Guest guest Posted April 11, 2011 Report Share Posted April 11, 2011 , I am a daughter of a LBD patient and I have been getting updates, so don't know what's wrong. , daughter of Ralph 81 y/o with LBD. > > does anyone know if After LBD group is still active? I've been letting folks know about it - but someone replied back to me that she wasn't able to join... I tested it by asking to join and to please respond w/ a yay/nay if they were active but didn't hear back from anyone... If someone here is part of that group also, could you let me know if it's still active? THANKS (know it's for spouses only and been only referring spouses to it...) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2011 Report Share Posted April 11, 2011 , I wasn't clear from some info I got a long while ago, they were only taking in the group that had been together for a long time. I thought you had heard something different when you were referring people to it. Donna R Cared for Mom 3 years in my home and the last year at a nh. She passed away from LBD in 2002. Other Yahoo group does anyone know if After LBD group is still active? I've been letting folks know about it - but someone replied back to me that she wasn't able to join... I tested it by asking to join and to please respond w/ a yay/nay if they were active but didn't hear back from anyone... If someone here is part of that group also, could you let me know if it's still active? THANKS (know it's for spouses only and been only referring spouses to it...) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2011 Report Share Posted April 11, 2011 I belong to the LBD spouses group and they occasionally mention the After Lewy group. I think that if you go to the LBD association site, then to Discussion Forum and then send an e mail to Irene Selak moderator, you will have found the contact that you need. Good Luck Peggy S in Spokane, wife of 53 years to Don lbd > > , > > I wasn't clear from some info I got a long while ago, they were only taking in the group that had been together for a long time. > > I thought you had heard something different when you were referring people to it. > > > Donna R > > Cared for Mom 3 years in my home and the last year at a nh. She passed away from LBD in 2002. > > > Other Yahoo group > > does anyone know if After LBD group is still active? I've been letting folks know about it - but someone replied back to me that she wasn't able to join... I tested it by asking to join and to please respond w/ a yay/nay if they were active but didn't hear back from anyone... If someone here is part of that group also, could you let me know if it's still active? THANKS (know it's for spouses only and been only referring spouses to it...) > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2011 Report Share Posted April 13, 2011 Thanks Peggy - you were right - it is Irene Selak who moderates the After_LBD group - and it's still active. Robin - here's the info: After_LBD Group (spouses only) Another Yahoo group for spouses whose LOs with LBD have passed away. http://health.groups.yahoo.com/group/after_LBD/join > > > > , > > > > I wasn't clear from some info I got a long while ago, they were only taking in the group that had been together for a long time. > > > > I thought you had heard something different when you were referring people to it. > > > > > > Donna R > > > > Cared for Mom 3 years in my home and the last year at a nh. She passed away from LBD in 2002. > > > > > > Other Yahoo group > > > > does anyone know if After LBD group is still active? I've been letting folks know about it - but someone replied back to me that she wasn't able to join... I tested it by asking to join and to please respond w/ a yay/nay if they were active but didn't hear back from anyone... If someone here is part of that group also, could you let me know if it's still active? THANKS (know it's for spouses only and been only referring spouses to it...) > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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