Guest guest Posted December 10, 2000 Report Share Posted December 10, 2000 >Hi Dee Nice to hear from you. Are you in the hands of a gyn/onc. If not its impertive that you do I feel. I know the struggle you must have had having bits of the vulva cut out in a society that does not discuss vulvas. We have women in our support group who have had the same as you. Just know that you are not alone in this struggle. This issue really needs to be addressed it is just a case of finding someone who will take notice of our call for action. All I can say is you must take charge and find the right medicos who know about VIN3 and demand answers. Regards Kathleen Mazzella GAIN Gynaecological Awareness Information Network >Message: 3 > Date: Sat, 09 Dec 2000 12:59:25 -0000 > From: dshercliff@... >Subject: VIN 3 (vulval pre cancer) > >i have suffered with this for the last five years and have had >numerous operations to remove it. unfortuantely these haven't been >successful, and have left me in the same state as the British rail >network, in fact there's a similarity in looks also...LOL. i am 37, >and was told by my first doctor, that the lump on my vagina couldn't >possibly be cancer as i wasn't old enough!!! fortunately i had a >second opinion. i changed consultants due to my original one telling >me that i'd need a total vulvectomy in 5 years time, that was 3 years >ago. i really didn't fancy that at all!!! luckily my new consultant >is a lot more positive and actually seems to be aware of this >problem. i would love to be in contact with others in similar >situations. please feel free to email me >Good luck to you all >Regards Dee Shercliff > > > Quote Link to comment Share on other sites More sharing options...
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