Guest guest Posted April 28, 2006 Report Share Posted April 28, 2006 Hi everyone, even up here in Canada, we AC's are not able to find the help we need... if you can talk and aren't hurting yourself or others, there are no services ... that's why I'm starting my own service for people with invisible disabilities... I hope the model we develop can be a) economically sustainable able to be adapted to different cities/countries... I've attached a draft copy (very drafty) of what I am wanting to do FYI and here is a quote that I learned when I was studying social/political issues at university " the power to label people deficient and declare them in need is the basic tool of control and oppression in modern industrialized societies of democratic and totalitarian persuasions. The agents with comprehensive labeling power in these societies are the helping professionals. Their badge bestows the caring authority to declare their fellow citizens " clients " - a class of deficient people in need. " McKnight, " The Careless Society, Community and its Counterfeits " , p 16, 1995, Basic Books, New York. http://maorinews.com/putatara/puta_034.htm I'm glad we have each other on lists like this one! autistics rock! ciao dani nannersone wrote: > >>> >>> >>>>Quite frankly (being Captain Obvious here), if you don't have a >>>>supportive family or at least one good friend, you're on your own. >>>>You'll either sink or swim, or, perhaps, just muddle by >>>> >>>> >day-to-day for > > >>>>a lifetime without the freedom either end of that particular >>>> >>>> >spectrum > > >>>>allows. It's best to not expect help from outside your own head, >>>>regardless of how badly you need it. >>>> >>>>We are square pegs in a lot more ways than just our inability to >>>> >>>> >read > > >>>>social cues and play the games. And we are, quite often, an >>>> >>>> >>inconvenience. >> >> >>>...ouch. >>> >>> >>> > > >You'll have to excuse my lack of " let's make it pretty " rhetoric on >this topic. I studied social welfare policy dysfunctions (i.e., how >the social services systems for persons with mental/physical >disabilities in the USA malfunction) in grad school for four years. >While personal experience does play into my perspective, my research >was extremely disheartening. For all practical purposes, there isn't a >universal, functioning social services network in this country. What >did exist (which wasn't stellar by any means) in the 1960s and 1970s >took tremendous budget cuts in the Reagan years and thereafter, and >funding has not been restored. > >What does exist now is a system that is severely fragmented, >underfunded, understaffed, and overloaded. There are pockets of good >services in specific areas of some states, but on the whole the >picture is dismal. The regulations and programs are often at complete >odds with each other. What's more amazing is that the general public >seems to be completely clueless on this - or, rather, they are until >they need those services and find they're not available. > >Going it on your own is better than giving up - it's not impossible to >make your way. It is just not as easy as if you have a support system. >If you have one, count your blessings. If not, that's the breaks. >You'll have to make it on your own. > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2006 Report Share Posted April 28, 2006 doh! here is the draft of the brochure I mentioned... danielle strom wrote: > Hi everyone, > >even up here in Canada, we AC's are not able to find the help we need... >if you can talk and aren't hurting yourself or others, there are no >services ... that's why I'm starting my own service for people with >invisible disabilities... I hope the model we develop can be a) >economically sustainable able to be adapted to different >cities/countries... > >I've attached a draft copy (very drafty) of what I am wanting to do FYI > >and here is a quote that I learned when I was studying social/political >issues at university > > " the power to label people deficient and declare them in need is the >basic tool of control and oppression in modern industrialized societies >of democratic and totalitarian persuasions. The agents with >comprehensive labeling power in these societies are the helping >professionals. Their badge bestows the caring authority to declare their >fellow citizens " clients " - a class of deficient people in need. " > > McKnight, " The Careless Society, Community and its Counterfeits " , p >16, 1995, Basic Books, New York. http://maorinews.com/putatara/puta_034.htm > >I'm glad we have each other on lists like this one! > >autistics rock! >ciao >dani > > >nannersone wrote: > > > >> >>>> >>>> >>>> >>>> >>>>>Quite frankly (being Captain Obvious here), if you don't have a >>>>>supportive family or at least one good friend, you're on your own. >>>>>You'll either sink or swim, or, perhaps, just muddle by >>>>> >>>>> >>>>> >>>>> >>day-to-day for >> >> >> >> >>>>>a lifetime without the freedom either end of that particular >>>>> >>>>> >>>>> >>>>> >>spectrum >> >> >> >> >>>>>allows. It's best to not expect help from outside your own head, >>>>>regardless of how badly you need it. >>>>> >>>>>We are square pegs in a lot more ways than just our inability to >>>>> >>>>> >>>>> >>>>> >>read >> >> >> >> >>>>>social cues and play the games. And we are, quite often, an >>>>> >>>>> >>>>> >>>>> >>>inconvenience. >>> >>> >>> >>> >>>>...ouch. >>>> >>>> >>>> >>>> >>>> >>You'll have to excuse my lack of " let's make it pretty " rhetoric on >>this topic. I studied social welfare policy dysfunctions (i.e., how >>the social services systems for persons with mental/physical >>disabilities in the USA malfunction) in grad school for four years. >>While personal experience does play into my perspective, my research >>was extremely disheartening. For all practical purposes, there isn't a >>universal, functioning social services network in this country. What >>did exist (which wasn't stellar by any means) in the 1960s and 1970s >>took tremendous budget cuts in the Reagan years and thereafter, and >>funding has not been restored. >> >>What does exist now is a system that is severely fragmented, >>underfunded, understaffed, and overloaded. There are pockets of good >>services in specific areas of some states, but on the whole the >>picture is dismal. The regulations and programs are often at complete >>odds with each other. What's more amazing is that the general public >>seems to be completely clueless on this - or, rather, they are until >>they need those services and find they're not available. >> >>Going it on your own is better than giving up - it's not impossible to >>make your way. It is just not as easy as if you have a support system. >>If you have one, count your blessings. If not, that's the breaks. >>You'll have to make it on your own. >> >> >> >> >> >> >> Quote Link to comment Share on other sites More sharing options...
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