Re: recurrent strep and enlarged tonsils

[Guest guest]

Any PANDAS doctors in NJ?

Also, I came across this info:

When PANDAS is suspected due to the diagnostic criteria being met, we

hypothesise that a short period on antibiotics (every time an episode of GABHS

infection is confirmed) concurrent with and followed by ongoing nutrient

supplementation to promote optimum Brain cell plasma membranes and Brain tissues

may help brain recovery and protect against the full development of serious

chronic psychiatric disorders.

Based on evidence that there is a recovery period (as the GABHS antibodies

reduce to normal) after the strep infection is over, we hypothesise that helping

the brain recover with nutrients may reduce vulnerability to further damage by

the strep antibodies. This is a commonsense approach to a medical problem with

no proven medical solutions as yet. (Jacques Duff and Dr. Joe Nastasi

Does anyone know which supplements they might be referring to?

Thank you so much for all of your input :-}

[Guest guest]

SMith is a PA in Edison, NJ. He is excellent for PANDAS and is on the PANDAS Medical Advisory Board. He used to be in FLA but recently moved to NJ and is working w/ Dr Neubrander www.drneubrander.com The typical PANDAS treament is to use an antibiotic (Azithromycin or augmentin). If that does not cure it then a steroid burst is added to the antibiotic. If that does not alleviate the symptoms then IVIG is considered. THere are no supplements that help PANDAS. Also, motrin helps

[Guest guest]

,In another word, ANTI-INFLAMMATORY! My son has been taking 500 mg Zithromax once a week for 5.5 months. The purpose is to stop Strep bacterium replication and down-regulate the immune system. We see small improvements (very small). He did have a few episodes of yeast flare-up. Does anyone know how long it will take to see more noticeable improvements? We are treating chronic Strep, not acute Strep. Thanks.Limin SMith is a PA in Edison, NJ. He is excellent for PANDAS and is on the PANDAS Medical Advisory Board. He used to be in FLA but recently moved to NJ and is working w/ Dr Neubranderwww.drneubrander.com The typical PANDAS treament is to use an antibiotic (Azithromycin or augmentin). If that does not cure it then a steroid burst is added to the antibiotic. If that does not alleviate the symptoms then IVIG is considered. THere are no supplements that help PANDAS. Also, motrin helps. Subject: re: recurrent strep and enlarged tonsilsTo: BorreliaMultipleInfectionsAndAutism Date: Sunday, March 13, 2011, 10:42 AMAny PANDAS doctors in NJ?Also, I came across this info:When PANDAS is suspected due to the diagnostic criteria being met, we hypothesise that a short period on antibiotics (every time an episode of GABHS infection is confirmed) concurrent with and followed by ongoing nutrient supplementation to promote optimum Brain cell plasma membranes and Brain tissues may help brain recovery and protect against the full development of serious chronic psychiatric disorders.Based on evidence that there is a recovery period (as the GABHS antibodies reduce to normal) after the strep infection is over, we hypothesise that helping the brain recover with nutrients may reduce vulnerability to further damage by the strep antibodies. This is a commonsense approach to a medical problem with no proven medical solutions as yet. (Jacques Duff and Dr. Joe NastasiDoes anyone know which supplements they might be referring to?Thank you so much for all of your input :-}

[Guest guest]

Limin,this kind of Therapeutic Antibiotic therapy is normally done for 3-6

months, I don't think doctors continue after 6 months. Then its consedered

INeffective.

Sasmita

> >

> >

> > Subject: re: recurrent strep and

enlarged tonsils

> > To: BorreliaMultipleInfectionsAndAutism

> > Date: Sunday, March 13, 2011, 10:42 AM

> >

> > Any PANDAS doctors in NJ?

> >

> > Also, I came across this info:

> >

> > When PANDAS is suspected due to the diagnostic criteria being met, we

hypothesise that a short period on antibiotics (every time an episode of GABHS

infection is confirmed) concurrent with and followed by ongoing nutrient

supplementation to promote optimum Brain cell plasma membranes and Brain tissues

may help brain recovery and protect against the full development of serious

chronic psychiatric disorders.

> >

> > Based on evidence that there is a recovery period (as the GABHS antibodies

reduce to normal) after the strep infection is over, we hypothesise that helping

the brain recover with nutrients may reduce vulnerability to further damage by

the strep antibodies. This is a commonsense approach to a medical problem with

no proven medical solutions as yet. (Jacques Duff and Dr. Joe Nastasi

> >

> > Does anyone know which supplements they might be referring to?

> >

> > Thank you so much for all of your input :-}

> >

> >

> >

> >

> >

>

[Guest guest]

Beginning the second month of taking Zithromax, my son started having excessive mucus in his respiratory system and congested nose. We did have some lymphatic support on board. The conditions only got better very recently after adding Lung and Bronchial Tonic made by Natura Health Products. It seems that his lymphatic system has not been able to drain toxins efficiently all this time.Limin,In another word, ANTI-INFLAMMATORY! My son has been taking 500 mg Zithromax once a week for 5.5 months. The purpose is to stop Strep bacterium replication and down-regulate the immune system. We see small improvements (very small). He did have a few episodes of yeast flare-up. Does anyone know how long it will take to see more noticeable improvements? We are treating chronic Strep, not acute Strep. Thanks.Limin SMith is a PA in Edison, NJ. He is excellent for PANDAS and is on the PANDAS Medical Advisory Board. He used to be in FLA but recently moved to NJ and is working w/ Dr Neubranderwww.drneubrander.com The typical PANDAS treament is to use an antibiotic (Azithromycin or augmentin). If that does not cure it then a steroid burst is added to the antibiotic. If that does not alleviate the symptoms then IVIG is considered. THere are no supplements that help PANDAS. Also, motrin helps. Subject: re: recurrent strep and enlarged tonsilsTo: BorreliaMultipleInfectionsAndAutism Date: Sunday, March 13, 2011, 10:42 AMAny PANDAS doctors in NJ?Also, I came across this info:When PANDAS is suspected due to the diagnostic criteria being met, we hypothesise that a short period on antibiotics (every time an episode of GABHS infection is confirmed) concurrent with and followed by ongoing nutrient supplementation to promote optimum Brain cell plasma membranes and Brain tissues may help brain recovery and protect against the full development of serious chronic psychiatric disorders.Based on evidence that there is a recovery period (as the GABHS antibodies reduce to normal) after the strep infection is over, we hypothesise that helping the brain recover with nutrients may reduce vulnerability to further damage by the strep antibodies. This is a commonsense approach to a medical problem with no proven medical solutions as yet. (Jacques Duff and Dr. Joe NastasiDoes anyone know which supplements they might be referring to?Thank you so much for all of your input :-}

[Guest guest]

What's anyone experience on this in terms of treating Strep-induced

autoimmunity? What the doctors' thoughts on this are? Thanks.

Limin

> Limin,this kind of Therapeutic Antibiotic therapy is normally done for 3-6

months, I don't think doctors continue after 6 months. Then its consedered

INeffective.

>

> Sasmita

>

>

>>>

>>>

>>> Subject: re: recurrent strep and

enlarged tonsils

>>> To: BorreliaMultipleInfectionsAndAutism

>>> Date: Sunday, March 13, 2011, 10:42 AM

>>>

>>> Any PANDAS doctors in NJ?

>>>

>>> Also, I came across this info:

>>>

>>> When PANDAS is suspected due to the diagnostic criteria being met, we

hypothesise that a short period on antibiotics (every time an episode of GABHS

infection is confirmed) concurrent with and followed by ongoing nutrient

supplementation to promote optimum Brain cell plasma membranes and Brain tissues

may help brain recovery and protect against the full development of serious

chronic psychiatric disorders.

>>>

>>> Based on evidence that there is a recovery period (as the GABHS antibodies

reduce to normal) after the strep infection is over, we hypothesise that helping

the brain recover with nutrients may reduce vulnerability to further damage by

the strep antibodies. This is a commonsense approach to a medical problem with

no proven medical solutions as yet. (Jacques Duff and Dr. Joe Nastasi

>>>

>>> Does anyone know which supplements they might be referring to?

>>>

>>> Thank you so much for all of your input :-}

>>>

>>>

>>>

>>>

>>>

>>

>

>

>

>

> ------------------------------------

>

>

[Guest guest]

To: BorreliaMultipleInfectionsAndAutism Sent: Sun, March 13, 2011 12:13:16 PMSubject: Re: Re: recurrent strep and enlarged tonsils

What's anyone experience on this in terms of treating Strep-induced autoimmunity? What the doctors' thoughts on this are? Thanks.

Limin

> Limin,this kind of Therapeutic Antibiotic therapy is normally done for 3-6 months, I don't think doctors continue after 6 months. Then its consedered INeffective.

>

> Sasmita

>

>

>>>

>>>

>>> Subject: re: recurrent strep and enlarged tonsils

>>> To: BorreliaMultipleInfectionsAndAutism

>>> Date: Sunday, March 13, 2011, 10:42 AM

>>>

>>> Any PANDAS doctors in NJ?

>>>

>>> Also, I came across this info:

>>>

>>> When PANDAS is suspected due to the diagnostic criteria being met, we hypothesise that a short period on antibiotics (every time an episode of GABHS infection is confirmed) concurrent with and followed by ongoing nutrient supplementation to promote optimum Brain cell plasma membranes and Brain tissues may help brain recovery and protect against the full development of serious chronic psychiatric disorders.

>>>

>>> Based on evidence that there is a recovery period (as the GABHS antibodies reduce to normal) after the strep infection is over, we hypothesise that helping the brain recover with nutrients may reduce vulnerability to further damage by the strep antibodies. This is a commonsense approach to a medical problem with no proven medical solutions as yet. (Jacques Duff and Dr. Joe Nastasi

>>>

>>> Does anyone know which supplements they might be referring to?

>>>

>>> Thank you so much for all of your input :-}

>>>

>>>

>>>

>>>

>>>

>>

>

>

>

>

> ------------------------------------

>

>

[Guest guest]

High dose antibiotics are used first to treat autoimmune strep. The 2 best antibiotics are azithromycin (10mgs/kg daily) or Augmentin 875mgs 2 X day for an adult. A 2 week trial is done to see if there is any progress. If not then add a steroid burst, again high dose. If that does not help then IVIG is considered. The IVIG reboots the immune system but is very expensive and many infusions may be needed.

> Limin,this kind of Therapeutic Antibiotic therapy is normally done for 3-6 months, I don't think doctors continue after 6 months. Then its consedered INeffective.> > Sasmita > > >>> >>> >>> Subject: re: recurrent strep and enlarged tonsils>>> To: BorreliaMultipleInfectionsAndAutism >>> Date: Sunday, March 13, 2011, 10:42 AM>>> >>> Any PANDAS doctors in NJ?>>> >>> Also, I came across this info:>>> >>> When PANDAS is suspected due to the diagnostic criteria being met, we hypothesise that a short period on antibiotics (every time an

episode of GABHS infection is confirmed) concurrent with and followed by ongoing nutrient supplementation to promote optimum Brain cell plasma membranes and Brain tissues may help brain recovery and protect against the full development of serious chronic psychiatric disorders.>>> >>> Based on evidence that there is a recovery period (as the GABHS antibodies reduce to normal) after the strep infection is over, we hypothesise that helping the brain recover with nutrients may reduce vulnerability to further damage by the strep antibodies. This is a commonsense approach to a medical problem with no proven medical solutions as yet. (Jacques Duff and Dr. Joe Nastasi>>> >>> Does anyone know which supplements they might be referring to?>>> >>> Thank you so much for all of your input :-}>>> >>> >>> >>> >>> >>

> > > > > ------------------------------------> >

[Guest guest]

Yes, unfortunately, relapse rates are high, but it appears that those

who stay on treatments avoid relapse. So, it does appear to be a

permanent problem. Not sure though. Still too early to know. I have

only seen one report of a recovered person who was off of all treatments

for years without relapse. I have seen relapse reports happening a

couple of years off of all treatments. We keep learning and learning.

At this point, there seems to be something going on at the cellular

level, meaning not so much the entire organ missworking, but each cell

of the organ struggling. This is where the vulnerabilities come from.

It still points to pathogens and toxins being the cause, but not sure

how yet.

Love and prayers,

Heidi N

" About the story, Saving Sammy. If he gets ill, he still goes on

antibX's to this day. The symptoms come back otherwise.

So I wonder if its just more less managing it, not getting to the root

of it? "

Allie

[Guest guest]

For multiple years and then wean only if symptom free, otherwise, go right back

on them. Retreat with first sign of symptoms returing.

> >> >>>

> >> >>> From: Tasha P. <tasha70999@>

> >> >>> Subject: re: recurrent

> >> strep and enlarged tonsils

> >> >>> To: BorreliaMultipleInfectionsAndAutism

> >> >>> Date: Sunday, March 13, 2011, 10:42 AM

> >> >>>

> >> >>> Any PANDAS doctors in NJ?

> >> >>>

> >> >>> Also, I came across this info:

> >> >>>

> >> >>> When PANDAS is suspected due to the diagnostic criteria being

> >> met, we hypothesise that a short period on antibiotics (every time

> >> an episode of GABHS infection is confirmed) concurrent with and

> >> followed by ongoing nutrient supplementation to promote optimum

> >> Brain cell plasma membranes and Brain tissues may help brain

> >> recovery and protect against the full development of serious

> >> chronic psychiatric disorders.

> >> >>>

> >> >>> Based on evidence that there is a recovery period (as the GABHS

> >> antibodies reduce to normal) after the strep infection is over, we

> >> hypothesise that helping the brain recover with nutrients may

> >> reduce vulnerability to further damage by the strep antibodies.

> >> This is a commonsense approach to a medical problem with no proven

> >> medical solutions as yet. (Jacques Duff and Dr. Joe Nastasi

> >> >>>

> >> >>> Does anyone know which supplements they might be referring to?

> >> >>>

> >> >>> Thank you so much for all of your input :-}

> >> >>>

> >> >>>

> >> >>>

> >> >>>

> >> >>>

> >> >>

> >> >

> >> >

> >> >

> >> >

> >> > ------------------------------------

> >> >

> >> >

[Guest guest]

Limin, If you are considering antibiotics, I will happily share everything I

know if you e-mail me. My son actually became OCD on zithromax. We eiliminated

OCD with augmentin.

I am thinking that the bacteria and spirochetes don't hibernate, they hide

inside of worms. We are having better improvements treating worms together with

antibiotics.

Caryn

> >>> >>>

> >>> >>> From: Tasha P. <tasha70999@>

> >>> >>> Subject: re: recurrent strep and

enlarged tonsils

> >>> >>> To: BorreliaMultipleInfectionsAndAutism

> >>> >>> Date: Sunday, March 13, 2011, 10:42 AM

> >>> >>>

> >>> >>> Any PANDAS doctors in NJ?

> >>> >>>

> >>> >>> Also, I came across this info:

> >>> >>>

> >>> >>> When PANDAS is suspected due to the diagnostic criteria being met, we

hypothesise that a short period on antibiotics (every time an episode of GABHS

infection is confirmed) concurrent with and followed by ongoing nutrient

supplementation to promote optimum Brain cell plasma membranes and Brain tissues

may help brain recovery and protect against the full development of serious

chronic psychiatric disorders.

> >>> >>>

> >>> >>> Based on evidence that there is a recovery period (as the GABHS

antibodies reduce to normal) after the strep infection is over, we hypothesise

that helping the brain recover with nutrients may reduce vulnerability to

further damage by the strep antibodies. This is a commonsense approach to a

medical problem with no proven medical solutions as yet. (Jacques Duff and Dr.

Joe Nastasi

> >>> >>>

> >>> >>> Does anyone know which supplements they might be referring to?

> >>> >>>

> >>> >>> Thank you so much for all of your input :-}

> >>> >>>

> >>> >>>

> >>> >>>

> >>> >>>

> >>> >>>

> >>> >>

> >>> >

> >>> >

> >>> >

> >>> >

> >>> > ------------------------------------

> >>> >

> >>> >

[Guest guest]

Caryn,

What treatment are you using for worms?

Thanks,

Bethany

> > >>> >>>

> > >>> >>> From: Tasha P. <tasha70999@>

> > >>> >>> Subject: re: recurrent strep

and enlarged tonsils

> > >>> >>> To: BorreliaMultipleInfectionsAndAutism

> > >>> >>> Date: Sunday, March 13, 2011, 10:42 AM

> > >>> >>>

> > >>> >>> Any PANDAS doctors in NJ?

> > >>> >>>

> > >>> >>> Also, I came across this info:

> > >>> >>>

> > >>> >>> When PANDAS is suspected due to the diagnostic criteria being met,

we hypothesise that a short period on antibiotics (every time an episode of

GABHS infection is confirmed) concurrent with and followed by ongoing nutrient

supplementation to promote optimum Brain cell plasma membranes and Brain tissues

may help brain recovery and protect against the full development of serious

chronic psychiatric disorders.

> > >>> >>>

> > >>> >>> Based on evidence that there is a recovery period (as the GABHS

antibodies reduce to normal) after the strep infection is over, we hypothesise

that helping the brain recover with nutrients may reduce vulnerability to

further damage by the strep antibodies. This is a commonsense approach to a

medical problem with no proven medical solutions as yet. (Jacques Duff and Dr.

Joe Nastasi

> > >>> >>>

> > >>> >>> Does anyone know which supplements they might be referring to?

> > >>> >>>

> > >>> >>> Thank you so much for all of your input :-}

> > >>> >>>

> > >>> >>>

> > >>> >>>

> > >>> >>>

> > >>> >>>

> > >>> >>

> > >>> >

> > >>> >

> > >>> >

> > >>> >

> > >>> > ------------------------------------

> > >>> >

> > >>> >

[Guest guest]

Alinia and the amish herbal dewormer which is a ia formula with additonal

ingredients like OoO and pumpkin seed oil. I do plan on using more of the

antihelminths, like ivermectin, pyrantel pomoate, albenza. I feel like we got

something major, but he still has teeth grinding, so I am thinking there is

something else in there that we are not hitting.

I also plan on doing high dose CoQ10 and also L-cysteine, as per Hulda

protocols for tapeworms and ascaris.

Caryn

> > > >>> >>>

> > > >>> >>> From: Tasha P. <tasha70999@>

> > > >>> >>> Subject: re: recurrent strep

and enlarged tonsils

> > > >>> >>> To: BorreliaMultipleInfectionsAndAutism

> > > >>> >>> Date: Sunday, March 13, 2011, 10:42 AM

> > > >>> >>>

> > > >>> >>> Any PANDAS doctors in NJ?

> > > >>> >>>

> > > >>> >>> Also, I came across this info:

> > > >>> >>>

> > > >>> >>> When PANDAS is suspected due to the diagnostic criteria being met,

we hypothesise that a short period on antibiotics (every time an episode of

GABHS infection is confirmed) concurrent with and followed by ongoing nutrient

supplementation to promote optimum Brain cell plasma membranes and Brain tissues

may help brain recovery and protect against the full development of serious

chronic psychiatric disorders.

> > > >>> >>>

> > > >>> >>> Based on evidence that there is a recovery period (as the GABHS

antibodies reduce to normal) after the strep infection is over, we hypothesise

that helping the brain recover with nutrients may reduce vulnerability to

further damage by the strep antibodies. This is a commonsense approach to a

medical problem with no proven medical solutions as yet. (Jacques Duff and Dr.

Joe Nastasi

> > > >>> >>>

> > > >>> >>> Does anyone know which supplements they might be referring to?

> > > >>> >>>

> > > >>> >>> Thank you so much for all of your input :-}

> > > >>> >>>

> > > >>> >>>

> > > >>> >>>

> > > >>> >>>

> > > >>> >>>

> > > >>> >>

> > > >>> >

> > > >>> >

> > > >>> >

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