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Autism and Charge

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Casey wrote:

> I have to say I agree with you.. they have, at school, also been

> talking about putting Aari on " meds " because he has some

> behaviors they don't like....

> ...I have to wonder how much of it is a learned thing with him,

> living with a very hyper ADHD brother and in a class with a kiddo

> with autism, a kiddo with PDD, a kiddo with TBI who has some

> very outragious behaviors and so on (thankfully he isn't in this class

> all day, I'm sure it would be worse if he was).. these kids gets

> attention for theses behaviors so why not do them if you want

> attention. A lot of his behaviors he does in class he does not do at

> home.

Casey:

I'd tend to agree that much of Aari's behaviors could be due to copying

others in the classroom. We ('s teacher, myself and other family

members) have always said what a mimic is. And Judith Bluestone

commented during her evaluation that was a smart little cookie, and

that is probably because she learned so much through her copying.

At her ACR, the teacher said that it is not in 's nature NOT to copy.

Sort of by accident was in a class last year that had kids with some

behavioral issues. would copy them simply because she could not

stop herself. He felt there was no attempt at attention-getting, just

learning. said he feels is " compelled to copy " . He

recommends that a concerted effort be made for to be placed in a

classroom with better role models for appropriate behaviors next year.

The copying was one reason I refused to place her in the township's schools

instead of the Deaf School. The township school would have placed her in

with autistic behaviors, a child with severe (almost non-responsive) CP,

etc. At the Deaf School she is in an inclusive environment. She and the

teacher just got the luck of the draw that so many children with behavior

issues were put together.

I'd really dig my heels in about meds for behaviors for Aari. I've heard,

seen, read, and spoken with many CHARGErs' parents who say that their child

copies all the time. Makes sense that maybe the origins of some behaviors

are a result of " peer input " and copying, as opposed to inherent behavior

issues.

Just my 2 cents worth!

Friends in CHARGE,

Marilyn Ogan

Mom of Ken (10) and (7 - CHARGE+), Wife of Rick

Indianapolis, IN

oganm@...

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In a message dated 6/12/00 7:54:18 PM Eastern Daylight Time, oganm@...

writes:

<< Makes sense that maybe the origins of some behaviors

are a result of " peer input " and copying, as opposed to inherent behavior

issues. >>

Only my 2 cents but my son Mark has never really gave a hoot what the others

were up too. He pretty much does his own thing. Not much into mimicking

others. He was at the center for severely impaired several times and this

concern came up but it doesn't seem to affect him a whole lot. He will be

back there for the summer because it is the only building with summer

services.

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Marilyn & everyone else re behaviors, meds, etc:

I remember something Judith Bluestone said (many of you know her & Handle

Institute): ALL behaviors are for a reason. they are trying to tell us

something or deal with something in their own way.

I think also they are using their own coping mechanisms, whether stim-ing,

etc. They need to work through this, and meds does not afford them this

opportunity.

Food for thought... Barbra M

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In a message dated 6/13/2000 7:48:58 AM Pacific Daylight Time,

charge@... writes:

<<

Oh and the latest from the school.. Aari can't go on the swim trip

tomorrow unless I go too... seems the reg ed teachers are afraid

something might happen to him with 60 other kids there.. hmm

interesting that they are worried about him but not the 20 or more

kids that will be going that can't swim (Aari can).. as far as I know

the other SPED kids that are going don't have to have their Mom's

with them.. sheeshe... off tot he school this morn to figure this one

out..

>>

CASEY,

Hi, we met in Houston...This sounds VERY familiar. I was a bit insulted when

's 5th grade teacher said she was afraid to take on the class trip

to Yosemite. She was afraid he'd slip off an icy hill or something. Neither

his Dad nor I could go, so missed out, then had to sit there in class

and see their slide show of how fun it was. GRRR. This year his 6th grade

class went to Astro camp. Again the teacher (a different, great one0 called

me in and said she had some concerns about going. I stated again we

couln't go, but that was going, and if they needed an aide for him, they

were welcome to do that. Turns out they took his resource teacher to help

him. On return, they all said he was fantastic the whole time! :-)

FWIW, Barbra

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Larry has been schooled in special ed nearly the whole time and has been

surrounded by children with lots of odd behaviours but has never mimicked.

His tics where always his own and always triggered by an intolerance to

medication.

Jan Hewitson

Re: Autism and Charge

> In a message dated 6/12/00 7:54:18 PM Eastern Daylight Time, oganm@...

> writes:

>

> << Makes sense that maybe the origins of some behaviors

> are a result of " peer input " and copying, as opposed to inherent behavior

> issues. >>

> Only my 2 cents but my son Mark has never really gave a hoot what the

others

> were up too. He pretty much does his own thing. Not much into mimicking

> others. He was at the center for severely impaired several times and this

> concern came up but it doesn't seem to affect him a whole lot. He will be

> back there for the summer because it is the only building with summer

> services.

>

>

>

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>

> For information about the CHARGE Syndrome

> Foundation or to become a member please

> contact marion@... or visit

> the CHARGE Syndrome Foundation web page

> at http://www.chargesyndrome.org

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Marilyn,

Believe me Aari wont be put on meds, his doc disagrees with the

school so that's no problem, even the new school district

psychologist disagrees with the teachers and principal. Ran into a

mom at the grocery store last night and she was having a coniption

about her son (autistic) and Aari, seems they have a problem when

near each other.. Aari doesn't like him and will ignore him but the

kido has a thing about poking people lately and when he pokes

Aari he responds... well DUH if I was 8yo and some kids was

poking and hitting me I'd respond too.. I asked her what I was

supposed to do tell Aari to stand there and let the kid bruise him

up ? So I'm working on Aari just staying away from he kid.. His

aide says he tries but this kid focuses on Aari, he's also taken to

trying to poke me when I put Aari on the bus in the morn.

Oh and the latest from the school.. Aari can't go on the swim trip

tomorrow unless I go too... seems the reg ed teachers are afraid

something might happen to him with 60 other kids there.. hmm

interesting that they are worried about him but not the 20 or more

kids that will be going that can't swim (Aari can).. as far as I know

the other SPED kids that are going don't have to have their Mom's

with them.. sheeshe... off tot he school this morn to figure this one

out..

Casey

Mom to Dawn 21 HH, Ken 10 ADHD, 8 CHARGE

ICQ 728514 AIM ZeeCasey

CHARGE Web Page:

http://www.geocities.com/Heartland/1220

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Bonnie,

Thanks, Aari sounds a lot like Patti... I have been wondering about

insisting on a reg ed placement with a teacher that is receptive and

more structured.. I love his teacher but with all that's going on in

that classroom it's not real structured and I'm constantly telling her

that she has got to stop babying him. The teacher he's going to

have for summer school has a totally different way of teaching so

we'll see if that makes a difference.

Casey

Mom to Dawn 21 HH, Ken 10 ADHD, 8 CHARGE

ICQ 728514 AIM ZeeCasey

CHARGE Web Page:

http://www.geocities.com/Heartland/1220

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Barbra,

I guess what is getting to me is that they are sounding more and

more like they are hiding their ignorance and fear behind their

" concern " .. for crying out loud they are going swimming in a pool

with 2 lifeguards, less than half a mile from my house, I have a cell

phone and a pager, it'snot like they couldn't get a hold of me.. why

not give it a try ?? and then holler at me if it's not working (which I

know it will, heck this is the kid that jumped off the side of our boat

a couple weeks ago in the middle of the lake, he's not gonna be

intimidated by a swimming pool)

I'm going down to the school in a bit and will let you all know how

this one pans out..

Casey

Mom to Dawn 21 HH, Ken 10 ADHD, 8 CHARGE

ICQ 728514 AIM ZeeCasey

CHARGE Web Page:

http://www.geocities.com/Heartland/1220

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In a message dated 6/13/2000 8:57:23 AM Pacific Daylight Time,

charge@... writes:

<<

I'm going down to the school in a bit and will let you all know how

this one pans out..

>>

good luck Casey. He HAS to go, they need to see... Barbra

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