Guest guest Posted March 7, 2011 Report Share Posted March 7, 2011 Olga, I agree with you. In the old days before I knew about autism recovery I would agree that the school's ideas are ok for some. But today, I feel that time and money should best be spent on recovery efforts. Once they are recovered, the counseling about differences, and all that other stuff is no longer needed. I think you should do what you feel is best for your child and stand your ground. Each child will have different needs and each family has their way of handling it. So, do what you think is best and let the school know of your views. The school can learn about recovery from you. Love and prayers, Heidi N > > > Hi all, > > I need your advise. My 11 years old will be attending a main stream catholic high school next year and we had a meeting with the school co- ordinator today and he informed us that the school tells the students with autism/Asperger syndrome(can remember the spelling) that they suffer that condition for them to understand why they are different in so many areas. > > I told him I don't agree with that view as I feel that telling a child that he has Autism/asperger will help him in any way and that as his mother I have the right to decide if I want him to know or not that he has been given that diagnosis. > > My opinion is that our kids are sick and that is the reason for their behaviour, social issues, delay and lot of areas and feeling so unconfortable most of the time. > > Please let me know what is your opinion about this issue, as my son has never been told that he has autism, all I keep telling him is that he is sick and that why he feels anxious and annoyed by certain things sometimes and that the reason he is on a diet and takes supplements to help him to get better. > > I would like to know what the rest of the group tell/has told their kids? As I have to make a decision either to allow the school to tell him or not to tell him. > > > > > Thanks > > Olga > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2011 Report Share Posted March 7, 2011 I might add, if pressed to say what is wrong with your son. I would say a poor immune system ( or something like that), that is being restored thru treatment, diet, etc.. Some of the difficulties are; loud noises, needing a time during the day to rest, etc... I would also see if you can have some kind of written plan of need; he may require during the day, so that his teachers are all on board too. Wishing you the best on this new school for your son. Allie > > > > > > Hi all, > > > > I need your advise. My 11 years old will be attending a main stream catholic high school next year and we had a meeting with the school co- ordinator today and he informed us that the school tells the students with autism/Asperger syndrome(can remember the spelling) that they suffer that condition for them to understand why they are different in so many areas. > > > > I told him I don't agree with that view as I feel that telling a child that he has Autism/asperger will help him in any way and that as his mother I have the right to decide if I want him to know or not that he has been given that diagnosis. > > > > My opinion is that our kids are sick and that is the reason for their behaviour, social issues, delay and lot of areas and feeling so unconfortable most of the time. > > > > Please let me know what is your opinion about this issue, as my son has never been told that he has autism, all I keep telling him is that he is sick and that why he feels anxious and annoyed by certain things sometimes and that the reason he is on a diet and takes supplements to help him to get better. > > > > I would like to know what the rest of the group tell/has told their kids? As I have to make a decision either to allow the school to tell him or not to tell him. > > > > > > > > > > Thanks > > > > Olga > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2011 Report Share Posted March 7, 2011 Heidi and Allie, Thanks so much for your input on this matter, I really appreciate it. I feel more confident now to continue advocating for my sons wellbeing and welfare. The catholic school they are attending at the moment have very clear instructions of not to ever tell them the word autism and they always agreed with my decision, and now I have to be very clear with the hight school and make sure they know what I want from them. Heidi here it is so hard to make teachers understand the word recovery, whenever my boys do anything good at the school the teachers tell me it is becuase they are older and more mature now and they understand more, they don't want to admit that is due to all the treatments and work I do at home with them. Recently my younger boy did the reading during mass infront of more than 300 people and he was cool and in control, but they atributed that to him just turning 10 recently. I think here schools will never recognise the power of alternative treatments and the word recovery, because of convinience for the funding they receive, but the main thing is that we all see the improvements and at the end of the day that what it counts, as long as I know what is helping my kids I will continue with their treament. Olga-- In BorreliaMultipleInfectionsAndAutism , " faithiseverything " wrote: > > Olga, I agree with you. In the old days before I knew about autism recovery I would agree that the school's ideas are ok for some. But today, I feel that time and money should best be spent on recovery efforts. Once they are recovered, the counseling about differences, and all that other stuff is no longer needed. I think you should do what you feel is best for your child and stand your ground. Each child will have different needs and each family has their way of handling it. So, do what you think is best and let the school know of your views. The school can learn about recovery from you. > > Love and prayers, > > Heidi N > > > > > > > > > > Hi all, > > > > I need your advise. My 11 years old will be attending a main stream catholic high school next year and we had a meeting with the school co- ordinator today and he informed us that the school tells the students with autism/Asperger syndrome(can remember the spelling) that they suffer that condition for them to understand why they are different in so many areas. > > > > I told him I don't agree with that view as I feel that telling a child that he has Autism/asperger will help him in any way and that as his mother I have the right to decide if I want him to know or not that he has been given that diagnosis. > > > > My opinion is that our kids are sick and that is the reason for their behaviour, social issues, delay and lot of areas and feeling so unconfortable most of the time. > > > > Please let me know what is your opinion about this issue, as my son has never been told that he has autism, all I keep telling him is that he is sick and that why he feels anxious and annoyed by certain things sometimes and that the reason he is on a diet and takes supplements to help him to get better. > > > > I would like to know what the rest of the group tell/has told their kids? As I have to make a decision either to allow the school to tell him or not to tell him. > > > > > > > > > > Thanks > > > > Olga > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2011 Report Share Posted March 8, 2011 I totally understand this. I get upset when people tell me that my kids are better because they are older. I tell them quickly, " no, that is not it, because without their treatments, their symptoms return. " I tell them it's only biomed and nothing else that has reduced their symptoms. They may not believe me, but it's a start. I feel upset because we spend gobs of time and money to rid their symptoms, and instead of getting, " wow, share with us what you know, " I get, " oh, they just grew out of it. " They are just plain clueless, and many of them have special needs children. At least it's a start. After hearing it from several different people, maybe they will start to believe. I tell them to Google about it, but most don't. Love and prayers, Heidi N From Olga: " Heidi here it is so hard to make teachers understand the word recovery, whenever my boys do anything good at the school the teachers tell me it is becuase they are older and more mature now and they understand more, they don't want to admit that is due to all the treatments and work I do at home with them. " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2011 Report Share Posted March 8, 2011 Hi Olga. I completely agree with you in that it's a personal decision for the parents to decide. It is a global matter, not just a school one. It all depends on the circumstances. The stigma of an autism spectrum disorder must be heavily considered. As you pointed out, how will it help him? And the help, does that outweigh the cost of the label. It may be easier for a school or for some people to use a label as a way of reference, an easy explanation. But that We recently told our 12 year old of the autism label. He thought it was no big deal since he doesn't have those negative associations that we know about. I told him we have to pick and choose we share this with, which he totally understood based on his own observation of peers being discriminated against. The irony. As my son gets older I am sure he will learn all about autism and see how it is viewed in the media. Like the layer of an onion I am sure we will have many future conversations about it as he grows. Good luck in dealing with your school. Ugh! > > > Hi all, > > I need your advise. My 11 years old will be attending a main stream catholic high school next year and we had a meeting with the school co- ordinator today and he informed us that the school tells the students with autism/Asperger syndrome(can remember the spelling) that they suffer that condition for them to understand why they are different in so many areas. > > I told him I don't agree with that view as I feel that telling a child that he has Autism/asperger will help him in any way and that as his mother I have the right to decide if I want him to know or not that he has been given that diagnosis. > > My opinion is that our kids are sick and that is the reason for their behaviour, social issues, delay and lot of areas and feeling so unconfortable most of the time. > > Please let me know what is your opinion about this issue, as my son has never been told that he has autism, all I keep telling him is that he is sick and that why he feels anxious and annoyed by certain things sometimes and that the reason he is on a diet and takes supplements to help him to get better. > > I would like to know what the rest of the group tell/has told their kids? As I have to make a decision either to allow the school to tell him or not to tell him. > > > > > Thanks > > Olga > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2011 Report Share Posted March 8, 2011 Heidi, I feel the same as you, but unfortunately we can't do anything about it. Here parents from a biomedical groups have been adviced to keep quiet about biomedical interventions due to a mother being reported to human services for doing HBOT with their daughter, apparently they told the pediatritian they were doing all these treatments, he reported them and immediately the kids were removed from their care and this poor family went to pure hell and expensive court battles to get their kids back, only with the condition that they don't do any further biomedical treatment on them. Unfortunately that how life is. But there is some intelligent people out there that can see exactly what is happening like my son't school prist who said to my son after he finished reading at mass " Congratulation J. I am very proud of you, you made it mate " Also my son's dentist who couldn't believe how good my older boys was at his latest visist. She said that whatever I am doing is working for him. I came to the conclusion that at the end of the day we are the ones that have to be satisfy with what we have achieved with our kids and let other people to see the good results, without caring about what they think. Olga > > I totally understand this. I get upset when people tell me that my kids > are better because they are older. I tell them quickly, " no, that is > not it, because without their treatments, their symptoms return. " I > tell them it's only biomed and nothing else that has reduced their > symptoms. They may not believe me, but it's a start. I feel upset > because we spend gobs of time and money to rid their symptoms, and > instead of getting, " wow, share with us what you know, " I get, " oh, they > just grew out of it. " They are just plain clueless, and many of them > have special needs children. At least it's a start. After hearing it > from several different people, maybe they will start to believe. I tell > them to Google about it, but most don't. > > Love and prayers, > > Heidi N > > From Olga: > " Heidi here it is so hard to make teachers understand the word recovery, > whenever my boys do anything good at the school the teachers tell me it > is becuase they are older and more mature now and they understand more, > they don't want to admit that is due to all the treatments and work I do > at home with them. " > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2011 Report Share Posted March 8, 2011 Hi , Thanks for your comments, it is always good to hear other parents opinion. I agree with you about discussing this issue with the kids when they are older, but on my own terms as I know what I have to tell them, I don't want/need school intervention in this matter. I have stated very cleary that all I spect from them is to teach my boys and nothing else and I will stand firmly with this view. I remember a pediatritian telling me in one occasion " Olga you are their mother you know them better than anybody else and you are the one who knows what is better form them, " and I couldn't agree more with him. I know my kids will understand because even now I can disccuss a lot of things I couldn't discuss with them 6 months ago. I do plan to tell them in the future why they were given that diagnosis and how I was able to recover them with the biomedical treatment and I am confident thatnthey will take it the same way your son is. Thanks for sharing your experience with your son, it is very helpful. Olga > > > > > > Hi all, > > > > I need your advise. My 11 years old will be attending a main stream catholic high school next year and we had a meeting with the school co- ordinator today and he informed us that the school tells the students with autism/Asperger syndrome(can remember the spelling) that they suffer that condition for them to understand why they are different in so many areas. > > > > I told him I don't agree with that view as I feel that telling a child that he has Autism/asperger will help him in any way and that as his mother I have the right to decide if I want him to know or not that he has been given that diagnosis. > > > > My opinion is that our kids are sick and that is the reason for their behaviour, social issues, delay and lot of areas and feeling so unconfortable most of the time. > > > > Please let me know what is your opinion about this issue, as my son has never been told that he has autism, all I keep telling him is that he is sick and that why he feels anxious and annoyed by certain things sometimes and that the reason he is on a diet and takes supplements to help him to get better. > > > > I would like to know what the rest of the group tell/has told their kids? As I have to make a decision either to allow the school to tell him or not to tell him. > > > > > > > > > > Thanks > > > > Olga > > > Quote Link to comment Share on other sites More sharing options...
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