attn: Deepta

May 6, 2000

What you said about " Doesn't matter... things resolve at their own pace,

at their own time " really hit home for me. I know I can't do everything

that could possibly be done for Aubrie. And I can't see into the future

to know which things will make the most difference and which will not

help at all. So I have to do my best and not worry about it. I also

have to balance giving her a " normal " childhood and giving her all the

best interventions. It's really nerve-racking, tiring, and discouraging

cuz I feel like I will never win. There will always be regrets and

questions.

Michele W

mom to Aubrie (29 mos) CHaRgE and (8 yrs), wife to DJ, in IL

west@...

May 6, 2000

,

The balancing act can be hell sometimes. Between therapies,

appts and school stuff, even tho most of Aari's medical problems

now are pretty reasonable (as reasonable as CHARGE gets <G>),

there are times I just take a break from it all. You get the ST who

says " you need to do this an hr a day " and the OT saying " you

need to do this every two hrs " and docs that want appts every six

months just to look at him and ask how it's going what happens to

life ?? l like you I have a hubby and another kid in the home we are

a family and sometimes I just say the heck with it.. it's break time

and make it family time. We usually do this in the summer

because the boys are on vacation, we like to go and do stuff and

just hang out.

as for the SI issues take it as you can, do what you can but unless

it's interfereing with her life as she is does it really need to be an

intensive thing ? Rocking is such a normal thing for a kiddo with

vision and/or hearing problems. Aari used to rock and spin, the

rocking has subsided some but he's still spinning, it's a vestibular/

sensory imput thing with him.

Hey girl, you're doing OK.....

Casey

Mom to Dawn 21 HH, Ken 10 ADHD, 8 CHARGE

ICQ 728514 AIM ZeeCasey

CHARGE Web Page:

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