Lyme in Autism and HBOT? (BorreliaMultipleInfectionsAndAutism)

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Hello. I am new to this group but I have been with TACA an autism support group for years. My son now 17 was just diagnosed with Lyme. We are on the special diets, chelated, supplements, MB12 shots and on HBOT 5x weekly. Our DAN-Lyme doctor advised to stop HBOT for a year as it does something to the cells vis-à-vis the lyme. Has anyone heard this from their doctor? We are just starting allicin-garlic, D3, iodine, HH-2 and R-5081 by Zhang and 25B probiotics. We are awaiting more tests to come back on co-infections. Any advice or comment on the treatments thus far? Appreciate any help. Many tks. Fransel (son 17yrs) FranselSender: BorreliaMultipleInfectionsAndAutism Date: Sun, 23 Jan 2011 01:56:46 -0000To: <BorreliaMultipleInfectionsAndAutism >ReplyTo: BorreliaMultipleInfectionsAndAutism Subject: Re: Any hopes for speech?-long I have a non-verbal son with autism/apraxia. He will be 10 years old in about a week. We got our son an AAC device (Vantage) when he was about 5 years old. It has been extremely helpful in reducing his frustration level. It was also very helpful to have a trained speech therapist help him with the device. He now flies through it and spells items. He still has a lot to learn on it, but it was worth it. Our children need to communicate things. They get very upset when they don't think anyone doesn't understand them. Prior to that, we used PECS. We have done many things also. Diets, supplements, NAET, chelation, HBOT, etc. We have had moments of " language. " We were excited and thought we were on the right track. As we continued using other approaches, he developed a reaction, which has resulted in a tic. Separately given the items were fine. When taken during the same day, the reaction was horrible. We had to stop everything. Now we are starting over slowly. Things that had worked before now aren't. It's very strange, but we also discovered he had PANDAS and HHV-6. I highly suspected Lyme (because he shows signs of Bells Palsy), but only tested positive for one band through the hospital lab. We plan on retesting him through IGENIX soon. We are currently starting another round of HBOT again. This is the only thing that had reduced his strep titers (PANDAS) significantly for him. It also has increased his " awareness " for things around him. I know you understand what I am saying. Our son still squeals and makes his own unique sounds. Other times we can get words out of him, but not too many (less than 10). I strongly feel that we are going to see some results in the speech area soon with this round of HBOT. We shall see. I hope that our story doesn't cause you to be disheartened. It is not my intention. As you said, what works for one may or may not work for another. It's just our story. We haven't given up on hope and we certainly do love him more than words can ever say. We know that our answer is out there. The missing piece of our puzzle. After many hours of research, I finally feel I'm on the right track to isolating the things that " cause " his lack of speech. Now it's a matter of finding the right treatment/(s) and in the right order. The best of luck to you and your family. Hang in there. You are on the right track.> > > > > > > > > > Can I be blunt?   This " window " doctors and some support groups have " advertised " is PURE bullshit!   I don't believe it and I never will.  I am with Jeannette and .  Just believe Krassi!  See your son communicating, picture it in your mind...picture him healthy and happy.  Just keep the viRuut...if you read this post could you PLEASE share your story with the group so the moms can get some inspiration. Hugs,Tami In a message dated 1/21/2011 2:36:04 P.M. Pacific Standard Time, klwadler@ writes:  Why do these drs feel the need to make such stupid comment? I have heard of kids starting to talk at age 16. They dont understand autism so how can they know if they will talk or not? You are doing all the right things. just keep going. I have heard that high dose vit E with fatty acids helps. For my son CalEDTA helped bcause it got rid of some lead. There is a correlation between lead and apraxia. Dont worry about the future, just keep> > going. you never know which thing is going to help.In a message dated 1/21/2011 4:18:58 P.M. Eastern Standard Time, krassi_G_2000@ writes: Hello everybody,> > This is probably going to be a long post, but I really need to share my fears and thoughts and hopefully get your opinion and experience.> > Few days ago my son got evaluated from developmental pediatrician and of course found him to be autistic. We already knew that with my husband, so nothing shocking, although 2 years ago when we went to developmental pediatrician assessment they found that my son is not autistic but with sensory disintegration disord  > > > >__________ Information from ESET NOD32 Antivirus, version of virus signature database 5808 (20110122)__________> > > > The message was checked by ESET NOD32 Antivirus.> > > > http://www.eset.com  __________ Information from ESET NOD32 Antivirus, version of virus signature database 5808 (20110122)__________  The message was checked by ESET NOD32 Antivirus.  http://www.eset.com > > > >__________ Information from ESET NOD32 Antivirus, version of virus signature database 5808 (20110122)__________> > > > The message was checked by ESET NOD32 Antivirus.> > > > http://www.eset.com> >>