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I am 24 and have VVS. The pain of insertion is so excruciating that

I have never been able to use a tampon or have intercourse. Doctors

assured me that I just needed to relax and that everything would be

ok when I got married – they assumed I had been raped or abused,

which is not the case. I have been married for 9 mos. – and it

is not ok. Fortunately, my new doctor is good and she properly

diagnosed me at once. I've been taking desipramine. Also been

using dilators to get rid of the vaginismus reaction from earlier

incompetent gyno exams. That's gone well. Unfortunately, the

pain has not subsided and my doctor has decided there's nothing

more

she can help me with and is referring me to a specialist,

" probably

for surgery. " My husband and I don't think surgery is a good

option, or at any rate the next one. It's not supposed to be so

helpful for people with primary VVS like me. So we're looking

around,

thinking about the low oxalate diet and biofeedback etc.

My question for the list: did any of you have primary VVS

(that is, pain from the " first time " on) and if so, what

treatments have you tried? Anyone have pain reduction? I feel very

desperate. The emotional side of this is hell – it's been

forever

justto get people to believe me, and now that my families know I feel

pressure to `fix' things fast – yeah, right! I spend so

much time

in dread of some dire disease or feeling like a freak of nature…

anyone out there like me?

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