how to minimize flare ups?!

[Guest guest]

Was wondering if anyone had good strategy for flare ups I could try? They have

been minimal and generally I am great. Now dad in hospital and they wont release

records for second opinion .. stress! ! And I'm back on neurontin barely able to

sleep because my legs kill me!

I have been trying to rest etc but am in full blown flare up now. I'm power of

attorney for him so staying home not an option.

Have done heat and vitamins ..

Suggestions that are practical in time crunch?

[Guest guest]

Flare-ups suck! I've been in one this month after doing so great for quite

awhile. Rest, ice, laser therapy are what seem to help me but also just

time..... For me it really seems to be inflammation that somehow gets triggered

and starts a bad pain cycle. Rest helps but it is really frustrating when every

time you try and get more active it makes things worse. I'm sure the stress you

are under is not helping matters. I know when I get in a bad flare-up too I

always worry I won't go back to the way I was a month ago.... but they do seem

to resolve, eventually. I have to keep reminding myself that when I get in this

bad space. Have you tried ice instead of heat? For some people ice helps,

others heat. I guess it depends whether or not there is inflammation there.

Dee

To: tetheredspinalcord

From: lilacs007@...

Date: Sat, 18 Aug 2012 13:54:51 -0700

Subject: how to minimize flare ups?!

Was wondering if anyone had good strategy for flare ups I could try? They have

been minimal and generally I am great. Now dad in hospital and they wont release

records for second opinion .. stress! ! And I'm back on neurontin barely able to

sleep because my legs kill me!

I have been trying to rest etc but am in full blown flare up now. I'm power of

attorney for him so staying home not an option.

Have done heat and vitamins ..

Suggestions that are practical in time crunch?

[Guest guest]

I did do ice a while ago but I may try again. It is so frustrating! All my

knots are back, neuro pain like you wouldn't believe. I have a script for Xanax

but not sure if that would help?

------------------------------

>

>Flare-ups suck! I've been in one this month after doing so great for quite

awhile. Rest, ice, laser therapy are what seem to help me but also just

time..... For me it really seems to be inflammation that somehow gets triggered

and starts a bad pain cycle. Rest helps but it is really frustrating when every

time you try and get more active it makes things worse. I'm sure the stress you

are under is not helping matters. I know when I get in a bad flare-up too I

always worry I won't go back to the way I was a month ago.... but they do seem

to resolve, eventually. I have to keep reminding myself that when I get in this

bad space. Have you tried ice instead of heat? For some people ice helps,

others heat. I guess it depends whether or not there is inflammation there.

Dee

> To: tetheredspinalcord

>From: lilacs007@...

>Date: Sat, 18 Aug 2012 13:54:51 -0700

>Subject: how to minimize flare ups?!

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>Was wondering if anyone had good strategy for flare ups I could try? They have

been minimal and generally I am great. Now dad in hospital and they wont release

records for second opinion .. stress! ! And I'm back on neurontin barely able to

sleep because my legs kill me!

>

>I have been trying to rest etc but am in full blown flare up now. I'm power of

attorney for him so staying home not an option.

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>Have done heat and vitamins ..

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>Suggestions that are practical in time crunch?

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[Guest guest]

Well ice may not help with neuro pain and knots, helps more for inflammation.

To: tetheredspinalcord

From: lilacs007@...

Date: Sat, 18 Aug 2012 18:28:21 -0700

Subject: RE: how to minimize flare ups?!

I did do ice a while ago but I may try again. It is so frustrating! All my

knots are back, neuro pain like you wouldn't believe. I have a script for Xanax

but not sure if that would help?

------------------------------

>

>Flare-ups suck! I've been in one this month after doing so great for quite

awhile. Rest, ice, laser therapy are what seem to help me but also just

time..... For me it really seems to be inflammation that somehow gets triggered

and starts a bad pain cycle. Rest helps but it is really frustrating when every

time you try and get more active it makes things worse. I'm sure the stress you

are under is not helping matters. I know when I get in a bad flare-up too I

always worry I won't go back to the way I was a month ago.... but they do seem

to resolve, eventually. I have to keep reminding myself that when I get in this

bad space. Have you tried ice instead of heat? For some people ice helps,

others heat. I guess it depends whether or not there is inflammation there.

Dee

> To: tetheredspinalcord

>From: lilacs007@...

>Date: Sat, 18 Aug 2012 13:54:51 -0700

>Subject: how to minimize flare ups?!

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>Was wondering if anyone had good strategy for flare ups I could try? They have

been minimal and generally I am great. Now dad in hospital and they wont release

records for second opinion .. stress! ! And I'm back on neurontin barely able to

sleep because my legs kill me!

>

>I have been trying to rest etc but am in full blown flare up now. I'm power of

attorney for him so staying home not an option.

>

>Have done heat and vitamins ..

>

>

>

>Suggestions that are practical in time crunch?

>

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[Guest guest]

I am glad to hear that I am not the only one who has these kind of " flare ups "

and feels like they will not resolve themselves, but they always have so far.

My flare ups have gotten more frequent and intense though, and I have found that

when I am in that pain cycle and I can tell it just feels all inflamed, I get a

script for prednisone for 5 days and that has seemed to do the trick when

nothing else does. You can only take it like once every six months or so because

it is a steroid, but it has worked for me. I also get some relief from heat,

which really makes no sense, but again, it works for me!

Hope you find some relief:)

Lynn

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> >Flare-ups suck! I've been in one this month after doing so great for quite

awhile. Rest, ice, laser therapy are what seem to help me but also just

time..... For me it really seems to be inflammation that somehow gets triggered

and starts a bad pain cycle. Rest helps but it is really frustrating when every

time you try and get more active it makes things worse. I'm sure the stress you

are under is not helping matters. I know when I get in a bad flare-up too I

always worry I won't go back to the way I was a month ago.... but they do seem

to resolve, eventually. I have to keep reminding myself that when I get in this

bad space. Have you tried ice instead of heat? For some people ice helps,

others heat. I guess it depends whether or not there is inflammation there.

Dee

> > To: tetheredspinalcord

> >From: lilacs007@...

> >Date: Sat, 18 Aug 2012 13:54:51 -0700

> >Subject: how to minimize flare ups?!

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> >Was wondering if anyone had good strategy for flare ups I could try? They

have been minimal and generally I am great. Now dad in hospital and they wont

release records for second opinion .. stress! ! And I'm back on neurontin barely

able to sleep because my legs kill me!

> >

> >I have been trying to rest etc but am in full blown flare up now. I'm power

of attorney for him so staying home not an option.

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> >Have done heat and vitamins ..

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> >Suggestions that are practical in time crunch?

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[Guest guest]

Thanks! My GP did put me on steroids but pain doc never mentioned it.

Do you get weird weakness? I was bending down and my legs just started shaking.

They get almost jelly like.

I hope it gets better soon for all of us!

------------------------------

>I am glad to hear that I am not the only one who has these kind of " flare ups "

and feels like they will not resolve themselves, but they always have so far.

>

>My flare ups have gotten more frequent and intense though, and I have found

that when I am in that pain cycle and I can tell it just feels all inflamed, I

get a script for prednisone for 5 days and that has seemed to do the trick when

nothing else does. You can only take it like once every six months or so because

it is a steroid, but it has worked for me. I also get some relief from heat,

which really makes no sense, but again, it works for me!

>Hope you find some relief:)

>

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>Lynn

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>> >Flare-ups suck! I've been in one this month after doing so great for quite

awhile. Rest, ice, laser therapy are what seem to help me but also just

time..... For me it really seems to be inflammation that somehow gets triggered

and starts a bad pain cycle. Rest helps but it is really frustrating when every

time you try and get more active it makes things worse. I'm sure the stress you

are under is not helping matters. I know when I get in a bad flare-up too I

always worry I won't go back to the way I was a month ago.... but they do seem

to resolve, eventually. I have to keep reminding myself that when I get in this

bad space. Have you tried ice instead of heat? For some people ice helps,

others heat. I guess it depends whether or not there is inflammation there.

Dee

>> > To: tetheredspinalcord

>> >From: lilacs007@...

>> >Date: Sat, 18 Aug 2012 13:54:51 -0700

>> >Subject: how to minimize flare ups?!

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>> >Was wondering if anyone had good strategy for flare ups I could try? They

have been minimal and generally I am great. Now dad in hospital and they wont

release records for second opinion .. stress! ! And I'm back on neurontin barely

able to sleep because my legs kill me!

>> >

>> >I have been trying to rest etc but am in full blown flare up now. I'm power

of attorney for him so staying home not an option.

>> >

>> >Have done heat and vitamins ..

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>> >Suggestions that are practical in time crunch?

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[Guest guest]

Lynn, 

Heat helps me a LOT. I love nothing more than to take a hot shower. It seems

like the pain disappears while IN the shower. Too bad it doesn't usually last

longer than that.

Jodi

>I am glad to hear that I am not the only one who has these kind of " flare ups "

and feels like they will not resolve themselves, but they always have so far.

>My flare ups have gotten more frequent and intense though, and I have found

that when I am in that pain cycle and I can tell it just feels all inflamed, I

get a script for prednisone for 5 days and that has seemed to do the trick when

nothing else does. You can only take it like once every six months or so because

it is a steroid, but it has worked for me. I also get some relief from heat,

which really makes no sense, but again, it works for me!

Hope you find some relief:)

Lynn