Re: recurrent strep and enlarged tonsils..

[Guest guest]

Your son has PANDAS from the strep. You need to get more info about PANDAS at www.pandasnetwork.org. Most kids can revocer w/ a longer term of antibiotic and then may have to stay on a prophilactic dose (once per week thru puberty). Azithromycin works well but others have success w/ augmentin which can be tough on the gut (nausea/vomiting). If the longer term of anitibiotics do not clear the symptoms (OCD, meltdown etc). Then a short steroid burst often helps. THe last treament resort treatment option is IVIG. PANDAS can be very debilatating so the sooner you aggressively treat it the easier it is. My son sufferred from PANDAS for years before we figured it out. He is now being treated w/ IVIG/steroids/antibiotics and finally recovering. Which state are you in? I may be

able to help you find a good PANDAS doc. There are very few docs in the country that are knowledgable.....most don't believe in it.

Subject: recurrent strep and enlarged tonsils..To: BorreliaMultipleInfectionsAndAutism Date: Saturday, March 12, 2011, 9:08 AM

My 8 year old has had recurrent strep throat for past several months. I took him to an ENT who said his tonsils are huge and the strep is probably buried in his tonsils so they need to come out. I would like to avoid surgery if possible. He's done 3 courses/5 days (high dosage) of Zithromax which cures it each time but it keeps coming back. It's definately affecting his brain because when it flares he has major meltdowns, aggression and facial tics. Would a longer, prophylactic dose of Zithromax cure the strep or would it only keep the symptoms at bay until stopped? Would an immunologist be a good idea? Does anyone have any other suggestions for treating strep? Thanks very much.

[Guest guest]

Tasha,

I would look into PANDAS, and try to find a provider who knows what it is. It is controversial, but there are many specialists who absolutely believe in it, and are researching and treating it. It sounds like your child is definitely suspect. My son is 10 with AS, and he is a suspected PANDAS kid...although mine had his tonsils removed at age 4. Even so, when he gets strep, it takes rounds of antibiotics to get rid of it, and then it throws his gut off, and we have major behavior deterioration. He was just dx'd last week with strep (again) and we are doing double probiotics, ibuprofen, along with the Keflex. I am doubtful the 10 day course of Keflex will do the trick, but we will see, and we are keeping a close eye on behavior, trying to support him as much as possible and keep anxiety to a minimum. In fact, I joined this group because someone on my AS list recommended it as a resource to get ideas on treating PANDAS.

I also would definitely get rid of the tonsils. Believe me, I had a pediatrician who refused to get rid of mine, and I was miserable with nasty infections most of my life. When I went to college, I went to an ENT on my own and asked to have them removed. He took one look and said "Why on earth do you still have them!!" Good luck!

Peri

recurrent strep and enlarged tonsils..

My 8 year old has had recurrent strep throat for past several months. I took him to an ENT who said his tonsils are huge and the strep is probably buried in his tonsils so they need to come out. I would like to avoid surgery if possible. He's done 3 courses/5 days (high dosage) of Zithromax which cures it each time but it keeps coming back. It's definately affecting his brain because when it flares he has major meltdowns, aggression and facial tics. Would a longer, prophylactic dose of Zithromax cure the strep or would it only keep the symptoms at bay until stopped? Would an immunologist be a good idea? Does anyone have any other suggestions for treating strep? Thanks very much.

[Guest guest]

,I want to take advantage that you know so much about pandas and ask you to please, help me with this questions:1. Do all strep infections can cause a child to become a pandas kid or only a certain kind of strep?2. I am falling seemingly often w throat infections, last time my ASD had it, I am sure l passed it to him. His behavior doesn't deteriorate more than any child who has a cold....does this mean he doesn't fall into the category of being a pandas patient? He gets winny, but nothing major.Thank you!IsaEnviado desde mi oficina móvil BlackBerry® de TelcelSender: BorreliaMultipleInfectionsAndAutism Date: Sat, 12 Mar 2011 06:46:19 -0800 (PST)To: <BorreliaMultipleInfectionsAndAutism >ReplyTo: BorreliaMultipleInfectionsAndAutism Subject: Re: recurrent strep and enlarged tonsils.. Your son has PANDAS from the strep. You need to get more info about PANDAS at www.pandasnetwork.org. Most kids can revocer w/ a longer term of antibiotic and then may have to stay on a prophilactic dose (once per week thru puberty). Azithromycin works well but others have success w/ augmentin which can be tough on the gut (nausea/vomiting). If the longer term of anitibiotics do not clear the symptoms (OCD, meltdown etc). Then a short steroid burst often helps. THe last treament resort treatment option is IVIG. PANDAS can be very debilatating so the sooner you aggressively treat it the easier it is. My son sufferred from PANDAS for years before we figured it out. He is now being treated w/ IVIG/steroids/antibiotics and finally recovering. Which state are you in? I may beable to help you find a good PANDAS doc. There are very few docs in the country that are knowledgable.....most don't believe in it. Subject: recurrent strep and enlarged tonsils..To: BorreliaMultipleInfectionsAndAutism Date: Saturday, March 12, 2011, 9:08 AM My 8 year old has had recurrent strep throat for past several months. I took him to an ENT who said his tonsils are huge and the strep is probably buried in his tonsils so they need to come out. I would like to avoid surgery if possible. He's done 3 courses/5 days (high dosage) of Zithromax which cures it each time but it keeps coming back. It's definately affecting his brain because when it flares he has major meltdowns, aggression and facial tics. Would a longer, prophylactic dose of Zithromax cure the strep or would it only keep the symptoms at bay until stopped? Would an immunologist be a good idea? Does anyone have any other suggestions for treating strep? Thanks very much.

[Guest guest]

yes what you discribed does NOT sound like a PANDAS kid. a PANDAS kid has a whole shift in personality, mood, behavoiral, responces to life, to achedmics, with OCD, ODD ect. sounds like you are no there.

as far as question number one a lot isnt known. from the research I have done I have seen families with PANDAS regress with probiotics with strep lines in them, seen constant markers for stool GAMMA, but the only pathogen currently studied is regular strep as what you think as in strep throat, but those living with PANDAS see a much broader range of things setting it off

From: isaguzmandiaz2@...

Sent: Saturday, March 12, 2011 11:15 AM

To: BorreliaMultipleInfectionsAndAutism

Subject: Re: recurrent strep and enlarged tonsils..

,I want to take advantage that you know so much about pandas and ask you to please, help me with this questions:1. Do all strep infections can cause a child to become a pandas kid or only a certain kind of strep?2. I am falling seemingly often w throat infections, last time my ASD had it, I am sure l passed it to him. His behavior doesn't deteriorate more than any child who has a cold....does this mean he doesn't fall into the category of being a pandas patient? He gets winny, but nothing major.Thank you!Isa

Enviado desde mi oficina móvil BlackBerry® de Telcel

Sender: BorreliaMultipleInfectionsAndAutism

Date: Sat, 12 Mar 2011 06:46:19 -0800 (PST)

To: <BorreliaMultipleInfectionsAndAutism >

ReplyTo: BorreliaMultipleInfectionsAndAutism

Subject: Re: recurrent strep and enlarged tonsils..

Your son has PANDAS from the strep. You need to get more info about PANDAS at www.pandasnetwork.org. Most kids can revocer w/ a longer term of antibiotic and then may have to stay on a prophilactic dose (once per week thru puberty). Azithromycin works well but others have success w/ augmentin which can be tough on the gut (nausea/vomiting). If the longer term of anitibiotics do not clear the symptoms (OCD, meltdown etc). Then a short steroid burst often helps. THe last treament resort treatment option is IVIG. PANDAS can be very debilatating so the sooner you aggressively treat it the easier it is. My son sufferred from PANDAS for years before we figured it out. He is now being treated w/ IVIG/steroids/antibiotics and finally recovering. Which state are you in? I may be able to help you find a good PANDAS doc. There are very few docs in the country that are knowledgable.....most don't believe in it.

Subject: recurrent strep and enlarged tonsils..To: BorreliaMultipleInfectionsAndAutism Date: Saturday, March 12, 2011, 9:08 AM

My 8 year old has had recurrent strep throat for past several months. I took him to an ENT who said his tonsils are huge and the strep is probably buried in his tonsils so they need to come out. I would like to avoid surgery if possible. He's done 3 courses/5 days (high dosage) of Zithromax which cures it each time but it keeps coming back. It's definately affecting his brain because when it flares he has major meltdowns, aggression and facial tics. Would a longer, prophylactic dose of Zithromax cure the strep or would it only keep the symptoms at bay until stopped? Would an immunologist be a good idea? Does anyone have any other suggestions for treating strep? Thanks very much.

[Guest guest]

OK, which is a PANDAS type of strep Group A/Group B? I mean which one if

present, should investigate more for the probability of PANDAS?

Thanks,

Sasmita

>

>

>

> Subject: recurrent strep and

enlarged tonsils..

> To: BorreliaMultipleInfectionsAndAutism

> Date: Saturday, March 12, 2011, 9:08 AM

>

>

>

> My 8 year old has had recurrent strep throat for past several months.

I took him to an ENT who said his tonsils are huge and the strep is probably

buried in his tonsils so they need to come out. I would like to avoid surgery if

possible. He's done 3 courses/5 days (high dosage) of Zithromax which cures it

each time but it keeps coming back. It's definately affecting his brain because

when it flares he has major meltdowns, aggression and facial tics. Would a

longer, prophylactic dose of Zithromax cure the strep or would it only keep the

symptoms at bay until stopped? Would an immunologist be a good idea? Does anyone

have any other suggestions for treating strep? Thanks very much.

>

[Guest guest]

Peri, please keep us posted how the 10 day trial of Keflex went?

Thanks,

Sasmita

>

> Tasha,

>

> I would look into PANDAS, and try to find a provider who knows what it is. It

is controversial, but there are many specialists who absolutely believe in it,

and are researching and treating it. It sounds like your child is definitely

suspect. My son is 10 with AS, and he is a suspected PANDAS kid...although mine

had his tonsils removed at age 4. Even so, when he gets strep, it takes rounds

of antibiotics to get rid of it, and then it throws his gut off, and we have

major behavior deterioration. He was just dx'd last week with strep (again) and

we are doing double probiotics, ibuprofen, along with the Keflex. I am doubtful

the 10 day course of Keflex will do the trick, but we will see, and we are

keeping a close eye on behavior, trying to support him as much as possible and

keep anxiety to a minimum. In fact, I joined this group because someone on my

AS list recommended it as a resource to get ideas on treating PANDAS.

>

> I also would definitely get rid of the tonsils. Believe me, I had a

pediatrician who refused to get rid of mine, and I was miserable with nasty

infections most of my life. When I went to college, I went to an ENT on my own

and asked to have them removed. He took one look and said " Why on earth do you

still have them!! " Good luck!

>

> Peri

> recurrent strep and enlarged

tonsils..

>

>

>

> My 8 year old has had recurrent strep throat for past several months. I took

him to an ENT who said his tonsils are huge and the strep is probably buried in

his tonsils so they need to come out. I would like to avoid surgery if possible.

He's done 3 courses/5 days (high dosage) of Zithromax which cures it each time

but it keeps coming back. It's definately affecting his brain because when it

flares he has major meltdowns, aggression and facial tics. Would a longer,

prophylactic dose of Zithromax cure the strep or would it only keep the symptoms

at bay until stopped? Would an immunologist be a good idea? Does anyone have any

other suggestions for treating strep? Thanks very much.

>

[Guest guest]

honestly neither. gamma strep is what I have found in ALL cases of PANDAS thus far with out exception. it shows on stool tests. it's not about the type of strep anyone. it's about the symptoms. if you see SYMPTOMS you THEN investigate for strep

From: Sasmita

Sent: Saturday, March 12, 2011 4:23 PM

To: BorreliaMultipleInfectionsAndAutism

Subject: Re: recurrent strep and enlarged tonsils..

OK, which is a PANDAS type of strep Group A/Group B? I mean which one if present, should investigate more for the probability of PANDAS?Thanks,Sasmita> > > > Subject: recurrent strep and enlarged tonsils..> To: BorreliaMultipleInfectionsAndAutism > Date: Saturday, March 12, 2011, 9:08 AM> > > > My 8 year old has had recurrent strep throat for past several months. I took him to an ENT who said his tonsils are huge and the strep is probably buried in his tonsils so they need to come out. I would like to avoid surgery if possible. He's done 3 courses/5 days (high dosage) of Zithromax which cures it each time but it keeps coming back. It's definately affecting his brain because when it flares he has major meltdowns, aggression and facial tics. Would a longer, prophylactic dose of Zithromax cure the strep or would it only keep the symptoms at bay until stopped? Would an immunologist be a good idea? Does anyone have any other suggestions for treating strep? Thanks very much.>

[Guest guest]

Ok, so haemolitic strep doesn't seem to be the cause, right?IsaEnviado desde mi oficina móvil BlackBerry® de TelcelSender: BorreliaMultipleInfectionsAndAutism Date: Sat, 12 Mar 2011 16:49:25 -0500To: <BorreliaMultipleInfectionsAndAutism >ReplyTo: BorreliaMultipleInfectionsAndAutism Subject: Re: Re: recurrent strep and enlarged tonsils.. honestly neither. gamma strep is what I have found in ALL cases of PANDAS thus far with out exception. it shows on stool tests. it's not about the type of strep anyone. it's about the symptoms. if you see SYMPTOMS you THEN investigate for strep From: Sasmita Sent: Saturday, March 12, 2011 4:23 PMTo: BorreliaMultipleInfectionsAndAutism Subject: Re: recurrent strep and enlarged tonsils.. OK, which is a PANDAS type of strep Group A/Group B? I mean which one if present, should investigate more for the probability of PANDAS?Thanks,Sasmita> > > > Subject: recurrent strep and enlarged tonsils..> To: BorreliaMultipleInfectionsAndAutism > Date: Saturday, March 12, 2011, 9:08 AM> > > > My 8 year old has had recurrent strep throat for past several months. I took him to an ENT who said his tonsils are huge and the strep is probably buried in his tonsils so they need to come out. I would like to avoid surgery if possible. He's done 3 courses/5 days (high dosage) of Zithromax which cures it each time but it keeps coming back. It's definately affecting his brain because when it flares he has major meltdowns, aggression and facial tics. Would a longer, prophylactic dose of Zithromax cure the strep or would it only keep the symptoms at bay until stopped? Would an immunologist be a good idea? Does anyone have any other suggestions for treating strep? Thanks very much.>

[Guest guest]

Yep, I forgot its a clinical Diagnosis.

Thanks,

Sasmita

> >

> >

> > From: Tasha70999 <tasha70999@>

> > Subject: recurrent strep and enlarged

tonsils..

> > To: BorreliaMultipleInfectionsAndAutism

> > Date: Saturday, March 12, 2011, 9:08 AM

> >

> >

> >

> > My 8 year old has had recurrent strep throat for past several months. I took

him to an ENT who said his tonsils are huge and the strep is probably buried in

his tonsils so they need to come out. I would like to avoid surgery if possible.

He's done 3 courses/5 days (high dosage) of Zithromax which cures it each time

but it keeps coming back. It's definately affecting his brain because when it

flares he has major meltdowns, aggression and facial tics. Would a longer,

prophylactic dose of Zithromax cure the strep or would it only keep the symptoms

at bay until stopped? Would an immunologist be a good idea? Does anyone have any

other suggestions for treating strep? Thanks very much.

> >

>

[Guest guest]

Isa,

You can learn more about PANDAS at www.pandasnetwork.org The symptoms are OCD, rages, anxiety, separation anxiety, repetitive behaviors, washing hands over and over, deterioration of handwriting and math skills, etc. The symptoms set in following a strep infection. THere is generally a sudden onset of symptoms but it can also be gradual. With each exposure to strep the symptoms can get worse and worse.

You can do a blood test and check ASO/DNASE titers but 5-% of PANDAS kids do not have high titers. When my son had mild PANDAS his titers were high and when he had severe PANDAS symptoms his titers were low. You need to diagnose based on the symptoms.

Any strep infection can cause PANDAS but not all people who get strep get PANDAS. Generally people who have immune dysfuction have a higher rate of getting PANDAS than healthy people but perfectly healthy people can get PANDAS following strep.

The first line of treatment is antibiotic (azithromycin or augmentin). If that does not work then antibiotics w/ a steroid burst. Last resort treatment is IVIG.

Subject: recurrent strep and enlarged tonsils..To: BorreliaMultipleInfectionsAndAutism Date: Saturday, March 12, 2011, 9:08 AM

My 8 year old has had recurrent strep throat for past several months. I took him to an ENT who said his tonsils are huge and the strep is probably buried in his tonsils so they need to come out. I would like to avoid surgery if possible. He's done 3 courses/5 days (high dosage) of Zithromax which cures it each time but it keeps coming back. It's definately affecting his brain because when it flares he has major meltdowns, aggression and facial tics. Would a longer, prophylactic dose of Zithromax cure the strep or would it only keep the symptoms at bay until stopped? Would an immunologist be a good idea? Does anyone have any other suggestions for treating strep? Thanks very much.

[Guest guest]

You can give it daily for at least a year and see if that helps. I have taken

1000mg daily for over a year. I would think do whatever worked long term.

Caryn

>

> My 8 year old has had recurrent strep throat for past several months. I took

him to an ENT who said his tonsils are huge and the strep is probably buried in

his tonsils so they need to come out. I would like to avoid surgery if

possible. He's done 3 courses/5 days (high dosage) of Zithromax which cures it

each time but it keeps coming back. It's definately affecting his brain because

when it flares he has major meltdowns, aggression and facial tics. Would a

longer, prophylactic dose of Zithromax cure the strep or would it only keep the

symptoms at bay until stopped? Would an immunologist be a good idea? Does

anyone have any other suggestions for treating strep? Thanks very much.

>

[Guest guest]

Which haemolytic? Gamma haemolytic is a bad one. My PANDAS kid is +4 for this.

> >

> >

> > From: Tasha70999 <tasha70999@>

> > Subject: recurrent strep and enlarged

tonsils..

> > To: BorreliaMultipleInfectionsAndAutism

> > Date: Saturday, March 12, 2011, 9:08 AM

> >

> >

> >

> > My 8 year old has had recurrent strep throat for past several months. I took

him to an ENT who said his tonsils are huge and the strep is probably buried in

his tonsils so they need to come out. I would like to avoid surgery if possible.

He's done 3 courses/5 days (high dosage) of Zithromax which cures it each time

but it keeps coming back. It's definately affecting his brain because when it

flares he has major meltdowns, aggression and facial tics. Would a longer,

prophylactic dose of Zithromax cure the strep or would it only keep the symptoms

at bay until stopped? Would an immunologist be a good idea? Does anyone have any

other suggestions for treating strep? Thanks very much.

> >

>

[Guest guest]

Caryn,

What do you do to nourish beneficial gut flora, while on antibiotics? My son

has yeast flare-up a few times. Thanks.

Limin

> You can give it daily for at least a year and see if that helps. I have taken

1000mg daily for over a year. I would think do whatever worked long term.

>

> Caryn

>

>

>>

>> My 8 year old has had recurrent strep throat for past several months. I took

him to an ENT who said his tonsils are huge and the strep is probably buried in

his tonsils so they need to come out. I would like to avoid surgery if

possible. He's done 3 courses/5 days (high dosage) of Zithromax which cures it

each time but it keeps coming back. It's definately affecting his brain because

when it flares he has major meltdowns, aggression and facial tics. Would a

longer, prophylactic dose of Zithromax cure the strep or would it only keep the

symptoms at bay until stopped? Would an immunologist be a good idea? Does

anyone have any other suggestions for treating strep? Thanks very much.

>>

>

>

>

>

> ------------------------------------

>

>

[Guest guest]

Isa,Dr. MC developed a test (testing Cam-Kinase and anti-neuronal antibodies) to help diagnose PANDAS. I just got a script from my son's pediatrician to test ASO/DNSAE. If they are within the normal range, I will test him for Dr. MC's test.http://www.oumedicine.com/body.cfm?id=4290, Have you child been tested positive on Dr. MC's lab?LiminThank you . My son doesn't meet the clinical criteria, still, when he regressed it was during a time when he was continuously sick w upper respiratory tract infections, w all u already know: antibiotics, development of non-stop diarrhea, etc., so he did change from what he used to be at that time to a very different child. I wonder if pandas can remain undiagnosed as such for such long term and the symptoms become a permanent behavior in a child? Maybe several of our kids are affected by strep and we are just failing to recognize the chronicity of the infection since it is often present with some other health/behavior issues? If the ASO/DNSAE test if the primary source of info, would it provide definite information on whether to make an approach on chronic strep?Thank you for all the explanation, I believe this is an important topic.IsaEnviado desde mi oficina móvil BlackBerry® de TelcelSender: BorreliaMultipleInfectionsAndAutism Date: Sun, 13 Mar 2011 06:48:12 -0700 (PDT)To: <BorreliaMultipleInfectionsAndAutism >ReplyTo: BorreliaMultipleInfectionsAndAutism Subject: Re: recurrent strep and enlarged tonsils..Isa, You can learn more about PANDAS at www.pandasnetwork.org The symptoms are OCD, rages, anxiety, separation anxiety, repetitive behaviors, washing hands over and over, deterioration of handwriting and math skills, etc. The symptoms set in following a strep infection. THere is generally a sudden onset of symptoms but it can also be gradual. With each exposure to strep the symptoms can get worse and worse. You can do a blood test and check ASO/DNASE titers but 5-% of PANDAS kids do not have high titers. When my son had mild PANDAS his titers were high and when he had severe PANDAS symptoms his titers were low. You need to diagnose based on the symptoms. Any strep infection can cause PANDAS but not all people who get strep get PANDAS. Generally people who have immune dysfuction have a higher rate of getting PANDAS than healthy people but perfectly healthy people can get PANDAS following strep. The first line of treatment is antibiotic (azithromycin or augmentin). If that does not work then antibiotics w/ a steroid burst. Last resort treatment is IVIG. Subject: recurrent strep and enlarged tonsils..To: BorreliaMultipleInfectionsAndAutism Date: Saturday, March 12, 2011, 9:08 AM My 8 year old has had recurrent strep throat for past several months. I took him to an ENT who said his tonsils are huge and the strep is probably buried in his tonsils so they need to come out. I would like to avoid surgery if possible. He's done 3 courses/5 days (high dosage) of Zithromax which cures it each time but it keeps coming back. It's definately affecting his brain because when it flares he has major meltdowns, aggression and facial tics. Would a longer, prophylactic dose of Zithromax cure the strep or would it only keep the symptoms at bay until stopped? Would an immunologist be a good idea? Does anyone have any other suggestions for treating strep? Thanks very much.

[Guest guest]

Wew... My lab test only said haemolitic... I don't have more details.... Now l am confused.IsaEnviado desde mi oficina móvil BlackBerry® de TelcelSender: BorreliaMultipleInfectionsAndAutism Date: Sun, 13 Mar 2011 18:03:42 -0000To: <BorreliaMultipleInfectionsAndAutism >ReplyTo: BorreliaMultipleInfectionsAndAutism Subject: Re: recurrent strep and enlarged tonsils.. Which haemolytic? Gamma haemolytic is a bad one. My PANDAS kid is +4 for this.> > > > > > From: Tasha70999 <tasha70999@>> > Subject: recurrent strep and enlarged tonsils..> > To: BorreliaMultipleInfectionsAndAutism > > Date: Saturday, March 12, 2011, 9:08 AM> > > > > > > > My 8 year old has had recurrent strep throat for past several months. I took him to an ENT who said his tonsils are huge and the strep is probably buried in his tonsils so they need to come out. I would like to avoid surgery if possible. He's done 3 courses/5 days (high dosage) of Zithromax which cures it each time but it keeps coming back. It's definately affecting his brain because when it flares he has major meltdowns, aggression and facial tics. Would a longer, prophylactic dose of Zithromax cure the strep or would it only keep the symptoms at bay until stopped? Would an immunologist be a good idea? Does anyone have any other suggestions for treating strep? Thanks very much.> >>

[Guest guest]

Our doc wanted to do the Cunningham test on our son in Dec but there was a big back log of tests so we were not able to do it at that time. Not sure we'll bother now since we are already doing IVIG.......it's $400 and we may wait till we are thinking of stopping our monthly IVIG to test.

Subject: recurrent strep and enlarged tonsils..To: BorreliaMultipleInfectionsAndAutism Date: Saturday, March 12, 2011, 9:08 AM

My 8 year old has had recurrent strep throat for past several months. I took him to an ENT who said his tonsils are huge and the strep is probably buried in his tonsils so they need to come out. I would like to avoid surgery if possible. He's done 3 courses/5 days (high dosage) of Zithromax which cures it each time but it keeps coming back. It's definately affecting his brain because when it flares he has major meltdowns, aggression and facial tics. Would a longer, prophylactic dose of Zithromax cure the strep or would it only keep the symptoms at bay until stopped? Would an immunologist be a good idea? Does anyone have any other suggestions for treating strep? Thanks very much.

[Guest guest]

It is till a big back log of tests in the Cunningham lab.LiminOur doc wanted to do the Cunningham test on our son in Dec but there was a big back log of tests so we were not able to do it at that time. Not sure we'll bother now since we are already doing IVIG.......it's $400 and we may wait till we are thinking of stopping our monthly IVIG to test. Subject: recurrent strep and enlarged tonsils..To: BorreliaMultipleInfectionsAndAutism Date: Saturday, March 12, 2011, 9:08 AM My 8 year old has had recurrent strep throat for past several months. I took him to an ENT who said his tonsils are huge and the strep is probably buried in his tonsils so they need to come out. I would like to avoid surgery if possible. He's done 3 courses/5 days (high dosage) of Zithromax which cures it each time but it keeps coming back. It's definately affecting his brain because when it flares he has major meltdowns, aggression and facial tics. Would a longer, prophylactic dose of Zithromax cure the strep or would it only keep the symptoms at bay until stopped? Would an immunologist be a good idea? Does anyone have any other suggestions for treating strep? Thanks very much.

[Guest guest]

I do not know. I'll ask our doc and let you know

Subject: recurrent strep and enlarged tonsils..To: BorreliaMultipleInfectionsAndAutism Date: Saturday, March 12, 2011, 9:08 AM

My 8 year old has had recurrent strep throat for past several months. I took him to an ENT who said his tonsils are huge and the strep is probably buried in his tonsils so they need to come out. I would like to avoid surgery if possible. He's done 3 courses/5 days (high dosage) of Zithromax which cures it each time but it keeps coming back. It's definately affecting his brain because when it flares he has major meltdowns, aggression and facial tics. Would a longer, prophylactic dose of Zithromax cure the strep or would it only keep the symptoms at bay until stopped? Would an immunologist be a good idea? Does anyone have any other suggestions for treating strep? Thanks very much.

[Guest guest]

While on antibiotics my son stays on diflucan and Custom Probiotics. No yeast issues.

> You can give it daily for at least a year and see if that helps. I have taken 1000mg daily for over a year. I would think do whatever worked long term.> > Caryn> > >> >> My 8 year old has had recurrent strep throat for past several months. I took him to an ENT who said his tonsils are huge and the strep is probably buried in his tonsils so they need to come out. I would like to avoid

surgery if possible. He's done 3 courses/5 days (high dosage) of Zithromax which cures it each time but it keeps coming back. It's definately affecting his brain because when it flares he has major meltdowns, aggression and facial tics. Would a longer, prophylactic dose of Zithromax cure the strep or would it only keep the symptoms at bay until stopped? Would an immunologist be a good idea? Does anyone have any other suggestions for treating strep? Thanks very much.>> > > > > > ------------------------------------> >

[Guest guest]

Well, it could be gamma strep and therefore, PANDAS.

>

> Wew... My lab test only said haemolitic... I don't have more details.... Now

l am confused.

> Isa

>

> Enviado desde mi oficina móvil BlackBerry® de Telcel

>

> Re: recurrent strep and

enlarged tonsils..

>

> Which haemolytic? Gamma haemolytic is a bad one. My PANDAS kid is +4 for

this.

>

> ---

[Guest guest]

Hi Limin,

I am always using new probiotics and also herbs to fight yeast, worms, viruses,

etc. My son also takes diflucan or ketaconazole regularly.

Caryn

>

> > You can give it daily for at least a year and see if that helps. I have

taken 1000mg daily for over a year. I would think do whatever worked long term.

> >

> > Caryn

> >

[Guest guest]

yeah strep in the yogurt would be enough to set off a flare I would ask also if thye used nitrous oxide when putting him under as kids with MTHFR mutations can't do it with out segnificant plumeting in b12 that would have to be replaced quickly or will cause damages

From: dgfindley@...

Sent: Sunday, March 13, 2011 8:04 PM

To: BorreliaMultipleInfectionsAndAutism

Subject: Re: recurrent strep and enlarged tonsils..

My son has pandas and we had his tonisils out per Dr K, he developed severe motor and vocal tics (which he had never had before) two weeks after the surgery, our ENT said there was no connection but seems odd to me the timing. He was eating soy yogart as the only food for two weeks (which had a strep strain of probiotics in it thought) wo was wondering yeast or the strep strain in it might have caused...l.but anyway taking the tonsils out have not helped my son at all (but he wasnt having sore throats) and he is actually much worse. deborah> >> > My 8 year old has had recurrent strep throat for past several months. I took him to an ENT who said his tonsils are huge and the strep is probably buried in his tonsils so they need to come out. I would like to avoid surgery if possible. He's done 3 courses/5 days (high dosage) of Zithromax which cures it each time but it keeps coming back. It's definately affecting his brain because when it flares he has major meltdowns, aggression and facial tics. Would a longer, prophylactic dose of Zithromax cure the strep or would it only keep the symptoms at bay until stopped? Would an immunologist be a good idea? Does anyone have any other suggestions for treating strep? Thanks very much.> >>

[Guest guest]

I already checked w the lab, the result is alpha haemolityc.... So, not too much to worry about, or?ThanksIsaEnviado desde mi oficina móvil BlackBerry® de TelcelSender: BorreliaMultipleInfectionsAndAutism Date: Fri, 18 Mar 2011 15:33:15 -0400To: <BorreliaMultipleInfectionsAndAutism >ReplyTo: BorreliaMultipleInfectionsAndAutism Subject: Re: Re: recurrent strep and enlarged tonsils.. every child I have seen dxed with PANDAS had gamma show up on stools FIRST before dx. so yes I would make sure you treat and try and wipe out and retest in a few months From: Caryn_Reid Sent: Monday, March 14, 2011 12:41 PMTo: BorreliaMultipleInfectionsAndAutism Subject: Re: recurrent strep and enlarged tonsils.. Well, it could be gamma strep and therefore, PANDAS.>> Wew... My lab test only said haemolitic... I don't have more details.... Now l am confused.> Isa> > Enviado desde mi oficina móvil BlackBerry® de Telcel> > Re: recurrent strep and enlarged tonsils..> > Which haemolytic? Gamma haemolytic is a bad one. My PANDAS kid is +4 for this.> > ---