IVIG: what type exactly, by whom? Re: Re: please help life falling apart here!

[Guest guest]

If IVIG is intravenous immune boost derived from animals, researcher-immunologist did want people on something like that because the assumption was that the purity of the manufacture might be iffy and might trigger more immune imbalance; thought it better to go with slow but steady progress on LDN, Inosine, etc. "We cannot be sure exactly what is in it." The researcher is heavy into genetics and is probably aware of industry scuttlebutt about good mfg. practices. The info was not more specific than that and is vaguely remembered but seemed a good point given the altered genetics of animals and their food supply. Does anyone know of similar info.? Please, what is PANDAS?To: BorreliaMultipleInfectionsAndAutism Sent: Tue, January 25, 2011 6:33:23 PMSubject: Re: Re: please help life falling apart here!

The azithro dosing for PANDAS is very new territory.....just like everything else. I am thinking it's very dose dependent on each child. My son was doing great at 750 mgs daily (he weighs 170 pounds and is 14, has severe PANDAS, and has most likely had PANDAS for many years gradually getting worse). We are now doing 500 mgs of azithro daily w/ Dr Usman's biofilm protocol (heavy duty).........we are seeing good gains across the board......language, anxiety, handwriting, math, behaviors, OCD, and rages/SIBS are gone!

Hopefully we will continue w/ the gains on the azithro/biofilm. We are also trying to get insurance coverage for IVIG. I think you need to play w/ the dose of azithro to see what works for your child......also look into the biofilm protocol.

Subject: Re: please help life falling apart here!To: BorreliaMultipleInfectionsAndAutism Date: Tuesday, January 25, 2011, 4:49 PM

Limin,Daily Zithromax @250 mg day keeps the Pandas in check unless in my son's case he's exposed to a virus that does not clear in which case we need 30 days Augmentin because symptoms like OCD break through. Put another way Zitro gives us modest gains v v decrease or loss of PANDAS symptoms in the beginning and then holds them steady (I have 2 with Pandas.) IVIG + Zithro is giving my more typical daughter terrific global gains/recovery after 5 years of PANDAS symptoms. IVIG + Zithro is giving my son w/ PDD gains in language, cognition, socialization; yeast is a problem on Augmentin we have to also use Diflucan. I find that IVIG post treatment care requires vigilance for gut bugs, requires constant management of the gut. But, their relative gains and relative health as compared to the last 4-5 years do make these problems much clearer, they jump out.Hope it helps,>