2nd Request - Seizures and enzymes

[Guest guest]

Hi, I posted a while ago about seizures - we are having increases with enzymes,

no-fenol and even HN zyme prime. Does anyone have experience with this or any

insights? We're using lithium (1.2 mg) without success. My son is 3 and weighs

30 lbs. We are in touch with our DAN and neurologist, are currently awaiting

the results of a CD 57 test.

Thanks,

Bethany

[Guest guest]

Hi Bethany,

I don't have much knowledge about seizures. We have not done any EEG to see if

our son has absence seizure, although he had episodes of uncontrollable

laughters which can be suspected for seizure activities. I just want to provide

some feedback about Houston enzymes, many of which contains stearic acid and

magnesium stearate. These lubricates of the supplements suppress immunity

system. HN-Zyme Prime even contains salicylates and artificial colors. What I

understand is that for kids who have seizure disorder, any stress to the body

has a chance to set it off. Salicylates are neurotoxic. Accumulated magnesium

stearate and salicylates can damage the gastric mucosa. I would change to a

clean brand of digestive enzymes.

Limin

> Hi, I posted a while ago about seizures - we are having increases with

enzymes, no-fenol and even HN zyme prime. Does anyone have experience with this

or any insights? We're using lithium (1.2 mg) without success. My son is 3 and

weighs 30 lbs. We are in touch with our DAN and neurologist, are currently

awaiting the results of a CD 57 test.

>

> Thanks,

>

> Bethany

>

>

>

> ------------------------------------

>

>

[Guest guest]

is his sugar and potassium and other electrolyes balanced?

2nd Request - Seizures and enzymes

Hi, I posted a while ago about seizures - we are having increases with enzymes, no-fenol and even HN zyme prime. Does anyone have experience with this or any insights? We're using lithium (1.2 mg) without success. My son is 3 and weighs 30 lbs. We are in touch with our DAN and neurologist, are currently awaiting the results of a CD 57 test.

Thanks,

Bethany

[Guest guest]

Bethany,

Your post took me back many years. We tried so many enzymes as it was apparent

from stools that food was going in and coming out looking much the same. My

daughter could not tolerate anything w bromelain, papaya, yeasts, fermented

anything, fungals etc. They all seemed to lower the seizure threshold for her as

did no fenol. The only otc product we found that helped was a pork derived

product. Finally she was put on a prescription product that was much stronger

and also pork derived. Pancreatase, Creon, Ultrase are names for such. More

comprehensive allergy testing when she was a young adult showed allergy to the

items she could not tolerate. Pineapple, papaya, etc were all there as

allergens. For her grapefruit was also an allergen so the off the wall behavior

I saw when I tried GSE a couple of times was NOT die off but a neuro reaction to

the grapefruit. Her allergies exhibit in the neuro system as 'nasty behavior' or

seizures. i.e. pineapple gets her a 7-8 on an irritibility scale while gluten

puts her at a 10, which for her is seizure. Doris Rapp's book 'Is This Your

Child' was a great help in figuring this out. Here, the seizures come mainly as

a delayed reaction-not right after eating but 8-12 hours later. Nasty behavior

that is due to food intolerance will come more quickly, however. Is your child

GFCFSF? - those are big offenders here and generate the time delayed seizures,

enzymes or no enzymes.

>

> Hi, I posted a while ago about seizures - we are having increases with

enzymes, no-fenol and even HN zyme prime. Does anyone have experience with this

or any insights? We're using lithium (1.2 mg) without success. My son is 3 and

weighs 30 lbs. We are in touch with our DAN and neurologist, are currently

awaiting the results of a CD 57 test.

>

> Thanks,

>

> Bethany

>

[Guest guest]

turmeric also helps with digestion.Limin,I wonder if instead of using enzymes all the time, having the following foods with every meal would be more beneficialand healthier: sauekraut or it juice, a few pieces of pineapple, fermented vegetables and the juices, bone broth before each meal( a couple of tablespoons), I think all of these foods stimulate the production of gastric juices to help digestion.Olga>> Hi, I posted a while ago about seizures - we are having increases with enzymes, no-fenol and even HN zyme prime. Does anyone have experience with this or any insights? We're using lithium (1.2 mg) without success. My son is 3 and weighs 30 lbs. We are in touch with our DAN and neurologist, are currently awaiting the results of a CD 57 test.> > Thanks,> > Bethany>

[Guest guest]

Limin,

Have you try to give it to him with lemon juice and a bit of hymalayan salt?

My son likes acidic foods and that is how I give it to him, as I know he

wouldn't take it just like that.

My younger son does not like the beef bone broth as he prefers chicken, but if I

haven't got chicken I still make him take it with a bit of lemon juice to

change it taste and he likes it like that.

When my older boy was 5 and not a very good eater and not a good sitter

either(he used to run around with the food in his )at meal time,a friend

suggested to sit him between my husband and at every meal and not let him move

until he had all/most of his food. we did this for 2 weeks and from them on he

sat anywhere around the table without moving.We did similar things with the

broth as he wasn't willing to drink it back them, my husband used to hold him

and I used to put lukewarm spoonfull in his mouth and made him to drink it. This

sounds drastic but learnt that if he wan't going to drink it by himself we would

give it to him, now he loves the broth and drinks full bowls of it.

This is how I cook the broth at home:

Soak bones at least for 1 hour

fill pot with water and cook bones until water is boiling, get rid of

this dark water and rinse bones with clean water

Fill pot again with water, add lemon juice and hymalayan salt and cook at slow

heat at least for 8 hours, always adding water.

At the end you will have a beautiful nice clean tasty broth that anyone would

love to drink. I do the same with the chicken.

Try to add the taste that your son likes to the broth and see if this work.

Olga

> >>

> >> Hi, I posted a while ago about seizures - we are having increases with

enzymes, no-fenol and even HN zyme prime. Does anyone have experience with this

or any insights? We're using lithium (1.2 mg) without success. My son is 3 and

weighs 30 lbs. We are in touch with our DAN and neurologist, are currently

awaiting the results of a CD 57 test.

> >>

> >> Thanks,

> >>

> >> Bethany

> >>

> >

> >

> >

> >

> > ------------------------------------

> >

> >

[Guest guest]

Is he on anything for seizures? Magnesium and B6 are very popularly used for

seizures in the autism arena. I am sure the formula varies, but I would Google

about it if you haven't already. Here's a quick link.

http://recent-health-research.com/seizure-suggestions/vitamin-b6-pyridoxine-and-\

magnesium-epilepsy-and-seizures/

Seizures went away at my house with digestive enzymes and removing gluten. They

were the first symptom to go, but they were mild for us - not the full body

ones. I think that often symptoms get worse before they get better, so it's

difficult to tell if it's a healing crisis or a reaction to something in the

enzymes. Have you tried other digestive enzymes? I have heard of higher doses

with lithium aspartate or orotate than what you posted. See what your DAN says.

Love and prayers,

Heidi N

>

> Hi, I posted a while ago about seizures - we are having increases with

enzymes, no-fenol and even HN zyme prime. Does anyone have experience with this

or any insights? We're using lithium (1.2 mg) without success. My son is 3 and

weighs 30 lbs. We are in touch with our DAN and neurologist, are currently

awaiting the results of a CD 57 test.

>

> Thanks,

>

> Bethany

>

[Guest guest]

Guar gum is also very helpful in healing the gut. It has reduced my need for supplemental stomach acid to almost nothing. Anne M., BSN, MSN/IH, RNmcfighter@... From: BorreliaMultipleInfectionsAndAutism [mailto:BorreliaMultipleInfectionsAndAutism ] On Behalf Of Limin TsengSent: Thursday, March 10, 2011 6:05 PMTo: BorreliaMultipleInfectionsAndAutism Subject: Re: Re: 2nd Request - Seizures and enzymes Olga, Raw cabbage juice before meals also stimulate the production of HCL.Bone broth is great. Unfortunately, my son dislike it. I have a hard time hiding the taste. I used bone broth to cook vegetable soup and I ended up eating the whole pot of soup myself. My ASD son only likes ginger and lemongrass in the soup base. I always think the his gut can heal better if only he is willing to have some bone broth everyday. Limin> Limin,> > I wonder if instead of using enzymes all the time, having the following foods with every meal would be more beneficialand healthier: sauekraut or it juice, a few pieces of pineapple, fermented vegetables and the juices, bone broth before each meal( a couple of tablespoons), I think all of these foods stimulate the production of gastric juices to help digestion.> > Olga> > >> >> Hi, I posted a while ago about seizures - we are having increases with enzymes, no-fenol and even HN zyme prime. Does anyone have experience with this or any insights? We're using lithium (1.2 mg) without success. My son is 3 and weighs 30 lbs. We are in touch with our DAN and neurologist, are currently awaiting the results of a CD 57 test.>> >> Thanks,>> >> Bethany>> > > > > > ------------------------------------> >

[Guest guest]

Olga,Just to clarify, do you empty the water that you soaked the bones in?  So, you are filling the pot three times with water?This is how I cook the broth at home:

Soak bones at least for 1 hour

fill pot with water and cook bones until water is boiling, get rid of

this dark water and rinse bones with clean water

Fill pot again with water, add lemon juice and hymalayan salt and cook at slow heat at least for 8 hours, always adding water.

At the end you will have a beautiful nice clean tasty broth that anyone would love to drink. I do the same with the chicken.

Try to add the taste that your son likes to the broth and see if this work.

Olga

[Guest guest]

,

Yes I do get rid of the water I soaked the bones in, as this way you get rid of

some very dark blood and other things.

The broth is much nicer and clear when is done this way.

The bones I get normally have meat in them that why I cook them this way, but if

you buy bones without any meat in them, perhaps you would like to soak them and

then cook without getting rid of the water, but if you see that the water is too

dark/black, you will be better off getting rid of that water, giving the bones a

rinse and then do the final cooking .

I heard some parents freeze the broth and give it to their kids as ice blocks

when they are not able to make them drink it.

Olga

>

> Olga,

>

> Just to clarify, do you empty the water that you soaked the bones in? So,

> you are filling the pot three times with water?

>

> This is how I cook the broth at home:

>

> >

> > Soak bones at least for 1 hour

> >

> > fill pot with water and cook bones until water is boiling, get rid of

> > this dark water and rinse bones with clean water

> >

> > Fill pot again with water, add lemon juice and hymalayan salt and cook at

> > slow heat at least for 8 hours, always adding water.

> >

> > At the end you will have a beautiful nice clean tasty broth that anyone

> > would love to drink. I do the same with the chicken.

> >

> > Try to add the taste that your son likes to the broth and see if this work.

> >

> > Olga

> >

> >

>

[Guest guest]

Also wanted to add to the list of good suggestions. I don't know why sodium

levels also have an affect with seizures, but I used to give my son an

electrolyte drink - that I added to foods. It a nice balance of sod. Mag, &

Pot. Its called E-lyte concentrate balance electrolytes - I bought it thru

Emerson's online. The only thing you should not add it to, is any milk

products. I add a capful when cooking veggies, and that way it gets in each

day.

Also you may want to google Vitamin B-6 dependent - there is a test the Neuro

DR's can do to see if your child needs high doses of B-6 each day.

The other supplement some find helpful is L- Carnitine.

Lastly a good acupuncturist can show you how to stop a seizure. It can be done

without needles, it does depend on what kind of seizures too. Because there are

other areas of the body that may need a pressure point addressed.

HTH's

Allie

> >

> > Hi, I posted a while ago about seizures - we are having increases with

enzymes, no-fenol and even HN zyme prime. Does anyone have experience with this

or any insights? We're using lithium (1.2 mg) without success. My son is 3 and

weighs 30 lbs. We are in touch with our DAN and neurologist, are currently

awaiting the results of a CD 57 test.

> >

> > Thanks,

> >

> > Bethany

> >

>

[Guest guest]

I've tried making bone broths before for my son, but they just didn't seem to turn out right. Thanks for the advice and posting the instructions!Val 

 

,

Yes I do get rid of the water I soaked the bones in, as this way you get rid of some very dark blood and other things.

The broth is much nicer and clear when is done this way.

The bones I get normally have meat in them that why I cook them this way, but if you buy bones without any meat in them, perhaps you would like to soak them and then cook without getting rid of the water, but if you see that the water is too dark/black, you will be better off getting rid of that water, giving the bones a rinse and then do the final cooking .

I heard some parents freeze the broth and give it to their kids as ice blocks when they are not able to make them drink it.

Olga

>

> Olga,

>

> Just to clarify, do you empty the water that you soaked the bones in? So,

> you are filling the pot three times with water?

>

> This is how I cook the broth at home:

>

> >

> > Soak bones at least for 1 hour

> >

> > fill pot with water and cook bones until water is boiling, get rid of

> > this dark water and rinse bones with clean water

> >

> > Fill pot again with water, add lemon juice and hymalayan salt and cook at

> > slow heat at least for 8 hours, always adding water.

> >

> > At the end you will have a beautiful nice clean tasty broth that anyone

> > would love to drink. I do the same with the chicken.

> >

> > Try to add the taste that your son likes to the broth and see if this work.

> >

> > Olga

> >

> >

>

[Guest guest]

What other things are you doing? Maybe someone will be able to tell you more if you can list what else you're doing. If adding the enzymes is causing the difficulty, he could be allergic to something in houston enzymes. Maybe try another brand. Some say viruses can cause seizures.

2nd Request - Seizures and enzymes

Hi, I posted a while ago about seizures - we are having increases with enzymes, no-fenol and even HN zyme prime. Does anyone have experience with this or any insights? We're using lithium (1.2 mg) without success. My son is 3 and weighs 30 lbs. We are in touch with our DAN and neurologist, are currently awaiting the results of a CD 57 test.

Thanks,

Bethany

[Guest guest]

OlgaI freeze my very clear bone broth(I use only foot knuckle bones w the nerves, so the color is very clear from the beginning) in small unsalted portions and then use a portion in every meal that calls for water. I have done popsicles too, the flavor hides very well in mashed-frozen pineapple-cinammon puree.IsaEnviado desde mi oficina móvil BlackBerry® de TelcelSender: BorreliaMultipleInfectionsAndAutism Date: Fri, 11 Mar 2011 05:43:51 -0000To: <BorreliaMultipleInfectionsAndAutism >ReplyTo: BorreliaMultipleInfectionsAndAutism Subject: Re: 2nd Request - Seizures and enzymes ,Yes I do get rid of the water I soaked the bones in, as this way you get rid of some very dark blood and other things.The broth is much nicer and clear when is done this way.The bones I get normally have meat in them that why I cook them this way, but if you buy bones without any meat in them, perhaps you would like to soak them and then cook without getting rid of the water, but if you see that the water is too dark/black, you will be better off getting rid of that water, giving the bones a rinse and then do the final cooking .I heard some parents freeze the broth and give it to their kids as ice blocks when they are not able to make them drink it.Olga>> Olga,> > Just to clarify, do you empty the water that you soaked the bones in? So,> you are filling the pot three times with water?> > This is how I cook the broth at home:> > >> > Soak bones at least for 1 hour> >> > fill pot with water and cook bones until water is boiling, get rid of> > this dark water and rinse bones with clean water> >> > Fill pot again with water, add lemon juice and hymalayan salt and cook at> > slow heat at least for 8 hours, always adding water.> >> > At the end you will have a beautiful nice clean tasty broth that anyone> > would love to drink. I do the same with the chicken.> >> > Try to add the taste that your son likes to the broth and see if this work.> >> > Olga> >> >>

[Guest guest]

Limin,

Thanks for your response. Is there a brand or specific enzyme that you've found

success with?

Thanks,

Bethany

>

> > Hi, I posted a while ago about seizures - we are having increases with

enzymes, no-fenol and even HN zyme prime. Does anyone have experience with this

or any insights? We're using lithium (1.2 mg) without success. My son is 3 and

weighs 30 lbs. We are in touch with our DAN and neurologist, are currently

awaiting the results of a CD 57 test.

> >

> > Thanks,

> >

> > Bethany

> >

> >

> >

> > ------------------------------------

> >

> >

[Guest guest]

Is that something we would test for? What type of test? Or do you mean are

they balanced with a supplement?

Thanks!

>

> is his sugar and potassium and other electrolyes balanced?

>

>

>

>

>

> 2nd Request - Seizures and

enzymes

>

>

>

>

> Hi, I posted a while ago about seizures - we are having increases with

enzymes, no-fenol and even HN zyme prime. Does anyone have experience with this

or any insights? We're using lithium (1.2 mg) without success. My son is 3 and

weighs 30 lbs. We are in touch with our DAN and neurologist, are currently

awaiting the results of a CD 57 test.

>

> Thanks,

>

> Bethany

>

[Guest guest]

, that is some great information. Thanks so much. We are GFCFSF, also

doing elimination. But I haven't thought enough about allergies to

fruit-derived ingredients in supplements. I will look into those products you

mentioned, and also the book. His seizures are sometimes delayed, sometimes

immediate, depending on how much food he has in his stomach. He is on

zonisamide (anti-convulsant)right now, which turns into a phenol when it's

broken down, which of course makes things worse. We're thinking of switching to

Lamicatl. We tried going without meds for about a year, but he starts to have

seizures every ten munutes, so until we get the gut/brain healing

started...Bethany

> >

> > Hi, I posted a while ago about seizures - we are having increases with

enzymes, no-fenol and even HN zyme prime. Does anyone have experience with this

or any insights? We're using lithium (1.2 mg) without success. My son is 3 and

weighs 30 lbs. We are in touch with our DAN and neurologist, are currently

awaiting the results of a CD 57 test.

> >

> > Thanks,

> >

> > Bethany

> >

>

[Guest guest]

Heidi, he is on zonisamide for seizures, I forgot to mention that. We are doing

B6 and Magnesium, and we just started high dose vitamin E. I'm wondering if the

enzymes themselves could be getting into the bloodstream, if the damage to his

gut could be that extensive? So maybe we need to heal the gut before he can

handle enzymes? Do you have a favorite enzyme? Thanks, Bethany.

> >

> > Hi, I posted a while ago about seizures - we are having increases with

enzymes, no-fenol and even HN zyme prime. Does anyone have experience with this

or any insights? We're using lithium (1.2 mg) without success. My son is 3 and

weighs 30 lbs. We are in touch with our DAN and neurologist, are currently

awaiting the results of a CD 57 test.

> >

> > Thanks,

> >

> > Bethany

> >

>

[Guest guest]

Thanks, I'm going to have to study up on the electrolyte connection, I dont'

know anything about that.

> > >

> > > Hi, I posted a while ago about seizures - we are having increases with

enzymes, no-fenol and even HN zyme prime. Does anyone have experience with this

or any insights? We're using lithium (1.2 mg) without success. My son is 3 and

weighs 30 lbs. We are in touch with our DAN and neurologist, are currently

awaiting the results of a CD 57 test.

> > >

> > > Thanks,

> > >

> > > Bethany

> > >

> >

>

[Guest guest]

Anne, I am very interested in this. Do you use it alone or in combination?

Does it increase stomach acid? Thanks, Bethany.

> >>

> >> Hi, I posted a while ago about seizures - we are having increases with

> enzymes, no-fenol and even HN zyme prime. Does anyone have experience with

> this or any insights? We're using lithium (1.2 mg) without success. My son

> is 3 and weighs 30 lbs. We are in touch with our DAN and neurologist, are

> currently awaiting the results of a CD 57 test.

> >>

> >> Thanks,

> >>

> >> Bethany

> >>

> >

> >

> >

> >

> > ------------------------------------

> >

> >

[Guest guest]

well you can get a blood glucose metere and monitor him , also test his elytles thru the blood.

it can be really useful..for this.

2nd Request - Seizures and enzymes

>

>

>

>

> Hi, I posted a while ago about seizures - we are having increases with enzymes, no-fenol and even HN zyme prime. Does anyone have experience with this or any insights? We're using lithium (1.2 mg) without success. My son is 3 and weighs 30 lbs. We are in touch with our DAN and neurologist, are currently awaiting the results of a CD 57 test.

>

> Thanks,

>

> Bethany

>

[Guest guest]

We have used several brands, and got results from all of them. I really

don't know which works best, but I do know that for us, we also need to

take digestive aids, like ginger root or turmeric to notice results.

Oddly, even cod liver oil helped their digestion. So, it was like a

mixture of things. We usually use Source Naturals Daily Essential

Enzymes, and then use Now when I need to buy from my local health food

store. I have used Kirkman's, but I can't remember why I didn't keep

using them. I think it's because the pills would look odd and smell

sometimes. I do think their products are good in general though, and I

really appreciate that company.

Love and prayers,

Heidi N

Heidi, he is on zonisamide for seizures, I forgot to mention that. We

are doing B6 and Magnesium, and we just started high dose vitamin E. I'm

wondering if the enzymes themselves could be getting into the

bloodstream, if the damage to his gut could be that extensive? So maybe

we need to heal the gut before he can handle enzymes? Do you have a

favorite enzyme? Thanks, Bethany.

[Guest guest]

Thanks for those ideas, I will definitely look at our organic acid test results.

We were thinking of ia for parasites, maybe now we'll do it sooner rather

than later.

>

> > Hi, I posted a while ago about seizures - we are having increases

> > with enzymes, no-fenol and even HN zyme prime. Does anyone have

> > experience with this or any insights? We're using lithium (1.2 mg)

> > without success. My son is 3 and weighs 30 lbs. We are in touch

> > with our DAN and neurologist, are currently awaiting the results of

> > a CD 57 test.

> >

> > Thanks,

> >

> > Bethany

> >

> >

> >

>