Guest guest Posted February 5, 2011 Report Share Posted February 5, 2011 barbara,  i wouldnt recommend suddenly stopping any medication,  many meds thata are taken on a regular basis have in their instructions to never stop suddenly or to wean off if necessary. many mes are very dangerous to stop suddenly , bp meds, causing dangerous bp levels, anxiery meds, getting ansiety out of control, pain mangement getting apin out of manageable control again, making it diffiult to do anyithing with contorlling hte pain,  i would think yes this could cause her change of metnal status and hallucinations,  also she could have na infection of uti as lbd'ers tend to get utis and the only way we reconginized is is the change in daddys' mood, attutiude etc. i would definetly check on this and then state that no changes of medicatiaon should be authoirzed without speicific consent of HER DOCTOR AND YOU . also have her checked for a uti and possilby a blood draw to see if she does have an infection.  hugs. sharon Subject: Re: stopping meds To: LBDcaregivers Date: Saturday, February 5, 2011, 4:35 PM  Hi Barbara, My mom has had a bug or two while in care and they never stopped her meds. I’d talk to the head nurse about this. I don’t think they should be making medical decisions about your mom without consulting you or you dad. Best, Courage From: Barbara Austen Sent: Saturday, February 05, 2011 5:29 PM To: LBDcaregivers Subject: stopping meds I read nearly everything that comes across this list, and find it extremely helpful, although I keep quiet most of the time. However, I have a question for the collective wisdom of the group. My mother (age 79) is in a " memory unit " as they call it, at a continuing care center. There is a quarantine of the unit because of a gastrointestinal bug going around. Mom has not had the reguritation and diarrhea associated with the bug, but she has evidently complained of an upset stomach. From what she tells me (and remember, she has LBD) they stopped her medications when she mentioned her nausea. And surprise, today she scared the hell out of my father when she started talking about people coming into her room and rearranging things and doing strange things to her dolls (she is a doll collector). She has had this type of hallucination before, but not recently. I am beginning th think that she is acting " wacky " (as my father called it) because she was off her meds, although I have not been able to confirm that with the nurses. Getting any information from these folks is like pulling teeth. Anyway, she takes effexor, sinimet, excelon, and seroquel. My questions are these. When people get an intestinal bug, is it typical to stop all meds? Second, could the abrupt cessation of medication have brought on the hallucations? Thanks for all the help and comfort this group brings. Barbara, daughter of Betsy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2011 Report Share Posted February 5, 2011 Barbara, Here's my thoughts on it. I cannot think of a reason they would stop your mother's meds and I'd call and speak to the Floor RN or Nursing Station and ask about this right away. I understand about pulling teeth so get some mental pliers and be persistent. Your mother COULD have a mild case of it and just have a temp (or not) and nausea without the other extreme symptoms. It could also cause some bizarre thinking. My mil had it twice from the senior living complex she lived in and got the pneumonia from it as well the second time (sometimes goes along with it). She was so loopy the second time around she barely remembers anything except having to do a fecal sample (the things that stick in our minds huh?) She was talking some strange stories though! She was in the hospital for 6 days and then sent to rehab to recover and regain her strength. I almost had to stage a sit in to get the fecal test ordered at the hospital to verify if she had it or not but really glad I did because she tested positive. Horrible stuff. Her place did not report as required, but I didn't know this when I called the Public Health Nurse to find out how family and caregiver and I might clean her apartment, her wheelchair and the car we used to transport her to the ER and avoid getting sick ourselves. Hope you find some solid answers, Dorothy From: LBDcaregivers [mailto:LBDcaregivers ] On Behalf Of Barbara Austen Sent: Saturday, February 05, 2011 2:30 PM To: LBDcaregivers Subject: stopping meds I read nearly everything that comes across this list, and find it extremely helpful, although I keep quiet most of the time. However, I have a question for the collective wisdom of the group. My mother (age 79) is in a " memory unit " as they call it, at a continuing care center. There is a quarantine of the unit because of a gastrointestinal bug going around. Mom has not had the reguritation and diarrhea associated with the bug, but she has evidently complained of an upset stomach. From what she tells me (and remember, she has LBD) they stopped her medications when she mentioned her nausea. And surprise, today she scared the hell out of my father when she started talking about people coming into her room and rearranging things and doing strange things to her dolls (she is a doll collector). She has had this type of hallucination before, but not recently. I am beginning th think that she is acting " wacky " (as my father called it) because she was off her meds, although I have not been able to confirm that with the nurses. Getting any information from these folks is like pulling teeth. Anyway, she takes effexor, sinimet, excelon, and seroquel. My questions are these. When people get an intestinal bug, is it typical to stop all meds? Second, could the abrupt cessation of medication have brought on the hallucations? Thanks for all the help and comfort this group brings. Barbara, daughter of Betsy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2011 Report Share Posted February 6, 2011 Hi Barbara, You have had some excellent advice, to which I could never cover so well. The only thing that I could think of, of course, was when my Don was near the end of his life his meds were stopped. I was told they were useless at his stage in the disease. I don't know how far along your Mother is, so it is presumptuous of me to assume that she is in the same stage as my Don. But, if they think that, then you should be told. I am sorry for you and what you are going through. Love a lot, Imogene In a message dated 2/6/2011 9:17:25 A.M. Central Standard Time, barbara_austen@... writes: Dear Courage, Dorothy and Sharon, Thank you for responding to my question. It is SO helpful to have real life experiences to draw upon, which is why I contacted the list. The nurse told me yesterday they were going to check Mom for a UTI, but of course on the weekend at this place there is not doctor on site so the sample could not go to the lab. Seems screwy to me, but there you are. I also have not received a call back from the nurse (I left a message last night and again this morning) to confirm or deny the fact that her meds were stopped for awhile. According to Dad, Mom sounded " normal " this morning, so the crisis of yesterday has passed but the underlying cause has yet to be determined. I will keep those mental pliers handy to make sure I do get an answer. Barbara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2011 Report Share Posted February 6, 2011 Dear Courage, Dorothy and Sharon, Thank you for responding to my question. It is SO helpful to have real life experiences to draw upon, which is why I contacted the list. The nurse told me yesterday they were going to check Mom for a UTI, but of course on the weekend at this place there is not doctor on site so the sample could not go to the lab. Seems screwy to me, but there you are. I also have not received a call back from the nurse (I left a message last night and again this morning) to confirm or deny the fact that her meds were stopped for awhile. According to Dad, Mom sounded " normal " this morning, so the crisis of yesterday has passed but the underlying cause has yet to be determined. I will keep those mental pliers handy to make sure I do get an answer. Barbara ________________________________ To: LBDcaregivers Sent: Sat, February 5, 2011 5:35:12 PM Subject: Re: stopping meds Hi Barbara, My mom has had a bug or two while in care and they never stopped her meds. I’d talk to the head nurse about this. I don’t think they should be making medical decisions about your mom without consulting you or you dad. Best, Courage From: Barbara Austen Sent: Saturday, February 05, 2011 5:29 PM To: LBDcaregivers Subject: stopping meds  I read nearly everything that comes across this list, and find it extremely helpful, although I keep quiet most of the time. However, I have a question for the collective wisdom of the group. My mother (age 79) is in a " memory unit " as they call it, at a continuing care center. There is a quarantine of the unit because of a gastrointestinal bug going around. Mom has not had the reguritation and diarrhea associated with the bug, but she has evidently complained of an upset stomach. From what she tells me (and remember, she has LBD) they stopped her medications when she mentioned her nausea. And surprise, today she scared the hell out of my father when she started talking about people coming into her room and rearranging things and doing strange things to her dolls (she is a doll collector). She has had this type of hallucination before, but not recently. I am beginning th think that she is acting " wacky " (as my father called it) because she was off her meds, although I have not been able to confirm that with the nurses. Getting any information from these folks is like pulling teeth. Anyway, she takes effexor, sinimet, excelon, and seroquel. My questions are these. When people get an intestinal bug, is it typical to stop all meds? Second, could the abrupt cessation of medication have brought on the hallucations? Thanks for all the help and comfort this group brings. Barbara, daughter of Betsy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2011 Report Share Posted February 6, 2011 Hello Barbara, Reading your post I just had to reply back. I so wish I could help you and I'm sure others can offer help. What got me was when your mother told you that they stopped her medicines, and u didn't know if it was true or not. I had that same thing from my mother a week ago. When I went to visit she had been " out of it " hallucinating, drowsy, I can look in her EYES and see something is WRONG! Just by looking in her eyes at times, they look distant, far away for instance. She told me the gave her two doses of her medicines that morning at different times. So I didn't know whether to believe her or not. I don't trust this home that much either. Its not a horrific home, and its always clean, smells good, the staff are nice and good, my mother is almost always clean clean. But there are times I have questions, and I almost always ask them. But behind the scenes I wonder if they give people dope medicine to put them to sleep. Anyway, she just hadn't acted right at all when she told me about the 2 doses of medicine that morning. Same thing here, its like pulling teeth to get any straight forward answers from them! In fact, I was at the home Thursday, we have had a huge ice/snow storm here, but my husband drove me up there 10 min. away, 5 mph., as she had very few clothes left and I do her laundry, so I had to take her clothes, and I have not met her dr. in the 7 months she's lived here and so I went to the desk and saw her night nurse so asked him about the INCONTINENCE pill they were supposed to have told the dr. about 2 weeks ago. He hem hawed around acting dumb, and I saw what looked to be a dr. sitting at the desk and he was Indian which I knew her drs. last name was indian name. Well, I talked loud and clear and very plain spoken to nurse and I noticed the dr. looking up at me with a wonder that who is she? Finally after a few minutes of the nurse trying to find her file, and telling me no they have not stopped her incontinence pill, I said WHY NOT? that it had been almost 2 weeks and I want the DOCTORS PHONE NUMBER to call him since he is only there on Thursdays and I have never met him. Well, low and behold, the dr. was her dr. the nurse told me, oh yeah, this is your mother's dr. Oh Really??? He knew that was her dr. all the while, but hem hawed around to me. So I told the dr. plain and clear that I belong to a LEWY BODY DEMENTIA group and INCONTIENCE pills are a big NO NO that they can cause more hallucinations and he agreed and said he is taking her off that one. I went on to ask him about pain medicine she is on, ULTRAM, and asked him if she would get addicted to it? He said, the way it is in nursing homes, it doesn't matter if the patients DO GET HOOKED or addicted to pain meds as they live there, they aren't going anywhere and they have to keep them pain free so living in there is just fine. I said, ok and went on. I really don't know what to think of that statement, as I don't take pain med's only if my Lupus is out of control horrible, which it can be several times a year, and I may have one Hydrocodone, low low dose of 250 and then I never have another one, I will also take Ibprofen 800 mg. one pill. I never take those kind of pills but one only and for one day and then I won't take another one for months. I just tend to not want to take these med's but for others I know lots of people who take these and much much more just to survive and I feel so sorry for ones out there who suffer in so much pain they can't even function at all unless to take a pill to get out of pain. I would too if I had to live in constant pain like my mother does too. Well enough chatting, and you hang in there, I'm in Texas where are you from? Sounds like you are going through things I'm going through with my Mom. My Mom did fall and break her arm in the home 2 months ago and it has been horrible for her. God bless! in Texas p.s. To answer your questions (I'm not a nurse or professional), just see what goes on with my own mother day in day out at the home, I believe if they took her off all her med's for even one day, it would throw her for a loop, she would end up extremely whacky. And I think with any new medicines added, it can throw them in a loop. Just what I've experienced with my own precious mother who is like a little girl most of the time now, bless her heart, I love her so much! I leave there some days thinking its like seeing about a daughter of mine instead of a mother, she is so vunerable in her condition and at her age. God be with our loved ones! Amen! I pray to God each and every day all through the day and especially when I go up there and see her in this condition with broke arm, lewy body, hallucinating, for God to keep her calm, God to keep her safe, God to love her and be right next to her, and Jesus to hold on tight to her each and every day, and especially when I'm not up there watching her, asking her nurses questions, her aides questions, helping to feed her, on and on. I read nearly everything that comes across this list, and find it extremely helpful, although I keep quiet most of the time. However, I have a question for the collective wisdom of the group. My mother (age 79) is in a " memory unit " as they call it, at a continuing care center. There is a quarantine of the unit because of a gastrointestinal bug going around. Mom has not had the reguritation and diarrhea associated with the bug, but she has evidently complained of an upset stomach. From what she tells me (and remember, she has LBD) they stopped her medications when she mentioned her nausea. And surprise, today she scared the hell out of my father when she started talking about people coming into her room and rearranging things and doing strange things to her dolls (she is a doll collector). She has had this type of hallucination before, but not recently. I am beginning th think that she is acting " wacky " (as my father called it) because she was off her meds, although I have not been able to confirm that with the nurses. Getting any information from these folks is like pulling teeth. Anyway, she takes effexor, sinimet, excelon, and seroquel. My questions are these. When people get an intestinal bug, is it typical to stop all meds? Second, could the abrupt cessation of medication have brought on the hallucations? Thanks for all the help and comfort this group brings. Barbara, daughter of Betsy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2011 Report Share Posted February 6, 2011 no problem and i knw for me i am standig next to you in spirit to give you teh strength to be pushy to et what you need, hugs. sharon Subject: Re: stopping meds To: LBDcaregivers Date: Sunday, February 6, 2011, 9:17 AM  Dear Courage, Dorothy and Sharon, Thank you for responding to my question. It is SO helpful to have real life experiences to draw upon, which is why I contacted the list. The nurse told me yesterday they were going to check Mom for a UTI, but of course on the weekend at this place there is not doctor on site so the sample could not go to the lab. Seems screwy to me, but there you are. I also have not received a call back from the nurse (I left a message last night and again this morning) to confirm or deny the fact that her meds were stopped for awhile. According to Dad, Mom sounded " normal " this morning, so the crisis of yesterday has passed but the underlying cause has yet to be determined. I will keep those mental pliers handy to make sure I do get an answer. Barbara ________________________________ To: LBDcaregivers Sent: Sat, February 5, 2011 5:35:12 PM Subject: Re: stopping meds Hi Barbara, My mom has had a bug or two while in care and they never stopped her meds. I’d talk to the head nurse about this. I don’t think they should be making medical decisions about your mom without consulting you or you dad. Best, Courage From: Barbara Austen Sent: Saturday, February 05, 2011 5:29 PM To: LBDcaregivers Subject: stopping meds  I read nearly everything that comes across this list, and find it extremely helpful, although I keep quiet most of the time. However, I have a question for the collective wisdom of the group. My mother (age 79) is in a " memory unit " as they call it, at a continuing care center. There is a quarantine of the unit because of a gastrointestinal bug going around. Mom has not had the reguritation and diarrhea associated with the bug, but she has evidently complained of an upset stomach. From what she tells me (and remember, she has LBD) they stopped her medications when she mentioned her nausea. And surprise, today she scared the hell out of my father when she started talking about people coming into her room and rearranging things and doing strange things to her dolls (she is a doll collector). She has had this type of hallucination before, but not recently. I am beginning th think that she is acting " wacky " (as my father called it) because she was off her meds, although I have not been able to confirm that with the nurses. Getting any information from these folks is like pulling teeth. Anyway, she takes effexor, sinimet, excelon, and seroquel. My questions are these. When people get an intestinal bug, is it typical to stop all meds? Second, could the abrupt cessation of medication have brought on the hallucations? Thanks for all the help and comfort this group brings. Barbara, daughter of Betsy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2011 Report Share Posted February 7, 2011 Dear , Yes, our situations are similar. Thank goodness my Mom hasn't broken her arm! I cannot imagine the challenges that brings. I still have no straight answer from the nurses, although I am expecting a call this morning. There is no indication in her chart, so I am told, to indicate her meds were stopped. It is so hard with Mom when she tells me something and I cannot believe her. Usually I can tell if it is a hallucination, but not always. Like she still insists she does not get her Activia every day, but last week I saw one of the aides actually track her down to give it to her. That is why I cannot trust the " no meds " statement. But it is still driving me crazy. For the record, I live in snowy Connecticut. We have had more than six feet in total over the course of the last month and a half. Thank goodness some melts in between storms, but you should see the snow banks! My back and arm are very tired from shoveling. If I learn anything new about the medication situation, (like it has been resolved) I will share that info later today. Barbara ________________________________ To: LBDcaregivers Sent: Sun, February 6, 2011 10:18:42 AM Subject: Re: stopping meds Hello Barbara, Reading your post I just had to reply back. I so wish I could help you and I'm sure others can offer help. What got me was when your mother told you that they stopped her medicines, and u didn't know if it was true or not. I had that same thing from my mother a week ago. When I went to visit she had been " out of it " hallucinating, drowsy, I can look in her EYES and see something is WRONG! Just by looking in her eyes at times, they look distant, far away for instance. She told me the gave her two doses of her medicines that morning at different times. So I didn't know whether to believe her or not. I don't trust this home that much either. Its not a horrific home, and its always clean, smells good, the staff are nice and good, my mother is almost always clean clean. But there are times I have questions, and I almost always ask them. But behind the scenes I wonder if they give people dope medicine to put them to sleep. Anyway, she just hadn't acted right at all when she told me about the 2 doses of medicine that morning. Same thing here, its like pulling teeth to get any straight forward answers from them! In fact, I was at the home Thursday, we have had a huge ice/snow storm here, but my husband drove me up there 10 min. away, 5 mph., as she had very few clothes left and I do her laundry, so I had to take her clothes, and I have not met her dr. in the 7 months she's lived here and so I went to the desk and saw her night nurse so asked him about the INCONTINENCE pill they were supposed to have told the dr. about 2 weeks ago. He hem hawed around acting dumb, and I saw what looked to be a dr. sitting at the desk and he was Indian which I knew her drs. last name was indian name. Well, I talked loud and clear and very plain spoken to nurse and I noticed the dr. looking up at me with a wonder that who is she? Finally after a few minutes of the nurse trying to find her file, and telling me no they have not stopped her incontinence pill, I said WHY NOT? that it had been almost 2 weeks and I want the DOCTORS PHONE NUMBER to call him since he is only there on Thursdays and I have never met him. Well, low and behold, the dr. was her dr. the nurse told me, oh yeah, this is your mother's dr. Oh Really??? He knew that was her dr. all the while, but hem hawed around to me. So I told the dr. plain and clear that I belong to a LEWY BODY DEMENTIA group and INCONTIENCE pills are a big NO NO that they can cause more hallucinations and he agreed and said he is taking her off that one. I went on to ask him about pain medicine she is on, ULTRAM, and asked him if she would get addicted to it? He said, the way it is in nursing homes, it doesn't matter if the patients DO GET HOOKED or addicted to pain meds as they live there, they aren't going anywhere and they have to keep them pain free so living in there is just fine. I said, ok and went on. I really don't know what to think of that statement, as I don't take pain med's only if my Lupus is out of control horrible, which it can be several times a year, and I may have one Hydrocodone, low low dose of 250 and then I never have another one, I will also take Ibprofen 800 mg. one pill. I never take those kind of pills but one only and for one day and then I won't take another one for months. I just tend to not want to take these med's but for others I know lots of people who take these and much much more just to survive and I feel so sorry for ones out there who suffer in so much pain they can't even function at all unless to take a pill to get out of pain. I would too if I had to live in constant pain like my mother does too. Well enough chatting, and you hang in there, I'm in Texas where are you from? Sounds like you are going through things I'm going through with my Mom. My Mom did fall and break her arm in the home 2 months ago and it has been horrible for her. God bless! in Texas p.s. To answer your questions (I'm not a nurse or professional), just see what goes on with my own mother day in day out at the home, I believe if they took her off all her med's for even one day, it would throw her for a loop, she would end up extremely whacky. And I think with any new medicines added, it can throw them in a loop. Just what I've experienced with my own precious mother who is like a little girl most of the time now, bless her heart, I love her so much! I leave there some days thinking its like seeing about a daughter of mine instead of a mother, she is so vunerable in her condition and at her age. God be with our loved ones! Amen! I pray to God each and every day all through the day and especially when I go up there and see her in this condition with broke arm, lewy body, hallucinating, for God to keep her calm, God to keep her safe, God to love her and be right next to her, and Jesus to hold on tight to her each and every day, and especially when I'm not up there watching her, asking her nurses questions, her aides questions, helping to feed her, on and on. I read nearly everything that comes across this list, and find it extremely helpful, although I keep quiet most of the time. However, I have a question for the collective wisdom of the group. My mother (age 79) is in a " memory unit " as they call it, at a continuing care center. There is a quarantine of the unit because of a gastrointestinal bug going around. Mom has not had the reguritation and diarrhea associated with the bug, but she has evidently complained of an upset stomach. From what she tells me (and remember, she has LBD) they stopped her medications when she mentioned her nausea. And surprise, today she scared the hell out of my father when she started talking about people coming into her room and rearranging things and doing strange things to her dolls (she is a doll collector). She has had this type of hallucination before, but not recently. I am beginning th think that she is acting " wacky " (as my father called it) because she was off her meds, although I have not been able to confirm that with the nurses. Getting any information from these folks is like pulling teeth. Anyway, she takes effexor, sinimet, excelon, and seroquel. My questions are these. When people get an intestinal bug, is it typical to stop all meds? Second, could the abrupt cessation of medication have brought on the hallucations? Thanks for all the help and comfort this group brings. Barbara, daughter of Betsy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2011 Report Share Posted February 7, 2011 Hi , Well...at least you finally met her doctor, but what he said is absolutely stupid. Yeah...they probably keep people on pain meds so that they are drugged out of their mind and don't know enough to call the nurse or complain about what is ailing them. your mom's arm may not be still hurting, and if they do take her off the pain pills, she is already addicted and going to feel pain for the first day or so because that is how the addiction works. The doctors words about them just staying in the NH is not funny at all. The people that are in the nursing home have every right to live their lives as best as they can without being drugged up...and giving pain pills so that they sleep most of the time so that the nurses can just sit around and not have to attend to the daily things that a patient has going on. Sorry...just made me so mad that a doctor could say something like that. > > Hello Barbara, > Reading your post I just had to reply back. I so wish I could > help you and I'm sure others can offer help. > What got me was when your mother told you that they > stopped her medicines, and u didn't know if it was true or > not. I had that same thing from my mother a week ago. > When I went to visit she had been " out of it " hallucinating, > drowsy, I can look in her EYES and see something is WRONG! > Just by looking in her eyes at times, they look distant, far > away for instance. She told me the gave her two doses of > her medicines that morning at different times. So I didn't > know whether to believe her or not. I don't trust this home > that much either. Its not a horrific home, and its always clean, > smells good, the staff are nice and good, my mother is almost > always clean clean. But there are times I have questions, and > I almost always ask them. But behind the scenes I wonder if > they give people dope medicine to put them to sleep. Anyway, > she just hadn't acted right at all when she told me about the > 2 doses of medicine that morning. Same thing here, its like > pulling teeth to get any straight forward answers from them! > > In fact, I was at the home Thursday, we have had a huge ice/snow > storm here, but my husband drove me up there 10 min. away, 5 > mph., as she had very few clothes left and I do her laundry, so I > had to take her clothes, and I have not met her dr. in the 7 months > she's lived here and so I went to the desk and saw her night nurse > so asked him about the INCONTINENCE pill they were supposed to > have told the dr. about 2 weeks ago. He hem hawed around acting > dumb, and I saw what looked to be a dr. sitting at the desk and he > was Indian which I knew her drs. last name was indian name. Well, > I talked loud and clear and very plain spoken to nurse and I noticed > the dr. looking up at me with a wonder that who is she? Finally after > a few minutes of the nurse trying to find her file, and telling me > no they have not stopped her incontinence pill, I said WHY NOT? > that it had been almost 2 weeks and I want the DOCTORS PHONE > NUMBER to call him since he is only there on Thursdays and I have > never met him. Well, low and behold, the dr. was her dr. the nurse > told me, oh yeah, this is your mother's dr. Oh Really??? He knew > that was her dr. all the while, but hem hawed around to me. So > I told the dr. plain and clear that I belong to a LEWY BODY DEMENTIA > group and INCONTIENCE pills are a big NO NO that they can cause > more hallucinations and he agreed and said he is taking her off that > one. I went on to ask him about pain medicine she is on, ULTRAM, > and asked him if she would get addicted to it? He said, the way it > is in nursing homes, it doesn't matter if the patients DO GET HOOKED > or addicted to pain meds as they live there, they aren't going anywhere > and they have to keep them pain free so living in there is just fine. > I said, ok and went on. I really don't know what to think of that > statement, as I don't take pain med's only if my Lupus is out of control > horrible, which it can be several times a year, and I may have > one Hydrocodone, low low dose of 250 and then I never have another > one, I will also take Ibprofen 800 mg. one pill. I never take those > kind of pills but one only and for one day and then I won't take > another one for months. I just tend to not want to take these med's > but for others I know lots of people who take these and much much > more just to survive and I feel so sorry for ones out there who suffer > in so much pain they can't even function at all unless to take a pill > to get out of pain. I would too if I had to live in constant pain like > my mother does too. > > Well enough chatting, and you hang in there, I'm in Texas where > are you from? Sounds like you are going through things I'm going > through with my Mom. My Mom did fall and break her arm in > the home 2 months ago and it has been horrible for her. > > God bless! > in Texas > > p.s. To answer your questions (I'm not a nurse or professional), just > see what goes on with my own mother day in day out at the home, > I believe if they took her off all her med's for even one day, it would > throw her for a loop, she would end up extremely whacky. And I > think with any new medicines added, it can throw them in a loop. > Just what I've experienced with my own precious mother who is > like a little girl most of the time now, bless her heart, I love her > so much! I leave there some days thinking its like seeing about > a daughter of mine instead of a mother, she is so vunerable in her > condition and at her age. God be with our loved ones! Amen! > I pray to God each and every day all through the day and especially > when I go up there and see her in this condition with broke arm, > lewy body, hallucinating, for God to keep her calm, God to keep > her safe, God to love her and be right next to her, and Jesus to > hold on tight to her each and every day, and especially when I'm > not up there watching her, asking her nurses questions, her aides > questions, helping to feed her, on and on. > > > > > > > I read nearly everything that comes across this list, and find it > extremely > helpful, although I keep quiet most of the time. However, I have a > question for > the collective wisdom of the group. > > My mother (age 79) is in a " memory unit " as they call it, at a continuing > care > center. There is a quarantine of the unit because of a gastrointestinal > bug > going around. Mom has not had the reguritation and diarrhea associated > with the > bug, but she has evidently complained of an upset stomach. From what she > tells > me (and remember, she has LBD) they stopped her medications when she > mentioned > her nausea. And surprise, today she scared the hell out of my father when > she > started talking about people coming into her room and rearranging things > and > doing strange things to her dolls (she is a doll collector). She has had > this > type of hallucination before, but not recently. I am beginning th think > that she > is acting " wacky " (as my father called it) because she was off her meds, > although I have not been able to confirm that with the nurses. Getting any > information from these folks is like pulling teeth. Anyway, she takes > effexor, > sinimet, excelon, and seroquel. > > My questions are these. When people get an intestinal bug, is it typical > to > stop all meds? > > Second, could the abrupt cessation of medication have brought on the > hallucations? > > Thanks for all the help and comfort this group brings. > > Barbara, daughter of Betsy > > > > > > > Quote Link to comment Share on other sites More sharing options...
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