FMS/ACM/CFS connection! Long!

[Guest guest]

Hi All,

I am back from the dentist and I also got some sleep aid pills! I have

to get some sleep real soon!!

The following information has been taken from different sources that I

have acquired over the past two years! Some are taken from web sites and

other support groups. When I can I will state the source of my

information!

I was diagnosed with FMS in 89 and had the typical FMS symptoms. Many

of you have stated that exercise helps FMS. This is true in most cases,

however when your symptoms progress into what they call CFS (Chronic

Fatigue Syndrome) when you exercise, it just triggers the fatigue and

you can be down for weeks! This has happened to me each and every time

that I have tried to incorporate some type of exercise in my daily life,

including just recently! I hope this information is helpful!

Recent studies have shown that CFS MAY be caused by inflammation of the

pathways in the nervous system; and that this inflammation MAY be some

sort of immune response or auto immune process. Symptoms of CFS appear

much like symptoms of most common viral infections. The symptoms can

often develop within a few hours or days and can last for 6 months. Some

people will appear to get CFS following a viral infection, or a head

injury.

Detection of inter cranial abnormalities are found in patients with CFS

after caparison of MR imaging and SPECT. Also brain scans will often

show that blood flow to the brain has decreased.

*******************I got the above information from articles written by

many researchers.. if you want there names let me know~

*******************

Preliminary research suggests that CFS may involve a brain disorder

specifically, HPA dysfunction which affects the stress response system

in our bodies. HPA and neurotransmitter dysfunction may make CFS

patients excessively irritable and may prompt panic attacks.

Dr. Mark Demitrack (U Michigan) and other doctors are studying the

dysfunction of the hypothalamic-pituitary-adrenal axis as being a

possible major explanation for CFS

In CFS patients illness begins suddenly as though one had come down with

the flu except that this " Flu " doesn't seem to completely go away. For

many patients the onset appears gradually over a long period of time!

How dose CFS relate to other similar illnesses such as FMS, MCS, Gulf

War Syndrome, Neurally medicated hypotension, Lyme disease?

There are several conditions whose symptoms and patterns are so similar

that many believe there must be a common mechanism involved. Some

research has suggested

that dysfunction of the hypothalamic-pituitary-adrenal HPA) axis may be

implicated in several or all of these conditions.

The one difference between CFS and FMS Dr. Cheney notes is that CFS

patients have a strong intolerance for exercise, while for Fibromyalgia

patents, exercise is recommended as being therapeutic. The syndromes of

primary chronic automic failure with widespread dysfunction usually have

features of common nerodegenerative disorders.

The autonomic nervous system, through the sympathetic and

parasympathetic pathway supplies and influences every organ in the body.

Sleep disturbances in CFS can include sleep walking or talking. Memory,

mood, drive and motivation, all of which are controlled by the limbic

system can be effected. Dr. Handleman speculated that there " May be a

virus in this area of the brain, the brain stem or that the relay from

the hypothalamus is abnormal. *

SPECT scanning, which examines brain function bt measuring cerebral

blood flow, shows profound dysfunction in the CFS brain.

To get an accurate SPECT scan reading, a brain-deicated scanner is

needed which uses the 133Xenon or the HMPAO radioisotope to measure CBF

is needed. At the time of this article there were only four such

facilities in the USA.

*********************************************

FMS

People with FMS often have the alpha-delta sleep abnormality. As soon as

we reach our delta level sleep, alpa waves (awake) intrude and either

jolt us to an awakening or to a lighter state of sleep. Our body heals

and many neurotransmitters are restored during delta sleep I can second

that one!! Had sleep study and this is what they told me~!

Research presented at the " American College Of Rheumatology national

meeting in Orlando shows a new study showing that people with FMS, have

diminished flow of blood to part of the brain and an increase in the

chemical substance P that helps transmit pain signals.

Trigger points cause muscle spasticity which disrupts the flow of

liquids in the body. Your eyes may often be dry, and yet sometimes they

water, your thermal regulatory system is out of whack.

Dr. Janet Travell, in her autobiography " Office Hours Day and Night "

noted that dizziness, ringing in ears, loss of balance and other

symptoms can all be caused my SCM TrPs (trigger points) Dr. Taravell was

a White House physician to JFK. The tight SCM (sternocleidomastoid

muscle) complex transmits nerve impulses that inform the brain of the

position of the head and body in the surrounding space. It doesn't match

the imput from your eyes. When head movement changes SCM messages to the

brain, like when you turn or move fast, you get dizzy. You try to take

a drink from a glass and end up wearing your drink. (I wear my food as

well! Smile) As you twist your wrist to bring the drink to your mouth, a

latent TrP stressed muscle is asked to support the drink. You body

couldn't tell where the drink was in relation to your mouth, nor how

heavy it was.

Well guys I think I have written enough for one day.... if you are

interested in hearing more of what I have to say... please let me

know~! I do not want to tie up the list with my research, if no one is

interested! I find it all very interesting, and especially since Chip

sent as the article on FMS research and the connection between ACM and

FMS.

Got to go...... Hugs to all... Robin.... ps.... please remember....

no sleep... equals typeo errors... hell it was all I could do to type

period!

[Guest guest]

i think it depends on finding the right doctor

there is some controversey out there and it is safer for doctors to deny the

existence of CFS, so they choose their safety over their patient's healthcare.

I suggest you call your local CFS support group and ask them for the names of

doctors in your area that PWCs are finding helpful.

HUGS

Melinda

Beck wrote:

> Hi All, I was fascinated by the article Robin sent on CFS. I have had this

> condition for years I believe but cannot get a doctor to agree. I have

> diagnosed with depression, hypocondria and everything else under the sun.

> Robins article sounded just like me. So how do you get a doctor to listen?

> Even my nsg who just performed my decompression surgery doesnt believe in

> CFS. He doesnt believe in any of my symptoms, tells me to stop complaining,

> my surgery went fine and I just need to live with the rest and get on with

> my life. How do you get on with your life when your too tired to? Who do you

> turn to for help when the doctors wont listen? Laurie in Illinois

> FMS/ACM/CFS connection! Long!

>

> >

> >

>

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[Guest guest]

Hi All, I was fascinated by the article Robin sent on CFS. I have had this

condition for years I believe but cannot get a doctor to agree. I have

diagnosed with depression, hypocondria and everything else under the sun.

Robins article sounded just like me. So how do you get a doctor to listen?

Even my nsg who just performed my decompression surgery doesnt believe in

CFS. He doesnt believe in any of my symptoms, tells me to stop complaining,

my surgery went fine and I just need to live with the rest and get on with

my life. How do you get on with your life when your too tired to? Who do you

turn to for help when the doctors wont listen? Laurie in Illinois

FMS/ACM/CFS connection! Long!

>

>