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Re: Re: KATHY: Hi All

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He's awful and I'm losing patience with him. The nurses won't do anything about

him, even with so many complaining about him. I guess I may have to give the

ombudsman a call. Hospice starts with Jim soon, maybe they will do something

with that filth mouthed guy. He is so disrespectful to older people if they just

make a little noise. He is the loudest, but you can't tell him to be quiet or he

gets louder with his foul mouth.

I think they have run out of rooms to put him in. He has been moved all around.

No one wants him in their room and now he has ended up in Jim's room. But, if I

can make it to boot him out before Jim's end, I will give it a try. He shouted,

" Die old man " to Jim when he coughed from Pneumonia last night. I wanted to hurt

this guy, but it took all I had to not touch him, because I would be in deep

do

do if I did. I think someone did hurt him in another room, so that is why he is

now in Jim's room, because Jim can not walk or get up to hurt him. I almost told

him " Go jump off a cliff. " and caught myself, because that is how he got hurt in

the first place. He is so annoying.

________________________________

To: LBDcaregivers

Sent: Tue, January 18, 2011 6:14:43 AM

Subject: Re: Re: Hi All

 

Isnt there something like an Ombudsman or someone who you can complain to to get

this man moved to another room? That adds so much to the stress level for you

and for Jim. I can't begin to imagine having to listen to that in the best of

times. I'm so sorry.

Kathy

Re: Hi All

>

> Jan: I have been where you are and feel that I know what you are going

> through. My oldest daughter told me the other day that she thought Dad knew

> that he was ready to go and just quit eating. I felt it was just the course

> of the LBD and it was his time to go. Either way, I am sure Ray wouldn't

> have wanted to continue any longer in the shape he was in. Comfort yourself

> with the knowledge that you have done every thing you could to care for him,

> show your love for him in every way you could and advocated for him

> everytime the opportunity arose. We lived our vows to the end. We also

> realize that he will be in a better place and when we meet them again, they

> will no longer be sick! As you have had the strength to suffer along with

> him every step of the way, you will find the strength to find your way

> through the end time. It has been two years this spring and the tears came

> back as I read your post because the things you are seeing, are the things I

> saw as he faded away. Now, I think often of the things he said and did. I

> smile often as I tell a story or remember a good time we had. You may find

> as I did, that I did a lot of my grieving long before he died. Once I

> realized there were no miracle drugs, or treatments or cures --that he was

> on steep slope fading away, I cried and grieved him 6 months before he died.

> I did not know that is what was going on, but afterward, I realized and

> really handled everything very well. Jan, please know that you and Jim are

> in my prayers and thoughts as you continue down this difficult road. God

> Bless you both!! Love, Leona

>

> Leona: Caregiver for husband Ray, age 68, diagnosed 2/04 with Parkinson's

> Disease. Changed doctors, diagnosed 6/06 with LBD. Almost continual downhill

> slide no matter what drugs we try. 5/2/08 Ray was placed in Sunrise Nursing

> Home in Oswego, NY, 1 hour from home. So far, so good! Hardest thing I have

> ever done in my life, however. 3/19/09 transferred to Samaritan Keep NH in

> Watertown, NY closer to home. He passed peacefully at 5:18 am on April 14,

> 2009. I am handling it OK.

>

> ''Love is not finding someone to live with; it's finding someone you don't

want

>

>

> to live without "

>

>

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