Guest guest Posted April 20, 2011 Report Share Posted April 20, 2011 My condolences on your loss. > > BlankHello all, > > I have been a member of this group for, oh, over a year I guess. I have not posted much, just been a " lurker " , and I got a lot of good information from all the active members about this dreaded disease. My Dad was never officially diagnosed with LBD, but he certainly had all the signs.......the hallucinations, most specifically. He also had a blood disorder called myelodysplasia, which also took it's toll on him. > > Dad passed away this morning, mostly from complications of the MDS........his doctor thinks it turned to a type of leukemia, which MDS is very close to anyway. In these last days, his dementia also became very bad, to the point where he was pretty much unable to be understood........he didn't even know me when I last visited him while he was still conscious. Well, thankfully he didn't have to suffer long. I am an only child, so most all the arrangements and things that need to be done are up to me........my husband is my rock, and helps me tremendously, thank goodness. Also thankfully, Dad had all the arrangements made, and took care to make sure whatever could be done, he did in advance. I knew all this beforehand, but no one understands how important all that is until you have to deal with it. > > Anyway, I just wanted to let you all know that another battle against LBD has been lost (or won, however you want to look at it). I will likely be signing off the board in the next little while. I now have concerns of my Mom to worry about........she has Alzheimer's and is in another nursing home. > > Thank you all, > > Lynda Marshall > Wellandport, ON Canada > Dad, passed from LBD and other complications > April 20, 2011. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2011 Report Share Posted April 20, 2011 Lynda, You have my deepest sympathies. Remember self-care as you now worry about your Mom. Lori My Dad BlankHello all, I have been a member of this group for, oh, over a year I guess. I have not posted much, just been a " lurker " , and I got a lot of good information from all the active members about this dreaded disease. My Dad was never officially diagnosed with LBD, but he certainly had all the signs.......the hallucinations, most specifically. He also had a blood disorder called myelodysplasia, which also took it's toll on him. Dad passed away this morning, mostly from complications of the MDS........his doctor thinks it turned to a type of leukemia, which MDS is very close to anyway. In these last days, his dementia also became very bad, to the point where he was pretty much unable to be understood........he didn't even know me when I last visited him while he was still conscious. Well, thankfully he didn't have to suffer long. I am an only child, so most all the arrangements and things that need to be done are up to me........my husband is my rock, and helps me tremendously, thank goodness. Also thankfully, Dad had all the arrangements made, and took care to make sure whatever could be done, he did in advance. I knew all this beforehand, but no one understands how important all that is until you have to deal with it. Anyway, I just wanted to let you all know that another battle against LBD has been lost (or won, however you want to look at it). I will likely be signing off the board in the next little while. I now have concerns of my Mom to worry about........she has Alzheimer's and is in another nursing home. Thank you all, Lynda Marshall Wellandport, ON Canada Dad, passed from LBD and other complications April 20, 2011. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2011 Report Share Posted April 20, 2011 I am so sorry for your loss. And doubly sorry that your remaining parent is ill. Continue with us if you like, and know that we will continue to welcome you here. You have walked our path and you surely have words of wisdom for us. Be well and take care of yourself. Nan > > BlankHello all, > > I have been a member of this group for, oh, over a year I guess. I have not posted much, just been a " lurker " , and I got a lot of good information from all the active members about this dreaded disease. My Dad was never officially diagnosed with LBD, but he certainly had all the signs.......the hallucinations, most specifically. He also had a blood disorder called myelodysplasia, which also took it's toll on him. > > Dad passed away this morning, mostly from complications of the MDS........his doctor thinks it turned to a type of leukemia, which MDS is very close to anyway. In these last days, his dementia also became very bad, to the point where he was pretty much unable to be understood........he didn't even know me when I last visited him while he was still conscious. Well, thankfully he didn't have to suffer long. I am an only child, so most all the arrangements and things that need to be done are up to me........my husband is my rock, and helps me tremendously, thank goodness. Also thankfully, Dad had all the arrangements made, and took care to make sure whatever could be done, he did in advance. I knew all this beforehand, but no one understands how important all that is until you have to deal with it. > > Anyway, I just wanted to let you all know that another battle against LBD has been lost (or won, however you want to look at it). I will likely be signing off the board in the next little while. I now have concerns of my Mom to worry about........she has Alzheimer's and is in another nursing home. > > Thank you all, > > Lynda Marshall > Wellandport, ON Canada > Dad, passed from LBD and other complications > April 20, 2011. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2011 Report Share Posted April 21, 2011 My condolences on the loss of your dad. I'm glad you found this board useful to you during the journey. We all know how this journey ends, but it doesn't make it any easier when it happens. > > BlankHello all, > > I have been a member of this group for, oh, over a year I guess. I have not posted much, just been a " lurker " , and I got a lot of good information from all the active members about this dreaded disease. My Dad was never officially diagnosed with LBD, but he certainly had all the signs.......the hallucinations, most specifically. He also had a blood disorder called myelodysplasia, which also took it's toll on him. > > Dad passed away this morning, mostly from complications of the MDS........his doctor thinks it turned to a type of leukemia, which MDS is very close to anyway. In these last days, his dementia also became very bad, to the point where he was pretty much unable to be understood........he didn't even know me when I last visited him while he was still conscious. Well, thankfully he didn't have to suffer long. I am an only child, so most all the arrangements and things that need to be done are up to me........my husband is my rock, and helps me tremendously, thank goodness. Also thankfully, Dad had all the arrangements made, and took care to make sure whatever could be done, he did in advance. I knew all this beforehand, but no one understands how important all that is until you have to deal with it. > > Anyway, I just wanted to let you all know that another battle against LBD has been lost (or won, however you want to look at it). I will likely be signing off the board in the next little while. I now have concerns of my Mom to worry about........she has Alzheimer's and is in another nursing home. > > Thank you all, > > Lynda Marshall > Wellandport, ON Canada > Dad, passed from LBD and other complications > April 20, 2011. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2011 Report Share Posted April 21, 2011 Lynda, I'm so sorry for your loss. My prayers are with you. Jannis, daughter of , 82, who won her battle with LBD on March 16, 2011 > > BlankHello all, > > I have been a member of this group for, oh, over a year I guess. I have not posted much, just been a " lurker " , and I got a lot of good information from all the active members about this dreaded disease. My Dad was never officially diagnosed with LBD, but he certainly had all the signs.......the hallucinations, most specifically. He also had a blood disorder called myelodysplasia, which also took it's toll on him. > > Dad passed away this morning, mostly from complications of the MDS........his doctor thinks it turned to a type of leukemia, which MDS is very close to anyway. In these last days, his dementia also became very bad, to the point where he was pretty much unable to be understood........he didn't even know me when I last visited him while he was still conscious. Well, thankfully he didn't have to suffer long. I am an only child, so most all the arrangements and things that need to be done are up to me........my husband is my rock, and helps me tremendously, thank goodness. Also thankfully, Dad had all the arrangements made, and took care to make sure whatever could be done, he did in advance. I knew all this beforehand, but no one understands how important all that is until you have to deal with it. > > Anyway, I just wanted to let you all know that another battle against LBD has been lost (or won, however you want to look at it). I will likely be signing off the board in the next little while. I now have concerns of my Mom to worry about........she has Alzheimer's and is in another nursing home. > > Thank you all, > > Lynda Marshall > Wellandport, ON Canada > Dad, passed from LBD and other complications > April 20, 2011. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2011 Report Share Posted April 21, 2011 Lynda, My condolences on the loss of your father. Sending you and your family much strength. Courage From: Lynda Marshall Sent: Wednesday, April 20, 2011 10:31 PM To: LBDcaregivers Subject: My Dad BlankHello all, I have been a member of this group for, oh, over a year I guess. I have not posted much, just been a " lurker " , and I got a lot of good information from all the active members about this dreaded disease. My Dad was never officially diagnosed with LBD, but he certainly had all the signs.......the hallucinations, most specifically. He also had a blood disorder called myelodysplasia, which also took it's toll on him. Dad passed away this morning, mostly from complications of the MDS........his doctor thinks it turned to a type of leukemia, which MDS is very close to anyway. In these last days, his dementia also became very bad, to the point where he was pretty much unable to be understood........he didn't even know me when I last visited him while he was still conscious. Well, thankfully he didn't have to suffer long. I am an only child, so most all the arrangements and things that need to be done are up to me........my husband is my rock, and helps me tremendously, thank goodness. Also thankfully, Dad had all the arrangements made, and took care to make sure whatever could be done, he did in advance. I knew all this beforehand, but no one understands how important all that is until you have to deal with it. Anyway, I just wanted to let you all know that another battle against LBD has been lost (or won, however you want to look at it). I will likely be signing off the board in the next little while. I now have concerns of my Mom to worry about........she has Alzheimer's and is in another nursing home. Thank you all, Lynda Marshall Wellandport, ON Canada Dad, passed from LBD and other complications April 20, 2011. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2011 Report Share Posted April 21, 2011 Dear Lynda, condolences to you on the loss of your dad. My mom also prepared as much as she could beforehand and it made an enormous difference in the planning and coping that comes after a death. You have much to deal with now with healing from this journey while coping with your mom's condition. Strength to you as you move through this difficult time in your life. (I used to live in Oakville, not too far from you!) > > BlankHello all, > > I have been a member of this group for, oh, over a year I guess. I have not posted much, just been a " lurker " , and I got a lot of good information from all the active members about this dreaded disease. My Dad was never officially diagnosed with LBD, but he certainly had all the signs.......the hallucinations, most specifically. He also had a blood disorder called myelodysplasia, which also took it's toll on him. > > Dad passed away this morning, mostly from complications of the MDS........his doctor thinks it turned to a type of leukemia, which MDS is very close to anyway. In these last days, his dementia also became very bad, to the point where he was pretty much unable to be understood........he didn't even know me when I last visited him while he was still conscious. Well, thankfully he didn't have to suffer long. I am an only child, so most all the arrangements and things that need to be done are up to me........my husband is my rock, and helps me tremendously, thank goodness. Also thankfully, Dad had all the arrangements made, and took care to make sure whatever could be done, he did in advance. I knew all this beforehand, but no one understands how important all that is until you have to deal with it. > > Anyway, I just wanted to let you all know that another battle against LBD has been lost (or won, however you want to look at it). I will likely be signing off the board in the next little while. I now have concerns of my Mom to worry about........she has Alzheimer's and is in another nursing home. > > Thank you all, > > Lynda Marshall > Wellandport, ON Canada > Dad, passed from LBD and other complications > April 20, 2011. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2011 Report Share Posted April 21, 2011 Dear Lynda What a difficult journey you have walked with your dad. I am so sorry that your grieving for him is tempered by your concerns for your mother. I trust you have the opportunity to be gentle with yourself in the next few days. I'm so glad you have such loving support from your husband. Take care. Elaine, from Sydney, Australia (My husband Jim died from LBD on 12th February 2011) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2011 Report Share Posted April 21, 2011 Lynda, My condolences to you. It seems you will hardly have time to catch your breath before you are back at caregiving. I hope you take a bit of time for yourself one way or another. It is good your Dad could take care of some things so you would have less to deal with as until you are up against it, it is hard to realize how much needs to be done. Take care and stay with us if we can be supportive for you. Many hugs, Donna R Cared for Mom 3 years in my home and the last year at a nh. She passed away from LBD in 2002. My Dad BlankHello all, I have been a member of this group for, oh, over a year I guess. I have not posted much, just been a " lurker " , and I got a lot of good information from all the active members about this dreaded disease. My Dad was never officially diagnosed with LBD, but he certainly had all the signs.......the hallucinations, most specifically. He also had a blood disorder called myelodysplasia, which also took it's toll on him. Dad passed away this morning, mostly from complications of the MDS........his doctor thinks it turned to a type of leukemia, which MDS is very close to anyway. In these last days, his dementia also became very bad, to the point where he was pretty much unable to be understood........he didn't even know me when I last visited him while he was still conscious. Well, thankfully he didn't have to suffer long. I am an only child, so most all the arrangements and things that need to be done are up to me........my husband is my rock, and helps me tremendously, thank goodness. Also thankfully, Dad had all the arrangements made, and took care to make sure whatever could be done, he did in advance. I knew all this beforehand, but no one understands how important all that is until you have to deal with it. Anyway, I just wanted to let you all know that another battle against LBD has been lost (or won, however you want to look at it). I will likely be signing off the board in the next little while. I now have concerns of my Mom to worry about........she has Alzheimer's and is in another nursing home. Thank you all, Lynda Marshall Wellandport, ON Canada Dad, passed from LBD and other complications April 20, 2011. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2011 Report Share Posted April 22, 2011 Dear Lynda, My sincere condolences on your Dad's passing. You certainly have your hands full. Helene in NY (Mom 77 about 11 years with LBD) > > BlankHello all, > > I have been a member of this group for, oh, over a year I guess. I have not posted much, just been a " lurker " , and I got a lot of good information from all the active members about this dreaded disease. My Dad was never officially diagnosed with LBD, but he certainly had all the signs.......the hallucinations, most specifically. He also had a blood disorder called myelodysplasia, which also took it's toll on him. > > Dad passed away this morning, mostly from complications of the MDS........his doctor thinks it turned to a type of leukemia, which MDS is very close to anyway. In these last days, his dementia also became very bad, to the point where he was pretty much unable to be understood........he didn't even know me when I last visited him while he was still conscious. Well, thankfully he didn't have to suffer long. I am an only child, so most all the arrangements and things that need to be done are up to me........my husband is my rock, and helps me tremendously, thank goodness. Also thankfully, Dad had all the arrangements made, and took care to make sure whatever could be done, he did in advance. I knew all this beforehand, but no one understands how important all that is until you have to deal with it. > > Anyway, I just wanted to let you all know that another battle against LBD has been lost (or won, however you want to look at it). I will likely be signing off the board in the next little while. I now have concerns of my Mom to worry about........she has Alzheimer's and is in another nursing home. > > Thank you all, > > Lynda Marshall > Wellandport, ON Canada > Dad, passed from LBD and other complications > April 20, 2011. > > > > Quote Link to comment Share on other sites More sharing options...
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