Summer Get-Together (Chiari Bash III, 2000) Scheduled!!!

[Guest guest]

Hello Everyone....

Well it is time to make the announcement...I will again be hosting the

Summer Get-Together: Chiari Bash III, 2000. I considered the dates and last

year August interfered with many getting their children back in school; July

is the ASAP Conference so we will go back to the end of June as we had for

the very first one.

For all the new members, this will be the third summer we will get

together...Everyone is invited. and just ask anyone who came how much fun we

had. There will be four days of friends, food and fun. If you can not make

it for the four days, make if for Sat and Sun, or which ever days you can

make it for.....

..I live in Baker, Louisiana. For anyone flying in you will fly into Baton

Rouge Metro Airport (only 10 minutes from my home, just send me you flight

number and arrival time and we will be there to pick you up); or those

driving in, write me privately and I will furnish a map.

I do have some space available...not a lot as some members have already

reserved their space....(lol, right Amy Jo and ???).however there is a

Holiday Inn Express only minutes from my house. If we have enough rooms

reserved they will give us group rates.

It will be Friday, June 23, Saturday, June 24th, Sunday, June 25th and

Monday, June 26th. Last year we had lots of fun, chatting, eating, and

comparing our MRI's. Everyone learned so much from each other...It was a

blast and loved all the company.

Anyone interested please e-mail me privately with any questions you may

have...and remember you are ALL invited.

Hope to see you guys this summer::::::::::::::

Love, Hugs and Prayers, Haydee (Nana to , 8 years old w/Spina

Bifida, ACM II, Hydrocephalus w/VP Shunt,

Syringomyelia w/Syrinx @ c1-c2, G-Tube Fed (totally NPO), Swallowing

Coordination Disorder, Neurogenic Bladder, ARDS

(Lung failure) 3/30/97, 33 days on ECMO (total Lung bypass), 60 days on Life

Support, Humidified Oxygen Dependent, Radical

Trachestomy w/total Loss of Vocal Cord Use, Paralyzed from the Waist Down, 18

surgeries, Asthma, Severe Latex Allergy,

Allergies to many Medications, Adhesives, and tons of other stuff, With Such

a Wonderful Love of Life and one crazzzzy Nana living right outside

BatonRouge, Louisiana, Posterior Fossa Decompression, Opening of the Dura,

(No Graft), and c1-c2 Laminectmy, March 2, 1999...so far so good and getting

better and stronger everyday!!!)

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