Re: Re: recurrent strep and enlarged tonsils

[Guest guest]

Limins and others,

There is a You Tube video w/ Dr Schilman re: azithromycin for PANDAS (she gives 10mg/kg of azithro once a week). My son is 14 and a big kids (700 mgs). When we first tried azithro at 250 mgs per day it did nothing. We went up to a daily dose of 750 mgs and things were much better in just a few days. We stayed at that high dose for a good month and then dropped down to 500 mgs/daily. We have now done one IVIG and after a few more IVIG's we will drop down to a twice weekly dose (500mgs every 3 to 4 days). Ibuprofen also helps to calm things down.

> Limin,this kind of Therapeutic Antibiotic therapy is normally done for 3-6 months, I don't think doctors continue after 6 months. Then its consedered INeffective.> > Sasmita > > >>> >>> >>> Subject: re: recurrent strep and enlarged tonsils>>> To: BorreliaMultipleInfectionsAndAutism >>> Date: Sunday, March 13, 2011, 10:42 AM>>> >>> Any PANDAS doctors in NJ?>>> >>> Also, I came across this info:>>> >>> When PANDAS is suspected due to the diagnostic criteria being met, we hypothesise that a short period on antibiotics (every time an episode of GABHS infection is confirmed) concurrent with and followed by ongoing nutrient supplementation to promote optimum Brain cell plasma membranes and Brain tissues may help brain recovery and protect against the full development of serious chronic psychiatric disorders.>>> >>> Based on evidence that there is a recovery period (as the GABHS antibodies reduce to normal) after the strep infection is over, we hypothesise that helping the brain recover with nutrients may reduce vulnerability to further damage by the strep antibodies. This is a

commonsense approach to a medical problem with no proven medical solutions as yet. (Jacques Duff and Dr. Joe Nastasi>>> >>> Does anyone know which supplements they might be referring to?>>> >>> Thank you so much for all of your input :-}>>> >>> >>> >>> >>> >> > > > > > ------------------------------------> >

[Guest guest]

Thanks . I just watched several of Dr. SS's videos. Here is one of the links, in case others are interested:http://www.5min.com/Video/Treatment-Options-for-PANDAS-400025656LiminOn Mar 14, 2011, at 09:42 AM, Fund wrote:Limins and others, There is a You Tube video w/ Dr Schilman re: azithromycin for PANDAS (she gives 10mg/kg of azithro once a week). My son is 14 and a big kids (700 mgs). When we first tried azithro at 250 mgs per day it did nothing. We went up to a daily dose of 750 mgs and things were much better in just a few days. We stayed at that high dose for a good month and then dropped down to 500 mgs/daily. We have now done one IVIG and after a few more IVIG's we will drop down to a twice weekly dose (500mgs every 3 to 4 days). Ibuprofen also helps to calm things down. > Limin,this kind of Therapeutic Antibiotic therapy is normally done for 3-6 months, I don't think doctors continue after 6 months. Then its consedered INeffective.> > Sasmita > > >>> >>> >>> Subject: re: recurrent strep and enlarged tonsils>>> To: BorreliaMultipleInfectionsAndAutism >>> Date: Sunday, March 13, 2011, 10:42 AM>>> >>> Any PANDAS doctors in NJ?>>> >>> Also, I came across this info:>>> >>> When PANDAS is suspected due to the diagnostic criteria being met, we hypothesise that a short period on antibiotics (every time an episode of GABHS infection is confirmed) concurrent with and followed by ongoing nutrient supplementation to promote optimum Brain cell plasma membranes and Brain tissues may help brain recovery and protect against the full development of serious chronic psychiatric disorders.>>> >>> Based on evidence that there is a recovery period (as the GABHS antibodies reduce to normal) after the strep infection is over, we hypothesise that helping the brain recover with nutrients may reduce vulnerability to further damage by the strep antibodies. This is a commonsense approach to a medical problem with no proven medical solutions as yet. (Jacques Duff and Dr. Joe Nastasi>>> >>> Does anyone know which supplements they might be referring to?>>> >>> Thank you so much for all of your input :-}>>> >>> >>> >>> >>> >> > > > > > ------------------------------------> >