Re: Re: Any hopes for speech?

[Guest guest]

How could the dr tell that her brain was inflamed? What tests did the dr order to verify this? Thank you. From: BorreliaMultipleInfectionsAndAutism [mailto:BorreliaMultipleInfectionsAndAutism ] On Behalf Of faithiseverythingSent: January-21-11 8:45 PMTo: BorreliaMultipleInfectionsAndAutism Subject: Re: Any hopes for speech? On this note: " , but on the other hand everybody sayshe has brain inflammation so I just need to keep trying to find the right one. " focus on things for inflammation. My girl has the same issue as far as she progressed, but way slower than my other children. She also has the brain inflammation. Ashwagandha has been her best supplement. She also responded to Conivora (venus flytrap) and Monolaurin. ly, I think her inflammation has something to do with her digestion because she is not absorbing and metabolizing nutrients well. MP said her brain was way inflammed, even as compared to others with autism. He felt it was viral. It's obvious that she has many pathogens. She still does not get ill, no colds and such, so her immune system is still off. But, she is making it enough to do regular school, with some behavioral issues. At times, they are incredibly awful. She still throws things. Interestingly, she is becoming one of the smartest in her class. I only wish her anger would improve as well. Once I get her anger issue fixed, I feel that knowledge will be priceless. Love and prayers,Heidi N> > >> > > Hello everybody,> > > This is probably going to be a long post, but I really need to share my fears and thoughts and hopefully get your opinion and experience.> > > Few days ago my son got evaluated from developmental pediatrician and of course found him to be autistic. We already knew that with my husband, so nothing shocking, although 2 years ago when we went to developmental pediatrician assessment they found that my son is not autistic but with sensory disintegration disorder – underactive type (I know - very long name, showing nothing). However, over the past 2 years we already knew that my son has autism and started all the dietary interventions, went to DAN doctor, did sequential and classical homeopathy and the last 7 months we are seeing Dr. K's assistant and my son has been treated for Lyme, co-infections, parasites, yeast, bacteria, everything under the sun.> > > However, over the last 2.5 years since we are doing all that my son has made minimum progress (with exception to the last few months that we notice he is more aware, much better eye contact and more playful with us) and something that really hurt me is that the developmental pediatrician said that kids who haven't started talking until 5 (my son is 5.5 years old) after that the prognosis are even more slim, because the first 5 years is when this part of the brain – speech , is developing the most. I cannot even put into words how much this prognosis hurt me, because this is my biggest dream, to hear my son talking. He has only 1 word that he uses on regular basis – " open " and everything else is just " baba " and lots of louad noises. She advised us to look into other types of communication – divices, picture exchange, etc. We are using some sign language with my son but for the most part we are focused on his speech and this is the part we have been working the most.> > > My brain cannot even process that my son may never talk, but the time indeed is passing and I feel more and more concerned and panicked about that.> > > So my question is - are here any kids who were not verbal until 5-6 years old and after that they started talking? I know every child is very individual and what has helped one child doesn't mean it will help another. However, I was wondering if there is a child who had similarities with my son and then something really helped?> > > Here are the supplements that my son is taking:> > > Neem, propolis, cistus tea, selenium CWS, TiQuench, Fermented cod liver oil, Ketotifen, DMG, CGF (chlorella grouth factor), Laktoferrin, liver life, CORE, Quintessence, MB12 shots every 3 days, graviola, few days ago also started Enzogenol, some homeopathics for drainage and for the last 10 days we have been doing also the anti-parasitic drugs as per Dr. K's protocol . I have been reading recently about L-Carnosine and that helps with speech so I am considering getting it.> > > Recenly we purched Valkion so for the last 2 weeks my son is also getting some oxygenized water, we are also doing scalp acupuncture twice per week, chiropractic adjustments evry 1-2 weeks, osteopathy and for the therapies – SonRise, speech and occupational therapy.> > > Please share your thoughts and experience. What are we missing? We have never done chelation, may be this is part of the missing puzzle?> > > Thanks a lot in advance,> > > Krassi> > >> >>

[Guest guest]

Testing for interleukin 1, 6 and alpha is a good way to know whether there is chronic inflammation, it doesn't show exactly where the problem is, but the range does tell you how bad it is. Anne Connolly test gives you good info on how the immune system is reacting in relationship to the body. IsaEnviado desde mi oficina móvil BlackBerry® de TelcelSender: BorreliaMultipleInfectionsAndAutism Date: Sat, 22 Jan 2011 05:21:37 -0000To: <BorreliaMultipleInfectionsAndAutism >ReplyTo: BorreliaMultipleInfectionsAndAutism Subject: Re: Any hopes for speech? I think that PET and SPECT scans are the current scans of choice, that almost always show lack of blood flow in children with autism. I am not wise to what mainstream medical does to show inflammation. I would sure like the same testing used to detect Encephalitis and Menningitis be used on those with autism. I used a herbalist who used a biomeridian machine. One thing is for sure, we all responded well to all the anti-inflammatories we took, and pretty much we can't be without things for inflammation or symptoms return. Love and prayers,Heidi N> > > >> > > > Hello everybody,> > > > This is probably going to be a long post, but I really need to share> my fears and thoughts and hopefully get your opinion and experience.> > > > Few days ago my son got evaluated from developmental pediatrician and> of course found him to be autistic. We already knew that with my husband, so> nothing shocking, although 2 years ago when we went to developmental> pediatrician assessment they found that my son is not autistic but with> sensory disintegration disorder - underactive type (I know - very long name,> showing nothing). However, over the past 2 years we already knew that my son> has autism and started all the dietary interventions, went to DAN doctor,> did sequential and classical homeopathy and the last 7 months we are seeing> Dr. K's assistant and my son has been treated for Lyme, co-infections,> parasites, yeast, bacteria, everything under the sun.> > > > However, over the last 2.5 years since we are doing all that my son> has made minimum progress (with exception to the last few months that we> notice he is more aware, much better eye contact and more playful with us)> and something that really hurt me is that the developmental pediatrician> said that kids who haven't started talking until 5 (my son is 5.5 years old)> after that the prognosis are even more slim, because the first 5 years is> when this part of the brain - speech , is developing the most. I cannot even> put into words how much this prognosis hurt me, because this is my biggest> dream, to hear my son talking. He has only 1 word that he uses on regular> basis - " open " and everything else is just " baba " and lots of louad noises.> She advised us to look into other types of communication - divices, picture> exchange, etc. We are using some sign language with my son but for the most> part we are focused on his speech and this is the part we have been working> the most.> > > > My brain cannot even process that my son may never talk, but the time> indeed is passing and I feel more and more concerned and panicked about> that.> > > > So my question is - are here any kids who were not verbal until 5-6> years old and after that they started talking? I know every child is very> individual and what has helped one child doesn't mean it will help another.> However, I was wondering if there is a child who had similarities with my> son and then something really helped?> > > > Here are the supplements that my son is taking:> > > > Neem, propolis, cistus tea, selenium CWS, TiQuench, Fermented cod> liver oil, Ketotifen, DMG, CGF (chlorella grouth factor), Laktoferrin, liver> life, CORE, Quintessence, MB12 shots every 3 days, graviola, few days ago> also started Enzogenol, some homeopathics for drainage and for the last 10> days we have been doing also the anti-parasitic drugs as per Dr. K's> protocol . I have been reading recently about L-Carnosine and that helps> with speech so I am considering getting it.> > > > Recenly we purched Valkion so for the last 2 weeks my son is also> getting some oxygenized water, we are also doing scalp acupuncture twice per> week, chiropractic adjustments evry 1-2 weeks, osteopathy and for the> therapies - SonRise, speech and occupational therapy.> > > > Please share your thoughts and experience. What are we missing? We> have never done chelation, may be this is part of the missing puzzle?> > > > Thanks a lot in advance,> > > > Krassi> > > >> > >> >>

[Guest guest]

Where to get the Anne Connolly test?To: "BorreliaMultipleInfectionsAndAutism " <BorreliaMultipleInfectionsAndAutism >Sent: Sat, January 22, 2011 1:44:35 AMSubject: Re: Re: Any hopes for

speech?

Testing for interleukin 1, 6 and alpha is a good way to know whether there is chronic inflammation, it doesn't show exactly where the problem is, but the range does tell you how bad it is. Anne Connolly test gives you good info on how the immune system is reacting in relationship to the body. IsaEnviado desde mi oficina móvil BlackBerry® de Telcel

Sender: BorreliaMultipleInfectionsAndAutism

Date: Sat, 22 Jan 2011 05:21:37 -0000To: <BorreliaMultipleInfectionsAndAutism >ReplyTo: BorreliaMultipleInfectionsAndAutism

Subject: Re: Any hopes for speech?

I think that PET and SPECT scans are the current scans of choice, that almost always show lack of blood flow in children with autism. I am not wise to what mainstream medical does to show inflammation. I would sure like the same testing used to detect Encephalitis and Menningitis be used on those with autism. I used a herbalist who used a biomeridian machine. One thing is for sure, we all responded well to all the anti-inflammatories we took, and pretty much we can't be without things for inflammation or symptoms return.

Love and prayers,

Heidi N

> > > >

> > > > Hello everybody,

> > > > This is probably going to be a long post, but I really need to share

> my fears and thoughts and hopefully get your opinion and experience.

> > > > Few days ago my son got evaluated from developmental pediatrician and

> of course found him to be autistic. We already knew that with my husband, so

> nothing shocking, although 2 years ago when we went to developmental

> pediatrician assessment they found that my son is not autistic but with

> sensory disintegration disorder - underactive type (I know - very long name,

> showing nothing). However, over the past 2 years we already knew that my son

> has autism and started all the dietary interventions, went to DAN doctor,

> did sequential and classical homeopathy and the last 7 months we are seeing

> Dr. K's assistant and my son has been treated for Lyme, co-infections,

> parasites, yeast, bacteria, everything under the sun.

> > > > However, over the last 2.5 years since we are doing all that my son

> has made minimum progress (with exception to the last few months that we

> notice he is more aware, much better eye contact and more playful with us)

> and something that really hurt me is that the developmental pediatrician

> said that kids who haven't started talking until 5 (my son is 5.5 years old)

> after that the prognosis are even more slim, because the first 5 years is

> when this part of the brain - speech , is developing the most. I cannot even

> put into words how much this prognosis hurt me, because this is my biggest

> dream, to hear my son talking. He has only 1 word that he uses on regular

> basis - "open" and everything else is just "baba" and lots of louad noises.

> She advised us to look into other types of communication - divices, picture

> exchange, etc. We are using some sign language with my son but for the most

> part we are focused on his speech and this is the part we have been working

> the most.

> > > > My brain cannot even process that my son may never talk, but the time

> indeed is passing and I feel more and more concerned and panicked about

> that.

> > > > So my question is - are here any kids who were not verbal until 5-6

> years old and after that they started talking? I know every child is very

> individual and what has helped one child doesn't mean it will help another.

> However, I was wondering if there is a child who had similarities with my

> son and then something really helped?

> > > > Here are the supplements that my son is taking:

> > > > Neem, propolis, cistus tea, selenium CWS, TiQuench, Fermented cod

> liver oil, Ketotifen, DMG, CGF (chlorella grouth factor), Laktoferrin, liver

> life, CORE, Quintessence, MB12 shots every 3 days, graviola, few days ago

> also started Enzogenol, some homeopathics for drainage and for the last 10

> days we have been doing also the anti-parasitic drugs as per Dr. K's

> protocol . I have been reading recently about L-Carnosine and that helps

> with speech so I am considering getting it.

> > > > Recenly we purched Valkion so for the last 2 weeks my son is also

> getting some oxygenized water, we are also doing scalp acupuncture twice per

> week, chiropractic adjustments evry 1-2 weeks, osteopathy and for the

> therapies - SonRise, speech and occupational therapy.

> > > > Please share your thoughts and experience. What are we missing? We

> have never done chelation, may be this is part of the missing puzzle?

> > > > Thanks a lot in advance,

> > > > Krassi

> > > >

> > >

> >

>

[Guest guest]

Anne Connolly tests for antibodies to brain endothelial cells and to nuclei. You need a doctor to order the lab. You can contact the Departments of Neurology at Washington University in St. Louis to understand how to order the test.http://neuro.wustl.edu/aboutus/facultybiographies/connolly.htmhttp://neuro.wustl.edu/research/researchlabs/connollylaboratory.htmLimin--http://www.healthbylimin.com/Young Living Distributor # 1111136"Follow those who seek the truth,but flee from those who have found it."-- Unknown originWhere to get the Anne Connolly test?To: "BorreliaMultipleInfectionsAndAutism " <BorreliaMultipleInfectionsAndAutism >Sent: Sat, January 22, 2011 1:44:35 AMSubject: Re: Re: Any hopes for speech?Testing for interleukin 1, 6 and alpha is a good way to know whether there is chronic inflammation, it doesn't show exactly where the problem is, but the range does tell you how bad it is. Anne Connolly test gives you good info on how the immune system is reacting in relationship to the body. IsaEnviado desde mi oficina móvil BlackBerry® de TelcelSender: BorreliaMultipleInfectionsAndAutism Date: Sat, 22 Jan 2011 05:21:37 -0000To: <BorreliaMultipleInfectionsAndAutism >ReplyTo: BorreliaMultipleInfectionsAndAutism Subject: Re: Any hopes for speech? I think that PET and SPECT scans are the current scans of choice, that almost always show lack of blood flow in children with autism. I am not wise to what mainstream medical does to show inflammation. I would sure like the same testing used to detect Encephalitis and Menningitis be used on those with autism. I used a herbalist who used a biomeridian machine. One thing is for sure, we all responded well to all the anti-inflammatories we took, and pretty much we can't be without things for inflammation or symptoms return. Love and prayers,Heidi N> > > >> > > > Hello everybody,> > > > This is probably going to be a long post, but I really need to share> my fears and thoughts and hopefully get your opinion and experience.> > > > Few days ago my son got evaluated from developmental pediatrician and> of course found him to be autistic. We already knew that with my husband, so> nothing shocking, although 2 years ago when we went to developmental> pediatrician assessment they found that my son is not autistic but with> sensory disintegration disorder - underactive type (I know - very long name,> showing nothing). However, over the past 2 years we already knew that my son> has autism and started all the dietary interventions, went to DAN doctor,> did sequential and classical homeopathy and the last 7 months we are seeing> Dr. K's assistant and my son has been treated for Lyme, co-infections,> parasites, yeast, bacteria, everything under the sun.> > > > However, over the last 2.5 years since we are doing all that my son> has made minimum progress (with exception to the last few months that we> notice he is more aware, much better eye contact and more playful with us)> and something that really hurt me is that the developmental pediatrician> said that kids who haven't started talking until 5 (my son is 5.5 years old)> after that the prognosis are even more slim, because the first 5 years is> when this part of the brain - speech , is developing the most. I cannot even> put into words how much this prognosis hurt me, because this is my biggest> dream, to hear my son talking. He has only 1 word that he uses on regular> basis - "open" and everything else is just "baba" and lots of louad noises.> She advised us to look into other types of communication - divices, picture> exchange, etc. We are using some sign language with my son but for the most> part we are focused on his speech and this is the part we have been working> the most.> > > > My brain cannot even process that my son may never talk, but the time> indeed is passing and I feel more and more concerned and panicked about> that.> > > > So my question is - are here any kids who were not verbal until 5-6> years old and after that they started talking? I know every child is very> individual and what has helped one child doesn't mean it will help another.> However, I was wondering if there is a child who had similarities with my> son and then something really helped?> > > > Here are the supplements that my son is taking:> > > > Neem, propolis, cistus tea, selenium CWS, TiQuench, Fermented cod> liver oil, Ketotifen, DMG, CGF (chlorella grouth factor), Laktoferrin, liver> life, CORE, Quintessence, MB12 shots every 3 days, graviola, few days ago> also started Enzogenol, some homeopathics for drainage and for the last 10> days we have been doing also the anti-parasitic drugs as per Dr. K's> protocol . I have been reading recently about L-Carnosine and that helps> with speech so I am considering getting it.> > > > Recenly we purched Valkion so for the last 2 weeks my son is also> getting some oxygenized water, we are also doing scalp acupuncture twice per> week, chiropractic adjustments evry 1-2 weeks, osteopathy and for the> therapies - SonRise, speech and occupational therapy.> > > > Please share your thoughts and experience. What are we missing? We> have never done chelation, may be this is part of the missing puzzle?> > > > Thanks a lot in advance,> > > > Krassi> > > >> > >> >>

[Guest guest]

Thank you. Is this a FDA approved test? Do most doctors recognize this test? What benefit will it be to our child? He had the PANDAS test through Dr. M. Cunningham and when we showed that to our immunologist he ignored it. Our son had a Cam Kinase II score of 194 – extremely high! I hate to be out another couple hundred dollars on a test that tells us (again) that our child has elevated autoimmune antibodies...Are there doctors that treat based on the results of this test? I have read that Dr. Chez is one of the researchers who also worked on papers with Dr. Connolly. From: BorreliaMultipleInfectionsAndAutism [mailto:BorreliaMultipleInfectionsAndAutism ] On Behalf Of Limin TsengSent: January-22-11 10:53 PMTo: BorreliaMultipleInfectionsAndAutism Subject: Re: Re: Any hopes for speech? Anne Connolly tests for antibodies to brain endothelial cells and to nuclei. You need a doctor to order the lab. You can contact the Departments of Neurology at Washington University in St. Louis to understand how to order the test. http://neuro.wustl.edu/aboutus/facultybiographies/connolly.htmhttp://neuro.wustl.edu/research/researchlabs/connollylaboratory.htm Limin--http://www.healthbylimin.com/Young Living Distributor # 1111136 " Follow those who seek the truth,but flee from those who have found it. " -- Unknown origin Where to get the Anne Connolly test? To: " BorreliaMultipleInfectionsAndAutism " <BorreliaMultipleInfectionsAndAutism >Sent: Sat, January 22, 2011 1:44:35 AMSubject: Re: Re: Any hopes for speech?Testing for interleukin 1, 6 and alpha is a good way to know whether there is chronic inflammation, it doesn't show exactly where the problem is, but the range does tell you how bad it is. Anne Connolly test gives you good info on how the immune system is reacting in relationship to the body. IsaEnviado desde mi oficina móvil BlackBerry® de TelcelSender: BorreliaMultipleInfectionsAndAutism Date: Sat, 22 Jan 2011 05:21:37 -0000To: <BorreliaMultipleInfectionsAndAutism >ReplyTo: BorreliaMultipleInfectionsAndAutism Subject: Re: Any hopes for speech? I think that PET and SPECT scans are the current scans of choice, that almost always show lack of blood flow in children with autism. I am not wise to what mainstream medical does to show inflammation. I would sure like the same testing used to detect Encephalitis and Menningitis be used on those with autism. I used a herbalist who used a biomeridian machine. One thing is for sure, we all responded well to all the anti-inflammatories we took, and pretty much we can't be without things for inflammation or symptoms return. Love and prayers,Heidi N> > > >> > > > Hello everybody,> > > > This is probably going to be a long post, but I really need to share> my fears and thoughts and hopefully get your opinion and experience.> > > > Few days ago my son got evaluated from developmental pediatrician and> of course found him to be autistic. We already knew that with my husband, so> nothing shocking, although 2 years ago when we went to developmental> pediatrician assessment they found that my son is not autistic but with> sensory disintegration disorder - underactive type (I know - very long name,> showing nothing). However, over the past 2 years we already knew that my son> has autism and started all the dietary interventions, went to DAN doctor,> did sequential and classical homeopathy and the last 7 months we are seeing> Dr. K's assistant and my son has been treated for Lyme, co-infections,> parasites, yeast, bacteria, everything under the sun.> > > > However, over the last 2.5 years since we are doing all that my son> has made minimum progress (with exception to the last few months that we> notice he is more aware, much better eye contact and more playful with us)> and something that really hurt me is that the developmental pediatrician> said that kids who haven't started talking until 5 (my son is 5.5 years old)> after that the prognosis are even more slim, because the first 5 years is> when this part of the brain - speech , is developing the most. I cannot even> put into words how much this prognosis hurt me, because this is my biggest> dream, to hear my son talking. He has only 1 word that he uses on regular> basis - " open " and everything else is just " baba " and lots of louad noises.> She advised us to look into other types of communication - divices, picture> exchange, etc. We are using some sign language with my son but for the most> part we are focused on his speech and this is the part we have been working> the most.> > > > My brain cannot even process that my son may never talk, but the time> indeed is passing and I feel more and more concerned and panicked about> that.> > > > So my question is - are here any kids who were not verbal until 5-6> years old and after that they started talking? I know every child is very> individual and what has helped one child doesn't mean it will help another.> However, I was wondering if there is a child who had similarities with my> son and then something really helped?> > > > Here are the supplements that my son is taking:> > > > Neem, propolis, cistus tea, selenium CWS, TiQuench, Fermented cod> liver oil, Ketotifen, DMG, CGF (chlorella grouth factor), Laktoferrin, liver> life, CORE, Quintessence, MB12 shots every 3 days, graviola, few days ago> also started Enzogenol, some homeopathics for drainage and for the last 10> days we have been doing also the anti-parasitic drugs as per Dr. K's> protocol . I have been reading recently about L-Carnosine and that helps> with speech so I am considering getting it.> > > > Recenly we purched Valkion so for the last 2 weeks my son is also> getting some oxygenized water, we are also doing scalp acupuncture twice per> week, chiropractic adjustments evry 1-2 weeks, osteopathy and for the> therapies - SonRise, speech and occupational therapy.> > > > Please share your thoughts and experience. What are we missing? We> have never done chelation, may be this is part of the missing puzzle?> > > > Thanks a lot in advance,> > > > Krassi> > > >> > >> >>

[Guest guest]

Heidi,

I got non-GMO, gluten & starch free, clear vegetable capsules from Young Living.

My website below carries them. iHerb also sells vegetable capsules, the Now

Foods brand, but they might be GMO and contain gluten.

Limin

--

http://www.healthbylimin.com/

Young Living Distributor # 1111136

" Follow those who seek the truth,

but flee from those who have found it. "

-- Unknown origin

> Can you add where you are ordering your ucky-free empty capsules from because

I will need those too?

>

> Love and prayers,

>

> Heidi N

>

>

>

>

>>

>> That's funny, Heidi. Haha...

>>

>> Banyan Botanicals carries certified organic Ashwagandha root powder. I

usually get powder herbs from Banyan, if they have what I want.

>>

>> Limin

>>

>>

>

>

>

> ------------------------------------

>

>