Guest guest Posted February 3, 2011 Report Share Posted February 3, 2011 MSA plus AD is rather unusual but it can happen. (Unusual because the average age of someone who gets MSA is not typically old enough to get AD.) To what does the neurologist attribute the dementia? As you probably know, autonomic failure can occur in LBD as well as MSA, and RBD is prevalent in both disorders. Of the cases where I've assisted with brain donation, key for diagnosing LBD is the presence of visual hallucinations. It's not a required symptom as far as the LBD diagnostic criteria goes, but in many of the cases where the clinical diagnosis of LBD was not borne out by pathology, hallucinations weren't present. > > I have been a member here for a little over a year and joined when my Mom's Parkinson's diagnosis was revised to LBD. Now, over a year later, her neurologist is re-diagnosing her again, this time with MSA (Multiple Systems Atrophy). Her dementia does not fit the MSA profile, but she has every other box checked, and her dementia is not progressing at the rate that her neurologist feels she would with straight LBD. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2011 Report Share Posted February 3, 2011 hi,  daddy had high blood pressure adn was treated with that fora while then when the lbd really kicked in he wnet to orhtostatic which iw what you are descirinb, suddne postion changes cause sudden blood pressure dorps and rises which can cause falls, diszziness, 'seizure like' episodes.  daddy was then changed to hctz or is it htcz, a bp med that helps regulate the bp and also is a mild diruetic too. he did well on that, he took something else too but at thism moment my lbd is kicking in adn di dont remember it but if someone told it to me i would reconbize it.  daddy was a highly decorated searcdh and rescue helicoprter pilot for the us navy, he had top secret clearnace and did mnay 'secrte' missions in 'hot' areas during his career. howerver he did not have to go to vietnam, thank God. he has 3 presidential commendations with one being presented in washington dc by the pres in 1968 for a rescue he did in 1966 in naples italy. daddy was offered jobs with skirosky and bell helicopters as teahcer for pilots (those are the top helipcopter mfg in the world) but daddy said if he cant fly he is done. too bad he had alot of smarts he should have shared.  daddy had lbd and he could discuss the world issues but couldnt remember his address of 20 years, he remembered an address from 1960-s. he couldnt remember his telephone number now, but rememvered his parents numbrer. so i think alot of it, is just so ingrained in memeory that it isnt forgotten. my perosnl opionon.  with lbd. not every patient shows every symptom, and not every symptom appears the sme with each patient  that is why lbd is so horrible. so just because your mom sinst shwoing every single symptom of lbd doesnt surpirse me , think about it, people have the flu,  muscle aches, couging, congetsion, headche, fever, etc, but not every person will have nasal congestion somemay havce chest congestion or vice versa but they wtill ahve the flu so i don tihnk his comment is really justifed, again my Opioine,   please take care of yourself hugs. sharon Subject: MSA/LBD Diagnosis To: LBDcaregivers Date: Thursday, February 3, 2011, 9:38 AM  I have been a member here for a little over a year and joined when my Mom's Parkinson's diagnosis was revised to LBD. Now, over a year later, her neurologist is re-diagnosing her again, this time with MSA (Multiple Systems Atrophy). Her dementia does not fit the MSA profile, but she has every other box checked, and her dementia is not progressing at the rate that her neurologist feels she would with straight LBD. Her most prominent disability at this time is her wide ranging blood pressure, falling to as low as 74/38 (this morning's) to a high of 187/94 (when lying down). Most are not that high nor that low, but rarely are they in the middle anymore, ever. (Mom's bp used to be stable at about 100/65.) Incontinence is also a very big problem, along with walking, although surprisingly she can sometimes walk even when her pb is in the 80's over 50's. Mom had a master's degree from Columbia and still " reads " the New Yorker and has a phenomenal vocabulary, but completely fails the mini-mental tests. She is not delusional, although she has vivid dreams and talks in her sleep all the time. How can she not be able to write, or tell you the town she lives in, but be able to talk relatively cogently about the crisis in Egypt or health care reform? Are these simply neurological pathways so heavily used throughout her life that they are retained? She is on namenda and aricept and an antdepressant, but very little Sinemet now, just a half tab three times a day, and her tremors have almost completely disappeared, although her walking difficulties are partially complete lack of muscle control sometimes and sometimes a version of gait freezing. Sometimes she has seizure type events like described in a recent post where she goes catatonic and slumps forward. The doctors think this is a sudden drop in bp but by the time we take her blood pressure it is usually up in the range of low normal or even high normal for her and they speculate that her body has responded to the sudden drop with a sudden uptick. Anyone have any experience or thoughts on any of this? (By the way, two low blood pressure medications were discontinued because they made her highs too high.) Quote Link to comment Share on other sites More sharing options...
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