Re: LBD vs Alzheimers

[Guest guest]

tony,

I wouldn't leave the group to soon.. I would question if this MD knows what he

is talking about. My Mom had the Alzheimers diagnosis too. I had to find out

for myself she didn't.

Is she falling at all? I didn't even know Mom was falling except for once, but

it appears she had lots of falls. On one occasion she said to me, " I know how

to fall. " and she did. She meant so she wouldn't get hurt. That really

surprised me. There are many who don't even know what LBD is and the thing that

makes me wonder is the B 12 shot. That is an old remedy that is real

questionably. It doesn't hurt anything. And you can try Aricept. My Mom

couldn't even tolerate that.

The med intolerance is another indicator of LBD.

If you go into our files in the recent Welcome email sent out, I think

she has a whole section on LBD and how it can be found. I will see if I can

find my saved articles that might throw some light on it for you

I found a Neurologist just like that and he nearly destroyed Mom with meds.

Just my opinion. Who indicated it was LBD?

Hugs,

Donna R

Cared for Mom 3 years in my home and the last year at a nh. She passed away

from LBD in 2002.

LBD vs Alzheimers

Hello all,

A month or so ago my mother's Neuro Psych leaned towards LBD but would not

commit until the neurologist examined her.� This week the neurologist appt.

came

and went and he thinks it's the onset of Alzheimers.� He's recommended a B12

regimine and Aracep (or something like that).� I'm a little confused as to the

two different diagnosis.� He felt an MRI was not needed at this time and his

Alzheimer diagnosis was determined by certain test etc.� I was not present

since

I live in Texas and mom is in Tucson.

Any comments are welcomed.� It looks like I might have to head to another

group

for alzheimers.�

Please respond.

Thank you.

[Guest guest]

Tony -

It would probably be useful to go to lbda.org, click on " Learn about LBD " and

then on " Is it LBD or something else? " There you will find information to help

you and your brothers as you compare your mom's symptoms to those outlined in

the article. Misdiagnosis is common with LBD because some of the symtoms of LBD

are like Alzheimer's and others are like Parkinson's. My mom was diagnosed with

Parkinson's three years before her LBD diagnosis. I was doing some reading on my

own and ran across information about LBD. The more I read, the more convinced I

was that was what we were dealing with. A new neurologist confirmed my

suspicions. Does your mom have fluctuating congition & alertness, problems with

motor skills, sleep disturbances, hallucinations, medication sensitivity? As you

will see in the above mentioned article, those symptoms point to LBD. Good luck

and keep asking questions. You and your brothers are your mom's best advocates.

Warmly, Katy

[Guest guest]

Mom is not falling and does not have a gait or muscle rigidity.  She does have

memory loss, confusion, hallucinations that she believes are real and the neuro

psych leaned towards LBD.  I don't know of any med intolerance as of yet.

Thanks

________________________________

To: LBDcaregivers

Sent: Thu, February 10, 2011 10:33:31 AM

Subject: Re: LBD vs Alzheimers

 

tony,

I wouldn't leave the group to soon.. I would question if this MD knows what he

is talking about. My Mom had the Alzheimers diagnosis too. I had to find out for

myself she didn't.

Is she falling at all? I didn't even know Mom was falling except for once, but

it appears she had lots of falls. On one occasion she said to me, " I know how to

fall. " and she did. She meant so she wouldn't get hurt. That really surprised

me. There are many who don't even know what LBD is and the thing that makes me

wonder is the B 12 shot. That is an old remedy that is real questionably. It

doesn't hurt anything. And you can try Aricept. My Mom couldn't even tolerate

that.

The med intolerance is another indicator of LBD.

If you go into our files in the recent Welcome email sent out, I think

she has a whole section on LBD and how it can be found. I will see if I can find

my saved articles that might throw some light on it for you

I found a Neurologist just like that and he nearly destroyed Mom with meds.

Just my opinion. Who indicated it was LBD?

Hugs,

Donna R

Cared for Mom 3 years in my home and the last year at a nh. She passed away from

LBD in 2002.

LBD vs Alzheimers

Hello all,

A month or so ago my mother's Neuro Psych leaned towards LBD but would not

commit until the neurologist examined her.� This week the neurologist appt.

came

and went and he thinks it's the onset of Alzheimers.� He's recommended a

B12

regimine and Aracep (or something like that).� I'm a little confused as to

the

two different diagnosis.� He felt an MRI was not needed at this time and

his

Alzheimer diagnosis was determined by certain test etc.� I was not present

since

I live in Texas and mom is in Tucson.

Any comments are welcomed.� It looks like I might have to head to another

group

for alzheimers.�

Please respond.

Thank you.