Guest guest Posted January 19, 2011 Report Share Posted January 19, 2011 Oh, Jan... Yes...I think that the syringe issue is a made-up issue. Because even if you just put a couple of drops under Jim's tongue, it will be absorbed...and if he isn't able to take in any fluid, then at least let his mouth have some hydration. I don't think that the foul-mouthed loud man should be in with Jim. At this time, you do need to be able to talk to him and Jim certainly deserves some peace at this time. You and Jim remain in my prayers... God bless you both! Hugs and prayers, Joan > > > > Thank you Dorothy, but Jim is in the final stages where he can not swallow. He > > > has been on pureed for about a year and on thickened liquids. I was giving Jim > > > liquids with a syringe that I bought in the baby aisle at the pharmacy used to > > > give babies liquid medication to get liquids in him and he was swallowing it, > > > > but I was told by the staff at the nursing home, I could not use the syringe > >and > > > > they suggested to get a sippy cup. I laughed at that, because I told them Jim > > can not even suck on a straw, how is he going to use a sippy cup? You can't tip > > > > it to drink, it is made purposely not to spill when tipped. > > > > Jim has stopped eating all together, he does drink a little from a cup or I > > still sneak the syringe in and give him sips from that. I can control a little > > > drip at a time into his mouth with the syringe. Jim is not swallowing his > > antibiotic for Pneumonia and it is worse. > > Jim is all bones now and very weak. > > I appreciate all you suggestions, but they will not work for Jim since he can > >no > > > > longer swallow at all and will hold the food in his mouth or spit it out, but > > now he is too weak to even open his mouth for food, but he will sip from a cup > >a > > > > little. > > The staff at the facility would feed the people that need to be fed, I believe > > > they may have aspirated Jim, because they are on a schedule to get the people > > fed and out and sometimes give them too much at a time. I have seen it. I > >always > > > > made sure to be with Jim for dinner and help him, but I could not be there for > > > breakfast and lunch. > > I appreciate your concern and your help. > > Jan > > > > > > > > > > ________________________________ > > From: dsinouye <fullcircle@> > > To: LBDcaregivers > > Sent: Sun, January 16, 2011 5:14:32 PM > > Subject: RE: Re: Hi All > > > >  > > Jan I know you are doing all you can. Is someone feeding him and doing all the > > > work of getting the food/drink to his mouth so he can put his energy to > > eating/swallowing? I’m curious, did they ask you to get a sippy cup so it > > doesn’t spill if tipped over or because they thought he would be able to > >better > > > > suck the fluid out safely? If it’s the former reason it sounds like they are > > > leaving him on his own to eat/drink and that, as was explained to us, is the > > foremost reason people with these swallowing difficulties lose so much weight > > and aspirate. It takes a lot of energy to concentrate and get the food managed > > > in the mouth and a good swallow and then even a second or third swallow to > >clear > > > > around the airway so there isn’t residual around the edge of the windpipe > >that > > > > can fall in. I imagine he is very weak even more so with the infections. Can he > > > > manage a swallow if thickened liquid is spooned in? > > > > > > I’ll share what we are doing just in case it provides something of use to > >you. > > > > We are doing is pureeing food or cooking soft (soft mechanical diet) and > >someone > > > > has to take a spoon of food the right size, feed her, encourage to chew as > > needed, keeping a hand lightly on the back of the neck to 1) prevent the head > > from going back and 2) encourage chin downward for the swallow, then getting > >her > > > > to say something (asking a question what’s the dog doing, what does the food > > > taste like, etc.) to be sure the airway does not have the gurgly or raspy sound > > > > (other than normal). And then going to the next bite or drink. About 50% of the > > > > time we have to get another swallow to clear the airway because the flap that > > seals over the windpipe during a swallow does not seal off entirely and leaves > >a > > > > residual around the edge of the airpipe. We have been using a straw for liquids > > > > but she is not doing well with it †" the liquids go back into the cup, so now > > > back to thickened liquids out of a cup with a thin rim (easier on the mouth) > >but > > > > she cannot manage it so we are holding it and she is free to concentrate on the > > > > swallow part. > > > > > > Current speech pathologist told me that people will often stop eating/drinking > > > if they are having too much trouble with aspiration/choking especially if they > > > are left on their own to eat/drink. I’m not at all sure what level of care a > > > facility would provide with eating/drinking and perhaps this amount of > > assistance is more than they provide. > > > > > > If he cannot swallow at all a sippy cup will not help things. I would ask for > > the sp to re evaluate things asap and figure out what’s going on. > > > > I’m sorry, I know you are going through hell right now and wish there was > > something more I could offer. > > > > Dorothy > > > > From: LBDcaregivers [mailto:LBDcaregivers ] On > > Behalf Of Janet Colello > > Sent: Sunday, January 16, 2011 3:41 AM > > To: LBDcaregivers > > Subject: Re: Re: Hi All > > > > Hi Dorothy, > > The speech pathologist already evaluated Jim last summer and put him on pureed > > > foods, before that he was on mechanical soft foods. He was already on thickened > > > > liquids. They had a meeting with me last week and said to get him a sippy cup, > > > so he won't aspirate, but he had a hard time with a sippy cup, because it is > > also made not to spill when it tips over so if it is tipped up to drink, he > > can't get anything out of it unless he sucks on the tip, but he doesn't suck. I > > > > went back to the old way using an actual cup, but now he is not drinking or > > eating. He either holds it in his mouth or spits it out. I can't get it into > > him. > > Jan > > > > ________________________________ > > From: dsinouye <fullcircle@ <mailto:fullcircle%40sonic.net> > > > To: LBDcaregivers <mailto:LBDcaregivers%40yahoogroups.com> > > Sent: Sat, January 15, 2011 2:24:20 PM > > Subject: RE: Re: Hi All > > > > Jan, > > > > Can you get them to bring in a speech pathologist asap to help figure out how > > Jim can swallow (and eat and drink) more safely? Or has this already been done? > > > > > > Dorothy > > > > From: LBDcaregivers <mailto:LBDcaregivers%40yahoogroups.com> > > [mailto:LBDcaregivers <mailto:LBDcaregivers%40yahoogroups.com> > >] > > > > On > > > > Behalf Of Janet Colello > > Sent: Saturday, January 15, 2011 11:16 AM > > To: LBDcaregivers <mailto:LBDcaregivers%40yahoogroups.com> > > Subject: Re: Re: Hi All > > > > Thank you Leona, > > I have read and tried to prepare myself for this time, but I am feeling > >helpless > > > > > > > > and there is nothing I can do, but be there for Jim. It's very hard to watch > >him > > > > > > > > shut down. He has lost so much weight, I don't think there is enough strength > >in > > > > > > > > him to fight this anymore. He has been such a fighter and overcame so many > > obstacles that could have brought him down. It's hard to see him this way. I > > was with him until midnight last evening/this morning. > > It turns out Jim has a UTI and Aspiration Pneumonia and is on an antibiotic as > > > of last night that covers both, but he would not swallow the medication. Leona, > > > > only a week ago he was eating his entire meals. I don't know if it is false > > hope, but I am wishing that it is just that he feels so lousy he won't swallow, > > > > but if he gets some antibiotic, he will start to feel better and swallow again, > > > > but maybe I am just having false hope and this is it. I just can't get a grip > >on > > > > > > > > this. No matter how much I have prepared for this moment, it is like I am > >having > > > > > > > > a bad dream. Jim told me he was dying last night in a whispery voice. I feel > > numb just thinking about the loss. A lab tech was in and did a blood test on > >Jim > > > > > > > > yesterday to see if there is an infection in the blood. Jim is my hero, he is > >so > > > > > > > > brave. This dreaded disease tears me apart. > > I need to hear from people like you that have gone through this and survived. I > > > > just can't imagine my life without Jim, but I know I will get through this and > > > move on, I just don't know how yet. > > Thank you so much, I appreciate hearing from you. > > Love and Hugs, > > Jan > > > > Leona, this is so true: > > ''Love is not finding someone to live with; it's finding someone you don't want > > > > to live without. " > > > > ________________________________ > > From: Leona Chereshnoski <lchere@ <mailto:lchere%40hughes.net> > > <mailto:lchere%40hughes.net> > > > To: LBDcaregivers <mailto:LBDcaregivers%40yahoogroups.com> > > <mailto:LBDcaregivers%40yahoogroups.com> > > > > Sent: Sat, January 15, 2011 10:27:52 AM > > Subject: Re: Hi All > > > > Jan: I have been where you are and feel that I know what you are going > > through. My oldest daughter told me the other day that she thought Dad knew > > that he was ready to go and just quit eating. I felt it was just the course > > of the LBD and it was his time to go. Either way, I am sure Ray wouldn't > > have wanted to continue any longer in the shape he was in. Comfort yourself > > with the knowledge that you have done every thing you could to care for him, > > show your love for him in every way you could and advocated for him > > everytime the opportunity arose. We lived our vows to the end. We also > > realize that he will be in a better place and when we meet them again, they > > will no longer be sick! As you have had the strength to suffer along with > > him every step of the way, you will find the strength to find your way > > through the end time. It has been two years this spring and the tears came > > back as I read your post because the things you are seeing, are the things I > > saw as he faded away. Now, I think often of the things he said and did. I > > smile often as I tell a story or remember a good time we had. You may find > > as I did, that I did a lot of my grieving long before he died. Once I > > realized there were no miracle drugs, or treatments or cures --that he was > > on steep slope fading away, I cried and grieved him 6 months before he died. > > I did not know that is what was going on, but afterward, I realized and > > really handled everything very well. Jan, please know that you and Jim are > > in my prayers and thoughts as you continue down this difficult road. God > > Bless you both!! Love, Leona > > > > Leona: Caregiver for husband Ray, age 68, diagnosed 2/04 with Parkinson's > > Disease. Changed doctors, diagnosed 6/06 with LBD. Almost continual downhill > > slide no matter what drugs we try. 5/2/08 Ray was placed in Sunrise Nursing > > Home in Oswego, NY, 1 hour from home. So far, so good! Hardest thing I have > > ever done in my life, however. 3/19/09 transferred to Samaritan Keep NH in > > Watertown, NY closer to home. He passed peacefully at 5:18 am on April 14, > > 2009. I am handling it OK. > > > > ''Love is not finding someone to live with; it's finding someone you don't want > > > > to live without " > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2011 Report Share Posted January 19, 2011 Hi Jan, The hospice told us that when a person stops eating they are not suffering...I know it was very hard on me seeing Mom wither down to nothing, but she was starving as in wanting to eat and not able to. I am glad that you got some time alone with Jim without the screaming man in the room! God bless you! > > > > Thank you Dorothy, but Jim is in the final stages where he can not swallow. He > > > > has been on pureed for about a year and on thickened liquids. I was giving Jim > > > > liquids with a syringe that I bought in the baby aisle at the pharmacy used to > > > > give babies liquid medication to get liquids in him and he was swallowing it, > > > > > > but I was told by the staff at the nursing home, I could not use the syringe > >and > > > > they suggested to get a sippy cup. I laughed at that, because I told them Jim > > can not even suck on a straw, how is he going to use a sippy cup? You can't tip > > > > > > it to drink, it is made purposely not to spill when tipped. > > > > Jim has stopped eating all together, he does drink a little from a cup or I > > still sneak the syringe in and give him sips from that. I can control a little > > > > drip at a time into his mouth with the syringe. Jim is not swallowing his > > antibiotic for Pneumonia and it is worse. > > Jim is all bones now and very weak. > > I appreciate all you suggestions, but they will not work for Jim since he can > >no > > > > longer swallow at all and will hold the food in his mouth or spit it out, but > > now he is too weak to even open his mouth for food, but he will sip from a cup > > >a > > > > little. > > The staff at the facility would feed the people that need to be fed, I believe > > > > they may have aspirated Jim, because they are on a schedule to get the people > > fed and out and sometimes give them too much at a time. I have seen it. I > >always > > > > made sure to be with Jim for dinner and help him, but I could not be there for > > > > breakfast and lunch. > > I appreciate your concern and your help. > > Jan > > > > > > > > > > ________________________________ > > From: dsinouye <fullcircle@> > > To: mailto:LBDcaregivers%40yahoogroups.com > > Sent: Sun, January 16, 2011 5:14:32 PM > > Subject: RE: Re: Hi All > > > >  > > Jan I know you are doing all you can. Is someone feeding him and doing all the > > > > work of getting the food/drink to his mouth so he can put his energy to > > eating/swallowing? I’m curious, did they ask you to get a sippy cup so it > > doesn’t spill if tipped over or because they thought he would be able to > >better > > > > suck the fluid out safely? If it’s the former reason it sounds like they are > > > > leaving him on his own to eat/drink and that, as was explained to us, is the > > foremost reason people with these swallowing difficulties lose so much weight > > and aspirate. It takes a lot of energy to concentrate and get the food managed > > > > in the mouth and a good swallow and then even a second or third swallow to > >clear > > > > around the airway so there isn’t residual around the edge of the windpipe > >that > > > > can fall in. I imagine he is very weak even more so with the infections. Can he > > > > > > manage a swallow if thickened liquid is spooned in? > > > > > > I’ll share what we are doing just in case it provides something of use to > >you. > > > > We are doing is pureeing food or cooking soft (soft mechanical diet) and > >someone > > > > has to take a spoon of food the right size, feed her, encourage to chew as > > needed, keeping a hand lightly on the back of the neck to 1) prevent the head > > from going back and 2) encourage chin downward for the swallow, then getting > >her > > > > to say something (asking a question what’s the dog doing, what does the food > > > > taste like, etc.) to be sure the airway does not have the gurgly or raspy sound > > > > > > (other than normal). And then going to the next bite or drink. About 50% of the > > > > > > time we have to get another swallow to clear the airway because the flap that > > seals over the windpipe during a swallow does not seal off entirely and leaves > > >a > > > > residual around the edge of the airpipe. We have been using a straw for liquids > > > > > > but she is not doing well with it †" the liquids go back into the cup, so now > > > > back to thickened liquids out of a cup with a thin rim (easier on the mouth) > >but > > > > she cannot manage it so we are holding it and she is free to concentrate on the > > > > > > swallow part. > > > > > > Current speech pathologist told me that people will often stop eating/drinking > > > > if they are having too much trouble with aspiration/choking especially if they > > > > are left on their own to eat/drink. I’m not at all sure what level of care a > > > > facility would provide with eating/drinking and perhaps this amount of > > assistance is more than they provide. > > > > > > If he cannot swallow at all a sippy cup will not help things. I would ask for > > the sp to re evaluate things asap and figure out what’s going on. > > > > I’m sorry, I know you are going through hell right now and wish there was > > something more I could offer. > > > > Dorothy > > > > From: mailto:LBDcaregivers%40yahoogroups.com > >[mailto:mailto:LBDcaregivers%40yahoogroups.com] On > > > > Behalf Of Janet Colello > > Sent: Sunday, January 16, 2011 3:41 AM > > To: mailto:LBDcaregivers%40yahoogroups.com > > Subject: Re: Re: Hi All > > > > Hi Dorothy, > > The speech pathologist already evaluated Jim last summer and put him on pureed > > > > foods, before that he was on mechanical soft foods. He was already on thickened > > > > > > liquids. They had a meeting with me last week and said to get him a sippy cup, > > > > so he won't aspirate, but he had a hard time with a sippy cup, because it is > > also made not to spill when it tips over so if it is tipped up to drink, he > > can't get anything out of it unless he sucks on the tip, but he doesn't suck. I > > > > > > went back to the old way using an actual cup, but now he is not drinking or > > eating. He either holds it in his mouth or spits it out. I can't get it into > > him. > > Jan > > > > ________________________________ > > From: dsinouye <fullcircle@ <mailto:fullcircle%40sonic.net> > > > To: mailto:LBDcaregivers%40yahoogroups.com > ><mailto:LBDcaregivers%40yahoogroups.com> > > > > Sent: Sat, January 15, 2011 2:24:20 PM > > Subject: RE: Re: Hi All > > > > Jan, > > > > Can you get them to bring in a speech pathologist asap to help figure out how > > Jim can swallow (and eat and drink) more safely? Or has this already been done? > > > > > > > > Dorothy > > > > From: mailto:LBDcaregivers%40yahoogroups.com > ><mailto:LBDcaregivers%40yahoogroups.com> > > > > [mailto:mailto:LBDcaregivers%40yahoogroups.com > ><mailto:LBDcaregivers%40yahoogroups.com> > > > >] > > > > On > > > > Behalf Of Janet Colello > > Sent: Saturday, January 15, 2011 11:16 AM > > To: mailto:LBDcaregivers%40yahoogroups.com > ><mailto:LBDcaregivers%40yahoogroups.com> > > > > Subject: Re: Re: Hi All > > > > Thank you Leona, > > I have read and tried to prepare myself for this time, but I am feeling > >helpless > > > > > > > > and there is nothing I can do, but be there for Jim. It's very hard to watch > >him > > > > > > > > shut down. He has lost so much weight, I don't think there is enough strength > >in > > > > > > > > him to fight this anymore. He has been such a fighter and overcame so many > > obstacles that could have brought him down. It's hard to see him this way. I > > was with him until midnight last evening/this morning. > > It turns out Jim has a UTI and Aspiration Pneumonia and is on an antibiotic as > > > > of last night that covers both, but he would not swallow the medication. Leona, > > > > > > only a week ago he was eating his entire meals. I don't know if it is false > > hope, but I am wishing that it is just that he feels so lousy he won't swallow, > > > > > > but if he gets some antibiotic, he will start to feel better and swallow again, > > > > > > but maybe I am just having false hope and this is it. I just can't get a grip > >on > > > > > > > > this. No matter how much I have prepared for this moment, it is like I am > >having > > > > > > > > a bad dream. Jim told me he was dying last night in a whispery voice. I feel > > numb just thinking about the loss. A lab tech was in and did a blood test on > >Jim > > > > > > > > yesterday to see if there is an infection in the blood. Jim is my hero, he is > >so > > > > > > > > brave. This dreaded disease tears me apart. > > I need to hear from people like you that have gone through this and survived. I > > > > > > just can't imagine my life without Jim, but I know I will get through this and > > > > move on, I just don't know how yet. > > Thank you so much, I appreciate hearing from you. > > Love and Hugs, > > Jan > > > > Leona, this is so true: > > ''Love is not finding someone to live with; it's finding someone you don't want > > > > > > to live without. " > > > > ________________________________ > > From: Leona Chereshnoski <lchere@ <mailto:lchere%40hughes.net> > > <mailto:lchere%40hughes.net> > > > To: mailto:LBDcaregivers%40yahoogroups.com > ><mailto:LBDcaregivers%40yahoogroups.com> > > > > <mailto:LBDcaregivers%40yahoogroups.com> > > > > Sent: Sat, January 15, 2011 10:27:52 AM > > Subject: Re: Hi All > > > > Jan: I have been where you are and feel that I know what you are going > > through. My oldest daughter told me the other day that she thought Dad knew > > that he was ready to go and just quit eating. I felt it was just the course > > of the LBD and it was his time to go. Either way, I am sure Ray wouldn't > > have wanted to continue any longer in the shape he was in. Comfort yourself > > with the knowledge that you have done every thing you could to care for him, > > show your love for him in every way you could and advocated for him > > everytime the opportunity arose. We lived our vows to the end. We also > > realize that he will be in a better place and when we meet them again, they > > will no longer be sick! As you have had the strength to suffer along with > > him every step of the way, you will find the strength to find your way > > through the end time. It has been two years this spring and the tears came > > back as I read your post because the things you are seeing, are the things I > > saw as he faded away. Now, I think often of the things he said and did. I > > smile often as I tell a story or remember a good time we had. You may find > > as I did, that I did a lot of my grieving long before he died. Once I > > realized there were no miracle drugs, or treatments or cures --that he was > > on steep slope fading away, I cried and grieved him 6 months before he died. > > I did not know that is what was going on, but afterward, I realized and > > really handled everything very well. Jan, please know that you and Jim are > > in my prayers and thoughts as you continue down this difficult road. God > > Bless you both!! Love, Leona > > > > Leona: Caregiver for husband Ray, age 68, diagnosed 2/04 with Parkinson's > > Disease. Changed doctors, diagnosed 6/06 with LBD. Almost continual downhill > > slide no matter what drugs we try. 5/2/08 Ray was placed in Sunrise Nursing > > Home in Oswego, NY, 1 hour from home. So far, so good! Hardest thing I have > > ever done in my life, however. 3/19/09 transferred to Samaritan Keep NH in > > Watertown, NY closer to home. He passed peacefully at 5:18 am on April 14, > > 2009. I am handling it OK. > > > > ''Love is not finding someone to live with; it's finding someone you don't want > > > > > > to live without " > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2011 Report Share Posted January 19, 2011 I wanted my mom to have a feeding tube...until the doctor said that she was in the dying process. He explained that the feeding tube and the IVs for hydration was just prolonging her death. My MOm had in her legal papers that she did not want to live by artificial means...so she made her own decision, and I really believe that it was the best one. If you are thinking of a feeding tube, think over if it is for your sake to keep your LO alive longer, or if it is of some real benefit for them. Don't prolong something just because you are not ready...think about your LOs life with the feeding tube. > > > > > > Hi All, > > > My mom has also started having problems with swallowing lately. > > > And her doctor told me that we have to consider placing PEG > > > into her stomach in the very near future to protect her from having > > > aspiration pnemonia. I am wondering why it is not used in USA. > > > I wish you all strength in this journey. > > > Ferhan > > > > > > > > > > > > ________________________________ > > > From: " ppark4915@ " <ppark4915@> > > > To: LBDcaregivers > > > Sent: Tue, January 18, 2011 11:59:13 PM > > > Subject: Re: Re: Hi All - Jan > > > > > > Â > > > Hi, Jan, > > > > > > My heart aches for you. When my dad reached the stage where he no longer > > > could swallow, gave me the tip about using something cold to help > > > Dad swallow his medicine. Seroquel was the only medicine that was helpful to > > > Dad by that time and 's tip worked like a charm for him. I would > > > get Dad those Frostys from 's, and stick the pill in a tiny bite which > > > he would take. The consistency is somewhere between a milk shake and ice > > > cream which he seemed to have an easier time with. > > > > > > My thoughts and prayers are with you and Jim. I know how difficult this > > > time is for you. You have been an amazing advocate and caregiver for Jim, > > > and you will always draw peace from that. > > > > > > Sending you big hugs with all my love, > > > > > > Piper > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2011 Report Share Posted January 20, 2011 Janet - I'm so sorry to hear about Jim's decline. Please know I'll keep him & yourself in my thoughts & prayers. What a lucky man Jim has been having you by his side all these years. Had you not been there I'm certain he wouldn't still be here - you have been a wonderful caregiver and when he does leave this earth, I hope it's peaceful and you are left with nothing but beautiful memories that will help you heal. In the meantime give lots of kisses to Jim, which I'm sure you're doing. > > Dear friends, > I started in this group in 2003 and was a regular until 2006 when Jim went into > a nursing home. Some of you know me and some of you don't. I answer a few posts > now and then and I lurk and try to keep up on the latest news. > Jim is not doing well. He has swallowing issues and has stopped eating and has > lost a lot of weight. He also has horrible congestion. I hate winters and > sickness! An X-Ray was taken yesterday and it shows probable pneumonia, but they > are not sure. They faxed the information to the doctor. I have a feeling it will > not be treated since Jim put in his Health Directive many years ago when he was > in good health and sound mind that he did not want to be treated for Pneumonia > if he had severe dementia and it was to prolong his life and last May when Jim > was in the hospital with Aspiration Pneumonia, it was treated and Jim's daughter > with the POA for Jim's health and the nurse decided not to treat it next > time. Jim's daughter usually follows his wishes in the Health Directive. I have > been able to request treatment in the past for Jim, but his daughter has the > last word on the decisions. > I will call in Hospice if it will not be treated. > My emotions are all over the place seeing Jim like this. I have prepared and > known his time would come, but truly I don't know how you can prepare for > something like this. I will be scared and lost without him. How do you get > through it?! I want to hang onto him, but he is losing the battle, I can sense > it. He has been a fighter and come through so many times that I thought I was > going to lose him, but this time I don't think there is any turning back. He is > very weak from all the loss of weight. > Jim was diagnosed in 2003 with Lewy Body Dementia, but it actually came into > full bloom in 2000, the neurologist was not familiar with Lewy Body at that > time. > For those that remember I had an interview back in August by an interviewer for > a Dutch magazine on Jim's Capgras Syndrome, the magazine did come out with the > article this month, but it is in Dutch, because the interviewer was from > Amsterdam. I have a resident's daughter at the nursing home translating it for > me, they are from Amsterdam. It is 3 pages long. I tried the online translation > to English, but the English is very poor that it is almost as bad as trying to > read the Dutch. Hahahaha After it is translated, I will scan a copy to > and hopefully, she can get it across to all of you. > Last July the interviewer contacted the LBDA, as you might remember, and > and put the word out that he would be in the San Francisco Bay Area and > needed someone that he could interview in August on Capgras for the > " Psychologie " Magazine in Amsterdam. I guess I was the only one that contacted > him and said I could do it, so he met me at the nursing home where my husband is > residing. The interview was 2 1/2 hours long. He was very easy to talk to, he > had his tape recorder and asked questions and I would answer and ramble on. LOL > I told him Capgras was a symptom within Lewy Body that some have and some > don't and that it doesn't vary that much or happen everyday and that I could not > make a page for him in the magazine with just Capgras alone. I told him about > Lewy Body too, so he could connect it with Capgras, but I am not sure how the > article came out since he was assigned to do Capgras only and I have a feeling > he made some of the Lewy Body issues into Capgras issues to fill the pages. I'll > know after it is translated how he told the story. > Jan Colello > San Francisco Bay Area, California > husband, Jim dx w/LBD 2003 > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2011 Report Share Posted January 24, 2011 Hi, I have not disappeared. I spent the weekend at my mom's house with my mom and sister and now I am home to organize the " Celebration of Life Memorial " for Jim and write the obituary. When things settle down a little I will respond to all your wonderful heartfelt messages. I really appreciate the strength and warm greetings I am getting from you. Thank you all so much! Love and Hugs, Jan Quote Link to comment Share on other sites More sharing options...
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