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Imogene, Joan and Raquel

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Hello Ladies! I too keep everyone in this group in my thoughts and prayers

though I may go MIA every once in a while. I owe a lot to this group and will

be forever grateful. You guys kept me sane and showed me more love than my own

family. Not to mention all the knowledge I learned from all you wonderful

people!

Things have been a little better, though I still and will ALWAYS miss my daddy.

There are days that are better than others although sometimes I go through a

tear-fest. I am at peace that I fought for him and did everything I could

possibly do to help him, just as you all courageous people have done or are

still doing. My daddy is no longer in any pain and is the whole, handsome,

strong person that he once was and I take comfort in that.

I just wanted to say hello to you ladies and everyone in this group. I love you

all.

Hugs and many blessings,

from NYC

Daughter of Celestino (Tino) Suarez

Misdiagnosed for years. Diagnosed with LBD March 2009, but we now know he's had

it for at least 4-5 years.

God called him home on October 27, 2009. Rest in peace, Daddy.

(January 29, 1930 - October 27, 2009)

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well said joan, 

 

hindsignht is always 20/20 but then it is 20/20 beuase we have more informaiton

to undersand now what we didnt understand then,  so forgiving oneself for not

being perfect is the best thing to do.  hugs. shaorn

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Subject: Re: Imogene, Joan and Raquel

To: LBDcaregivers

Date: Tuesday, January 25, 2011, 8:34 PM

 

Hi ,

It is good to hear from you.

The hard part of this disease is that it takes some time to be diagnosed

correctly, and due to that, my Mom was given meds that she reacted negatively

to. She went into the hospital as one person and came out with very marked

decline. I never put her in a skilled nursing facility, and I did my best to

take care of her until I went out of the room about 5 minutes and when I came

back she had passed away. I know that she had bad meds, but that was because the

doctor that was treating her in the hospital was not aware of LBD, and by the

time that I knew these meds were bad, they had already wreaked havoc.

I am not angry at anyone including me, because the knowledge of LBD was not

widespread...but I try in all my contacts with people to talk about LBD. A

couple weeks ago I gave the website info to a man and he called me a couple

hours later telling me that he is pretty sure that a person he knows has

LBD...we might have saved one from getting the wrong treatment.

I used to feel bad that I didn't know, and because I may have put some stress in

her life, but when I learned about LBD, I knew that I did the best that I could

with the absence of knowing about LBD. YOu know, there are always the 'wish I

did this' 'wish I didn't do that' and it is useless because we cannot go back

and have to realize with what we had to work with, we did the very best that we

could, and our parents, spouses, siblings do know that is what we did and are

eternally grateful for our love and caring.

>

> Hello Ladies! I too keep everyone in this group in my thoughts and prayers

though I may go MIA every once in a while. I owe a lot to this group and will be

forever grateful. You guys kept me sane and showed me more love than my own

family. Not to mention all the knowledge I learned from all you wonderful

people!

>

> Things have been a little better, though I still and will ALWAYS miss my

daddy. There are days that are better than others although sometimes I go

through a tear-fest. I am at peace that I fought for him and did everything I

could possibly do to help him, just as you all courageous people have done or

are still doing. My daddy is no longer in any pain and is the whole, handsome,

strong person that he once was and I take comfort in that.

>

> I just wanted to say hello to you ladies and everyone in this group. I love

you all.

>

> Hugs and many blessings,

>

>

>

> from NYC

>

> Daughter of Celestino (Tino) Suarez

> Misdiagnosed for years. Diagnosed with LBD March 2009, but we now know he's

had

> it for at least 4-5 years.

>

> God called him home on October 27, 2009. Rest in peace, Daddy.

> (January 29, 1930 - October 27, 2009)

>

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