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Cindy is MRI bound/2 important questions SCC/MRSA

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Hi everybody,

Our good news has been short lived. 's incision opened back up late

Wednesday night and drained greeney-yellowy-bloody gooouu. Sorry to be

so graphic but the infection drainage is getting worse.

We had a busy day Thursday and I didn't talk to her all day <very rare>.

Friday am I had to go to her house and change her dressing for the nurse

to approve me doing that for her. I can do everything fine except get

those gloves on and not touch the sterile parts - one glove you can only

touch the inside and the other you can only touch the outside. Try it

sometime! Boy, if she had been treated like this from the beginning we

would be a lot closer to conquering this monster called MRSA.

Her home health nurse call her gp and we went to see him Friday

afternoon. Bless his heart I felt sorrow for him before everything got

figured out. He'd write out request for test and cindy would say

................ ??????? will the bovine graph show up or should you do

that with chiari, etc. So we went from an x-ray to a lumbar puncture to

a cat scan to an MRI.

A short while back there was a discussion on lumbar punctures and if I

remember correctly the final conclusion was chiarians that had been

decompressed should not have lumbar punctures or spinal taps. Is this

right or wrong?

She will be having a MRI Monday at 7:00 pm in Florence where her other

MRIs were done. Hopefully soon we will have some answers to the

thousands of questions going through our heads. Pray that she can be

STILL. She has hyperthroid disease and it causes her to shake.

Gp also said it may be possible that the Vancomycin is not working.

is still running a fever. So, we may be on the ?????? search for

a new antibiotic. Got any suggestions ????? If you do and you have some

printed info please send it to me so we can share it with her gp for him

to consider.

He is doing a great job of trying to take care of this VERY unfamiliar

thing called chiari and MRSA.

A pediatriation told us the other day that most MRSA cases occur in

newly tooled and/or newly set-up ORs. He said it takes a while to

" season " the instruments ........ in other words get them completely

sterile. <another opinion>

If you or a family member or a friend has had MRSA and Vancomycin didn't

work please let me know what did?

Keep us in your prayers and stay well and pain free. Sorry if I sound

down tonight but I am. I am very concerned about the road ahead of us.

TippyToes CDRW or in SC's Mom

30 yr old daughter ACM Type 1

Surgery 11-5-99 in NC by Dr.Rosner

Now has MRSA <Nasty hospital staph inf>

{~: A simple act of kindness is contagious. :~}

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