Re: does CSF flow test hurt?

January 26, 2000

In a message dated 01/26/2000 7:04:06 PM Eastern Standard Time,

wendy@... writes:

<< I did not realize that the CSF flow test injected stuff into the spine.

Does it hurt, >>

's flow studies did not involve any injections into the spine. But she

didn't have it with contrast. Is this why they are doing an injection into

the spine?

Tory ('s mom)

17ys. old, craniofacial abnormalities, midline facial cleft, hydrocephalus,

growth hormone (weighs 56lbs.) and thyroid defecient, blind, severly delayed,

choanial atresia, optic nerve hypoplasia, artificial tear duct, 12-P

deletion, sensory intergration disorder, latex allergy, ACM I, I I/2 or II??

w/30mm herniation, basilar impression. June10, 98' suboccipital craniectomy

and lamenectomy of C1 & C2. Aug. 10, 98' dura graft. History of 36 surgeries.

(and musically talented) SUCH A SPECIAL LITTLE GIRL!

January 26, 2000

and All,

PLEASE DO NOT let them inject anything into your spine. After speaking with

my new nsg, he and I both believe that this is what caused my syrinx. I had

a cisternogram done which is where they inject radioactive dye via a lumbar

puncture and then they take xrays at different intervals over two days. I

believe that it is wacma recommendation (correct me if I'm wrong), that

noone with acm have any kind of spinal puncture ever. I think it causes the

tonsils also to pull down further causing further compression (mine were

originally 6mm and are now 15mm). So please be careful.

CINE MRI is the best flow study and it only involves being in the mri tube

and they dye is put into a vein like an IV. Nothing should hurt. Hope this

helps.

Kathi/Pt Orchard.WA

adamsk60@...

ACM 1 15 mm decomp 1/95

SM T3-11

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