Re: Norma - inhaled antibiotic, Colistin

[Guest guest]

Hi Norma,

I know these drugs to treat pseudomonas pneumonia are very expensive. What insurance do you have that had the $2,000 co-pay for the Colistin? If you call the manufacturer, you may be able to get it for free. It's worth a try. I couldn't find it in my Humana Book.

EILEEN

Subject: inhaled antibiotic, ColistinTo: bronchiectasis Date: Monday, September 26, 2011, 5:35 PM

Hi All,

Has anyone in this group used the inhaled antibiotic, Colistin? My infectious disease doctor prescribed this inhaled antibiotic for me to use 15 days each month after my most recent hospitalization for pseudomonas pneumonia; however I will not be able to use it as a 15-day supply costs $2,000.

I was admitted to the hospital August 5 for 14 days with another pseudomonas pneumonia.. I was treated with iv Azactam and inhaled Colistin. I was admitted again on August 27 for 6 days. Since my fever was quite high, they did a blood culture, and the infectious disease doctor was called in. He increased the strength of the Azactam. I was there for six days and then sent to a nursing home for two weeks of iv and inhaled antibiotic. The last admission to the hospital for pseudomonas pneumonia was the 8th one since my first one in 2008. I wonder what I am not doing correctly to have had so many infections in this time period.

Norma

[Guest guest]

Hi Eileen:

I have Medicare as my primary insurance and a supplemental plan. Thanks for the tip about calling the manufacturer. I tried calling the manufacturer of Xopenex when Medicare quit paying for it, but was not able to get any help from them for that.

I think that someone in this group or another one uses it in the UK, but they don't have to pay much for their drugs.

Thanks again for your help.

Norma

To: bronchiectasis Sent: Tue, September 27, 2011 12:09:42 PMSubject: Re: Norma - inhaled antibiotic, Colistin

Hi Norma,

I know these drugs to treat pseudomonas pneumonia are very expensive. What insurance do you have that had the $2,000 co-pay for the Colistin? If you call the manufacturer, you may be able to get it for free. It's worth a try. I couldn't find it in my Humana Book.

EILEEN

Subject: inhaled antibiotic, ColistinTo: bronchiectasis Date: Monday, September 26, 2011, 5:35 PM

Hi All,

Has anyone in this group used the inhaled antibiotic, Colistin? My infectious disease doctor prescribed this inhaled antibiotic for me to use 15 days each month after my most recent hospitalization for pseudomonas pneumonia; however I will not be able to use it as a 15-day supply costs $2,000.

I was admitted to the hospital August 5 for 14 days with another pseudomonas pneumonia.. I was treated with iv Azactam and inhaled Colistin. I was admitted again on August 27 for 6 days. Since my fever was quite high, they did a blood culture, and the infectious disease doctor was called in. He increased the strength of the Azactam. I was there for six days and then sent to a nursing home for two weeks of iv and inhaled antibiotic. The last admission to the hospital for pseudomonas pneumonia was the 8th one since my first one in 2008. I wonder what I am not doing correctly to have had so many infections in this time period.

Norma

[Guest guest]

Hi Eileen:

I have Medicare as my primary insurance and a supplemental plan. Thanks for the tip about calling the manufacturer. I tried calling the manufacturer of Xopenex when Medicare quit paying for it, but was not able to get any help from them for that.

I think that someone in this group or another one uses it in the UK, but they don't have to pay much for their drugs.

Thanks again for your help.

Norma

To: bronchiectasis Sent: Tue, September 27, 2011 12:09:42 PMSubject: Re: Norma - inhaled antibiotic, Colistin

Hi Norma,

I know these drugs to treat pseudomonas pneumonia are very expensive. What insurance do you have that had the $2,000 co-pay for the Colistin? If you call the manufacturer, you may be able to get it for free. It's worth a try. I couldn't find it in my Humana Book.

EILEEN

Subject: inhaled antibiotic, ColistinTo: bronchiectasis Date: Monday, September 26, 2011, 5:35 PM

Hi All,

Has anyone in this group used the inhaled antibiotic, Colistin? My infectious disease doctor prescribed this inhaled antibiotic for me to use 15 days each month after my most recent hospitalization for pseudomonas pneumonia; however I will not be able to use it as a 15-day supply costs $2,000.

I was admitted to the hospital August 5 for 14 days with another pseudomonas pneumonia.. I was treated with iv Azactam and inhaled Colistin. I was admitted again on August 27 for 6 days. Since my fever was quite high, they did a blood culture, and the infectious disease doctor was called in. He increased the strength of the Azactam. I was there for six days and then sent to a nursing home for two weeks of iv and inhaled antibiotic. The last admission to the hospital for pseudomonas pneumonia was the 8th one since my first one in 2008. I wonder what I am not doing correctly to have had so many infections in this time period.

Norma

[Guest guest]

I have gerd, and when it is not under control it causes me great trouble with swallowing. I take PPI's when it bothers me (which is when I drink too much coffee, tea, vinegar, sugary foods, and other strong food and drink. Proton pump inhibitors work wonders for gerd. My GI doc says that about 10% of people with gerd have "atypical" gerd, which means it affects the throat instead of further down the esophagus as regular heartburn (gerd) does.

Just guessing, I'd think thrush could cause throat problems, too.

Kay

To: bronchiectasis Sent: Tuesday, September 27, 2011 7:47:30 PMSubject: RE: Re: Norma - inhaled antibiotic, Colistin

Does gerd or thrush cause problems with swallowing..im suddenly having problems swallowing ..

Sent: September 27, 2011 1:09 PMTo: bronchiectasis Subject: Re: Norma - inhaled antibiotic, Colistin

Hi Norma,

I know these drugs to treat pseudomonas pneumonia are very expensive. What insurance do you have that had the $2,000 co-pay for the Colistin? If you call the manufacturer, you may be able to get it for free. It's worth a try. I couldn't find it in my Humana Book.

EILEEN

Subject: inhaled antibiotic, ColistinTo: bronchiectasis Date: Monday, September 26, 2011, 5:35 PM

Hi All,

Has anyone in this group used the inhaled antibiotic, Colistin? My infectious disease doctor prescribed this inhaled antibiotic for me to use 15 days each month after my most recent hospitalizat[The entire original message is not included]

[Guest guest]

I have gerd, and when it is not under control it causes me great trouble with swallowing. I take PPI's when it bothers me (which is when I drink too much coffee, tea, vinegar, sugary foods, and other strong food and drink. Proton pump inhibitors work wonders for gerd. My GI doc says that about 10% of people with gerd have "atypical" gerd, which means it affects the throat instead of further down the esophagus as regular heartburn (gerd) does.

Just guessing, I'd think thrush could cause throat problems, too.

Kay

To: bronchiectasis Sent: Tuesday, September 27, 2011 7:47:30 PMSubject: RE: Re: Norma - inhaled antibiotic, Colistin

Does gerd or thrush cause problems with swallowing..im suddenly having problems swallowing ..

Sent: September 27, 2011 1:09 PMTo: bronchiectasis Subject: Re: Norma - inhaled antibiotic, Colistin

Hi Norma,

I know these drugs to treat pseudomonas pneumonia are very expensive. What insurance do you have that had the $2,000 co-pay for the Colistin? If you call the manufacturer, you may be able to get it for free. It's worth a try. I couldn't find it in my Humana Book.

EILEEN

Subject: inhaled antibiotic, ColistinTo: bronchiectasis Date: Monday, September 26, 2011, 5:35 PM

Hi All,

Has anyone in this group used the inhaled antibiotic, Colistin? My infectious disease doctor prescribed this inhaled antibiotic for me to use 15 days each month after my most recent hospitalizat[The entire original message is not included]