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Hi

But if you have aspergers, and are intelegent, it is

not possible to get help, until you end up in a

complete mess! If you approach your GP, then he or she

says you should approach social care, when you

approach then the send you back to your GP. The truth

is nobody cares a FUCK about people with Aspergers.

DIane Kivi

--- Jane Meyerding wrote:

> Diane wrote:

> >You out there, do realise the reason for her

> addition

> >to spending money. If you are intelegent and have

> >Aspergers Syndrome, you need to have contact with

> >people. The only way for many of us to get contact

> is

> >to spend money. When we are not spending money we

> find

> >ourselves shunned by everyone.

>

> If that's what was going on in this case, then

> someone (one of the

> people paid to provide services to the disabled,

> perhaps) should have

> helped the young woman find other ways to interact

> with the world.

> Interest groups, volunteer work, whatever. Habits

> are extremely hard

> to break, and when habits have formed around special

> interests, they

> may be very very hard to break. But

> nevertheless.....

>

> Jane

>

__________________________________________________

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Guest guest

And if you're in the USA and you don't have medical insurance, you

won't get any kind of care, regardless of what your diagnosis status

is. If you do have medical insurance, it may or may not cover " mental

health conditions " - my experience is that they tend to lump Aspergers

in under that heading. Most likely not, unless they decide you're

depressed and they can slap a bottle of pills in your hand and tell

you to come back to see them in six months for a refill, if they can

fit you into the schedule.

Quite frankly (being Captain Obvious here), if you don't have a

supportive family or at least one good friend, you're on your own.

You'll either sink or swim, or, perhaps, just muddle by day-to-day for

a lifetime without the freedom either end of that particular spectrum

allows. It's best to not expect help from outside your own head,

regardless of how badly you need it.

We are square pegs in a lot more ways than just our inability to read

social cues and play the games. And we are, quite often, an inconvenience.

> > >You out there, do realise the reason for her

> > addition

> > >to spending money. If you are intelegent and have

> > >Aspergers Syndrome, you need to have contact with

> > >people. The only way for many of us to get contact

> > is

> > >to spend money. When we are not spending money we

> > find

> > >ourselves shunned by everyone.

> >

> > If that's what was going on in this case, then

> > someone (one of the

> > people paid to provide services to the disabled,

> > perhaps) should have

> > helped the young woman find other ways to interact

> > with the world.

> > Interest groups, volunteer work, whatever. Habits

> > are extremely hard

> > to break, and when habits have formed around special

> > interests, they

> > may be very very hard to break. But

> > nevertheless.....

> >

> > Jane

> >

>

>

> __________________________________________________

>

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Guest guest

>

> Quite frankly (being Captain Obvious here), if you don't have a

> supportive family or at least one good friend, you're on your own.

> You'll either sink or swim, or, perhaps, just muddle by day-to-day for

> a lifetime without the freedom either end of that particular spectrum

> allows. It's best to not expect help from outside your own head,

> regardless of how badly you need it.

>

> We are square pegs in a lot more ways than just our inability to read

> social cues and play the games. And we are, quite often, an inconvenience.

>

....ouch.

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Guest guest

> >

> > Quite frankly (being Captain Obvious here), if you don't have a

> > supportive family or at least one good friend, you're on your own.

> > You'll either sink or swim, or, perhaps, just muddle by day-to-day for

> > a lifetime without the freedom either end of that particular spectrum

> > allows. It's best to not expect help from outside your own head,

> > regardless of how badly you need it.

> >

> > We are square pegs in a lot more ways than just our inability to read

> > social cues and play the games. And we are, quite often, an

inconvenience.

> >

>

>

> ...ouch.

>

>

>

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Guest guest

> > >

> > > Quite frankly (being Captain Obvious here), if you don't have a

> > > supportive family or at least one good friend, you're on your own.

> > > You'll either sink or swim, or, perhaps, just muddle by

day-to-day for

> > > a lifetime without the freedom either end of that particular

spectrum

> > > allows. It's best to not expect help from outside your own head,

> > > regardless of how badly you need it.

> > >

> > > We are square pegs in a lot more ways than just our inability to

read

> > > social cues and play the games. And we are, quite often, an

> inconvenience.

> > >

> >

> >

> > ...ouch.

> >

You'll have to excuse my lack of " let's make it pretty " rhetoric on

this topic. I studied social welfare policy dysfunctions (i.e., how

the social services systems for persons with mental/physical

disabilities in the USA malfunction) in grad school for four years.

While personal experience does play into my perspective, my research

was extremely disheartening. For all practical purposes, there isn't a

universal, functioning social services network in this country. What

did exist (which wasn't stellar by any means) in the 1960s and 1970s

took tremendous budget cuts in the Reagan years and thereafter, and

funding has not been restored.

What does exist now is a system that is severely fragmented,

underfunded, understaffed, and overloaded. There are pockets of good

services in specific areas of some states, but on the whole the

picture is dismal. The regulations and programs are often at complete

odds with each other. What's more amazing is that the general public

seems to be completely clueless on this - or, rather, they are until

they need those services and find they're not available.

Going it on your own is better than giving up - it's not impossible to

make your way. It is just not as easy as if you have a support system.

If you have one, count your blessings. If not, that's the breaks.

You'll have to make it on your own.

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Guest guest

> Hi

>

> You out there, do realise the reason for her addition

> to spending money. If you are intelegent and have

> Aspergers Syndrome, you need to have contact with

> people. The only way for many of us to get contact is

> to spend money. When we are not spending money we find

> ourselves shunned by everyone.

i would agree with that. i was nothing like as severe as that woman,

but for a long time i overspent because shopping was the only contact

i had with people apart from my children. i sort of knew there was a

link between spending and needing to communicate but never articulated

it. i had very little money so for me it was food shopping. shoes

would be very effective though because the person who fits them spends

quite a lot of time talking to you if you are fussy about style and

fit, and if you were a known big spender, you would be treated very

respectfully no matter how odd.

merlin

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  • 2 weeks later...
Guest guest

It was 28 Apr 2006, when nannersone commented:

>

> > > >

> > > > Quite frankly (being Captain Obvious here), if you don't have a

> > > > supportive family or at least one good friend, you're on your own.

> > > > You'll either sink or swim, or, perhaps, just muddle by

> day-to-day for

> > > > a lifetime without the freedom either end of that particular

> spectrum

> > > > allows. It's best to not expect help from outside your own head,

> > > > regardless of how badly you need it.

> > > >

> > > > We are square pegs in a lot more ways than just our inability to

> read

> > > > social cues and play the games. And we are, quite often, an

> > inconvenience.

> > > >

> > >

> > >

> > > ...ouch.

> > >

>

>

> You'll have to excuse my lack of " let's make it pretty " rhetoric on

> this topic. I studied social welfare policy dysfunctions (i.e., how

> the social services systems for persons with mental/physical

> disabilities in the USA malfunction) in grad school for four years.

> While personal experience does play into my perspective, my research

> was extremely disheartening. For all practical purposes, there isn't a

> universal, functioning social services network in this country. What did

> exist (which wasn't stellar by any means) in the 1960s and 1970s took

> tremendous budget cuts in the Reagan years and thereafter, and funding has

> not been restored.

>

> What does exist now is a system that is severely fragmented,

> underfunded, understaffed, and overloaded. There are pockets of good

> services in specific areas of some states, but on the whole the

> picture is dismal. The regulations and programs are often at complete

> odds with each other. What's more amazing is that the general public

> seems to be completely clueless on this - or, rather, they are until

> they need those services and find they're not available.

>

> Going it on your own is better than giving up - it's not impossible to make

> your way. It is just not as easy as if you have a support system. If you

> have one, count your blessings. If not, that's the breaks. You'll have to

> make it on your own.

Want a rather cold-blooded take on this? The best way to get help on this

or most other conditions is to either join the military and have it impact

your service there, or have it present " caused or exacerbated by " working

conditions, so either military disability or Workers Compensation covers

it.

Gawd knows my difficulties have been exacerbated by current job --

telemarketer. Imagine being an Aspie telemarketer, or in most other sales

positions. I can manage quite well, actually. I can pretend to have some

idea what motivates the folks I'm talking to, and reason and Act my way

through the process, but it's constant labor, and I exhaust myself by the

end of the day. (You may be able to imagine how well I cope with rude or

ignorant people...) No Workers Comp claims, though, yet.

I might well have finished my schooling in (hopefully) my next job,

Medical Transcription, if I had anything left at the end of a working day

or a workweek. Almost makes me wish for a crippling illness or injury, so

I could at least focus on something that's more likely to improve my life.

--

B. , another satisfied user of

Pegasus Mail Client and Mercury MTA <http://www.pmail.com>

<ftp://ftp.usm.maine.edu/pegasus/winpmail/w32-431.exe>

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It was 29 Apr 2006, when gprobs commented:

> > You out there, do realise the reason for her addition

> > to spending money. If you are intelegent and have

> > Aspergers Syndrome, you need to have contact with

> > people. The only way for many of us to get contact is

> > to spend money. When we are not spending money we find

> > ourselves shunned by everyone.

>

> i would agree with that. i was nothing like as severe as that woman, but

> for a long time i overspent because shopping was the only contact i had

> with people apart from my children. i sort of knew there was a link

> between spending and needing to communicate but never articulated it. i

> had very little money so for me it was food shopping. shoes would be very

> effective though because the person who fits them spends quite a lot of

> time talking to you if you are fussy about style and fit, and if you were a

> known big spender, you would be treated very respectfully no matter how

> odd. merlin

I miss read your second sentence there, reading " as that woman " to be " as

a woman, " which changes the meaning a bit...

Anyway. I suspect I do something similar with Kareoke, albeit with not-so-

tragic impact. While I do love to sing, I need to do Kareoke in

particular because it puts me in a somewhat social environment, standing

up on stage and singing and appearing social without actually -being-

social.

In fact, the other night I played my Kareoke persona on stage so well I

was invited to sit with a couple of young ladies who I " know " from work,

who apparently expected me to be sociable at the table. I would have fit

in better if I'd word Mime makeup. I shortly returned to my own,

relatively private table at the far end of the bar, a cooler and quieter

place where I was left alone by the folks sharing my table, except when I

went up to sing.

That's a relatively noisy and crowded environment and could be

uncomfortable for me, but the Crowd Noises turn into a sort of white noise

below a certain volume. I stay away from the really loud, busy Kareoke

places. And I bring a book, which -usually- says, " Don't bug me, I'm

reading. " And I sing well enough that if I show up more than one weekend

in a row, the place -is- busy. So I generally don't.

But that is expensive, and I don't go more often because I can't afford

to, not because I don't miss the " social " contact with other people. I

can see, though, where that need might result in serious financial

consequences, if I had enough of other people's money to spend on my

needs.

--

B. , another satisfied user of

Pegasus Mail Client and Mercury MTA <http://www.pmail.com>

<ftp://ftp.usm.maine.edu/pegasus/winpmail/w32-431.exe>

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