Guest guest Posted January 19, 2000 Report Share Posted January 19, 2000 Afternoon all. I keep reading about all the meds people are taking or not taking. Mine has been hard for the doctors because of the other problems I have. For the person who asked how my bone marrow leukemia is doing. It is slowely getting worse. there is changes every month. There is really no help for it and they gave me three to five years back in 97. This along with the other two forms of cancer ,lupus,and of course the Chiari are getting hard to deal with. I wil say the surgery on my head helped the bad dizzy spells I was having but caused more problems. I now no the difference between head pain and a migraine. These conditions have been hard on my girls as they have come one after the other.The bigest problem is dealing with this death sentence. I am having to be strong for my girls but this doesn't help me. Sorry about this a bad day. Do any of you that have had the surgery found that some days it is hard to constrate one one thing? For Martha P. I will look up the letter I sent tonight and try to get it posted tomorrow. Someone else asked about the Lupus being caused by the Chiari. My doctors say no that it is genetic and my mother had it and mine was found before the Chiari. Enough of my you know what for today. Like I am finding out no where else to vent. Try to have a good evening and smile even though it hurts. Your mental outslook has a lot to do with the way you feel. Thank you all. Lou Quote Link to comment Share on other sites More sharing options...
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