microflora.

> > Microflora helps the body detox and break down toxins, and is the

> > basis of all the body functions. We can't live without it. So, a

> > lessening in the healthy bacteria by the antibiotics will seemingly

> > lead to problems. There all all kinds of different ways to handle

> > this. I am not experienced in antibiotics much, but I have heard that

> > some docs give cod liver oil, anti-inflammatories, and probiotics to

> > help. I always like to ask the docs about their experience with

> > patients' die-off and what they do to treat such. It's important to

> > pre-plan when going on antibiotics long-term.

> >

> > Love and prayers,

> >

> > Heidi N

> >

> >

> > Has anyone had a worsening of symptoms a few weeks into antibiotic

> > treatment for lyme/babesia/

> >

> > bartonella?

> >

> > My son and I are being treated by LLMD with many

> > antibiotics/antiparasitics and our symptoms are so much worse, we are

> > both awake half the night, mostly waking at 2-5 am and not able to

> > fall back asleep, like our nervous systems are on overdrive. My sons

> > sensory issues are off the charts now too, he screams bloody murder to

> > the slightest pain, like if he just gets a scrap it is like he is

> > dying, I cant even get near him with scissors to cut his hair, finger

> > nails and even transdermals on his skin he screams in pain like it is

> > burning him. His need for routine/rituals is way worse as is his

> > anxiety and fears. sound sensativity is unbearable.

> >

> > thinking it is major increase in inflammation and autoimmune but

> > wondering if anyone else has experienced this....

> >

> > also could anyone direct me to more info on the P450 enzyme issue,

> > does antibiotics make it worse... I think my son and I are having

> > major sulfation pathway issues too, The smallest bit of sulfur like in

> > taurine/epson salt baths sends us both into adrenaline/panic

> > attack/rage....

> >

> > thank you all for any advice you can share, this is truly misserable.

> >

> > deborah

> >

>

[Guest guest]

sounds like yeast flareing, are you sure is a PANDAS kid as well???

From: Heal1child

Sent: Friday, January 07, 2011 2:55 PM

To: BorreliaMultipleInfectionsAndAutism

Subject: Re: help-worse on antibiotics

Just wondering if one of the antibiotics is zithromax? My son did not sleep on that one.If its a once a day. Zithromax, give it first thing in the morning! This will help.Also are you doing any antioxiants, oils, what specifically? Magnesium - even Epson salt baths, Magnesium at bedtime given orally.When you wake up at 2 am , can you both take some Melatonin then? It may take30 minutes to get back to sleep, you can also go up in the dose as well. >> My LLMD always suggest using benedril continuously until die off > stops. Also she says to keep blood flowing properly with Boluki and > heperen.(heperen is a prescription though). Tammy F.> >> > Yes, this is very commonly reported. Each doc will have their own way > > of handling this. I never could do the antibiotics more than a few > > weeks due to fears of the effect on their microflora, and they did get > > effects. So, see what the LLMD says. Due to the differences in each > > doc's protocol, they may have specific ways of handling it that fits > > with their experience and protocol. With antibiotics, you have at > > least two important effects. One is the die-off, the body handling > > all the extra dead pathogens; and the other is the lower microflora. > > Microflora helps the body detox and break down toxins, and is the > > basis of all the body functions. We can't live without it. So, a > > lessening in the healthy bacteria by the antibiotics will seemingly > > lead to problems. There all all kinds of different ways to handle > > this. I am not experienced in antibiotics much, but I have heard that > > some docs give cod liver oil, anti-inflammatories, and probiotics to > > help. I always like to ask the docs about their experience with > > patients' die-off and what they do to treat such. It's important to > > pre-plan when going on antibiotics long-term.> >> > Love and prayers,> >> > Heidi N> >> >> > Has anyone had a worsening of symptoms a few weeks into antibiotic > > treatment for lyme/babesia/> >> > bartonella?> >> > My son and I are being treated by LLMD with many > > antibiotics/antiparasitics and our symptoms are so much worse, we are > > both awake half the night, mostly waking at 2-5 am and not able to > > fall back asleep, like our nervous systems are on overdrive. My sons > > sensory issues are off the charts now too, he screams bloody murder to > > the slightest pain, like if he just gets a scrap it is like he is > > dying, I cant even get near him with scissors to cut his hair, finger > > nails and even transdermals on his skin he screams in pain like it is > > burning him. His need for routine/rituals is way worse as is his > > anxiety and fears. sound sensativity is unbearable.> >> > thinking it is major increase in inflammation and autoimmune but > > wondering if anyone else has experienced this....> >> > also could anyone direct me to more info on the P450 enzyme issue, > > does antibiotics make it worse... I think my son and I are having > > major sulfation pathway issues too, The smallest bit of sulfur like in > > taurine/epson salt baths sends us both into adrenaline/panic > > attack/rage....> >> > thank you all for any advice you can share, this is truly misserable.> >> > deborah> >>

[Guest guest]

Although my son did well in many ways on zithromax, he developed PANDAS symptoms

which ultimately trumped the other gains.

Try OLE or augmentin to see if they fix the behaviors.

Caryn

> >

> > My LLMD always suggest using benedril continuously until die off

> > stops. Also she says to keep blood flowing properly with Boluki and

> > heperen.(heperen is a prescription though). Tammy F.

> > >

> > > Yes, this is very commonly reported. Each doc will have their own way

> > > of handling this. I never could do the antibiotics more than a few

> > > weeks due to fears of the effect on their microflora, and they did get

> > > effects. So, see what the LLMD says. Due to the differences in each

> > > doc's protocol, they may have specific ways of handling it that fits

> > > with their experience and protocol. With antibiotics, you have at

> > > least two important effects. One is the die-off, the body handling

> > > all the extra dead pathogens; and the other is the lower microflora.

> > > Microflora helps the body detox and break down toxins, and is the

> > > basis of all the body functions. We can't live without it. So, a

> > > lessening in the healthy bacteria by the antibiotics will seemingly

> > > lead to problems. There all all kinds of different ways to handle

> > > this. I am not experienced in antibiotics much, but I have heard that

> > > some docs give cod liver oil, anti-inflammatories, and probiotics to

> > > help. I always like to ask the docs about their experience with

> > > patients' die-off and what they do to treat such. It's important to

> > > pre-plan when going on antibiotics long-term.

> > >

> > > Love and prayers,

> > >

> > > Heidi N

> > >

> > >

> > > Has anyone had a worsening of symptoms a few weeks into antibiotic

> > > treatment for lyme/babesia/

> > >

> > > bartonella?

> > >

> > > My son and I are being treated by LLMD with many

> > > antibiotics/antiparasitics and our symptoms are so much worse, we are

> > > both awake half the night, mostly waking at 2-5 am and not able to

> > > fall back asleep, like our nervous systems are on overdrive. My sons

> > > sensory issues are off the charts now too, he screams bloody murder to

> > > the slightest pain, like if he just gets a scrap it is like he is

> > > dying, I cant even get near him with scissors to cut his hair, finger

> > > nails and even transdermals on his skin he screams in pain like it is

> > > burning him. His need for routine/rituals is way worse as is his

> > > anxiety and fears. sound sensativity is unbearable.

> > >

> > > thinking it is major increase in inflammation and autoimmune but

> > > wondering if anyone else has experienced this....

> > >

> > > also could anyone direct me to more info on the P450 enzyme issue,

> > > does antibiotics make it worse... I think my son and I are having

> > > major sulfation pathway issues too, The smallest bit of sulfur like in

> > > taurine/epson salt baths sends us both into adrenaline/panic

> > > attack/rage....

> > >

> > > thank you all for any advice you can share, this is truly misserable.

> > >

> > > deborah

> > >

> >

>

[Guest guest]

Although my son did well in many ways on zithromax, he developed PANDAS symptoms

which ultimately trumped the other gains.

Try OLE or augmentin to see if they fix the behaviors.

Caryn

> >

> > My LLMD always suggest using benedril continuously until die off

> > stops. Also she says to keep blood flowing properly with Boluki and

> > heperen.(heperen is a prescription though). Tammy F.

> > >

> > > Yes, this is very commonly reported. Each doc will have their own way

> > > of handling this. I never could do the antibiotics more than a few

> > > weeks due to fears of the effect on their microflora, and they did get

> > > effects. So, see what the LLMD says. Due to the differences in each

> > > doc's protocol, they may have specific ways of handling it that fits

> > > with their experience and protocol. With antibiotics, you have at

> > > least two important effects. One is the die-off, the body handling

> > > all the extra dead pathogens; and the other is the lower microflora.

> > > Microflora helps the body detox and break down toxins, and is the

> > > basis of all the body functions. We can't live without it. So, a

> > > lessening in the healthy bacteria by the antibiotics will seemingly

> > > lead to problems. There all all kinds of different ways to handle

> > > this. I am not experienced in antibiotics much, but I have heard that

> > > some docs give cod liver oil, anti-inflammatories, and probiotics to

> > > help. I always like to ask the docs about their experience with

> > > patients' die-off and what they do to treat such. It's important to

> > > pre-plan when going on antibiotics long-term.

> > >

> > > Love and prayers,

> > >

> > > Heidi N

> > >

> > >

> > > Has anyone had a worsening of symptoms a few weeks into antibiotic

> > > treatment for lyme/babesia/

> > >

> > > bartonella?

> > >

> > > My son and I are being treated by LLMD with many

> > > antibiotics/antiparasitics and our symptoms are so much worse, we are

> > > both awake half the night, mostly waking at 2-5 am and not able to

> > > fall back asleep, like our nervous systems are on overdrive. My sons

> > > sensory issues are off the charts now too, he screams bloody murder to

> > > the slightest pain, like if he just gets a scrap it is like he is

> > > dying, I cant even get near him with scissors to cut his hair, finger

> > > nails and even transdermals on his skin he screams in pain like it is

> > > burning him. His need for routine/rituals is way worse as is his

> > > anxiety and fears. sound sensativity is unbearable.

> > >

> > > thinking it is major increase in inflammation and autoimmune but

> > > wondering if anyone else has experienced this....

> > >

> > > also could anyone direct me to more info on the P450 enzyme issue,

> > > does antibiotics make it worse... I think my son and I are having

> > > major sulfation pathway issues too, The smallest bit of sulfur like in

> > > taurine/epson salt baths sends us both into adrenaline/panic

> > > attack/rage....

> > >

> > > thank you all for any advice you can share, this is truly misserable.

> > >

> > > deborah

> > >

> >

>

[Guest guest]

Hi, thank you all for your replies, I still cant sort out what is going on and

the LLMD has been useless, told me to find a DAN doc to help my son (after he

caused all this with the antibiotics/antiparasitics), I am so frustrated. I am

giving my son ibuprophen for the inflammation (begging docs for prednisone taper

which is only thing that ever seems to help but they wont do it), he doesnt

tolerate any probiotics (I think cause it feeds the parasites), and he is one

diflucan but it isnt helping. I think I might just not give him the

antibiotics/parasitics for a few days and see if anything calms down, I am at

whits end, he is screaming and crying and having his stress response rage

episodes to everything, I feel so bad for him. Just trying to wash his hair

today sent him screaming in pain, never had problems with hair washing before.

The antibiotics he is on is suppose to be good for PANDAS (rifampin/zithro),

anyone know how to calm down the autoimmune part of the PANDAS (I know

prednisone but no one will give to him). The sound sensativity/fear/anxiety,

need for routine/rituals bad, pain sensativity was bad before the

antibiotics/antiparasitics but now it is just unbearable...

deborah

> >

> > My LLMD always suggest using benedril continuously until die off

> > stops. Also she says to keep blood flowing properly with Boluki and

> > heperen.(heperen is a prescription though). Tammy F.

> > >

> > > Yes, this is very commonly reported. Each doc will have their own way

> > > of handling this. I never could do the antibiotics more than a few

> > > weeks due to fears of the effect on their microflora, and they did get

> > > effects. So, see what the LLMD says. Due to the differences in each

> > > doc's protocol, they may have specific ways of handling it that fits

> > > with their experience and protocol. With antibiotics, you have at

> > > least two important effects. One is the die-off, the body handling

> > > all the extra dead pathogens; and the other is the lower microflora.

> > > Microflora helps the body detox and break down toxins, and is the

> > > basis of all the body functions. We can't live without it. So, a

> > > lessening in the healthy bacteria by the antibiotics will seemingly

> > > lead to problems. There all all kinds of different ways to handle

> > > this. I am not experienced in antibiotics much, but I have heard that

> > > some docs give cod liver oil, anti-inflammatories, and probiotics to

> > > help. I always like to ask the docs about their experience with

> > > patients' die-off and what they do to treat such. It's important to

> > > pre-plan when going on antibiotics long-term.

> > >

> > > Love and prayers,

> > >

> > > Heidi N

> > >

> > >

> > > Has anyone had a worsening of symptoms a few weeks into antibiotic

> > > treatment for lyme/babesia/

> > >

> > > bartonella?

> > >

> > > My son and I are being treated by LLMD with many

> > > antibiotics/antiparasitics and our symptoms are so much worse, we are

> > > both awake half the night, mostly waking at 2-5 am and not able to

> > > fall back asleep, like our nervous systems are on overdrive. My sons

> > > sensory issues are off the charts now too, he screams bloody murder to

> > > the slightest pain, like if he just gets a scrap it is like he is

> > > dying, I cant even get near him with scissors to cut his hair, finger

> > > nails and even transdermals on his skin he screams in pain like it is

> > > burning him. His need for routine/rituals is way worse as is his

> > > anxiety and fears. sound sensativity is unbearable.

> > >

> > > thinking it is major increase in inflammation and autoimmune but

> > > wondering if anyone else has experienced this....

> > >

> > > also could anyone direct me to more info on the P450 enzyme issue,

> > > does antibiotics make it worse... I think my son and I are having

> > > major sulfation pathway issues too, The smallest bit of sulfur like in

> > > taurine/epson salt baths sends us both into adrenaline/panic

> > > attack/rage....

> > >

> > > thank you all for any advice you can share, this is truly misserable.

> > >

> > > deborah

> > >

> >

>

[Guest guest]

Hi, thank you all for your replies, I still cant sort out what is going on and

the LLMD has been useless, told me to find a DAN doc to help my son (after he

caused all this with the antibiotics/antiparasitics), I am so frustrated. I am

giving my son ibuprophen for the inflammation (begging docs for prednisone taper

which is only thing that ever seems to help but they wont do it), he doesnt

tolerate any probiotics (I think cause it feeds the parasites), and he is one

diflucan but it isnt helping. I think I might just not give him the

antibiotics/parasitics for a few days and see if anything calms down, I am at

whits end, he is screaming and crying and having his stress response rage

episodes to everything, I feel so bad for him. Just trying to wash his hair

today sent him screaming in pain, never had problems with hair washing before.

The antibiotics he is on is suppose to be good for PANDAS (rifampin/zithro),

anyone know how to calm down the autoimmune part of the PANDAS (I know

prednisone but no one will give to him). The sound sensativity/fear/anxiety,

need for routine/rituals bad, pain sensativity was bad before the

antibiotics/antiparasitics but now it is just unbearable...

deborah

> >

> > My LLMD always suggest using benedril continuously until die off

> > stops. Also she says to keep blood flowing properly with Boluki and

> > heperen.(heperen is a prescription though). Tammy F.

> > >

> > > Yes, this is very commonly reported. Each doc will have their own way

> > > of handling this. I never could do the antibiotics more than a few

> > > weeks due to fears of the effect on their microflora, and they did get

> > > effects. So, see what the LLMD says. Due to the differences in each

> > > doc's protocol, they may have specific ways of handling it that fits

> > > with their experience and protocol. With antibiotics, you have at

> > > least two important effects. One is the die-off, the body handling

> > > all the extra dead pathogens; and the other is the lower microflora.

> > > Microflora helps the body detox and break down toxins, and is the

> > > basis of all the body functions. We can't live without it. So, a

> > > lessening in the healthy bacteria by the antibiotics will seemingly

> > > lead to problems. There all all kinds of different ways to handle

> > > this. I am not experienced in antibiotics much, but I have heard that

> > > some docs give cod liver oil, anti-inflammatories, and probiotics to

> > > help. I always like to ask the docs about their experience with

> > > patients' die-off and what they do to treat such. It's important to

> > > pre-plan when going on antibiotics long-term.

> > >

> > > Love and prayers,

> > >

> > > Heidi N

> > >

> > >

> > > Has anyone had a worsening of symptoms a few weeks into antibiotic

> > > treatment for lyme/babesia/

> > >

> > > bartonella?

> > >

> > > My son and I are being treated by LLMD with many

> > > antibiotics/antiparasitics and our symptoms are so much worse, we are

> > > both awake half the night, mostly waking at 2-5 am and not able to

> > > fall back asleep, like our nervous systems are on overdrive. My sons

> > > sensory issues are off the charts now too, he screams bloody murder to

> > > the slightest pain, like if he just gets a scrap it is like he is

> > > dying, I cant even get near him with scissors to cut his hair, finger

> > > nails and even transdermals on his skin he screams in pain like it is

> > > burning him. His need for routine/rituals is way worse as is his

> > > anxiety and fears. sound sensativity is unbearable.

> > >

> > > thinking it is major increase in inflammation and autoimmune but

> > > wondering if anyone else has experienced this....

> > >

> > > also could anyone direct me to more info on the P450 enzyme issue,

> > > does antibiotics make it worse... I think my son and I are having

> > > major sulfation pathway issues too, The smallest bit of sulfur like in

> > > taurine/epson salt baths sends us both into adrenaline/panic

> > > attack/rage....

> > >

> > > thank you all for any advice you can share, this is truly misserable.

> > >

> > > deborah

> > >

> >

>

[Guest guest]

Since taking certain nutrients that are suppose to be made via

microflora (i.e., inositol), rid OCD, than I think that OCD is really

from a lack of certain strains of bacteria in our microflora needed for

proper digestion. Since treating for Strep and Bartonella also rids

OCD, I think that these strains might either consume or crowd out the

healthy types of bacteria in our microflora. I say that to say that we

were able to rid OCD for months at a time after taking the probiotic

Mindlinx for only a week, so maybe in your case, the antibiotic rid too

much of the healthy bacteria. Neck and jaw misalignments are also a

cause of OCD, which you can Google about to learn more. So, from what I

have learned, chiropractic adjustments, certain probiotic strains, and

treating for Strep and Bartonella seem to be the most popular ways to

rid OCD. All three may be necessary or only one, and since there are

always exceptions to the rule, some may need other types of treatments.

Love and prayers,

Heidi N

At begining of lyme treatment my son hadnt any ocd, lots of other

symptoms but not any ocd. Now he's full of ocd. So seems there is

something that zithromax can't kill.

[Guest guest]

Heidi,

Which brand of Mindlinx were you giving to your kids? We were advised to give

Customs probiotic to my son, but his mild OCD is still very persistent.

Thanks,

Krassi

>

> Since taking certain nutrients that are suppose to be made via

> microflora (i.e., inositol), rid OCD, than I think that OCD is really

> from a lack of certain strains of bacteria in our microflora needed for

> proper digestion. Since treating for Strep and Bartonella also rids

> OCD, I think that these strains might either consume or crowd out the

> healthy types of bacteria in our microflora. I say that to say that we

> were able to rid OCD for months at a time after taking the probiotic

> Mindlinx for only a week, so maybe in your case, the antibiotic rid too

> much of the healthy bacteria. Neck and jaw misalignments are also a

> cause of OCD, which you can Google about to learn more. So, from what I

> have learned, chiropractic adjustments, certain probiotic strains, and

> treating for Strep and Bartonella seem to be the most popular ways to

> rid OCD. All three may be necessary or only one, and since there are

> always exceptions to the rule, some may need other types of treatments.

>

> Love and prayers,

>

> Heidi N

>

>

> At begining of lyme treatment my son hadnt any ocd, lots of other

> symptoms but not any ocd. Now he's full of ocd. So seems there is

> something that zithromax can't kill.

>

[Guest guest]

My son is on Klaire Ther-Biotic (this is the only good probiotic that can find

here) and S. Boulardii and sometimes kefir drink. Maybe not sufficent to keep

healty bacteria. He's also strongly constipated.

I tried to give inositol but didn't help. he's also on resveratrol.

I was first thinking that it's a kind of die-off but it's increasing more and

more since long time and it's really awfull.

He don't have visible jaw or neck problem but I will google,

I didn't know about that, thanks.

Muge

>

> Since taking certain nutrients that are suppose to be made via

> microflora (i.e., inositol), rid OCD, than I think that OCD is really

> from a lack of certain strains of bacteria in our microflora needed for

> proper digestion. Since treating for Strep and Bartonella also rids

> OCD, I think that these strains might either consume or crowd out the

> healthy types of bacteria in our microflora. I say that to say that we

> were able to rid OCD for months at a time after taking the probiotic

> Mindlinx for only a week, so maybe in your case, the antibiotic rid too

> much of the healthy bacteria. Neck and jaw misalignments are also a

> cause of OCD, which you can Google about to learn more. So, from what I

> have learned, chiropractic adjustments, certain probiotic strains, and

> treating for Strep and Bartonella seem to be the most popular ways to

> rid OCD. All three may be necessary or only one, and since there are

> always exceptions to the rule, some may need other types of treatments.

>

> Love and prayers,

>

> Heidi N

>

>

> At begining of lyme treatment my son hadnt any ocd, lots of other

> symptoms but not any ocd. Now he's full of ocd. So seems there is

> something that zithromax can't kill.

>

[Guest guest]

Just Mindlinx here:

http://search.rockwellnutrition.com/b/q?k=mindlinx+capsules & search.x=0 & search.y=\

0 & search=GO & sn=160460292

It worked within the week for all my kids. Talk about amazing. But, I think

some may need chiropractic adjustments or other treatments as well. We only

took it for a week to a month and then no OCD for 9 months. It did return, and

then I realized that we had Bartonella and Strep which were treated and the OCD

left again. My kids had significant OCD, obessing and fitting, and into numbers

and letters, demanding sameness, etc. It was so wonderful to see that fitting

leave. Geez, that is so awful to have a child fit about insignificant things.

They were also on cod liver oil and turmeric and digestive enzymes when they

took the Mindlinx, so that may have helped. I can't remember if they took the

Mindlinx at a separate time from the other supplements, but I think they did.

Love and prayers,

Heidi N

> >

> > Since taking certain nutrients that are suppose to be made via

> > microflora (i.e., inositol), rid OCD, than I think that OCD is really

> > from a lack of certain strains of bacteria in our microflora needed for

> > proper digestion. Since treating for Strep and Bartonella also rids

> > OCD, I think that these strains might either consume or crowd out the

> > healthy types of bacteria in our microflora. I say that to say that we

> > were able to rid OCD for months at a time after taking the probiotic

> > Mindlinx for only a week, so maybe in your case, the antibiotic rid too

> > much of the healthy bacteria. Neck and jaw misalignments are also a

> > cause of OCD, which you can Google about to learn more. So, from what I

> > have learned, chiropractic adjustments, certain probiotic strains, and

> > treating for Strep and Bartonella seem to be the most popular ways to

> > rid OCD. All three may be necessary or only one, and since there are

> > always exceptions to the rule, some may need other types of treatments.

> >

> > Love and prayers,

> >

> > Heidi N

> >

> >

> > At begining of lyme treatment my son hadnt any ocd, lots of other

> > symptoms but not any ocd. Now he's full of ocd. So seems there is

> > something that zithromax can't kill.

> >

>

[Guest guest]

screams yeast to me!

From: dgfindley

Sent: Saturday, January 15, 2011 10:02 PM

To: BorreliaMultipleInfectionsAndAutism

Subject: Re: help-worse on antibiotics

my son is a wreck after the 5 weeks on zithromax, rafampin, albenza.... needing exact routines, cant handle any changes at all, fears/anxiety off the scale, panic attacks all the time, he is scared to death of kids yelling, we cant go anywhere there are kids, he goes into a full blown panic attack, it is so bad he doesnt want to leave the house hardly, sound sensative, sensory issues bad, he got nicked by a hair dresser many months ago and is scared to death of hair cuts, finger nail cutting and even washing his hair now hurts him. It is breaking my heart, LLMD cant seem to tell me why he got so bad on the treatments and what to do to help... It almost seems like bartonella to me but he was on a herb combo called Bar-1, doesnt seem to be helping. > > >> > > Since taking certain nutrients that are suppose to be made via > > > microflora (i.e., inositol), rid OCD, than I think that OCD is really > > > from a lack of certain strains of bacteria in our microflora needed for > > > proper digestion. Since treating for Strep and Bartonella also rids > > > OCD, I think that these strains might either consume or crowd out the > > > healthy types of bacteria in our microflora. I say that to say that we > > > were able to rid OCD for months at a time after taking the probiotic > > > Mindlinx for only a week, so maybe in your case, the antibiotic rid too > > > much of the healthy bacteria. Neck and jaw misalignments are also a > > > cause of OCD, which you can Google about to learn more. So, from what I > > > have learned, chiropractic adjustments, certain probiotic strains, and > > > treating for Strep and Bartonella seem to be the most popular ways to > > > rid OCD. All three may be necessary or only one, and since there are > > > always exceptions to the rule, some may need other types of treatments.> > > > > > Love and prayers,> > > > > > Heidi N> > > > > > > > > At begining of lyme treatment my son hadnt any ocd, lots of other > > > symptoms but not any ocd. Now he's full of ocd. So seems there is > > > something that zithromax can't kill.> > >> >>

[Guest guest]

Keep an eye on it and see if it starts to let up at all or just keeps getting

worse. Sometimes I stop, go slower, or keep going. I pay very close attention

to the symptoms. I always chickened out on the prescriptions. I just couldn't

cope with the side effects. I think it's important to ask the doctor what to

expect before starting treatments. You need to know that he's experienced and

what to do when the die-off starts. For the record, my kids do get an increase

in these types of symptoms when they do a new treatment. It lasts anywhere from

a few days to 6 weeks. It has not yet lasted over 6 weeks.

Love and prayers,

Heidi N

> > > >

> > > > Since taking certain nutrients that are suppose to be made via

> > > > microflora (i.e., inositol), rid OCD, than I think that OCD is really

> > > > from a lack of certain strains of bacteria in our microflora needed for

> > > > proper digestion. Since treating for Strep and Bartonella also rids

> > > > OCD, I think that these strains might either consume or crowd out the

> > > > healthy types of bacteria in our microflora. I say that to say that we

> > > > were able to rid OCD for months at a time after taking the probiotic

> > > > Mindlinx for only a week, so maybe in your case, the antibiotic rid too

> > > > much of the healthy bacteria. Neck and jaw misalignments are also a

> > > > cause of OCD, which you can Google about to learn more. So, from what I

> > > > have learned, chiropractic adjustments, certain probiotic strains, and

> > > > treating for Strep and Bartonella seem to be the most popular ways to

> > > > rid OCD. All three may be necessary or only one, and since there are

> > > > always exceptions to the rule, some may need other types of treatments.

> > > >

> > > > Love and prayers,

> > > >

> > > > Heidi N

> > > >

> > > >

> > > > At begining of lyme treatment my son hadnt any ocd, lots of other

> > > > symptoms but not any ocd. Now he's full of ocd. So seems there is

> > > > something that zithromax can't kill.

> > > >

> > >

> >

>

[Guest guest]

This is going to seem like an odd suggestion, and I have nothing to base it on but personal experience, but my suggestion would be to muscle test thuja and silicea homepathic remedies. My son and I were discussing this and those are the things he recommended, along with thiamine for the scalp sensitivity.Worth trying?Subject: Re: help-worse on antibioticsTo: BorreliaMultipleInfectionsAndAutism Date: Saturday, January 15, 2011, 10:02 PM

my son is a wreck after the 5 weeks on zithromax, rafampin, albenza.... needing exact routines, cant handle any changes at all, fears/anxiety off the scale, panic attacks all the time, he is scared to death of kids yelling, we cant go anywhere there are kids, he goes into a full blown panic attack, it is so bad he doesnt want to leave the house hardly, sound sensative, sensory issues bad, he got nicked by a hair dresser many months ago and is scared to death of hair cuts, finger nail cutting and even washing his hair now hurts him. It is breaking my heart, LLMD cant seem to tell me why he got so bad on the treatments and what to do to help... It almost seems like bartonella to me but he was on a herb combo called Bar-1, doesnt seem to be helping.

> > >

> > > Since taking certain nutrients that are suppose to be made via

> > > microflora (i.e., inositol), rid OCD, than I think that OCD is really

> > > from a lack of certain strains of bacteria in our microflora needed for

> > > proper digestion. Since treating for Strep and Bartonella also rids

> > > OCD, I think that these strains might either consume or crowd out the

> > > healthy types of bacteria in our microflora. I say that to say that we

> > > were able to rid OCD for months at a time after taking the probiotic

> > > Mindlinx for only a week, so maybe in your case, the antibiotic rid too

> > > much of the healthy bacteria. Neck and jaw misalignments are also a

> > > cause of OCD, which you can Google about to learn more. So, from what I

> > > have learned, chiropractic adjustments, certain probiotic strains, and

> > > treating for Strep and Bartonella seem to be the most popular ways to

> > > rid OCD. All three may be necessary or only one, and since there are

> > > always exceptions to the rule, some may need other types of treatments.

> > >

> > > Love and prayers,

> > >

> > > Heidi N

> > >

> > >

> > > At begining of lyme treatment my son hadnt any ocd, lots of other

> > > symptoms but not any ocd. Now he's full of ocd. So seems there is

> > > something that zithromax can't kill.

> > >

> >

>

[Guest guest]

THis sounds like a PANDAS flare up. Has your son stopped taking the azithro? Has he been exposed to strep that you know of? If you stopped the azithro and things then got bad you need to put him back on it or possibly switch to augmentin. PANDAS needs long term ttreatment. For more info go to www.pandasnetwork.org. You can also watch several you tube videos by Dr Schulman about PANDAS and treaments.

Subject: Re: help-worse on antibioticsTo: BorreliaMultipleInfectionsAndAutism Date: Saturday, January 15, 2011, 10:02 PM

my son is a wreck after the 5 weeks on zithromax, rafampin, albenza.... needing exact routines, cant handle any changes at all, fears/anxiety off the scale, panic attacks all the time, he is scared to death of kids yelling, we cant go anywhere there are kids, he goes into a full blown panic attack, it is so bad he doesnt want to leave the house hardly, sound sensative, sensory issues bad, he got nicked by a hair dresser many months ago and is scared to death of hair cuts, finger nail cutting and even washing his hair now hurts him. It is breaking my heart, LLMD cant seem to tell me why he got so bad on the treatments and what to do to help... It almost seems like bartonella to me but he was on a herb combo called Bar-1, doesnt seem to be helping. > > >> > > Since taking certain nutrients that are suppose to be made via > > > microflora (i.e., inositol), rid OCD, than I think that OCD is really > > > from a lack of certain strains of bacteria in our microflora needed for > > > proper digestion. Since treating for Strep and Bartonella also rids > > > OCD, I think that these strains might either consume or crowd out the > > > healthy types of bacteria in our microflora. I say that to say that we > > > were able to rid OCD for months at a time after taking

the probiotic > > > Mindlinx for only a week, so maybe in your case, the antibiotic rid too > > > much of the healthy bacteria. Neck and jaw misalignments are also a > > > cause of OCD, which you can Google about to learn more. So, from what I > > > have learned, chiropractic adjustments, certain probiotic strains, and > > > treating for Strep and Bartonella seem to be the most popular ways to > > > rid OCD. All three may be necessary or only one, and since there are > > > always exceptions to the rule, some may need other types of treatments.> > > > > > Love and prayers,> > > > > > Heidi N> > > > > > > > > At begining of lyme treatment my son hadnt any ocd, lots of other > > > symptoms but not any ocd. Now he's full of ocd. So seems there is > > >

something that zithromax can't kill.> > >> >>