Guest guest Posted January 19, 2011 Report Share Posted January 19, 2011 Sandie, I really appreciate your sharing this. I have been under the impression that it is a one way trip. It is really good to know it's not necessarily. On the new advance directive DNR (now called AND " allow natural death " ) there are three choices for the question about feeding tube: yes, limited trial time, or no. I am really glad to know that a limited trial time could be such a positive thing. Thank you J Dorothy From: LBDcaregivers [mailto:LBDcaregivers ] On Behalf Of Sandie / Sent: Wednesday, January 19, 2011 6:42 AM To: LBDcaregivers Subject: Re: feeding tubes My dad had a PEG tube inserted January 2000 and it was removed April 2000. He gained back all weight he had lost before the tube was inserted and went on to live another 2 1/2 years. Sandie Des Moines, IA dad, Merle, passed away from LBD 9-20-02, age 65 ----- feeding tubes Date: Wed, 19 Jan 2011 14:36:01 -0000 Ferhan, please know that we do use them in the U.S. It's a hard decision to make but one that is personal and depends on the circumstances at the time. Please know that the tube can be removed if the person begins eating again (though I realize this may be unlikely). It really depends on how much you perceive the person is still here with you and if you think it's best for the person as well as for you. As for using it, know that it's very easy and doesn't require much care. I can give you more information if you'd like. I wish you well. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2011 Report Share Posted January 19, 2011 kool thanks for hte info on teh new advanced directives, i hadnt researched it lately , i have the 5 wishes filled out which covers alot more than the advancded directivces does. so ineed to compare adn seei fi nee to update ro chagne mine, thaks sharon Subject: RE: feeding tubes To: LBDcaregivers Date: Wednesday, January 19, 2011, 6:15 PM  Sandie, I really appreciate your sharing this. I have been under the impression that it is a one way trip. It is really good to know it's not necessarily. On the new advance directive DNR (now called AND " allow natural death " ) there are three choices for the question about feeding tube: yes, limited trial time, or no. I am really glad to know that a limited trial time could be such a positive thing. Thank you J Dorothy From: LBDcaregivers [mailto:LBDcaregivers ] On Behalf Of Sandie / Sent: Wednesday, January 19, 2011 6:42 AM To: LBDcaregivers Subject: Re: feeding tubes My dad had a PEG tube inserted January 2000 and it was removed April 2000. He gained back all weight he had lost before the tube was inserted and went on to live another 2 1/2 years. Sandie Des Moines, IA dad, Merle, passed away from LBD 9-20-02, age 65 ----- feeding tubes Date: Wed, 19 Jan 2011 14:36:01 -0000 Ferhan, please know that we do use them in the U.S. It's a hard decision to make but one that is personal and depends on the circumstances at the time. Please know that the tube can be removed if the person begins eating again (though I realize this may be unlikely). It really depends on how much you perceive the person is still here with you and if you think it's best for the person as well as for you. As for using it, know that it's very easy and doesn't require much care. I can give you more information if you'd like. I wish you well. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2011 Report Share Posted January 20, 2011 You may benefit from reading this book while you make this tough decisions: Hard Choices " Whether the decision is about CPR, artificial feeding tubes, hospice, living wills, nursing home placement, ventilators or dialysis, these decisions can be difficult. We hope that this WebSite will provide some guidance through education about related topics like bioethics, death and dying, and the emotional and spiritual issues surrounding the end of life. " Download the 80-page book for free. http://www.hardchoices.com/ > > Hi All, > My mom has also started having problems with swallowing lately. > And her doctor told me that we have to consider placing PEG > into her stomach in the very near future to protect her from having > aspiration pnemonia. I am wondering why it is not used in USA. > I wish you all strength in this journey. > Ferhan > > > > ________________________________ > > To: LBDcaregivers > Sent: Tue, January 18, 2011 11:59:13 PM > Subject: Re: Re: Hi All - Jan > > Â > Hi, Jan, > > My heart aches for you. When my dad reached the stage where he no longer > could swallow, gave me the tip about using something cold to help > Dad swallow his medicine. Seroquel was the only medicine that was helpful to > Dad by that time and 's tip worked like a charm for him. I would > get Dad those Frostys from 's, and stick the pill in a tiny bite which > he would take. The consistency is somewhere between a milk shake and ice > cream which he seemed to have an easier time with. > > My thoughts and prayers are with you and Jim. I know how difficult this > time is for you. You have been an amazing advocate and caregiver for Jim, > and you will always draw peace from that. > > Sending you big hugs with all my love, > > Piper > > > > Quote Link to comment Share on other sites More sharing options...
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